Literature Review

New Health Equity Guide from Center to Advance Palliative Care provides a roadmap to transform care for black patients with serious illness Cision PRWeb; by Center to Advance Palliative Care; 11/13/24 Having medical concerns dismissed, not being believed when reporting pain, and facing multiple barriers to care are just three of the experiences reported to Center to Advance Palliative Care (CAPC) in a focus group of Black patients with serious illness. In fact, when Black people in the United States are living with a serious illness like cancer, heart failure, or dementia, they experience disproportionately high suffering compared to white patients—often due to poor pain management, low-quality communication from their care teams, and high family caregiver burden. To address these inequities, CAPC has released a new, comprehensive guide, Advancing Equity for Black Patients with Serious Illness, to equip palliative care leaders and health equity change agents with practical tools to implement meaningful change. Drawn from research, examples of health equity initiatives from across the country, and the wisdom of health equity leaders, the guide provides a practical roadmap for transforming care for Black patients, and their families and caregivers.

Gilchrist’s commitment: Bridging the gap in hospice care for minority communities Afro News - The Black Media Authority; 11/11/24 Equitable access to hospice care remains a critical issue, particularly in minority communities where disparities persist. Black Americans, for instance, continue to be underrepresented in hospice and palliative care services despite ongoing efforts to bridge the gap. Gilchrist, a trusted provider of end-of-life care for more than 30 years, is committed to addressing this inequity head-on. ... Veterans also face disparities in hospice care, especially African American veterans, who make up 12.4% of the veteran population, ... At the heart of Gilchrist’s commitment to serving Black communities in Baltimore lies the William L. and Victorine Q. Adams Gilchrist Center Baltimore. Named after two African American pillars of the local community, this state-of-the-art facility at Stadium Place on East 33rd Street serves as a beacon of hope for residents of Baltimore City and their families.

Location of pediatric deaths in the US JAMA Network - JAMA Pediatrics; by Sarah H. Cross, PhD, MSW, MPH; Khaliah A. Johnson, MD; Maura A. Savage, MSW; Dio Kavalieratos, PhD; 11/11/24Historically, most seriously ill children in the US have died in hospitals despite a presumed preference for home death. Among the general population, home and hospice facility deaths have increased in the past 2 decades, whereas hospital and nursing facility deaths have decreased; however, recent patterns in location of pediatric deaths are unknown.

[Global] Palliative care integration into humanitarian settings ten years since the resolution

Your overall leadership success comes down to 2 simple strategies, say experts: These strategies should be top of mind as you plan ahead for 2025. Inc.; by Marcel Schwantes; 11/5/24 In 2001, Anne Mulcahy suddenly found herself in charge at Xerox as its CEO right when the company was going through a major financial crisis. In previous interviews, she mentioned that one of the first things she did was pick up the phone and call Warren Buffett for advice. Buffett, the CEO of Berkshire Hathaway, told Mulcahy: “Focus on your customers, and lead your people like their lives depend on your success.” Buffett’s advice was exactly what helped Xerox pull through. The first part of this two-part strategy—focusing on customers—was key. Mulcahy often quotes Xerox founder Joe Wilson, who said, “Customers decide whether we have jobs or not. Their attitude is what makes or breaks us.” But the second part of Buffett’s advice often doesn’t get enough attention. Regarding good leadership, taking care of your employees first is the best way to win over your customers. Happy employees lead to happy customers.

Why home health deserts are spreading across rural states Modern Healthcare; by Diane Eastabrook; 11/1/24 Home health deserts are increasing at an alarming rate across some rural states as home health companies close or reduce services due to financial challenges. Home health companies in Maine, Nebraska and Minnesota say a proposed Medicare rate cut, low Medicare Advantage reimbursements and workforce shortages are forcing them to make difficult business decisions — leaving many communities with limited access or no access to post-acute care in the home. ...  Approximately 800 home health providers have closed over the past five years, according to the National Alliance for Care at Home, a trade group that represents the industry. Alliance CEO Dr. Steve Landers mostly blames a Medicare home health payment model that went into effect in 2020 for reducing Medicare reimbursements and causing financial stress for providers. “While closures are significant, we are also getting reports that providers are restricting the territory they serve as a first step to addressing their financial stresses,” Landers said in an email. “This appears to be especially concerning in rural areas where no other provider is available to step in.”

Busting myths about hospice care: Dr. Laura Godinez Cleveland.com, Cleveland, OH; by guest columnist Dr. Laura Godinez, MD, an associate medical director fo  Hospice of the Western Reserve; 11/3/24 In an era in which misconceptions about hospice care persist, it’s crucial to set the record straight. Let’s address some common myths.

National Care at Home Month 2024: Celebrating Care at Home in November National Alliance for Care at Home (formerly NAHC and NHPCO); 10/31/24 National Care at Home Month celebrates and supports paid and unpaid caregivers and builds on the existing work of National Family Caregivers Month. Customizable templates are available now. ... The National Alliance for Care at Home brings together two legacy organizations – the National Association for Home Care & Hospice and the National Hospice and Palliative Care Organization – representing, advocating for, educating, and connecting providers of care in the home for millions of disabled, elderly, and dying Americans who depend on that care. ... To represent this strength in unity, the Alliance is introducing National Care at Home Month, an annual observance recognized each November to inspire outreach to communities, media, and policymakers, recognize the valuable contributions of provider staff and volunteers, and continue building awareness of the home care continuum. To this end, we are paying special attention to different types of care at different points throughout November.

Palliative care in the ED reduces costs, improves patient outcomes Hospice News; by Jim Parker; 10/28/24 The presence of an embedded palliative care practitioner in the emergency department can significantly improve patient outcomes and reduce costs. A pilot program at the Michigan-based Corewell Health system in which a palliative physician was embedded in the ED effectively reduced inpatient mortality, readmissions, intensive care unit utilization and the total cost of care, while also boosting staff satisfaction, Lisa VanderWel, senior director for Corewell Health Hospice and Palliative Care, said during a presentation at the National Hospice and Palliative Care Organization (NHPCO) Annual Leadership Conference in Denver. ... “When you do really good palliative care, what happens?” she said during the presentation. “You have those [goals-of-care] conversations in a more timely manner. You have an earlier conversion to hospice. You avoid all the stress and crisis that’s involved if you wait until the last minute.”

Advance Directives: How to make sure your end-of-life decisions are followed Bottom Line Inc; by Mathew D. Pauley, JD; 10/24/24 Nearly 40% of older Americans have some form of advance directives, such as a living will to communicate wishes about life-saving treatment…or a medical power of attorney appointing a loved one as proxy if they’re incapacitated.  Problem: Your wishes may not always be followed in real-world situations. Examples: Emergency paramedics typically provide CPR to restart a patient’s heart even if that patient’s living will says otherwise. And complex medical circumstances at the end of life often arise that force your loved ones to make judgment calls about what you really want. Bottom Line Personal spoke to clinical ethicist Mathew Pauley about how to make sure hospitals, medical providers and family members follow your medical wishes.

Busting palliative care misconceptions in cancer care Cure; by Alex Biese; 10/22/24 Palliative care can serve a crucial function for patients living with serious illnesses such as cancer, as an expert explained in an interview with CURE®. “Palliative care is sub-specialized health care for patients living with serious illness, where we're really focused on alleviating the symptoms and the stress associated with illness, and our goal is to improve quality of life for patients and their families,” said Dr. Cari Low of the University of Utah Huntsman Cancer Institute. ... However, some misconceptions persist regarding palliative care — most prominently that it is synonymous with hospice care. ... "We [i.e., palliative care] follow patients from the time of diagnosis through their curative cancer treatment and throughout their journey and into survivorship. ... Hospice is really focused on end-of-life care and comfort when cancer treatments no longer make sense. So, I really think of palliative care as this great big umbrella of support throughout the entire journey, where hospice is just a tiny piece of that umbrella.”

Who gets to access a “good death"? Adelphi University, New York; by Zainab Toteh Osakew and Jennifer McIntosh; 10/23/24Socioeconomically disadvantaged neighborhoods have fewer home hospice agencies, study shows. ... “We know that poorer neighborhoods have continued to lag behind in utilization of hospice care. For decades, scientists have attributed it to cultural values or preferences about care,” said Zainab Toteh Osakwe ’06, PhD, associate professor in the Adelphi University College of Nursing and Public Health and an expert in home healthcare. ... Dr. Osakwe partnered with a geospatial analyst at the University of North Dakota to uncover patterns in the locations of hospice offices. Drawing on information made publicly available by the Centers for Medicare and Medicaid Services, they culled data related to 3,447 hospice providers and 4,584 Medicare-certified hospices nationwide. Next, they geocoded hospice agency addresses to the social vulnerability index (SVI), a measure developed by the Centers for Disease Control and Prevention that geographically ranks at-risk communities. ... Dr. Osakwe and her team found that hospice agency offices were far more likely to be clustered in neighborhoods with greater socioeconomic advantage. Predominantly Black and Hispanic neighborhoods also contained significantly fewer hospice agency offices. While the results align with prior studies on hospice supply and community-level wealth, theirs is one of the first to investigate hospice agency availability by neighborhood.

YoloCares: State awards nearly $3 million to YoloCares The Enterprise; by Craig Dresang; 10/19/24 In a move to expand and deepen the regional safety net for people facing a serious or life-limiting illness, Davis-based YoloCares recently applied for, and secured, a nearly $3 million commitment from the State of California to add an Enhanced Care Management component to its portfolio of offerings. By design, ECM intends to address the social determinants of health  which are the nonmedical factors that influence health outcomes. ... [As] Medi-Cal looks towards a major transformation in the structure of benefits, ECM is the Golden State’s initiative to address a lack of palliative and supportive care services.  ... According to Lisa Adams, YoloCares’ director of patient access and palliative care, “Our clinical team is adept at responding to the complex and unique needs of our patients and their families, often going above and beyond the scope of typical palliative care to help our patients find comfort and dignity during health challenges and transitions. This funding and recognition from the state simply acknowledges and supports the work we have been doing all along.”