Literature Review

'It's not about technology or dashboards': What health systems need from IT execs next Becker's Health IT; by Laura Dyrda; 2/4/25 Health system IT leaders are entering a new era of leadership amid transformational technology platform purchases, artificial intelligence integration and cybersecurity advancements. But being the most technically proficient no longer guarantees leaders the top role. ... Healthcare IT leaders can become distracted by the bells and whistles of new technology and move forward without considering the patient experience. ... Staying close to the health system's mission is critical for IT leaders, and [Christopher Hutchins, senior vice president and chief data and analytics officer at Lifepoint Health] ties the technology back to patient care. He prioritizes his teammates and colleagues, listening carefully to what they need. Notable mentions: James Forrester, Chief Technology Officer at University of Rochester (NY) Medical Center; Donna Roach, CIO of University of Utah Health; and Christopher Hutchins, senior vice president and chief data and analytics officer at Lifepoint Health 

Advice on navigating complex caregiving Philadelphia Corporation for Aging; by Jay Nachman; 2/3/25 The biggest challenge for someone taking care of a parent or loved one is “accepting your loved one for who they are now. Not who you knew them to be,” said Dr. Kiplee Bell, an internal medicine physician who has created a practice focused on caregiving. ... It’s not uncommon, according to Bell, for minority community members to live in multi-generational households. Additionally, in some homes, grandparents are raising grandchildren. Then there is the flipside, where young children are helping to take care of their older family members. And when English is not a native tongue, language barriers can preclude an adequate understanding of how to navigate the social service and health care systems. ...

High reliability in action — a closer look at Unit-Based Quality Rounds Mass General Brigham; 1/7/25 ... “We’re creating a new process and I’m so proud of all of you because what you have accomplished so far has been amazing,” Nursing Director Vivian Donahue, RN, said at the opening of the huddle with just over 20 physicians, nurses, advance practice providers (APPs), unit staff and hospital and system senior leaders in attendance, including Thor Sundt, MD, chief of Cardiac Surgery for Mass General Brigham. ... At the unit’s first huddle in October, a conversation about the availability of hospice care generated a new referral process that connects patients receiving end-of-life care and their families to hospice services and ongoing emotional support for those coping with the passing of a loved one. At the Dec. 11 huddle, Donahue reported that the unit had provided this welcome, deeply appreciated additional support to five patients and their families.

The Dorion Family Pediatric Center breaks ground in Mandarin Jacksonville Daily Record, Jacksonville, FL; by Dan Macdonald; 1/28/25 The hospice center is designed to expand care and convenience for children and their families. The Foundation of Community Hospice & Palliative Care broke ground Jan. 27 on the Dorion Family Pediatric Center, a pediatric hospice center in Mandarin. ... The space will allow for an expanded range of therapies and support services in a dedicated, pediatric-friendly setting. The facility will provide a centralized location that reduces travel time for the clinical team. Currently, caregivers travel to patients’ homes, the release said. ... The Dorion Family Pediatric Center is named in honor of the Dorion family, who are advocates for compassionate care. The family helped establish the organization. 

The iatrogenic consequences of medicalising grief: Resetting the research agenda Sociology of Health & Illness: by Sarah Gurley-Green, Lisa Cosgrove, Milutin Kostic, Lauren Koa, and Susan McPherson; published 11/28/25, distributed via Evermore 1/28/25When the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was published in 2013, there was a firestorm of controversy about the elimination of the bereavement exclusion. Proponents of this change and of the proposed “complicated grief” designation believed that this change would help clinicians recognise major depression in the context of recent bereavement. Other researchers and clinicians have raised concerns about medicalising grief. In 2022 “prolonged grief disorder” (PGD) was officially included in the DSM-5-TR in the trauma- and stressor-related disorders section. ... As human rights activists have argued, bereavement support is an inalienable human right, one that is centered on the right to health and well-being, for “bereavement health is as intrinsic to our humanity as any other aspect of health and citizenship” (Macaskill 2022). That is why there are increasing calls for investing in bereavement as a public good and for “cultivat[ing] a bereavement-conscious workforce.” (Lichtenthal et al. 2024, e273). As Lichtenthal notes, it is not only clinicians but also institutions and systems that must “shift bereavement care from an afterthought to a public health priority.”Editor's note: "Iatrogenic" refers to unintentional consequences/condition from a medical intervention. In the hospice context, this means bereavement/grief from the hospice death. How many patients do you serve? The CMS Hospice Conditions of Participation identify "bereavement" and/or "grief" 155 times. What priority do you give to bereavement care before, at and after your patients' deaths?

Homecare industry facing crisisWFMZ-TV 69 News, Allentown, PA; by Christina Lengyel; 1/28/25 ...  [Providers] across the state are struggling to hire enough staff to cover the needs of the state’s 300,000 homecare recipients. Unable to offer comparable hourly wages, the industry is losing its potential recruiting pool to gig work and jobs in the service industry. “We are in crisis. The crisis isn’t coming. We are not planning for it. It’s actively here,” said Mia Haney, CEO of the Pennsylvania Homecare Association at a meeting of the House Aging and Older Adult Services Committee. The average hourly wage for homecare workers in the state is between $13 and $14, making it hard to compete with other industries. Even within healthcare, counterparts performing the same tasks from within care facilities earn more. Home care advocates say the discrepancy doesn’t add up given the value of homecare.

Palliative care may improve quality of life in esophageal cancer Cure; by Tim Cortese; 1/27/25 Palliative care consultations helped patients with esophageal cancer at end-of-life experience better quality of life and less financial strain by reducing the need for intensive interventions, according to a poster presented at the 2025 ASCO Gastrointestinal Cancers Symposium. The mean length of hospital stay was 7.5 days (plus or minus 11.3 days) for patients who received palliative care and 8.9 days (plus or minus 14.9) for those who didn’t; and total charges were $97,879 (plus or minus $195,868) and $146,128 (plus or minus $321,830), respectively. Patients who received palliative care consultation had a Charlson Comorbidity Index of 9.4 (plus or minus 3.3) versus 9.1 (plus or minus 3.5) for patients who did not.

Health equity guide aims to improve care for Black patients with serious illnesses Healio; by Jennifer Byrne; 1/28/25 Black individuals in the U.S. with serious illnesses receive disproportionately poor pain management and health care communication, compared with white individuals, a focus group led by the Center to Advance Palliative Care showed. Black individuals with these illnesses — such as cancer, heart failure or dementia — also experience higher family caregiver burden, findings showed. To address these inequities, the Center to Advance Palliative Care (CAPC) issued a comprehensive guide titled, “Advancing Equity for Black Patients with Serious Illness.”

Palliative care is essential for seriously ill patients—at any ageAMA (American Medical Association); by Kevin B. O'Reilly; 1/27/25 The AMA House of Delegates has adopted new policies outlining physicians’ ethical obligation to provide or seek optimal palliative care for patients with serious illnesses who can benefit from comprehensive management of pain and other distressing symptoms—not only those with terminal illnesses or on the precipice of death. “Physicians have clinical ethical responsibilities to address the pain and suffering occasioned by illness and injury and to respect their patients as whole persons,” says one of the new policies adopted at the latest AMA Interim Meeting, held in Lake Buena Vista, Florida. “These duties require physicians to assure the provision of effective palliative care whenever a patient is experiencing serious, chronic, complex or critical illness, regardless of prognosis.” 

Concurrent Care Collaborative a safety net for pediatric patients Noozhawk, Santa Barbara, CA; by Easter Moorman; 1/26/25 Partners for Kids has initiated Santa Barbara County’s first Pediatric Concurrent Care Collaborative designed to offer comprehensive, compassionate, and coordinated care to seriously ill children from birth to 21 years of age. Spearheaded by Kieran Shah, president/CEO of VNA Health, and Rebecca Simonitsch, Quality Initiatives Program manager for Cottage Health, nine local organizations have joined to create a safety net for pediatric patients and their families to help them receive care close to home. The groups are: CenCal Health, Central Coast Home Health & Hospice, Cottage Children’s Medical Center, Dignity Health, Hearts Aligned, Herencia Indígena, Hospice of Santa Barbara, Teddy Bear Cancer Foundation, and VNA Health. 

Former hospice physician alleges retaliation against nonprofit healthcare provider Northern California Record; by Northern California Record State Court; 1/23/25 In a gripping legal battle that raises questions about medical ethics and employee rights, a former hospice physician has filed a lawsuit against his previous employer, alleging wrongful termination and retaliation. The complaint was lodged by Kamaldip Ghei in the Superior Court of California, County of San Francisco, on January 10, 2025, targeting Sutter Visiting Nurse Association and Hospice dba Sutter Care at Home. ... Ghei claims he was wrongfully terminated after raising concerns about the organization's practices regarding patient care. Specifically, he alleges that he was pressured to keep patients in hospice care even when it was not medically justified. ...

Stillwater Hospice CFO: A winning recipe for improving rural hospice care Hospice News; by Holly Vossel; 1/23/25 Montana-headquartered Stillwater Hospice has found a successful rhythm to strategic rural-based growth and sustainability. The strategy hinges on building culture, staffing resources and a reputation for quality, according to CFO and Co-founder Chris Graham. Launched in 2017, the hospice company serves predominantly rural-based populations in Montana, northern Wyoming and South Dakota. ... What are the most significant concerns among rural-based hospice providers currently? How have the challenges of rural care delivery evolved in recent years? "Staffing is very hard. You’ve got to find staff who are willing and like to travel because they have a lot of windshield time. It’s also the logistics of remote care. We have patients that live 75 miles or more outside of a town, then once you get there it’s another 20 miles on a dirt road that could be covered in snow and ice. ..." [Click on the title's link to continue reading.]

Locally and veteran-owned Headwaters Hospice and Palliative Care expands healthcare offerings for Montana communities Business Post Examiner, Helena, MT; by Michael Brown; 1/22/25 In just one year since receiving the prestigious CHAP Accreditation, Headwaters Hospice and Palliative Care has become a cornerstone of compassionate care in the Helena Valley, Montana. ... Building on this success, Headwaters Hospice and Palliative Care is proud to announce its expansion into the Butte/Silver Bow County area, bringing its renowned services to even more Montanans. In addition to hospice care, the company will begin offering palliative care services in 2025. These services will not only provide an alternative provider for Helena but will also be the only in-home palliative care option available in Butte.