Literature Review

The iatrogenic consequences of medicalising grief: Resetting the research agenda Sociology of Health & Illness: by Sarah Gurley-Green, Lisa Cosgrove, Milutin Kostic, Lauren Koa, and Susan McPherson; published 11/28/25, distributed via Evermore 1/28/25When the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was published in 2013, there was a firestorm of controversy about the elimination of the bereavement exclusion. Proponents of this change and of the proposed “complicated grief” designation believed that this change would help clinicians recognise major depression in the context of recent bereavement. Other researchers and clinicians have raised concerns about medicalising grief. In 2022 “prolonged grief disorder” (PGD) was officially included in the DSM-5-TR in the trauma- and stressor-related disorders section. ... As human rights activists have argued, bereavement support is an inalienable human right, one that is centered on the right to health and well-being, for “bereavement health is as intrinsic to our humanity as any other aspect of health and citizenship” (Macaskill 2022). That is why there are increasing calls for investing in bereavement as a public good and for “cultivat[ing] a bereavement-conscious workforce.” (Lichtenthal et al. 2024, e273). As Lichtenthal notes, it is not only clinicians but also institutions and systems that must “shift bereavement care from an afterthought to a public health priority.”Editor's note: "Iatrogenic" refers to unintentional consequences/condition from a medical intervention. In the hospice context, this means bereavement/grief from the hospice death. How many patients do you serve? The CMS Hospice Conditions of Participation identify "bereavement" and/or "grief" 155 times. What priority do you give to bereavement care before, at and after your patients' deaths?

How a St. Louisan helps her community navigate death by filling out advance directives NPR - St. Louis on the Air; by Jada Jones; 1/28/25 When Vivial Lopez’s grandmother was on life support, her family was faced with many difficult decisions. Her grandmother did not have an advance directive, so her family did not know her final wishes. The experience of navigating her grandmother’s end-of-life plan without any direction led Lopez to advocate for families to prepare advance directives - especially those in Black and brown communities. Approximately only on ein three adults complete an advance directive for end-of-life care. Lopez works with the Gateway End-of-Life Coalition to empower members of the St. Louis community to navigate death through quality end-of-life care.  Editor's note: Click here for AARP - Find Advance Directives Forms by State, also available in Spanish.

Homecare industry facing crisisWFMZ-TV 69 News, Allentown, PA; by Christina Lengyel; 1/28/25 ...  [Providers] across the state are struggling to hire enough staff to cover the needs of the state’s 300,000 homecare recipients. Unable to offer comparable hourly wages, the industry is losing its potential recruiting pool to gig work and jobs in the service industry. “We are in crisis. The crisis isn’t coming. We are not planning for it. It’s actively here,” said Mia Haney, CEO of the Pennsylvania Homecare Association at a meeting of the House Aging and Older Adult Services Committee. The average hourly wage for homecare workers in the state is between $13 and $14, making it hard to compete with other industries. Even within healthcare, counterparts performing the same tasks from within care facilities earn more. Home care advocates say the discrepancy doesn’t add up given the value of homecare.

Health equity guide aims to improve care for Black patients with serious illnesses Healio; by Jennifer Byrne; 1/28/25 Black individuals in the U.S. with serious illnesses receive disproportionately poor pain management and health care communication, compared with white individuals, a focus group led by the Center to Advance Palliative Care showed. Black individuals with these illnesses — such as cancer, heart failure or dementia — also experience higher family caregiver burden, findings showed. To address these inequities, the Center to Advance Palliative Care (CAPC) issued a comprehensive guide titled, “Advancing Equity for Black Patients with Serious Illness.”

Circle of Life opens home-based care center Talk Business & Politics, Arkansas; by Talk & Politics staff; 1/28/25 Nonprofit hospice provider Circle of Life recently opened the two-story, 27,133-square-foot Joey Feek Center for Home-Based Care in Lowell after a capital campaign raised over $12.5 million. According to a news release, the center will serve 93% of the nonprofit’s patients daily. “We want to express our deep gratitude to our community, board of directors, and dedicated staff for making this expansion possible,” CEO Catherine Grubbs said. ... Dee Vaughn, chief development officer, said the campaign surpassed its $12.5 million goal and had over 350 supporters. Circle of Life has more than 170 staff based at the new center, ... 

Hospice of Savannah awarded grant for safety improvements NBC WSAV Savannah News, Savannah, GA; by Eric Dorsch; 1/27/25 Hospice of Savannah Inc. (HSI) has announced it has been awarded a grant for repairs and home modifications. HSI will receive $1,999,111 in Older Adults Home Modification Program grant funding to complete safety and functional home modifications and limited repairs in the primary residences of two hundred eligible homeowners and renters over age 62 with low income. The work aims to improve general safety, increase accessibility, reduce falls, and improve residents’ functional abilities in the home for their safe and successful aging in place. 

New hospice center in Missoula prepares for grand opening Times-Leader, Missoula, MT; by Taylor Richardson; 1/24/25 The Partner Hope Foundation has completed construction on its new hospice center in Missoula, offering critical services to the region. This facility is only the second of its kind in Montana and aims to provide high-quality care for elders in western Montana. ... The center features 12 patient care rooms equipped with amenities such as a spa, a full kitchen, and a space for spiritual practices. Melro highlighted the design of the patient rooms: "We tried to make them oversize so that family could gather here and stay with the patient as needed. We tried to encompass some things that will help make the patients more comfortable, such as additional storage and their own refrigerator. ... The center's creation was made possible by a $15.4 million fundraising campaign which is 95% funded so far. 

How innovation is changing [hospital] length of stayHealthLeaders; by Eric Wicklund; 1/23/25 Allina Health is using technology and new ideas to reduce the time a patient spends in the hospital. They're seeing improved outcomes, reduced costs and more capacity to treat patients who need to be hospitalized.  One of the key metrics in clinical care is patient length of stay (LOS), traditionally defined as the time between a patient's admittance and discharge from a hospital. ... New technologies like AI and concepts like remote patient monitoring (RPM) and Hospital at Home are helping healthcare executives gain a better understanding of LOS, and in turn they're reducing costs and improving care management.Editor's note: How do these hospital technologies interesect with and impact your referrals for palliative and hospice referrals? For discharges to home health or senior facilities that receive care from your agency?

Stillwater Hospice CFO: A winning recipe for improving rural hospice care Hospice News; by Holly Vossel; 1/23/25 Montana-headquartered Stillwater Hospice has found a successful rhythm to strategic rural-based growth and sustainability. The strategy hinges on building culture, staffing resources and a reputation for quality, according to CFO and Co-founder Chris Graham. Launched in 2017, the hospice company serves predominantly rural-based populations in Montana, northern Wyoming and South Dakota. ... What are the most significant concerns among rural-based hospice providers currently? How have the challenges of rural care delivery evolved in recent years? "Staffing is very hard. You’ve got to find staff who are willing and like to travel because they have a lot of windshield time. It’s also the logistics of remote care. We have patients that live 75 miles or more outside of a town, then once you get there it’s another 20 miles on a dirt road that could be covered in snow and ice. ..." [Click on the title's link to continue reading.]

New telehealth rules: 5 takeaways on temporary flexibilities for 2025 Becker's ASC Review; in collaboration with Coronis Health; 1/21/25 With the passage of the American Relief Act, 2025, certain telehealth flexibilities initially introduced during the public health emergency (PHE) era have been extended. These provisions, however, are only authorized through March 31, 2025. A Jan. 9 blog post by Coronis Health breaks down what the extensions mean for telehealth providers and patients, what services and features were left out and why certain changes could become permanent in 2025. Five takeaways:

University of Rochester Medical Center plans hospital-at-home program Becker's Health IT; by Giles Bruce; 1/21/25 Rochester, N.Y.-based UR Medicine plans to launch a hospital-at-home program in summer 2025. CMS approved the health system's flagship Strong Memorial Hospital in Rochester for acute hospital care at home in June 2024. The six-hospital system has since taken a "pragmatic and deliberate approach" to building the initiative, said Justin Hopkin, MD, chief of hospital medicine at University of Rochester Medical Center. "We are listening closely to what community members want and need, while observing how other health systems overcome challenges as they scale up their hospital-at-home programs," Dr. Hopkin told Becker's.

Nonprofit opens home-based care facility for hospice patients Fox KNWA-24/KFTA, Lowell, AR; by Justin Trobaugh; 1/17/25 A nonprofit organization introduced a new resource Jan. 17 for those in Northwest Arkansas who need home-based care. Circle of Life provides hospice and in-and-out patient care services, and it opened its Joey Feek Center for Home-Based Care in Lowell. The facility will serve 93% of the non-profit’s patients and was donated by the Willard and Pat Walker Charitable Foundation. 

US dementia cases projected to double within 40 years Medscape Medical News; by Pauline Anderson; 1/13/25 The number of US adults who will develop dementia each year is projected to increase from approximately 514,000 in 2020 to about 1 million in 2060, new research shows. In addition, the lifetime risk of developing dementia after age 55 is estimated at 42%. The research showed that the relative growth in dementia cases is particularly pronounced for Black adults. These new findings researchers say, “highlight the urgent need for policies that enhance healthy aging, with a focus on health equity.”