Literature Review

Terminally ill pediatric patients and the grieving therapist Psychotherapy.net, by Sara Loftin, LPC-S, RPT-S; 4/18/24 A pediatric clinician shares the rewards and challenges of working with terminally ill children and their families. When asked about the favorite aspect of my (dream) job, I could talk for hours. I feel passionate about working in a pediatric hospital setting with chronically ill children and their families. Each day brings new challenges. ... Experiencing the death of a child is the most painful part of my job, and it will never make sense to me although logically, I know this happens. On the other hand, I feel honored to be a small part of the most vulnerable time in a family’s life, and to walk alongside them in their journey of grief and loss. ... It has been impossible for me to not be deeply impacted working in this arena. [This article includes:]

What home health providers can learn from CMS’ other proposed rules for 2025Home Health Care News, by Joyce Famakinwa; 4/19/24... CMS released the 2025 proposed payment rules for hospice and skilled nursing facilities (SNFs) in March. On the hospice side, the proposed rule included a 2.6% increase in the per diem base rate. Aside from the pay raise for hospices, the proposal also included a market basket index update, and notable changes to some of the geographic areas subject to particular indices. “There are rural areas that became urban and urban areas that became rural in the new CBSs — core based statistical areas,” William A. Dombi, president of the National Association for Home Care & Hospice (NAHC), told Home Health Care News.

LGBTQ+ individuals have higher rates of cancer because of disparities in modifiable risk factors, ACS says ONS Voice [Oncology Nursing Society]; by Magdalen Millman; 4/18/24 About 7% of the U.S. population identifies as LGBTQ+, but understanding cancer in this population is difficult because surveillance data are limited to national surveys on risk factors and screening, the American Cancer Society (ACS) observed in a special section of its Cancer Facts and Figures 2024 report on cancer in the LGBTQ+ community. More than 50% of LGBTQ+ individuals have experienced harassment such as slurs, violence, microaggressions, and sexual harassment, even in healthcare settings. “One in 6 LGBTQ+ adults, and 1 in 5 transgender adults specifically, avoid health care due to previous discrimination,” ACS reported. It’s one factor implicated for the disparities affecting LGBTQ+ individuals’ access to cancer care, including prevention, screening, diagnosis, treatment, and palliative care. Editor's Note: Click here for this site's Cancer Facts and Figures 2024 report on cancer in the LGBTQ+ community.

Mississippi Capitol sees second day of hundreds rallying for ‘full Medicaid expansion now’Mississippi Today - Legislature; by Bobby Harrison and Geoff Pender; 4/17/24Hundreds of people rallied at the Mississippi Capitol for a second day Wednesday, urging lawmakers to expand Medicaid to provide health coverage for an estimated 200,000 Mississippians. ... Speakers recounted their struggles with access to affordable health care in Mississippi and chanted for the Legislature to, “Close the coverage gap now,” and for “Full Medicaid expansion now.” ... [Dr. Randy] Easterling recounted a story of two of his friends diagnosed with similar cancers. One was uninsured and self-employed, and did not get early diagnosis or treatment. He’s now in hospice and on death’s door. The other friend, with insurance, received an early diagnosis and treatment and is now cancer free.

'Speak Up & Speak Out,' LeadingAge members head to the Hill on Lobby Day 2024 HomeCare; 4/18/24 Senator Mike Braun (R-IN) joined Katie Smith Sloan, president and CEO of LeadingAge, and hundreds of the association’s nonprofit and mission-driven members for the kick-off of annual Lobby Day activities. More than 225 LeadingAge members, who serve older adults and families nationwide in a range of care settings and community types, ... headed to Capitol Hill on Wednesday, April 17 ...  [Leading Age members] visited their elected officials in the House and Senate to discuss critical aging services issues to ensure older adults and families can access the care and services they need to age with dignity, including [but not limited to]: 

Valley Health and Blue Ridge Hospice collaborate to offer hospice in the hospital program at Shenandoah Memorial Hospital in Woodstock, VA Valley Health Press Release; 4/15/24 Valley Health and Blue Ridge Hospice have expanded their collaborative Hospice in the Hospital program to Shenandoah Memorial Hospital in Woodstock, VA. On April 1, the two signed an agreement for Blue Ridge Hospice to work alongside the hospital’s care team to provide supplemental comfort care services to ensure eligible patients and families receive the most complete and comprehensive care during and after their stay at the hospital.

Health care workers aid community members with end-of-life care directives The Journal - Martinsburg, WV; by Tom Markland; 4/16/24Health care workers from Berkeley Medical Center and Hospice of the Panhandle came together on Tuesday to help members of the community learn and assemble various advanced directives concerning end-of-life care. According to a study by the University of Chicago, only 22% of U.S. adults have completed any advanced directive for their end-of-life care. Tuesday’s event aimed to help boost that that number in the Eastern Panhandle. As of 2 p.m. on Tuesday afternoon, more than 35 people had been through the program, completing paperwork for their medical power of attorney, living will or both for free.Editor's Note: We thank and celebrate all hospice and palliative organizations that participated in the National Healthcare Decisions Day, Tuesday April 16, 2024! Collectively, what supportive connections you have made. Individually for each person and with their families, these conversations and advance directives will continue to unfold through years ahead, when needed most.

After death of nurses, CT lawmakers look for solutions: 'We just cannot ignore that risk' CT Insider, by Ken Dixon, 3/19/24 Home health agencies would have to find out more background information about their patients, and would be reimbursed for providing visiting nurses with escorts to certain homes and neighborhoods under legislation pushed Monday by Senate President Pro Tempore Martin Looney. ... It was inspired in part by the murder last year of Joyce Grayson of Brooklyn, Connecticut who was killed in a halfway house for sex offenders in Willimantic, as well as the January death of Ototegile Morulane, a live-in caregiver and citizen of the Republican of Botswana who died in an East Lyme house fire. Editor's Note: Though this article was appeared in the CT Insider 3/19/24, we are posting it today for context of our next article, "CT Hospice says it can't provide home care under bill to protect healthcare workers," published 4/16/24.

NHPCO's CaringInfo program launches new consumer blog, insights NHPCO Press Release; 4/15/24 CaringInfo, a program of the National Hospice and Palliative Care Organization (NHPCO), has launched a new consumer blog, Insights, offering timely and practical content on serious-illness care and services from a variety of perspectives in both English and Spanish. ... CaringInfo also offers more information about advance directives and free advance directives and instructions for all 50 states plus Puerto Rico and Washington DC in both English and Spanish, downloadable as PDF files.

Hospices face ‘devastating’ financial crisis as staff costs rises, charity warns Shropshire Star, United Kingdom; 4/15/24 Hospices are facing a “devastating” financial crisis because of rising staff costs which are putting services at risk, a charity has warned. The chief executive of Hospice UK, Toby Porter, said the last year had seen the “worst financial results for the hospice sector in around 20 years.”

‘Are nursing homes our only option?’ These centers offer older adults an alternative. Rhode Island Current, by Anna Claire Vollers; 4/12/24PACE centers attract bipartisan interest and, in some states, scrutiny. ... PACE (Program of All-Inclusive Care for the Elderly) centers provide government-funded medical care and social services to people older than 55 whose complex medical needs qualify them for nursing home care, but who can live at home with the right sort of help. ... Nationally, PACE centers are owned by a variety of health care organizations, including nonprofits, for-profit companies, large health care systems and religious organizations. ... [The] explosive growth has come with challenges ...

Savie Health increasing services Noozhawk, by Ern Shugart; 4/12/24 Savie Health, a free medical clinic in Lompoc providing health, behavioral health, and vision care, is expanding its services to add a Spanish speaking women’s health group and bereavement therapy (in partnership with Hospice of Santa Barbara). Savie’s patient data attests to the need for the clinic’s services: nearly 40% are at least mildly depressed, 20% are severely depressed, and the average income/family size is $22,000 for a family of four.