Literature Review

Empath Health CEO to Congress: Invest in home-based care Hospice News; by Jim Parker; 3/11/25The federal government must invest further in home-based care, Empath Health CEO Jonathan Fleece told lawmakers at a hearing with the U.S. House of Representatives Ways & Means Health Subcommittee. leece was among several post-acute care leaders who appeared at the hearing, representing home health, hospice, skilled nursing facilities, rehabilitation hospitals and other stakeholders. In opening remarks, Fleece pointed to the benefits of home-based care for patients and families, as well as the sector’s ability to reduce health care costs. 

How Houston Methodist’s ACO reduced its end-of-life spending by nearly 20% MedCity News - Hospitals; by Katie Adams; March 10, 2025 Houston Methodist Coordinate Care is reducing costs through a partnership with Koda Health, a digital platform that guides patients through their end-of-life choices. Preliminary findings show the technology resulted in a 19% reduction in the total cost of care for patients at the end of their life, which equals nearly $9,000 in savings per patient. ... The ACO has been working with Koda Health for more than three years — and it is saving money by getting patients more involved in their end-of-life care plan.

Children's Respite Homes of America aims to address the severe lack of children's respite and palliative care homes in the U.S. Cision PRWeb, Scottsdale, AZ; by Children's Respite Homes of America; 3/11/25 Twenty years ago, there were no dedicated children's respite and palliative care homes in the United States. Today, there are only a handful. By contrast, the United Kingdom—a country one-fifth the size of the U.S.—has developed a network of 54 children's respite and palliative care homes. Based on population, the U.S. would need over 250 similar homes to provide equitable access. The disparity leaves countless families without essential respite care, and Children's Respite Homes of America aims to change that. ... Cottor, who co-founded Ryan House in Phoenix, Arizona, alongside his wife Holly and with strong community support, established Children's Respite Homes of America with an ambitious but necessary goal: to develop 50 children's respite and palliative care homes in 50 cities within the next five years. ...

CMS deletes Medicare Advantage vision statement, signaling another shift from health equity Fierce Healthcare - Regulatory; by Noah Tong; 3/10/25 The Centers for Medicare & Medicaid Services (CMS) wiped away the agency’s stated intentions for the future of Medicare Advantage (MA), underlining new uncertainty for the future of health-related social needs, CMS Innovation Center models and the federal health program. ... A frequently asked questions page gave further explanation, as did an executive summary of a report to be released in early 2025. The page included a section with the question, “What is CMS’ vision for the future of the MA program?” as of Feb. 22, archived versions of the web page shows. But that question and answer was quietly deleted, and the page was last modified Feb. 26. It previously described how the VBID model helped health plans address health-related social needs and stressed health equity as an important cornerstone of its mission. ... The CMS did not immediately respond to a request for comment.

Tumor: why not use the warrior’s metaphor anymore taketonews; 3/7/25 ... The term "warrior" is often used to describe cancer sick people, referring to their strength, determination and ability to fight the disease. Although the intention is positive, docts and psychologists believe that this metaphor can generate negative effects on people with an oncological disease. The "warrior" label is not always appropriate and can have unwanted psychological effect on cancer patients. ... Use a language that does not reduce the patient to his struggle, but that enhances his entirety, including weakness, depression and pain, can contribute to a more human and respectful experience of care. ... [Click on the title's link for this further information below.]

NPHI CEO Tom Koutsoumpas: Modernize hospice benefit for value-based future Hospice News; by Jim Parker; 3/10/25 The health care realm is changing, and hospices must change with it. This is the central thesis that underlies the National Partnership for Healthcare and Hospice Innovation, which is currently celebrating the 10th anniversary of its founding. NPHI seeks to put nonprofit hospice organizations at the forefront of innovation, the development of new care and payment models and collective action to expand access and prepare for a value-based future. The organization currently has more than 120 members, all nonprofits, who collectively care for more than 580,000 patients.The health care realm is changing, and hospices must change with it. This is the central thesis that underlies the National Partnership for Healthcare and Hospice Innovation, which is currently celebrating the 10th anniversary of its founding. ... [Click on the title's link to continue reading.]

Mahogany CEO: Hospice on cusp of ‘tremendous revolution’Hospice News; by Holly Vossel; 3/7/25 Mahogany Home Health and Hospice recently launched services in southwestern Ohio. The new hospice startup is the first Black-owned hospice and home health organization statewide with a drive to improve utilization among underserved populations. This is according to Victor Couzens, owner, founder and CEO of Mahogany Home Health and Hospice. The organization recently received a green light from state licensing agencies to begin serving Cincinnati and Dayton, Ohio and surrounding communities. ... Couzens recently told Hospice News, ... "As a hospice chaplain, I was often confronted with the pressure of trying to fit a square peg into a round hole when it comes to how underserved communities are actually reached and cared for. It’s about offering insights, or even evidence-based approaches, to meeting the needs of Black and brown people, the needs of the LGBTQ+ community, the needs of immigrants and just any other groups who do not make up the majority of the patient population. ..."

Unity Hospice and Palliative Care, with over 30 years experience, broadens services to southern Wisconsin EIN Presswire; by Unity Hospice and Palliative Care; 3/6/25 Unity Hospice and Palliative Care is expanding its services to Southern Wisconsin, bringing decades of expertise in delivering personalized, heartfelt care and support to individuals and families facing life-limiting illnesses. The new location will serve patients in Kenosha, Milwaukee, and Racine counties, ensuring greater access to high-quality hospice and palliative care. "For over 30 years, Unity Hospice and Palliative Care has provided expert, compassionate support to patients and families," said Michael Klein, CEO of Unity Hospice and Palliative Care. "Expanding to Southern Wisconsin allows us to bring that same commitment to even more communities, ensuring that individuals facing serious illness receive the personalized care they deserve."

Children and family bereavement needs on the rise at Hospice of Santa Barbara Santa Barbara Independent, Santa Barbara, CA; by Hospice of Santa Barbara; 3/5/25 It’s not just adults who are impacted by grief and loss in our community. Children are as well. One in five children will experience the death of someone close to them by age 18, and one in twenty children will experience the death of one or both parents before reaching adulthood. Although death and grief are inevitable parts of life, these statistics highlight just how many children are impacted. Children are especially vulnerable when they lose a close loved one, and without professional support, grief can be especially paralyzing and overwhelming. ... Hospice of Santa Barbara’s Children and Family Services program provides free professional support and coping tools for children, teens and their families ... HSB is active in local campuses, providing professional weekly support groups from elementary to college age students. On-campus counseling services provide a vital space for open communication, support and the development of coping skills.Editor's note: What specialized child, teen and family bereavement services are you providing? Missing? What more can you do, with life-changing outcomes for those you serve?

Nurse leaders can take the lead in promoting civility in the workplace Oncology Nurse Advisor; by Susan Rux, PhD, DNP, RN, FACHE; 2/28/25 Civility, the act of respecting others, especially in situations where disagreement or disparity may arise, occurs by intentionally displaying kindness and empathy. These behaviors help people to understand differences as well as uphold common ground across all social contexts. A stable foundation, afforded through civil actions, serves as a catalyst in achieving environments that promote diversity, equity, and inclusivity — the underpinnings of a culture of belonging. Nurse leaders can play a key role in creating this culture. Contrary to civility, in the healthcare setting, acts of incivility lead to increased levels of staff disengagement and turnover. Researchers have noted that a civil nursing workplace provides a safeguard against numerous professional issues, including but not limited to increased turnover rates, burnout, job dissatisfaction, and stress.

Patient put in hospice at 52 celebrates life years after admission, thanks to heart surgery KCTV-5, Kansas City, MO; by Morgan Riddell; 2/27/25 A local man with heart failure who was told numerous times he only had months to live now has a new outlook on life two years later. ... It started in 2023. Sam Edwards, who was diagnosed with ALS after serving in the military, started experiencing new pains. He went to doctors who all determined Sam was just experiencing issues related to ALS. Then, a doctor at the VA Hospital noticed some tests were off and found Sam was experiencing heart failure. What he needed was open heart surgery, but doctors determined the risk of putting Sam on the operation table was too high. Not only was he at risk of having a stroke and dying on the operating table, but his recovery would also be months long and painful. They declined to do the surgery at the VA and suggested Sam go get a second opinion. This is when he was connected with Dr. Michael Gibson.Editor's note: While we in the palliative and hospice field promote earlier admissions to care and elimination of overtreatment, another side of the coin exists. Click on the title's link to read more about this hospice patient who sought out a second opinion. Imagine: the hospice patient is you (at age 52); or a family member; or a best friend. Especially as AI becomes more prevalent in assessing palliative and hospice referrals, we must see the bigger picture and retain human element. 

Bristol Hospice launches new locations in 4 states Hospice News; by Holly Vossel; 3/3/25 Bristol Hospice has unveiled de novos in Arizona, South Carolina, Texas and Washington. The move marks an important period of expansion in states with some of the largest aging populations pushing up demand for hospice. The hospice provider has plans to expand in Fort Worth, Texas in the “near future,” the organization stated in an announcement. “We are thrilled to announce that Bristol Hospice is now accepting patients in the following locations: Lubbock, Texas; Tacoma, Washington (Pierce County); Phoenix, Arizona; [and] Charleston, South Carolina,” the organization said in a social media post. 

My mother and brother have terminal cancer. I'm worried I won't feel anything when they die. Business Insider; essay by Kimanzi Constable; 3/1/25 ... My brother was diagnosed with Cutaneous T-cell lymphoma (CTCL) three years ago, and my mother found out she had stage four lung cancer a year ago. I got a call earlier this year that the cancer was spreading, and I flew to spend time with them. I knew it would be hard seeing them battling late-stage cancer, but what I walked into was my brother in the Advanced Cancer Care Center, unable to move, and my mother wanting to hold an "end of life" planning meeting. It was worse than I anticipated. It was hard to see him not moving and the nurses having to help him do everything. My mother looked like she weighed 50 pounds ... I'm worried I won't feel anything when they pass away. ... I think it might be just another day when they pass away. I've been thinking — what does that say about me? Am I a bad person for not falling on the ground and losing it for over half of my family dying? Or is this nothingness an OK feeling due to the complicated relationship we've had most of my life? ... Editor's note: Leaders, welcome to the daily world of your clinicians, especially your social workers, chaplains, and grief counselors. Read this with openness to the normalcy of this author's conflicted relationships, emotions, thoughts, and empowered actions toward "not wanting to regret how I handled this opportunity to say goodbye more healthily."