Literature Review

Allevant Solutions shares over 10 years of insights into rural post-acute care patient outcomes PR Newswire, Mechanicsburg, PA; by Allevant Solutions, LLC; 1/13/25 Allevant Solutions, LLC shared key insights from its experience over a 10-year period showing that partnerships between larger acute care hospitals and rural critical access hospitals (CAHs) for post-acute care benefit patients, health care teams and hospitals. The aggregate, de-identified data reflects patient outcomes from over 100 CAHs across 24 states, specifically around the utilization of the swing bed concept – which Allevant calls Transitional Care.  A swing bed is the federal government's term for a patient bed in a small, rural critical access hospital that can be used for acute or post-acute care after a hospital stay.  Rural patients who have to leave their community for higher levels of care often have difficulty finding high-quality, continuing care when they are ready to return. 

Health systems: It's time to break up with short-termism Becker's Hospital Review; by Molly Gamble; 1/10/25Health systems begin 2025 emerging from a half-decade of crisis management. Now is the time for executive teams to lift their heads from quarterly survival and make bets on their long-term future. ... In recent years, a number of leaders, including those within health systems, openly declared their departure from 10-year strategic plans. Even five-year outlooks are considered ambitious, some argued. Agility and short-term performance is sometimes hailed as the hallmark of savvy leaders, while long-term vision risks being dismissed as impractical or naive. This mindset may have served its purpose during the stop-and-go nature of the pandemic, but risks leaving organizations flat-footed and without a defined strategy for what could come next. Teams may feel the shift. The return of competitive, distinct and long-term plans will require systems' executive teams and boards to revive organizational muscles that may have lain dormant through years of crisis response. 

Iowa Finance Authority okays more than $500,000 for North Iowa homeless assistance [$66k to Cedar Valley Hospice] KIMT3 News, Des Moines, IO; by Mike Bunge; 1/9/24 Over $500,000 in grants from the Iowa Finance Authority is going to homeless assistance programs that cover North Iowa. $18,189 will go to Community Kitchen of North Iowa, Inc. in Cerro Gordo County.  Cedar Valley Hospice covering Allamakee, Black Hawk, Bremer, Buchanan, Butler, Chickasaw, Fayette, Floyd, Grundy, Howard, Mitchell, and Winneshiek counties will receive $66,565.  $474,108 will go to Primary Health Care covering [28 counties] ...

Rural families have ‘critical’ need for more hospice, respite care Hospice News; by Holly Vossel; 1/6/25 Economic and financial headwinds have increasingly posed significant challenges for rural-based hospice providers, with some shuttering their programs in recent years. ... Hospices in rural regions have particularly been hard hit by these labor pressures amid rising demand for their services, with recent years bringing program closures across the country. ... Having a hospice offer services wherever a patient lives was the top priority cited by 400 rural-based caregiver respondents in a recent research study from the Alliance’s Diversity Advisory Council and Transcend Strategy Group. However, roughly 40% of the caregiver respondents were not able to name a nearby hospice provider. ... The lack of hospice availability has left gaps in supportive services that address terminally ill patients’ full range of physical, emotional and spiritual needs.This has also worsened disparities among rural family caregivers.Notable mention: Dr. Steve Landers, CEO of the National Alliance for Care at Home (the Alliance)

Family advocates for hospice care, says it doesn't always mean end-of-life: Highlights case of the late Former President Jimmy Carter who spent nearly 2 years in hospice CBS WTKR 3, Hampton Roads | Northeast NC; by Jay Greene; 12/20/24 Dana Romano's mom, Marilyn, headed home from the Dozoretz Hospice House of Hampton Roads in Virginia Beach on Monday evening after spending a few days in respite care while her family was out of town. "The whole reason not to have my mom in a facility is we want her with us. But when you're doing long periods of time, every once in a while, you need a break, so having a place where you know they're going to take care of her and treat her like, almost like family," Dana said. "We kind of look at this more like a resort than a hospice." ... When at home Marilyn receives hospice care, but it's not because she needs care, the Romano's said. It's because she needs supervision. ... The family told News 3's Jay Greene this is a case where hospice does not mean end-of-life. It actually helped alleviate some stress. ... The Romano's told News 3's Jay Greene hospice ["has no time limit"] is all about extending life as comfortably as possible, citing Former President Jimmy Carter who died at the age of 100 this weekend.Editor's note: These misunderstandings by the family about hospice care is both alarming and expected. Throughout Jimmy Carter's extended hospice Length Of Stay (LOS), far too many hospice organizations misused messaging for its marketing purposes. We have addressed this discrepancy in a dozen posts throughout the year. Click here for the CMS "Face-to-Face Requirement Affecting Hospice Recertification." Disclaimer: We do not specifics about what this hospice communicated with this family. We simply refer readers to this as publicly reported news story.

[China] Family members' experiences of surrogate decision-making in hospice care: A systematic review of qualitative studiesInternational Journal of Nursing Studies; Ting Yu, Yijing Li, Ziyi Hu, Shanshan Liu, Cong Wang, Qian Chen, Yan Jiang; 12/24Determining whether patients receive hospice care at end of life is complex for family members. This process begins with the coexistence of rational and emotional motives for decision-making, involves preparation for decision-making through the acquisition of knowledge and experience about hospice care, and culminates in reflection on the entire decision-making process. These findings underscore the importance of providing sufficient informational and emotional support to family decision-makers, which can improve decision-making and promote more compassionate end-of-life care. Future research should focus on developing effective strategies to strengthen these support systems.

AMA’s first chief health equity officer to depart at year’s end American Medical Association (AMA); by Staff News Writer; 12/30/24 Under Dr. Aletha Maybank’s direction and guidance, the AMA has become a relevant national voice on equity in medicine and an important ally to organizations that have long been committed to this work. ... [She] will depart the organization at the end of 2024 following a successful five-year and a half year tenure ... “Dr. Maybank has been a true champion and advocate for health equity both inside the AMA and in shaping our health system. She created a strong, strategic foundation for this work to continue over the long term,” AMA Executive Vice President and CEO James L. Madara, MD, said. ... During Dr. Maybank’s tenure, the AMA has provided a platform for the organization to engage in more open and honest conversations about its own past failings and exclusionary practices that have contributed to some of the inequities that persist in medicine today and has expanded education opportunities for physicians, residents and students in numerous ways, including: [Click on the title's link to read more.]

Increasing awareness of hospice services among Latinos on the border YouTube - Borderzine Reporting across fronteras; features Hospice El Paso; 12/25/24 El Paso's Latino Community is seeing a rise in the use of hospice care ... Hospice in Mexico is a place and so a lot of Hispanics--true Mexicans--feel that you're going to take a loved one out of their home when it comes to hospice care. ... Latino families make up a growing portion of hospice users, reflecting national efforts in bilingual outreach and cultural sensitivity programs I had heard. The term "hospice"--I didn't know I didn't know what it meant. I didn't know what it involved but after my dad was enrolled in hospice ... I realized [that it] provided emotional and medical support ... [and] comfort that respects their cultural values. We were very fortunate that the individuals that came in that met with us beforehand and after were bilingual. I noticed that they spoke in English and in Spanish so that they would look between myself, my mom my sister to make sure we were nodding, agreeing, listening, hearing. I think that made a difference. It was very comforting. My dad at one point even said, "They gave me a bath but they didn't get the bed wet." That was our big joke and the fact that he was very comfortable. As more Hispanic families turn to hospice they're finding it offers not just medical care, but a way to honor their loved ones with dignity respect and familiar comforts in their final days.Editor's note: For data on the Hispanic population in the areas you serve, click here for the 

Muslim community-engaged research highlights Muslim Americans' end-of-life-healthcare gaps and needs WisconsinMuslimJournal.org; by Sandra Whitehead; 12/20/24 Few Muslim Americans use hospice care, despite its posited benefits. A multi-sectoral team of academicians and community leaders in southeastern Wisconsin decided to find out why. ... Muslims are one of the fastest-growing religious communities in the United States, numbering between 3 to 5 million, with projections it will double by 2050. “With an aging Muslim population, there is a growing need for specialized healthcare services like hospice and palliative care,” the team’s research explains. ... Through a qualitative descriptive study with a Muslim patient and 10 family caregivers, the research team identified their perceptions of hospice care, ethical concerns and experiences. Among their varied perceptions, many saw it as useful only in the last hours of life. Participants also had ethical concerns about the use of sedative medication and with cessation of feeding terminally ill patients. Some had concerns about how hospice care might lead to unnecessary interventions or even hasten death. ...  The team is developing an informational resource, Islamic Bioethical Considerations for the End of Life: A Guide for Muslim Americans, to help Muslims who struggle when thinking about death and dying. 

House of Goshen makes history as Chicago’s first black-owned independent inpatient hospice house G20 News Today, Flossmoor, IL; 12/21/24 House of Goshen, a state-of-the-art inpatient hospice facility and the first Black-owned independent hospice center in the Chicago Southland area, is now officially accepting patients. Located at 19810 Governors Highway in Flossmoor, the center represents a pivotal advancement in equitable, compassionate end-of-life care in Chicagoland, the South Suburbs and beyond. The 14,000-square-foot facility offers 14 private suites designed to provide comfort, dignity, and peace for patients and their families. ... “Our goal is to create a sanctuary where every patient and family member feels supported, seen, and cared for,” said Sade Bello, co-founder of House of Goshen. “Being the first Black-owned hospice center in the region comes with immense pride and responsibility. We are committed to setting a standard of care that reflects the diversity and humanity of the communities we serve.”

Mom, 26, dies days after choosing to enter hospice following 13 years of living with kidney failure (exclusive) People; by Zoey Lyttle; 12/18/24 Though she left behind a 4-year-old daughter, Sara Long told PEOPLE her feelings about death were "more certain" than they'd ever been when she started end-of-life care. “I think a lot of people spend a lot of time thinking about what it means to have a good life. And don't get me wrong, I did that too,” Sara Long, 26, told PEOPLE over the phone just shy of a week before she died at the hospice facility into which she had just recently moved. ... Long said she’s spent “the last two or three years” deliberating about her idea of a “good death.” She decided that it wasn’t just about how she would experience these last expected few weeks of her life in hospice. What Long really wanted was to be surrounded by her most precious loved ones — including her husband Justin, 32, and their 4-year-old daughter Riley Jean — but she didn't want them to watch her die while intubated and attached to hospital equipment as she was half of her life. “I just feel like if I pushed it any harder, then I was going to get to a place where it was going to be outside of my control,” said the mom of one. “I was going to wind up dying in a hospital alone, afraid, full of tubes, scared. My daughter wouldn't be able to be part of the process, and it would just be really lonely, and that's really not the goal.” Detached from the familiar yet foreign medical equipment, Long told PEOPLE she was freed from fear knowing she would only survive another couple of weeks in hospice. (She died with a week less than anticipated.) Editor's note: This another follow-up post to this profound young woman's story that we post on 

VITAS Healthcare unveils inpatient hospice unit at Lee Memorial Hospital South Florida Hospital News and Healthcare Report, fort Myers, FL; by cfelixcpa; 12/16/24 Residents of Lee County now have access to dedicated end-of-life care at the new VITAS Healthcare Inpatient Hospice Unit at Lee Memorial Hospital, offering expert, patient-centered hospice services in the comfort of a homelike setting. This inpatient unit (IPU) is the only hospital-based hospice facility in the county and is the first VITAS IPU in Lee County and second in Southwest Florida. It is expected to serve more than 400 patients annually. ... The VITAS hospice unit at Lee Memorial features eight private patient rooms with internet access, flatscreen TVs, private bathrooms and overnight accommodations for loved ones. A shared family room provides space for visiting guests, and children’s activities keep little ones occupied.