Literature Review

Michigan hospice's training empowers African Americans to dialogue Catholic Health world; by Lisa Eisenhauer; 1/16/25 Rev. Diane Smith knows the hospice education program she leads for predominantly Black churches resonates with those who enroll. ... Rev. Smith directs The African American Church Empowerment Project at Livonia, Michigan-based Angela Hospice and gives certificates those who complete the training. She is also the hospice's director of ministry engagement and chief diversity officer. The Empowerment Project isn't about promoting Angela Hospice's services, Rev. Smith explains, but rather about educating the community on hospice care and listening to concerns about end-of-life issues. Rev. Smith sees another primary reason for the disconnect between Black Americans and hospice providers. She says many people of color have a distrust of the medical community that is rooted in historically being both denied care and exploited ...

CMS Health Equity Data Book U.S. Centers for Medicare and Medicaid Services - Office of Minority Health; by CMS Office of Minority Health; published December 2024, email notifications 1/15/25 One of the six pillars of the Centers for Medicare & Medicaid Services (CMS) 2023 Strategic Plan is to, “Advance health equity by addressing the health disparities that underlie our health system.” The CMS Office of Minority Health (OMH) aims to advance health equity by providing broader access to data about the state of health equity across CMS’ programs. This Data Book presents summary information on disparities within CMS programs as demonstrated by data related to prevalence. ... This Data Book is intended for use as a readily-available information source on health disparities within the Medicare, Medicaid, and the Health Insurance Marketplace populations. This Data Book is organized into five key sections – CMS at a Glance, Demographics, Chronic Conditions, Behavioral Health, and Social Determinants of Health – so that Data Book users can jump to the section most relevant to their data needs. Within each section, data are presented by each population type.

CMS Call for Nominations: 2025 CMS Health Equity Award U.S. Centers for Medicare and Medicaid Services; by CMS Health Equity; via CMS email 1/13/25Nominations for the 2025 CMS Health Equity Award are now open to organizations working to advance health equity, showing others how to reduce disparities in health care access, quality, and outcomes. Nominations are due February 18 at 11:59 pm PT.  ... Health equity is defined by CMS as the attainment of the highest level of health for all people, where everyone has a fair and just opportunity to attain their optimal health regardless of race, ethnicity, disability, sexual orientation, gender identity, socioeconomic status, geography, preferred language, and other factors that affect access to care and health outcomes. 

Guidelines for evaluating, diagnosing, and disclosing dementia published by Alzheimer’s Association Practical Neurology; 1/14/25 The Diagnostic Evaluation, Testing, Counseling, and Disclosure Clinical Practice Guideline (DETeCD-ADRD CPG) Workgroup, convened and funded by the Alzheimer’s Association, has developed new recommendations for clinicians to use when evaluating patients with possible Alzheimer disease (AD) or AD and related dementias (ADRD). An executive summary of the recommendations for use in primary care and other practice settings was published in Alzheimer’s & Dementia, along with a companion article summarizing specific guidance for specialists. The Workgroup included representatives from  primary, specialty, subspecialty, long-term, and palliative care disciplines as well as the fields of health economics and bioethics.  Editor's note: Click for open access to the Alzheimer's Association clinical practice guideline ..., executive summary of recommendations for primary care. 

Agrace expands hospice services into Milwaukee County Agrace.org; Press Release; 1/14/25 Residents of Milwaukee County who are in the final months of life have a new choice for high-quality, in-home hospice care. Agrace, the largest Wisconsin-based nonprofit hospice, has announced it is expanding its services into the county. For more than 45 years, Agrace Hospice Care has offered end-of-life care to people of all ages across southern Wisconsin. Milwaukee County residents can now enroll with Agrace to receive hospice care that comes to them where they live—in private homes, long-term care facilities or any other place they call home. In addition to a new regional office ... in Wauwatosa, Agrace has offices in Oconomowoc, Janesville, Dodgeville and Baraboo, and a hospice inpatient unit and residence in Madison. The Wauwatosa office is home base for an interdisciplinary care team that includes local hospice physician Andre Cernasov.

ECHO report exposes deadly toll of homelessness in Austin CBS Austin, TX; by Abigail Velez; 1/10/25 A report released this week by Austin's Ending Community Homelessness Coalition (Austin ECHO) revealed the human cost of the city's growing homelessness crisis. The report, analyzing six years of data, found that a staggering 1,010 unhoused individuals died in Austin between 2018 and 2023. Their average age of death: is just 50 years old, a full 20 years younger than their housed counterparts. ... The report offered a number of concrete recommendations, including: ... Develop a medical triage team to connect vulnerable individuals with appropriate care, including respite care, long-term care, substance use treatment, and hospice.

Iowa Finance Authority okays more than $500,000 for North Iowa homeless assistance [$66k to Cedar Valley Hospice] KIMT3 News, Des Moines, IO; by Mike Bunge; 1/9/24 Over $500,000 in grants from the Iowa Finance Authority is going to homeless assistance programs that cover North Iowa. $18,189 will go to Community Kitchen of North Iowa, Inc. in Cerro Gordo County.  Cedar Valley Hospice covering Allamakee, Black Hawk, Bremer, Buchanan, Butler, Chickasaw, Fayette, Floyd, Grundy, Howard, Mitchell, and Winneshiek counties will receive $66,565.  $474,108 will go to Primary Health Care covering [28 counties] ...

The Alliance celebrates the Dole Act becoming law, protecting burial benefits for veteransNational Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 1/7/25 The National Alliance for Care at Home (the Alliance) issued the following statement in response to President Biden signing S. 141, the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act, into law on Thursday, January 2. This landmark legislation includes Section 301, Gerald’s Law, which addresses a critical gap in benefits for Veterans. Gerald’s Law ensures that families of terminally-ill Veterans receiving Veterans Affairs (VA)-furnished hospice care—whether at home, in a nursing home, or in another non-VA setting—retain access to their full VA burial allowance. “We are deeply grateful for the bipartisan support of Gerald’s Law and its inclusion in the Dole Act,” said Dr. Steve Landers, CEO for the Alliance. “This legislation ensures that Veterans and their families can choose hospice care in the setting that best meets their needs without risking the loss of crucial burial benefits. We thank Senators Moran, Tester, and Hassan, Representatives Ciscomani, Bost, Brownley, and Takano, and many others for their leadership, as well as President Biden for signing this important bill into law.”

Navigating Aging: The LGBTQ+ community relives old traumas as they face aging on their own Northern Kentucky Tribune; by Judith Graham; 1/5/25 Bill Hall, 71, has been fighting for his life for 38 years. These days, he’s feeling worn out. Hall contracted HIV, the virus that can cause AIDS, in 1986. ... This past year, Hall has been hospitalized five times with dangerous infections and life-threatening internal bleeding. But that’s only part of what Hall, a gay man, has dealt with. ... By 2030, the number of LGBTQ+ seniors is expected to double. Many won’t have partners and most won’t have children or grandchildren to help care for them, AARP research indicates. They face a daunting array of problems, including higher-than-usual rates of anxiety and depression, chronic stress, disability, and chronic illnesses such as heart disease, according to numerous research studies. High rates of smoking, alcohol use, and drug use — all ways people try to cope with stress — contribute to poor health. Keep in mind, this generation grew up at a time when every state outlawed same-sex relations and when the American Psychiatric Association identified homosexuality as a psychiatric disorder. Many were rejected by their families and their churches when they came out. Then, they endured the horrifying impact of the AIDS crisis.

Family advocates for hospice care, says it doesn't always mean end-of-life: Highlights case of the late Former President Jimmy Carter who spent nearly 2 years in hospice CBS WTKR 3, Hampton Roads | Northeast NC; by Jay Greene; 12/20/24 Dana Romano's mom, Marilyn, headed home from the Dozoretz Hospice House of Hampton Roads in Virginia Beach on Monday evening after spending a few days in respite care while her family was out of town. "The whole reason not to have my mom in a facility is we want her with us. But when you're doing long periods of time, every once in a while, you need a break, so having a place where you know they're going to take care of her and treat her like, almost like family," Dana said. "We kind of look at this more like a resort than a hospice." ... When at home Marilyn receives hospice care, but it's not because she needs care, the Romano's said. It's because she needs supervision. ... The family told News 3's Jay Greene this is a case where hospice does not mean end-of-life. It actually helped alleviate some stress. ... The Romano's told News 3's Jay Greene hospice ["has no time limit"] is all about extending life as comfortably as possible, citing Former President Jimmy Carter who died at the age of 100 this weekend.Editor's note: These misunderstandings by the family about hospice care is both alarming and expected. Throughout Jimmy Carter's extended hospice Length Of Stay (LOS), far too many hospice organizations misused messaging for its marketing purposes. We have addressed this discrepancy in a dozen posts throughout the year. Click here for the CMS "Face-to-Face Requirement Affecting Hospice Recertification." Disclaimer: We do not specifics about what this hospice communicated with this family. We simply refer readers to this as publicly reported news story.

Jimmy Carter delivered a positive message about hospice care Atlanta Journal and Constitution; by Shelia Poole and Ariel Hart; 1/1/25Hospice advocates said the end-of-life journey of former President Jimmy Carter was a “powerful” message to terminally ill patients and their families about the benefits of hospice care. Carter, the nation’s 39th president, died Sunday at his home in Plains after being in home hospice care for 22 months. “It’s pretty remarkable that he got to celebrate his 100th birthday, he got to vote and, as I understand, it was important to him that he was able to do these things with the support of hospice,” said Dr. Vicki Jackson, president of the board of the American Academy of Hospice and Palliative Medicine. “It was powerful.”A day after Carter’s death was announced, Jackson said it was helpful to have someone as notable as a former president to be open about his hospice care during the later stages of his life. During his almost two years of home hospice care, Carter helped raise awareness about the service, which focuses on comfort of the patient and support for both the patient and the family.Notable mentions: Dr. Vicki Jackson, president of the board of the American Academy of Hospice and Palliative Medicine; Jacqueline Lopez-Devine, Gentiva’s chief clinical officer; Megan Friedman, Gentiva spokesperson; Rev. Tony Lowden, Carter’s personal pastor; Amy Tucci, president of the Hospice Foundation of America; Dr. Tammie E. Quest, director for Emory University’s Palliative Care Center and a professor at Emory University’s School of Medicine; Dr. Folashade Omole, the chair of the Department of Family Medicine at the Morehouse School of Medicine; Ben Marcantonio, the National Alliance for Care at Home.

Hospice in Branford receives $25k grant from CT Health Foundation Patch, Branford, CT; by Rich Kirby; 12/27/24 The Connecticut Hospice Inc., the Branford-based nonprofit organization which provides hospice and palliative care to patients suffering from irreversible illness, has received a $25,000 grant from the Connecticut Health Foundation. ... Connecticut Hospice will use the grant money to evaluate the efficacy of a bilingual community health worker in underserved communities to support the work of the Centers for Medicare and Medicaid Services' Guiding an Improved Dementia Experience program. ... "We know community health workers are extremely valuable when it comes to improving health outcomes, ... said Connecticut Health Foundation President and CEO Tiffany Donelson in a news release. "Expanding community health worker services in public settings can help the state make even more progress toward eliminating health disparities."

Muslim community-engaged research highlights Muslim Americans' end-of-life-healthcare gaps and needs WisconsinMuslimJournal.org; by Sandra Whitehead; 12/20/24 Few Muslim Americans use hospice care, despite its posited benefits. A multi-sectoral team of academicians and community leaders in southeastern Wisconsin decided to find out why. ... Muslims are one of the fastest-growing religious communities in the United States, numbering between 3 to 5 million, with projections it will double by 2050. “With an aging Muslim population, there is a growing need for specialized healthcare services like hospice and palliative care,” the team’s research explains. ... Through a qualitative descriptive study with a Muslim patient and 10 family caregivers, the research team identified their perceptions of hospice care, ethical concerns and experiences. Among their varied perceptions, many saw it as useful only in the last hours of life. Participants also had ethical concerns about the use of sedative medication and with cessation of feeding terminally ill patients. Some had concerns about how hospice care might lead to unnecessary interventions or even hasten death. ...  The team is developing an informational resource, Islamic Bioethical Considerations for the End of Life: A Guide for Muslim Americans, to help Muslims who struggle when thinking about death and dying.