Literature Review

[England] Marie Curie hospice unit to close permanently BBC News; Liverpool, England; by Angela Ferguson and Marc Gaier; 7/5/25 Liverpool's Marie Curie hospice inpatient unit is to shut permanently after it was temporarily closed last year, the charity has said. The hospice's 26-bed unit in Woolton was closed in July 2024 due to a shortage of specialist nursing staff. Chief executive Matthew Reed said it was "an incredibly tough decision" in the face of "significant financial deficits" but they remained committed to providing care in other ways. Campaigners from the Liverpool Hospice Action Group described the news as "devastating" and called on Marie Curie to allow another provider to step in and run the unit.Editor's Note: Closing Marie Curie's hospice inpatient unit is significant and reflects trends throughout the UK. Though the international articles we post are limited, Hospice & Palliative Care Today has published 16 articles from or about Marie Curie's hospice services in the shart 16 months of our newsletter. 

Hospice programs shutter amid financial strains Hospice News; by Holly Vossel; 7/3/25 Financial and staffing headwinds are chipping away at hospices’ sustainability, with some providers recently pausing or closing their programs. Concerns have also mounted amid federal Medicaid cuts.

Center for Acute Hospice Care to close in August 29 News, Charlottesville, VA; by Jacob Phillips; 7/1/25 After nearly a decade of offering around-the-clock end-of-life care, Hospice of the Piedmont is closing their Center for Acute Hospice Care (CAHC) on Ivy Road in Charlottesville in August. “It gives us an opportunity to concentrate more on where patients want to be, which is home, and those services will still be provided,” Hospice of the Piedmont President and CEO Nancy Littlefield said. “[CAHC] is a 10-bed unit that we lease...and it’s for patients who might be having needs of a higher level of hospice care.” Littlefield says the main reason for closing the center is the lease is coming to an end and with uncertainty surrounding federal budget cuts of hospice care, continuing in this location is not sustainable. “Our hospice, as well as all hospices across the state, are having to be very cautious about what Medicaid and other reimbursement changes may occur under the current administration,” Littlefield said, “and I think the worst thing we can do for families and patients is to not be prepared.”

Trump administration to end 988 suicide prevention specialized service for LGBTQ+ youth in JulyCNN; by Jacqueline Howard; 6/18/25The 988 Suicide & Crisis Lifeline’s specialized services for LGBTQ+ youth will no longer be in operation starting July 17, according to a statement from the US Department of Health and Human Services’ Substance Abuse and Mental Health Services Administration (SAMHSA). ... According to the latest data from SAMHSA, more than 14.5 million people have called, texted or sent chats to the 988 Lifeline and have been transferred to a crisis contact center since July 2022. Nearly 1.3 million of those were routed to the LGBTQ+ specialized service.Editor's Note: This 988 LGBTQ+ specialized option was piloted in September 2020, expanded on March 6, 2025, and rolled out fully nationwide in July 2023. This data translates to approximately 1,250 LGBTQ calls per day; 52 calls per hour; 1 call per minute. Who--in your world of family and friends--might this ultimately affect? Research, data, and personal stories (sure to be in each of our circles of family and friends) tell us why this matters. A resource for you to use is The Handbook of LGBTQIA-inclusive Hospice and Palliative Care, 2nd edition by Kimberly D. Acquaviva. This handbook is the first place winner, 2024 American Journal of Nursing Book of the Year Award in Palliative Care and Hospice.

[United Kingdom] King's College London: Half of UK adults worried about painful death King's College London; 6/24/25 Almost half (47%) of UK adults are worried that they or their loved ones will have a painful or undignified death, according to a survey commissioned by King’s College London. The survey conducted by Focaldata explores public attitudes to death and dying and finds that almost half (44%) of respondents also feel worried about the quality of palliative and end-of-life care in the UK. Previous research indicates that up to 90% of people in the UK will require palliative care before they die. ... 40% of respondents said they did not know how to access palliative care in their area, and almost one third said they did not know enough about the healthcare system to find the support that a dying person needs. 

Wisconsin author discusses her mother’s aging, dying in the American health care system: The long-term care system failed both her and her mother, she writes Wisconsin Public Radio; by Colleen Leahy; 6/27/25At age 99, Judy Karofsky’s mother was kicked out of her Wisconsin hospice facility. Within 48 hours of that decision, Karofsky became her mother’s default nurse. “I had to find a wheelchair for her. I had to keep track of her meds. I had to buy all the bandages and supplies that she would [need],” Karofsky told WPR’s “Wisconsin Today.” Karofsky is the author of “Diselderly Conduct: The Flawed Business of Assisted Living and Hospice.” In it, she chronicles nightmare scenarios as her mother aged and died in the American healthcare system: making her way through independent living, six different assisted living facilities, memory care, skilled nursing and hospice.  

Strategies to prepare hospice providers to interact with adolescents with a parent in hospicePalliative & Supportive Care; William Grayson, Denice Kopchak Sheehan, Pamela S Stephenson, Kristen DeBois, Caitlin Sheehan; 5/25The sample included 18 young adults (18-28 years old) whose parents died in hospice or palliative care while they were adolescents (12-18 years old). Semi-structured interviews were conducted virtually via Microsoft Teams. The participants described a variety of skills that are important for hospice providers to know. They provided specific suggestions for hospice providers who seek to help adolescents navigate this critical time when their parents are dying or have recently died. These results can also be used to inform the development of interventions that assist hospice providers with strategies tailored to an adolescent's specific needs.

[England] Developing a palliative care service for the homeless community Nursing Times; by Mark Pedder; 6/18/25 To help address inequalities in the provision of palliative care, a hospice set up a service focusing on the unique care needs of Luton’s homeless community. The outreach initiative addresses the logistical and emotional barriers that often prevent homeless individuals from seeking care. Initially conceptualised as a weekly outreach clinic, the service evolved into a more flexible model that adapts to the unpredictable nature of the community it serves. By reframing the conversation and addressing the stigma surrounding homelessness, the service aims to improve health outcomes and extend life expectancies for this vulnerable population, while avoiding unnecessary hospital attendances and improving end-of-life conversations.

Winning with whiskers: A new approach to salesTeleios Collaborative Network (TCN); podcast by Chris Comeaux with Dawn Landry; 6/18/25In this engaging conversation, Chris Comeaux and Dawn F. Landry explore the intricacies of leadership, emphasizing the importance of curiosity, self-awareness, and empathy.  Dawn shares her journey in business development and her unique approach to understanding personality traits through her book, Winning with Whiskers [A Business Fable About Overcoming Obstacles by Knowing Yourself & Others]. Their discussion highlights the significance of building strong relationships and navigating friction in professional settings, ultimately advocating for a more authentic and empathetic leadership style.  Dawn discusses the importance of self-awareness, understanding personal strengths, and the dynamics of building effective relationships in both personal and professional settings.

Navigating the ‘Long Goodbye’ Help for caregivers of those with Alzheimer’s Dementia The Journal; by Renee Bledsoe, LPN, CHPLN, Hospice of the Panhandle; 6/16/25 ...  [Important statistics:] ... Right now, there are more than 38,000 individuals over the age of 65 in West Virginia with Alzheimer’s Dementia and about 65,000 caregivers. The estimated total lifetime cost of care for someone with Dementia is more than $400,000 and about 70 percent of that cost is borne by family caregivers in the form of unpaid caregiving and out-of-pocket costs. Sixty-six percent of caregivers live with the person for whom they are caring. More than half provide care to a parent or in-law, and about a quarter of those are also caring for at least one child. It comes as no surprise that 59 percent of dementia caregivers report high emotional stress, and 38 percent report high physical stress, according to the 2025 Alzheimer’s Disease Facts and Figures report. ... Hospice of the Panhandle is no stranger to the emotional, physical and financial challenges that the caregivers of those with Alzheimer’s Dementia in our area face every day. ...

Nursing home is pressuring my mother-in-law to enter hospiceAging Care - Caregiver Forum - End of Life - Questions; question posed by "concerned8"; 6/12/25 I am her Health Care Surrogate but as they won't declare her incompetent it has not come into effect. I believe the home's intent is to prevent me from making the decision regarding hospice and instead to pressure her to enter it in various ways. ... I am not anti-hospice and expect her to enter it in the near future, but want that to be my decision, not the home's (even if it's portrayed as hers).  ... [An answer from another reader" Our family has only had bad experiences with three different hospice companies. Contrary to what most people believe, many patients are placed on hospice for free equipment and free services. I was told this by more than one hospice worker.Editor's Note: This post raises numerous troubling perceptions, with descriptions of poor hospice experiences. 

My dad had an Advance Directive. He still had to fight to die Newsweek - My Turn; by Maggie Schneider Huston; 8/26/24, published in our newsletter 8/27/24My mom died peacefully. My dad died 72 days later, angry at the doctors for ignoring his wishes. ... Dad had heart surgery on December 20, 2023. An hour after the surgery ended, his vital systems started shutting down. A cascade of interventions, one after another, kept him alive. Four days later, he said: "Put me on hospice." The doctor dismissed this request, rolling his eyes and saying: "Everyone on a ventilator says that." On Christmas Day, my father asked for hospice again. He was in pain. He knew his recovery would be long and ultimately futile. He would never have an acceptable quality of life again. ... Dad's care team insisted palliative care was the same as hospice care, but he knew the difference. He wanted hospice care. Finally, they reluctantly agreed and called for a social worker to make arrangements. It wasn't necessary. Once they removed his treatment and relieved his pain, he died five hours later. ... Editor's Note: This article is not about Medical Aid in Dying (MAiD). It is about honoring Advance Directives, person-centered care with communications and actions related to "palliative" vs. "hospice" care. Pair this with other posts in our newsletter today, namely "Improving post-hospital care of older cancer patients."