Literature Review

Palliative care bypasses Black heart disease patients The St. Louis American; by Alvin A. Reid; 11/30/24 A study by Saint Louis University researchers paints a grim picture for many heart failure patients in America – and the outlook is worse for African Americans. The study, published in the Journal of the American Heart Association, found that only one in eight patients with heart failure nationwide receive palliative care consultations within five years of diagnosis. Alarmingly, Black people were 15% less likely to receive palliative care compared to white patients with similar heart health illness. Other recent respective studies illustrate the higher risk and mortality rates for cardiovascular disease in the Black population – further demonstrating that the missing palliative care options have a greater negative impact on African American health. New statistics from a medical team at EHproject show African American women are at a greater risk for cardiovascular disease than their white counterparts. It found that 47.3% of Black women have heart disease. If they do not have it currently, they are 2.4 times more likely to develop heart disease. ... A March 2023 study published in JAMA Cardiology showed that Black men remain at the highest risk of dying from cardiovascular disease. ... 

Disclosure practices in Muslim patients and the impact on end-of-life care: A narrative review American Journal of Hospice and Palliative Care; by Mona Tereen; 11/26/24 ... Non-disclosure practices hold significant weight in end-of-life care for Muslim communities, where cultural and religious beliefs are deeply intertwined with healthcare decision-making. This narrative review explores the complexities of medical decision-making and disclosure practices among terminally ill Muslim patients, examining how these factors shape palliative care delivery. Conclusion: Non-disclosure practices present significant barriers to effective palliative care in Muslim communities. To improve care outcomes, culturally competent communication strategies and family-centered decision-making models are crucial.

Valley Health and Hospice of the Panhandle collaborate to expand hospice care Global Data; 11/26/24 Valley Health has partnered with Hospice of the Panhandle to launch a hospice care programme within its hospitals, War Memorial Hospital (WarMH) in Berkeley Springs and Hampshire Memorial Hospital (HMH) in Romney, West Virginia, US. An agreement, effective from 1 November, integrates Hospice of the Panhandle with the hospitals' existing care teams, aiming to enhance the quality and accessibility of end-of-life care for eligible patients and their families.  The Hospice in the Hospital programme, which began in 2020 at Winchester Medical Centre, has now extended to all Valley Health hospitals in Virginia and, with this recent development, to West Virginia. HMH and WarMH operations vice president Heather Sigel said: “We are extremely thankful to the Hospice of the Panhandle team for partnering with us to offer Hospice in the Hospital at both War Memorial and Hampshire Memorial. ..."

Hospice of Northeast Missouri marks 30 years, eyes future growth KBUR, Burlington, MO; by collinleddy; 11/25/24 Hospice of Northeast Missouri recently marked 30 years of service, expanding from its original focus in Adair County to cover a ten-county region. This growth addresses the critical need for end-of-life care in rural areas, providing support for patients and their families in managing symptoms and caregiving responsibilities. The organization has seen an increase in demand for its services, particularly among Medicare recipients in rural areas. Between 2010 and 2022, the percentage of rural Medicare beneficiaries using hospice care rose from 34% to 42%, reflecting broader trends in aging populations and the growing importance of caregiving. ... As the hospice looks ahead, it plans to further expand its resources and focus on community education, ensuring that more families are aware of the benefits hospice care provides during difficult times.Editor's note: Per the ongoing number of hospices that celebrate decade-marker anniversaries, we typically do not post those articles. However, the growth patterns in these descriptions reflect hospice organizational trends nationwide: expanding geographical access, rural utilization, increased priorities for caregivers, snf the importance of community education.

Hospice expands compassionate care for nursing home residents McKnights Long-Term Care News; by Liz Barnett and Mat Zucker; 11/22/24 Nursing homes are places of care, community and compassion, particularly for residents in their final stages of life. As we recognize National Hospice and Palliative Care Month, it’s an opportune time to consider how nursing homes can broaden the support they provide by better incorporating hospice services. Hospice offers a path to comfort and dignity at the end of life, yet many families have insufficient information about these services. Our mother, Leslie, benefited from hospice care early this year when her gallbladder cancer no longer responded to treatment. This journey revealed just how powerful hospice can be, not only for the patient but for our entire family. Nursing home staff and administrators can play a crucial role in helping families like ours make informed, compassionate choices like this for their loved ones.

Hospices have long road ahead on improving health equity Hospice News; by Holly Vossel; 11/21/24 Prolific health disparities have driven hospices to implement various strategies to improve diversity, equity and inclusion among underserved patient populations. Some providers say the needle has much farther to go toward equitable access. End-of-life care models have increasingly diversified to reach a broader range of patients with different beliefs, values and spiritual outlooks, according to Altonia Garrett, COO of Blue Ridge Hospice. Garrett is also executive director of the Virginia-based hospice’s Diversity, Equity, Inclusion and Belonging Committee. Yet, hospice providers lack a full scope of understanding around the nuanced challenges impeding utilization and the ways to more effectively address unmet patient needs, Garrett said.  

Rise in pancreatic cancer tied to better detection, study suggests Becker's Hospital Review; by Elizabeth Gregerson; 11/19/24 The rise in pancreatic cancer diagnoses can be attributed to previously undetected disease and not a rise in cancer occurrence, according to a study published Nov. 19 in the Annals of Internal Medicine. Researchers from Boston-based Brigham and Woman's Hospital and Austin, Texas-based Dell Medical School analyzed U.S. Cancer Statistics and National Vital Statistics System data of adults aged 15-39 from between 2001 and 2019 for the study. Here are five notes from their findings:

Valley Health's 'hospice in hospital' program expands to another hospital Becker's Hospital Review; by Mariah Taylor; 11/19/24 Hospice in the Hospital, a collaboration between Winchester, Va.-based Valley Health and Winchester-based Blue Ridge Hospice, has expanded to Warren Memorial Hospital in Front Royal, Va. The Hospice in the Hospital program provides hospice care services to hospitalized patients who meet general inpatient hospice criteria, according to a Nov. 18 news release. The patients receive emotional, psychosocial, and spiritual care from a team of social workers, music therapists, chaplains and volunteers. The program originated at Winchester Medical Center in 2020 and expanded to two additional Valley Health hospitals earlier this year. With its launch at Warren Memorial, all of Valley Health System's hospitals in Virginia now incorporate the Hospice in the Hospital program. 

Owatonna MN Hospice Care Program by Freedom Home Care updated and relaunched Freedom Home Care, Owatonna, MN; 11/15/24 Freedom Home Care announced the relaunch of its enhanced Hospice Care Supplement Program, designed to provide support for families and their loved ones receiving hospice care. The program addresses critical gaps by offering additional assistance with daily household tasks, personal care, family respite, overnight caregiving and 24 hour care.  ... The Hospice Care Supplement program is designed to complement the essential medical and emotional care provided by hospice teams, creating a holistic approach that prioritizes both the patient’s and the family’s well-being.

Nebraska inmates provide hospice care for fellow prisoner ABC KETV 7, Omaha, NE; by Mary Regli; 11/12/24 When you're in prison, there comes a point when either your sentence or your life comes to an end. The Nebraska Department of Correctional Services has come up with an idea to help inmates in either situation-- at no additional cost. They're transforming the prison from the inside out with a new program that's providing palliative and end-of-life care for incarcerated individuals. The prisoners we met are all serving time for heinous crimes. The purpose of the program is to have other inmate volunteers provide final care for dying or critically ill prisoners and help with their rehabilitation. "In the end of life, it doesn't really matter what you've done or what reason you're here; you're still a human, and you still deserve to be treated with dignity and respect. And this program embodies that," said Lori Palik, the department's director of nurses. Volunteers go through a ten-week program where they learn what they need to be able to care for their fellow inmates. 

Meals on Wheels substantially reduces risk of senior hospitalizations: report McKnights Home Care; by Adam Healy; 11/8/24 Home-delivered nutritious foods programs can help keep seniors out of the hospital and reduce their feelings of social isolation, according to a new report by Meals on Wheels and home care technology firm WellSky. The report examined how Meals on Wheels programs helped seniors recover after being discharged from a hospital stay. Each meal delivery also involved a social determinants of health assessment, which allowed Meals on Wheels staff to engage with participants and gauge their wellness and safety. After 30 days of the program, the researchers observed an 85% decrease in hospitalizations among participants. Approximately 98% of meal recipients said that Meals on Wheels helped their recovery, and 61% said it lowered their feelings of social isolation.Editor's note: While we know hospice patients experience a significant decline in appetite, the person's changing needs for nutrition continue. Pair this data with several recent articles we've posted regarding seniors' struggles compounded by living alone, isolation, and depression. We invite you to explore this educational/support video for caregivers/families of persons experiencing serious illness, palliative, or hospice care: Small Words - Big Meanings: EAT. Disclosure: Composing Life Out of Loss is a sponsor of our newsletter.

Gilchrist’s commitment: Bridging the gap in hospice care for minority communities Afro News - The Black Media Authority; 11/11/24 Equitable access to hospice care remains a critical issue, particularly in minority communities where disparities persist. Black Americans, for instance, continue to be underrepresented in hospice and palliative care services despite ongoing efforts to bridge the gap. Gilchrist, a trusted provider of end-of-life care for more than 30 years, is committed to addressing this inequity head-on. ... Veterans also face disparities in hospice care, especially African American veterans, who make up 12.4% of the veteran population, ... At the heart of Gilchrist’s commitment to serving Black communities in Baltimore lies the William L. and Victorine Q. Adams Gilchrist Center Baltimore. Named after two African American pillars of the local community, this state-of-the-art facility at Stadium Place on East 33rd Street serves as a beacon of hope for residents of Baltimore City and their families.

Veterans guest house to open a hospice home: Serving veterans through their final journey ABC 8 KOLO, Reno, Nevada; by Rebecca Kitchen; 11/11/24 For the last 30 years, the Veterans Guest House has made a commitment to serve veterans and their families as they seek medical care in our area. And over those 30 years, the need has grown tremendously. In fact, the Guest House has regularly been at capacity this year. To accommodate the increased need, the Veterans Guest House has also expanded on the services it offers. ... Every day, veterans and their families are confronted with end-of-life decisions. Some, have the resources to live out those days in comfort. But others face those last moments with uncertainty. “So, our solution is providing a home so they can get the hospice care and the 24-hour care that they need when they can’t get that where they live,” said Froslie. The current home and mission remain the same. This is a second home that will offer a cost-free, private residence for veterans in their final days. It is not a medical facility. Veterans will enroll with a hospice provider of their choice, who will oversee their medical needs.