Literature Review

J-Sei Home closes after 30 years, leaving Bay Area Japanese seniors in need KQED, San Francisco, CA; by Cecilia Lei; 3/10/25 ... For decades, Bay Area Japanese American families have sought culturally sensitive senior care facilities like J-Sei Home for aging loved ones. Community members said that about a decade ago, there were approximately 10 Japanese senior care homes in the region. Today, that number has declined by about half. The most recent closure came in January, when the last residents of J-Sei Home moved out, and the facility permanently closed its doors after 30 years of operation. A majority of the displaced residents were Japanese Americans in their 90s and had cognitive impairment. ... They had tender caregivers who spoke Japanese. They ate familiar comfort foods like miso soup and pickled vegetables, and they participated in daily activities such as drum circles and singing Japanese songs. ...

NPHI CEO Tom Koutsoumpas: Modernize hospice benefit for value-based future Hospice News; by Jim Parker; 3/10/25 The health care realm is changing, and hospices must change with it. This is the central thesis that underlies the National Partnership for Healthcare and Hospice Innovation, which is currently celebrating the 10th anniversary of its founding. NPHI seeks to put nonprofit hospice organizations at the forefront of innovation, the development of new care and payment models and collective action to expand access and prepare for a value-based future. The organization currently has more than 120 members, all nonprofits, who collectively care for more than 580,000 patients.The health care realm is changing, and hospices must change with it. This is the central thesis that underlies the National Partnership for Healthcare and Hospice Innovation, which is currently celebrating the 10th anniversary of its founding. ... [Click on the title's link to continue reading.]

At the end of life, doctors’ actions and patients’ wishes may be misaligned, according to a Rutgers Health study Rutgers; by Greg Bruno; 2/28/25 For terminally ill cancer patients, the final days of life are immensely personal, having the choice to continue cancer treatments, or to stop treatments and prioritize a more comfortable passing. What a patient wants, however, isn’t always what they receive, according to a Rutgers Health study published in the journal Cancer. “A patient's end of life is often not a reflection of what they want, but rather, who their oncologist happens to be,” said Login S. George, a health services researcher at the Rutgers Institute for Health, Health Care Policy and Aging Research, and lead author of the national study. “The data doesn’t indicate patient-centered treatment decisions, but rather, more habitual or default ways of treating patients,” says George, who is also a member of the Cancer Prevention and Control Program at Rutgers Cancer Institute, the state’s only National Cancer Institute-designated Comprehensive Cancer Center. ... [Click on the title's link for more statistics, insights, and recommendations.]

Unity Hospice and Palliative Care, with over 30 years experience, broadens services to southern Wisconsin EIN Presswire; by Unity Hospice and Palliative Care; 3/6/25 Unity Hospice and Palliative Care is expanding its services to Southern Wisconsin, bringing decades of expertise in delivering personalized, heartfelt care and support to individuals and families facing life-limiting illnesses. The new location will serve patients in Kenosha, Milwaukee, and Racine counties, ensuring greater access to high-quality hospice and palliative care. "For over 30 years, Unity Hospice and Palliative Care has provided expert, compassionate support to patients and families," said Michael Klein, CEO of Unity Hospice and Palliative Care. "Expanding to Southern Wisconsin allows us to bring that same commitment to even more communities, ensuring that individuals facing serious illness receive the personalized care they deserve."

Children and family bereavement needs on the rise at Hospice of Santa Barbara Santa Barbara Independent, Santa Barbara, CA; by Hospice of Santa Barbara; 3/5/25 It’s not just adults who are impacted by grief and loss in our community. Children are as well. One in five children will experience the death of someone close to them by age 18, and one in twenty children will experience the death of one or both parents before reaching adulthood. Although death and grief are inevitable parts of life, these statistics highlight just how many children are impacted. Children are especially vulnerable when they lose a close loved one, and without professional support, grief can be especially paralyzing and overwhelming. ... Hospice of Santa Barbara’s Children and Family Services program provides free professional support and coping tools for children, teens and their families ... HSB is active in local campuses, providing professional weekly support groups from elementary to college age students. On-campus counseling services provide a vital space for open communication, support and the development of coping skills.Editor's note: What specialized child, teen and family bereavement services are you providing? Missing? What more can you do, with life-changing outcomes for those you serve?

Nurse leaders can take the lead in promoting civility in the workplace Oncology Nurse Advisor; by Susan Rux, PhD, DNP, RN, FACHE; 2/28/25 Civility, the act of respecting others, especially in situations where disagreement or disparity may arise, occurs by intentionally displaying kindness and empathy. These behaviors help people to understand differences as well as uphold common ground across all social contexts. A stable foundation, afforded through civil actions, serves as a catalyst in achieving environments that promote diversity, equity, and inclusivity — the underpinnings of a culture of belonging. Nurse leaders can play a key role in creating this culture. Contrary to civility, in the healthcare setting, acts of incivility lead to increased levels of staff disengagement and turnover. Researchers have noted that a civil nursing workplace provides a safeguard against numerous professional issues, including but not limited to increased turnover rates, burnout, job dissatisfaction, and stress.

Bristol Hospice launches new locations in 4 states Hospice News; by Holly Vossel; 3/3/25 Bristol Hospice has unveiled de novos in Arizona, South Carolina, Texas and Washington. The move marks an important period of expansion in states with some of the largest aging populations pushing up demand for hospice. The hospice provider has plans to expand in Fort Worth, Texas in the “near future,” the organization stated in an announcement. “We are thrilled to announce that Bristol Hospice is now accepting patients in the following locations: Lubbock, Texas; Tacoma, Washington (Pierce County); Phoenix, Arizona; [and] Charleston, South Carolina,” the organization said in a social media post. 

Patient put in hospice at 52 celebrates life years after admission, thanks to heart surgery KCTV-5, Kansas City, MO; by Morgan Riddell; 2/27/25 A local man with heart failure who was told numerous times he only had months to live now has a new outlook on life two years later. ... It started in 2023. Sam Edwards, who was diagnosed with ALS after serving in the military, started experiencing new pains. He went to doctors who all determined Sam was just experiencing issues related to ALS. Then, a doctor at the VA Hospital noticed some tests were off and found Sam was experiencing heart failure. What he needed was open heart surgery, but doctors determined the risk of putting Sam on the operation table was too high. Not only was he at risk of having a stroke and dying on the operating table, but his recovery would also be months long and painful. They declined to do the surgery at the VA and suggested Sam go get a second opinion. This is when he was connected with Dr. Michael Gibson.Editor's note: While we in the palliative and hospice field promote earlier admissions to care and elimination of overtreatment, another side of the coin exists. Click on the title's link to read more about this hospice patient who sought out a second opinion. Imagine: the hospice patient is you (at age 52); or a family member; or a best friend. Especially as AI becomes more prevalent in assessing palliative and hospice referrals, we must see the bigger picture and retain human element. 

My mother and brother have terminal cancer. I'm worried I won't feel anything when they die. Business Insider; essay by Kimanzi Constable; 3/1/25 ... My brother was diagnosed with Cutaneous T-cell lymphoma (CTCL) three years ago, and my mother found out she had stage four lung cancer a year ago. I got a call earlier this year that the cancer was spreading, and I flew to spend time with them. I knew it would be hard seeing them battling late-stage cancer, but what I walked into was my brother in the Advanced Cancer Care Center, unable to move, and my mother wanting to hold an "end of life" planning meeting. It was worse than I anticipated. It was hard to see him not moving and the nurses having to help him do everything. My mother looked like she weighed 50 pounds ... I'm worried I won't feel anything when they pass away. ... I think it might be just another day when they pass away. I've been thinking — what does that say about me? Am I a bad person for not falling on the ground and losing it for over half of my family dying? Or is this nothingness an OK feeling due to the complicated relationship we've had most of my life? ... Editor's note: Leaders, welcome to the daily world of your clinicians, especially your social workers, chaplains, and grief counselors. Read this with openness to the normalcy of this author's conflicted relationships, emotions, thoughts, and empowered actions toward "not wanting to regret how I handled this opportunity to say goodbye more healthily."

Local care specialists launch first-ever ‘memory cafe’ in the Upstate WSPA Greenville, SC; by Simone Jameson; 3/3/25 Some Upstate care providers are bringing a new concept to the region they said will benefit families of adults with dementia. The Blake at Hollingsworth Park Assisted Living and Think Different Dementia are two partners behind a first of its kind ‘memory cafe’ in Greenville. ‘The Upstate Memory Cafe’ provides a community setting where people living with dementia and their caregivers can bond. ... Organizers told 7NEWS the ‘memory cafe’ offers a space where attendees play cards, make flowers and do other activities together. They said ten to twelve home health care and hospice representatives are present for each meeting and educate families on best dementia care practices, while offering them support and respite services.

Medicaid health plans failing to pay hospices for nursing home room and board Hospice News; by Jim Parker; 3/3/25 ... Medi-Cal, California’s Medicaid program, is among the states that shifted management of its safety net health coverage to health plans. Under this system, Medi-Cal pays the health plans who then pass payments on to the providers. However, due to confusion among managed care plans that oversee Medicaid in most states, those hospices are not getting those dollars back, according to Craig Dresang,  CEO of YoloCares. This has caused hospices to lose thousands to millions of dollars in some cases. “Managed health care plans are saying they’re denying the claims, and they’re tying them up so that they age out. So the due date has passed and we can no longer bill,” Dresang told Hospice News. [Click on the title's link to continue reading.]

Care America Home Care enhances access to compassionate hospice care in Irvine, CA East Coastsentinal, Irvine, CA; 2/28/25Care America Home Care, a trusted name in senior care, proudly announces its continued dedication to the Irvine community by expanding access to personalized hospice home care services. This initiative supports families navigating challenging times by providing compassionate and professional hospice support at home in Irvine, ensuring the highest standards of care and comfort. “At Care America Home Care, we understand families’ profound emotional and logistical challenges during end-of-life care. Our mission is to offer a reliable and comforting solution, enabling families to focus on cherishing their time together,” said Rina Boidon, the Founder and Co-Owner of Care America Home Care.