Literature Review

50 years ago, Karen Quinlan’s coma sparked the movement for patients’ rights near the end of life The Conversation; by Kalpana Jain; 3/23/26 March 31, 2026, marks 50 years since a landmark decision that shapes American patients’ rights every day: the New Jersey Supreme Court ruling in the case of Karen Ann Quinlan, who had suffered an irreversible coma. Quinlan’s case established for the first time that decisions near the end of life should be made by patients and families, not by doctors and hospitals alone. As a bioethicist, I have taught and written extensively about the profound impact the Quinlan case has had on law, bioethics and the pursuit of death with dignity. A decade after the Quinlan case, New Jersey created a Bioethics Commission to study advancing health care technology in light of the decision’s principles. The commission’s proposed legislation establishing advance directives was enacted on July 11, 1991. I was privileged to lead this project, as staff to the commission. Today, all 50 states have advance directive laws that allow competent adults to plan ahead and put their wishes for end-of-life care in writing.

How "The Pitt" can prepare you for the end of lifeKatie Couric Media; by Maggie Parker; 3/20/26 If you're sensitive to seeing death on screen, you shouldn't watch The Pitt. Set in a major city's emergency room, on the hit medical procedural, death is inevitable, and frequent. ... The way end-of-life issues are addressed on the show was carefully thought out and intentionally diverse. ... Unfortunately, it's rare for the media to portray death and dying authentically, according to Dr. Underleider's analysis of more than 141,000 scripted TV episodes from 2010 to 2020. ... This season, The Pitt takes its quest to realistically depict death to another level, with the introduction of a terminal cancer patient, Roxie, who knows what's coming and doesn't want to go home to face it. We spoke to Dr. Ungerleider about her reaction to Roxie's final moments, her experience working with the creators, what they get right about end of life, and why it matters. ...Editor's Note: Pair this with our previous posts, "HBO’s ‘The Pitt’ inspires viewers to consider organ donation, end-of-life planning" and "How ‘The Pitt' gets death right."

“We make our own families”: Do child-free people die alone? Hospice worker shares her experience Daily Dot; by Rebecca Leib; 3/18/26 According to a longtime hospice worker, being child-free doesn't affect end-of-life care, but having strong community ties does. The decision to have children is a deeply personal one, fraught with societal pressures and fears. One common fear is that a childless person might die alone. Recently, however, child-free advocate @wearechildfree shared a video dispelling that fear. Whether someone has kids or doesn't, she says, meaningful end-of-life care is not about children specifically, but the result of cultivating a close and loving community.

Mom of Frosty-loving daughter on hospice shouts out Wendy’s staff for ‘lovely gesture’ NBC Today Show; by Heather Marin, RD; 3/13/26 ... [Mary Adams] wanted to give a shoutout to a Wendy’s drive-thru employee in Palm Desert, California, who made her feel seen on a weekly Frosty run that’s deeply bittersweet. ... Purdie’s sister, Gretchen, was diagnosed with glioblastoma in 2023 [... and chose hospice care in January 2025]. Her appetite is limited these days. “Every week,” Purdie explains. “Someone from our family, usually my mom, goes to Wendy’s and gets six chocolate Frostys.” ... When Adams arrived at her local Wendy’s to pick up the weekly supply recently, a staff member recognized her. “Hey, you’re late!” said the team member, handing over the drink tray, “No spoons, right?” “Many days, there are very few reasons to smile while being a caregiver for her terminally ill daughter, but that interaction was a bright spot,” says Purdie. The whole family was touched that someone noticed the routine that is for them both life-sustaining and painful.

Chronic pain and unrecognized grief: epistemic barriers to personal and social recognition Medicine, Health Care and Philosophy; by Christopher Jude McCarroll, Ying-Tung Lin, Dominik Koesling, and Claudia Bozzaro; 3/29/26 What is it to grieve? What is the nature of grief? ... Importantly, a close examination of the phenomenology of chronic pain helps illuminate the ways in which it also involves the kind of losses that we can grieve over. The losses involved in experiences of chronic pain impact one’s practical identity in ways that can lead to grief. This chronic pain grief remains largely unrecognized, however. We outline four epistemic barriers to recognizing the grief involved in experiences of chronic pain. ...

Pikes Peak Hospice donation drive smashes goal; 150 new blankets collected for veteran patients The Gazette, Colorado Springs, CO; by O'Dell Isaac; 3/2/26 Pikes Peak Hospice and Palliative Care reached out the local community with an ambitious request in early January ... [asking] for donations of up to 100 new, handmade lap blankets for its veteran patients by March 2. ... The community has answered the call – and then some. More than 150 red, white and blue blankets have been donated, with more donations still arriving, ... "We've been overwhelmed by this incredible response," said Sonya Bergeron, veteran liaison with Pikes Peak Hospice.

UVM Home Health & Hospice volunteers among the longest serving in the nation Vermont Business Magazine | The University of Vermont Health Network - Home Health & Hospice; by Tim; 3/3/26 Among the longest‑serving hospice volunteers in the nation, Charlotte Kenney, Jan Watt and Lil Venner have each devoted more than 45 years to UVM Health – Home Health & Hospice because, they say, helping patients and their families make the most of the time they have left of this earth is a privilege, rooted in grace and connection. The notion that hospice work is defined by sorrow, is rejected by all three dedicated volunteers. "What I'm doing is enabling this person to live fully until the very last second," says Kenney. ... Venner adds, "You see the world differently when you're looking through the eyes of somebody who may be seeing this particular thing for the last time." Editor's Note: We celebrate these devoted hospice volunteers at UVM Health Network – Home Health & Hospice. Together, Charlotte Kenney, Jan Watt, and Lil Venner have given more than 185 years of service—an extraordinary testament to presence, compassion, and steadfast commitment. Who among your volunteers carries a stories of faithful service? What collective years of care live within your own program? Consider gathering and sharing that data—not simply as numbers, but as narratives of impact and catalysts for thanks.

Friends of Hospice starts life longings bucket list program WSYR-TV, Syracuse, NY; by Iris St. Meran; 2/26/26 Losing a friend or loved one is never easy. That’s why organizations like Friends of Hospice in Oswego County are important. They provide non-medical support and have a new initiative to help those facing a life limiting diagnosis fulfill bucket list requests. Elena Twiss, the executive director shared more about the Life Longings program. It is designed to support individuals facing a life-limiting diagnosis by fulfilling “bucket list” requests, making comfort improvements, or helping with milestone celebrations. To learn more about life longings and the other resources friends of hospice provides visit FriendsOfHospice.org.

Relearning the world through grief-informed case formulation: A critique of prolonged grief disorder Journal of Humanistic Psychology; by Eleonora Ramsby Herrera, PhD; 1/31/26 Drawing on existential and humanistic frameworks, this review article critically examines the diagnosis of prolonged grief disorder and questions the usefulness of reducing grieving to a fixed set of symptoms and timelines. ... Rather than viewing grief as a disorder to be treated, the article advocates for understanding it as a natural and potentially transformative human response and argues for integrating grief into the bereaved person’s life story as a way to relearn the world.

New nonprofit helps Summit families facing terminal illnesses Summit Daily; by Summit Daily Staff; 2/24/26 The newly launched nonprofit Lean on Us aims to provide support services for individuals and families in Summit County dealing with terminal illness. A news release from the nonprofit stated it will provide physical, social, emotional and financial support, complementing the work of existing nonprofits, healthcare providers and caregivers in the county. Lean on Us’ nonmedical assistance will include companionship, caregiver respite, transportation, meal support, emergency financial assistance, accommodations, resource coordination and help with day-to-day tasks.

My family member passed away — do I get a discount for bereavement travel? Fodor's Travel |"Dear Eugene"; by Eugene Fodor; 2/23/26 In this month’s "Dear Eugene," we explore the benefits bereavement travelers have and tap experts for the best way to navigate grief while moving through the world. ... Several airlines (not all) offer bereavement fares, waivers, or what’s sometimes called “compassion fares,” but that doesn’t always mean you’ll save money. The real benefit of bereavement fares is the greater flexibility they offer.

Lawyer explains why everyone should do 'mandatory hospice volunteering' when they turn 18 Upworthy; by Heather Wake; 2/20/26 In a recent, thought-provoking episode of the Impact Theory podcast with Tom Bilyeu, renowned divorce attorney and author James Sexton shared how being a hospice volunteer drastically changed his perspective on life. "I think when you turn 18, you should have to do a year or two of mandatory hospice volunteering," Sexton said. "It changed my entire way of viewing the world."