Literature Review
All posts tagged with “General News | Changing the Culture of Dying.”
Cream tea party for hospice breaks world record
09/25/26 at 03:00 AM[United Kingdom] Cream tea party for hospice breaks world record BBC News; by Caroline Robinson; 9/22/26 A hospice has broken a world record for the largest cream tea party. Cornwall Hospice brought 2,483 people together in the attempt to break the record previously held by Mercedes-Benz in Beijing with 1,088 attendees. The event at the Royal Cornwall Showground on Saturday was hosted by entertainer Johnny Cowling who said: "This is what Cornwall is all about - supporting one another." The charity said the record attempt also marked its 45th year of supporting people across the Duchy.
Rehearsing the end
09/24/26 at 03:00 AMRehearsing the end Reader; by Ali Hickerson; 9/23/26 I'm covering all my bases,” says Rob, wearing a Cubs shirt, on the grounds of Rosehill Cemetery on July 18. After a doctor told him to get “his things in order” following his diagnosis of incurable bone marrow cancer last year, he began working with the Chicago Death Doula Collective, one of several resources he’s turned to for support. He’s one of the nine people picnicking at Rosehill on a Saturday afternoon, as part of a cemetery picnic series the Chicago Death Doula Collective has hosted there monthly this summer. ... Rob says he needed a community like Bianchi’s to deal with the reality of his cancer, ... After spending so much time in the cancer ward, Rob longed to hear stories of the people sitting around him—to humanize the topic, “laugh, cry, or make jokes about it,” and reflect on the preciousness of time.
Finger Lakes Nurse Honor Guard gives late nurses a final tribute
09/23/26 at 03:00 AMFinger Lakes Nurse Honor Guard gives late nurses a final tribute Democrat and Chronicle; by Mike Murphy; 9/21/26 As Ruth Benjamin was getting ready to retire after more than 50 years in nursing, two of her colleagues passed away. ... Nursing is a calling and a way of life, Benjamin said by way of explanation, and many like her and her colleague gave everything they had to their profession. ... After some research, Benjamin founded the Finger Lakes Nurse Honor Guard, which celebrates its third anniversary in October. The all-volunteer honor guard ensures that late nurses are recognized, in a similar way that honor guards pay tribute to late military or first responders. ... The service is free.Editor's Note: Though this article is behind a paywall, you can learn more about this inspirational Finger Lakes Nurse Honor Guard from their website.
Support children through grief with faith and honesty
09/23/26 at 03:00 AMSupport children through grief with faith and honesty Patheos; by M.T. Mom; 9/22/26 Grief is messy for adults. Involving kids raises the stakes. How do we support children through grief while we’re grieving alongside them? ...
HPNF awarded Spanish-language access grant
09/22/26 at 02:00 AMHPNF awarded Spanish-language access grant Hospice & Palliative Nurses Foundation; Press Release; 9/18/26 The Hospice and Palliative Nurses Foundation (HPNF) has received a $107,000 grant from Elea Institute for a new project titled the Spanish-Language Access to Hospice and Palliative Nursing Certification Initiative. Elea Institute is committed to ensuring all persons have access to high-quality hospice and palliative care and has awarded numerous grants supporting enhanced community access and educational resources. This grant project will address a critical barrier to equitable hospice and palliative care training: language access. Spanish-speaking nursing assistants are an essential part of the healthcare workforce, yet limited access to Spanish-language certification and educational resources creates barriers to professional advancement and equitable care delivery.
Granddad, 82, to take on 10k as part of family team
09/21/26 at 03:00 AMGranddad, 82, to take on 10k as part of family team BC News, West of England; by Dawn Limbu; 9/19/26 An 82-year-old grandfather is set to be the oldest charity runner at this year's annual Run Cheltenham 10k race. Dave Cant, from Cheltenham, will run alongside his two daughters, son-in-law and grandchildren to raise money for Sue Ryder, the palliative care and bereavement charity he has volunteered with for 17 years.
Loved ones remembered with release of 1,000 monarch butterflies
09/18/26 at 03:00 AMLoved ones remembered with release of 1,000 monarch butterflies The Courier, Waterloo, IA; by Maria Kuiper; 9/15/26 A break in the clouds Sunday seemed too good to be true as 1,000 monarch butterflies were released during Cedar Valley Hospice’s Release and Remember event. Despite the rain, about 2,000 people showed up for the fundraiser event where butterflies could be bought and dedicated to loved ones that died during hospice care. ... “Butterflies represent to so many people that transformation between one life and the other because they’re literally going through that transformation,” Suzanne Benda, Cedar Valley Hospice’s chief growth officer, said. “I think it does show that, I mean, what a special moment as they come out and “Somewhere Over the Rainbow” is playing and we see the butterflies start to take off.”
The balancing act: how caregivers navigate the stress of work, family, and caring for a loved one
09/18/26 at 03:00 AMThe balancing act: how caregivers navigate the stress of work, family, and caring for a loved one Delaware Live; by Staff Writer; 9/16/26 ... This article — the sixth in a continuing series on the caregiver’s experience — explores practical strategies for balancing competing pressures while protecting your own well-being. Insights from national research and guidance from Delaware Hospice, Oasis Senior Care (a leading consultant for families), and Easterseals Delaware & Maryland’s Eastern Shore underscore a central message: you don’t have to do this alone, and thriving — not just surviving — is possible.
Family caregivers are the unsung heroes of many Granite State homes
09/16/26 at 03:00 AMFamily caregivers are the unsung heroes of many Granite State homes New Hampshire Union Leader; op-ed by Julie Stone; 9/15/26 ... According to AARP, nearly one in four New Hampshire adults serve as a family caregiver, providing care that is often unpaid and largely unseen. Together, they contribute hundreds of millions of hours of care each year. Without them, many older Granite Staters and individuals with serious illness would be unable to remain in the homes and communities they cherish. Yet while family caregivers provide extraordinary support, too many are carrying the burden alone. Many are balancing caregiving with full-time jobs. Others are raising children while caring for aging parents. ...
Death over Thai food helps grieving families cope with loss
09/15/26 at 03:00 AMDeath over Thai food helps grieving families cope with lossVITAS Healthcare; Press Release; 9/10/26If you walk by Thaibodia Bistro, a popular Thai and Cambodian restaurant in the San Francisco Bay Area on a Friday evening, you might assume the diverse group of patrons deep in conversation and dishes of pad thai and lort cha are participating in a neighborhood book club or networking event. This group is unique. They are learning to cope with death over the comforts of community and Thai food. ... Death Over Thai Food is the brainchild of Chaplain Jonah Sanderson, an interfaith chaplain for VITAS Healthcare. ... Drawing on a 15-year career marked by innovative approaches to community engagement and support, Sanderson sought a unique way to help people process loss. .. With these thoughts in mind, he gathered 20 caregivers in varying stages of bereavement and invited them to dinner.
Medicare moments: The scarcity of Medicare caregiver benefits
09/15/26 at 03:00 AMMedicare moments: The scarcity of Medicare caregiver benefits Allied News; by Joel Mekler; 9/14/26 ... AARP and the National Alliance for Caregiving released the 2025 Caregiving in the U.S. report, their newest update since 2020. This comprehensive document offers an in-depth look at the evolving landscape of family caregiving for adults, highlighting key trends, challenges, and potential reforms. A key discovery is the swift growth in family caregiving. Almost 25% of adults — 63 million Americans — spent the last year caring for an adult (59 million) or a child (4 million) with complex medical needs or disabilities, marking a 45% increase since 2015. This trend underscores the essential role of family caregivers and exposes systemic shortcomings that place significant burdens on them, highlighting the pressing need for reforms.
[United Kingdom] Dad who hates sand to take on Sahara trek
09/15/26 at 03:00 AM[United Kingdom] Dad who hates sand to take on Sahara trek BBC News; by Emma Stanley; 9/13/26 A dad who hates sand is trekking the Sahara Desert to raise money for the hospice that cares for his son. Andrew Privett, from Leyland in Lancashire, is one of 31 adventurers who are preparing to trek 30 miles (48km) across Morocco's Erg Chegaga Dunes over six days in November. They will face extreme temperatures, challenging terrain and long days beneath the desert sun, in the first overseas challenge for Chorley's Derian House Children's Hospice.
Retired educator gives back to grieving children at Camp Braveheart
09/14/26 at 03:00 AMRetired educator gives back to grieving children at Camp Braveheart WJAR-10, NBC, Cranston, RI; by Patrice Wood; 9/9/26 Young hearts come together at Camp Braveheart in Rhode Island and Massachusetts. And the first person to greet them when they get off the bus is Harry Potter. Potter is a retired Rhode Island school educator with a famous name and a heart of gold. They come Camp Braveheart to begin to heal after the death of a loved one. Braveheart is now in its 20th year and much of that time, Potter has been a trusted counselor. "The little kids think I'm magical. You see them running around the camp saying, 'Harry Potter, Harry Potter,'" Potter said. That connection eventually opens the door for a more serious conversation.
What we get wrong about death, according to end-of-life workers
09/14/26 at 03:00 AMWhat we get wrong about death, according to end-of-life workers HuffPost; by Monica Torres; 9/12/26 ... I had conversations with palliative and hospice care physicians, nurses and social workers that comforted me, surprised me and challenged my own assumptions about death. Maybe they will for you, too. Here are some of the biggest misunderstandings they shared with me about death and what the reality actually is:
Sandwich generation caregiver shares how she cares for her mom with Alzheimer’s at home
09/14/26 at 03:00 AMSandwich generation caregiver shares how she cares for her mom with Alzheimer’s at home KVVU-TV Fox 5, Las Vegas, NV; by LeAnne Gendreau and Sondra 'Sam' Cradduck; 9/10/26 Ty Lewis, a dementia practitioner, takes care of her mother, Gertrude, who is in the end stages of Alzheimer’s while raising her children. She has been sharing her journey online with a community of more than 120,000 people online. Lewis, a member of the “sandwich generation,” sat down with Aging Untold expert and gerontologist Sam Cradduck to talk about what it takes to care for two generations and what the online community means to her family.
Grieving children need more than our sympathy. They need a place to belong.
09/09/26 at 03:00 AMGrieving children need more than our sympathy. They need a place to belong Rhode Island Current; by Deanna Upchurch; 9/8/26 Children who lose a close family member grieve differently than adults, and their grief changes as they grow. A loss experienced at 8 can take on an entirely different meaning at 12, 16 or 25. A child can be deeply sad and still want to swim, make art, play games and laugh with friends. HopeHealth makes room for all of it at Camp BraveHeart. This summer, 100 grieving children and teens attended our day camp at Camp Hoffman in South Kingstown with another 75 experiencing the camp offered in North Attleboro, Massachusetts. ... According to the 2026 Childhood Bereavement Estimation Model, 1 in 11 children in the United States —- about 6.6 million —- will experience the death of a parent or sibling by age 18.
When the end of life feels like a beginning: a hospice encounter raises questions medicine can't answer
09/09/26 at 03:00 AMWhen the end of life feels like a beginning: a hospice encounter raises questions medicine can't answerBroadview; by Ralph Klose; 9/8/26 As a retired neuropsychologist and longtime hospice companion, I often wonder what can still be measured at the end of life — and what cannot. ... Magda had lived in the hospice for three months. A former violinist, she rarely spoke about her past. But her hands still moved in gentle arcs, as if drawing invisible phrases from the air. ... One afternoon, I entered her room and paused. The air felt different — not cold, not scented, but bright. The blinds were closed. No sunlight entered. And still, the space around her shimmered faintly, like a curtain of breath. Her skin looked translucent. Her lips moved, but no sound came. Later, as I sat quietly at her bedside, a nurse whispered, “She’s speaking with someone.” There was no theology in her gestures. No visions of angels. But something had changed — as if a second world had unfolded beside the first, not replacing it, but resting gently alongside. ...
How Caledonia is using a community festival to redefine end-of-life planning
09/09/26 at 03:00 AMHow Caledonia is using a community festival to redefine end-of-life planning McKnights Senior Living; by Kimberly Bonvissuto; 9/7/26 A first-of-its-kind festival aims to bring “deathcare” back into the fabric of community life by reducing fears and stress tied to the end of life. Caledonia Senior Living & Memory Care in North Riverside, IL, is partnering with Wally’s Hearth, a Chicago nonprofit working to establish the state’s first social model hospice home, to host Telling the Bees Fest: A Chicagoland Deathcare Education & Resource Festival. The festival is designed to foster “honest, compassionate conversations about death, caregiving, planning, grief, remembrance and what it means to care for one another through the full human experience,” according to organizers.
Caregiver's relationship with grandmother goes viral
09/08/26 at 02:00 AMCaregiver's relationship with grandmother goes viral Today Show; by Morgan Chesky; 9/7/26 Twenty-four-year-old Grace Yockey and her grandmother Vava, have gone viral online for their adorable adventures together as roommates, all while shining a powerful light on young caregivers. NBC’s Morgan Chesky reports for TODAY.
The prevalence of Medical Power of Attorney documentation in a large healthcare system: A retrospective cohort study
09/05/26 at 03:20 AMThe prevalence of Medical Power of Attorney documentation in a large healthcare system: A retrospective cohort studyJournal of Palliative Care; by Angeli Sirilan, Alexandria Ellershaw, Tony Gaidici, Jacob Lahti, Michael Ruta, Richard Elias, Sandeep Pagali, Kristina Balangue, Sumit Agarwal, Nimit Agarwal; 8/26Designation of a Medical Power of Attorney (MPOA) is a key component of advance care planning (ACP) that ensures patient preferences are honored when decision-making capacity is not present. This study aimed to quantify MPOA documentation rates [in adult hospitalized patients] and identify demographic and clinical factors associated with documentation presence. Male sex, White race, older age (67.0 vs 54.3 years), and unmarried status were associated with a higher MPOA documentation rate ... Dementia ... and malignancy ... were associated with higher odds, while discharge against medical advice was associated with lower odds ... of MPOA documentation. Conclusions: MPOA documentation rates were low, highlighting missed opportunities to identify alternate decision makers when a patient lacks capacity.
Alzheimer’s blood test gets FDA clearance, but not CMS coverage
09/03/26 at 03:00 AMAlzheimer’s blood test gets FDA clearance, but not CMS coverage Inside Health Policy, Washington, DC; by Jessica Karins; 9/2/26 A blood test aiming to help with early identification of Alzheimer’s disease, including in primary care settings, by detecting buildup in the brain of the key Alzheimer’s biomarker amyloid beta plague, has been cleared by FDA, but the test and others in its category are not yet covered by CMS or any Medicare Administrative Contractors, its developer confirmed, with MACs having to make an individual determination for each patient of whether payment for the test is appropriate.
Longtime hospice volunteer grateful for ability to help patients, families
09/02/26 at 03:00 AMLongtime hospice volunteer grateful for ability to help patients, families Northeast Mississippi Daily Journal, Tupelo, MS; by Leslie Criss; 9/1/26 Back in 2000 when Pat Rutledge was new to Fulton, she realized she needed to find something to do with her time. She went through training to become a volunteer at North Mississippi Health Services Hospice. That was more than 20 years ago. "I'm the only volunteer from back then still here," said the 83-year-old. "I was assigned a patient, went to visit and just fell in love with being a hospice volunteer."Editor's Note: As hospice organizations' names, ownership, and services shift over the years, do your volunteers still feel seen? Pat began in her mid-50s and stayed 25 years — proof that purpose and appreciationcan keep a volunteer for decades. Look at your volunteers: what are you doing--today--to help them stay, through years ahead? What is something new you can do?
Beloved celebrities who opened up about their battles with dementia
09/02/26 at 03:00 AMBeloved celebrities who opened up about their battles with dementia MSN; by Travis Reeed; 8/31/26 Dementia and Alzheimer’s disease have affected people from many walks of life, including some of the most recognizable figures in entertainment, politics, and culture. Their experiences helped bring greater attention to memory loss, cognitive decline, and the challenges faced by families and caregivers. From Hollywood legends to celebrated musicians and political leaders, these individuals continued to leave lasting legacies despite their health struggles. Their stories also helped encourage public conversations about conditions that were once poorly understood or rarely discussed openly. [Click on the slides to see personalized stories of Tony Bennett, Sally Kirkland, Ronald Reagan, Sean Connery, Margaret Thatcher, Rita Hayworth, and Jimmy Stewart.]
[United Kingdom] Stirling University expert helps design dementia friendly flat for F1 legend Jackie Stewart's wife Lady Helen
09/01/26 at 03:00 AM[United Kingdom] Stirling University expert helps design dementia friendly flat for F1 legend Jackie Stewart's wife Lady Helen Edinburgh Evening News, Edinburgh, England; by The Newsroom; 8/28/26 An architect from the University of Stirling has helped design a dementia-friendly apartment for Lady Helen Stewart, wife of former racing champion Sir Jackie Stewart. Lady Helen was diagnosed with frontotemporal dementia in 2012 and Sir Jackie has become a passionate campaigner raising millions of pounds for research through his charity Race Against Dementia. The couple celebrate their 64th wedding anniversary today, Friday, August 28. ... Dementia-friendly features in the renovated apartment include: low-level counters to allow Lady Helen to interact and participate in cooking; a see-through and easily accessible fridge; visible open cabinets and front-facing clothing in the bedroom; integrated lighting for personal items; subtle and custom-made medical, cleaning and disinfection areas; and private medical areas for Lady Helen and her care providers.
I lost my sister to cancer. Here’s what I learned about medically assisted death.
08/31/26 at 03:00 AMI lost my sister to cancer. Here’s what I learned about medically assisted death. The Washington Post; by Steven Petrow; 8/29/26 The same year that my parents died, my sister, Julie, then 55, was diagnosed with advanced ovarian cancer. Five years and three recurrences later, she’d exhausted all viable treatment options. At that point, she’d undergone one nine-hour surgery, six courses of chemotherapy and had joined two clinical trials. Like my parents’ physicians had done, Julie’s doctor eventually recommended palliative care, with at-home hospice, to keep her comfortable during her last months. ... [Julie, 61, chose legal MAID in 2023.] Approaching MAID as a journalist, I had questions: How is eligibility determined, what are the safeguards, does it always work, is a health care professional involved and many others. As a brother, however, I was conflicted and confused, and my questions felt more urgent and personal. ... [Access might be limited by a paywall.]
