Literature Review
All posts tagged with “General News | Changing the Culture of Dying.”
It’s been weeks since I watched Elizabeth Olsen's His Three Daughters, and there's one thing I still can't shake
11/11/24 at 03:00 AMIt’s been weeks since I watched Elizabeth Olsen's His Three Daughters, and there's one thing I still can't shake CinemaBlend; by Heidi Venable; 11/10/24 There is a seemingly never-ending list of great options to binge on Netflix, and while I do love to actually make a trip to the theater, there’s no denying the convenience of streaming. After hearing some positive things about His Three Daughters — an offering on Netflix’s 2024 schedule — I decided to check it out, despite knowing the subject matter might hit a little close to home. It’s now been weeks since I watched the movie about three sisters navigating their father’s final days, and I still cannot shake how true it felt to my family’s own experiences with end-of-life care. ... Old wounds and a complicated family dynamic are quickly revealed as they all deal with his impending death in their own ways. The story really stuck with me, and here are a few reasons it felt so real.
PositivelyJAX Award - The purple bench of compassionate St. Augustine
11/04/24 at 03:00 AMPositivelyJAX Award - The purple bench of compassionate St. AugustineNews4JAX; by Melanie Lawson; 11/1/24 This month’s PositivelyJAX Award goes to something unique: a bench. But it’s no ordinary bench—it’s The Purple Bench, powered by people and conversation. The concept was brought to life by a group called Compassionate St. Augustine, sparking empathy and understanding in anyone willing to sit down and listen. This purple bench, located just outside the gates of the Lincolnville Community Garden in St. Augustine, often sits empty, waiting for someone to take a seat and begin a conversation. When I approached, Eileen Reid was happy to join me. In just a short 10-minute conversation, I got to know her—a retired hospice nurse ... “I’ve been around a lot of endings, and endings are beginnings, but now, now I’m beginning a whole different phase of my life, and it’s interesting. ...”Editor's note: Click on the title's link for the community news article. Click here for a photo and description of this Purple Bench Initiative: "The Purple Bench initiative was formed to challenge the community to engage in compassionate practices despite different backgrounds, religions, ethnicities, and views. In a world divided by polarizing opinions, it is increasingly important to find common ground to help those in need."
Blue Ridge Care expands bereavement care with new Center for Hope & Healing
11/04/24 at 03:00 AMBlue Ridge Care expands bereavement care with new Center for Hope & Healing Hospice News; by Jim Parker; 11/1/24 Blue Ridge Care has unveiled its new Center for Hope & Healing, a facility dedicated to offering comprehensive grief care. The Virginia-based nonprofit hospice, palliative care and PACE provider financed the center through philanthropic donations. The facility is located in the same building as Blue Ridge’s PACE program, according to CEO Jason Parsons. At the center, Blue Ridge bereavement care staff will offer specialized programs, workshops, support groups and individual counseling. “The center is a central organizing unit of our mission fulfillment in the areas of grief, family support and loss in a place people can come to that’s welcoming, inviting and centered around hope and healing,” Parsons told Hospice News. ... The center was built to create a relaxing atmosphere to help put visitors at ease, according to Parsons, with a sky blue color palette and several murals depicting natural scenes. In one display, a collection of rocks symbolizes the weight of grief. Visitors can write a message on the rocks to “leave that weight behind,” Parsons said. They can also paint their loved ones’ names on a mural of a branching tree in the lobby area.
CNY Inspirations: Caregiving is redemptive
11/04/24 at 02:45 AMCNY Inspirations: Caregiving is redemptive Syracuse.com, Syracuse, NY; by InterFaith Works of Central New York; 11/3/24 I will carry him with me for my life as one of the greatest examples of caring that I ever met. I will be obscure on the details, but he cared for his wife, who was completely immobilized, with a degree of fidelity, creativity, and painstaking love that I have rarely seen and could only hope to imitate. He lived what Arthur Kleinman calls in his book of the same title, The Soul of Care. ... He says, “Caregiving, for me, at its deepest was redemptive. It redeemed me…. in caregiving, there is a common tug of war between the sometimes-bitter feelings that care is a burden and the more heartening certainty that no matter how burdensome, it is ultimately rewarding.” ... My friend never expressed that verbally, but I saw it lived as I watched him over the years through periods of anxiety, weariness, anger, hurt, despair, and through it all, intense, personal demanding caregiving. “And so, in the end, the soul of care pivots to care of the soul.” Inauspiciously, my friend took good care of his soul…and certainly helped mine.
How end-of-life dreams and visions are bringing comfort to dying patients: A conversation with Christopher W. Kerr, MD, PhD
11/04/24 at 02:15 AMHow end-of-life dreams and visions are bringing comfort to dying patients: A conversation with Christopher W. Kerr, MD, PhD The ASCO Post (American Society of Clinical Oncology); by Jo Cavallo; 11/1/24 Just weeks or even days or hours away from death, the majority of conscious terminally ill patients often experience growth and meaning in their lives and the absence of fear through end-of-life dreams and visions, according to research by Christopher W. Kerr, MD, PhD. Dr. Kerr is Chief Executive Officer and Chief Medical Officer of Hospice and Palliative Care Buffalo, New York, and coauthor of Death Is But a Dream: Finding Hope and Meaning at Life’s End (Avery, 2020). ... In this interview with The ASCO Post, Dr. Kerr discussed how end-of-life dreams and visions bring comfort to dying patients, the difference between these experiences and hallucinations, and the importance of ensuring that patients understand the reality of their prognosis when cure is no longer attainable.
Europe funeral products and services market size, share & trends analysis report by type (funeral products, funeral services), by country (UK, Germany, France, Italy, Spain), and segment forecasts, 2025 - 2030
11/01/24 at 03:00 AMEurope funeral products and services market size, share & trends analysis report by type (funeral products, funeral services), by country (UK, Germany, France, Italy, Spain), and segment forecasts, 2025 - 2030 Grand View Research; 10/31/24 ... [There] is a rising demand for biodegradable coffins, urns made from natural materials, and shrouds crafted from organic fabrics. For instance, Ecoffins UK LLP offers eco-friendly coffins made from pandanus, willow, and pine. These products are designed to decompose naturally without leaving harmful residues, aligning with the eco-conscious values of many Europeans. Furthermore, natural burial grounds, which avoid embalming chemicals and concrete grave liners in favor of simple, green burials, are gaining popularity. This has spurred the growth of new services offering eco-friendly plots and personalized, sustainable burial plans. Moreover, the COVID-19 pandemic significantly impacted Europe's market. ...Editor's note: This trend for eco-friendly funerals continues to grow in the U.S.
I'm a palliative care nurse and I look after patients on their deathbeds - these are the top 5 regrets I hear from people in their final days
11/01/24 at 03:00 AMI'm a palliative care nurse and I look after patients on their deathbeds - these are the top 5 regrets I hear from people in their final days DailyMail.com; by Ellen Coughlan; 10/30/24 When people are faced with their own mortality they experience a variety of emotions and gain perspective on their lives. A palliative care nurse, who works at Old Colony Hospice in Massachusetts, wrote a blog post, which has since resurfaced, revealing the top five regrets people express on their deathbed. ...
How to initiate goals of care discussions with family
11/01/24 at 03:00 AMHow to initiate goals of care discussions with familyExpertClick, Denver, CO; by Pamela D. Wilson; 10/30/24 ... While many adults set these conversations aside until a health diagnosis or other situation occurs, having goals of care discussions early in life allows more effective planning.
Cemeteries no longer just for the dead: Spaces have a new life of their own
10/31/24 at 03:15 AMCemeteries no longer just for the dead: Spaces have a new life of their own USA Today; by Phaedra Trethan; 10/27/24 It all began with Rudolph Valentino. The silent movie star, one of cinema's first sex symbols, is buried in Hollywood Forever Cemetery, one of many celebrities interred there. Showing his movies for the devoted fans who showed up to remember him decades after his sudden and shocking death in 1926 at just 31, the cemetery's operators noticed the gathering grew year after year. Why not host more movie nights, especially in the final resting place of Hollywood royalty: Judy Garland, Cecil B. DeMille, Mickey Rooney, Tyrone Power and Douglas Fairbanks, to name a few, they thought? ... Hollywood Forever isn't the only cemetery offering programs beyond the usual historic tours and talks. Visitors at many U.S. cemeteries can check out movie screenings, market days, concerts, art installations and dance and theater performances. Some are even finding ways to change the conversation around death itself − and bringing life to spaces previously thought of only for the dead. Editor's note: Happy Halloween!
Creating death box eases stress, brings 'peace of mind' to those left behind
10/31/24 at 03:00 AMCreating death box eases stress, brings 'peace of mind' to those left behind BradfordToday.ca, Canada; by Andrew Philips; 10/26/24 Creating a death box might sound like sort of a morbid thing to do, but it’s vitally important. That’s according to Tammy Vaters, supportive care coordinator at Hospice Huronia-Tomkins House, ... who leads upcoming workshops on creating a death box or a “legacy box or final wishes box” for those uncomfortable with the more succinct terminology ["death box"]. ... Besides end-of-life wishes, Vaters says the box can include photos that someone would like displayed at a celebration of life or similar offering along with personalized letters to family and friends and personal mementos that have special meaning. “It gives you more opportunities of expressing how you feel about somebody,” she says, noting the boxes should also contain usernames and passwords that may aid one's loved ones after death. “They can be more thoughtful and personal.” Vaters, who is a specialist in thanatology (the study of death, dying and bereavement), says people will often use another term for death.
The ‘perfect way to die’ in North Dakota
10/30/24 at 03:00 AMThe ‘perfect way to die’ in North Dakota CBS KX News, Bismarck, ND; by Brendan Rodenberg; 10/27/24 Death is not something people tend to look forward to at the end of their lives, but it is important to discuss nonetheless — and while many have ideas of how they would like to pass away, these vary immensely across America. This begs the question: How would North Dakotans like to spend their last moments? ... [An insurance poll that surveyed 3,000 people from across the nation indicated] that the perfect death for a North Dakotan would be to pass while hiking White Butte, the state’s highest point. ... The survey also delved deeply into other aspects of one’s last moments, including those surrounding them and what occurs after the moment of death. Below is a list of the most prevalent takeaways from this part of the study.
A moral code: Ethical dilemmas in medicine — three physicians face crossroads in patient care
10/29/24 at 03:00 AMA moral code: Ethical dilemmas in medicine — three physicians face crossroads in patient care MedPage Today; podcast by Genevieve Friedman, Perspectives Editor; 10/25/24 We are back for another episode of our medical podcast, which we hope isn't really a podcast about medicine, but a podcast about life, death, dilemma, the challenges, and sometimes the joys of medicine. ... Now, medicine is complicated because a lot of times there aren't hard and fast rules ... One treatment isn't always right or wrong for someone. One surgery isn't always successful or unsuccessful, and one diagnosis isn't always correct. Decisions aren't black and white, they're varying shades of gray. So we come up with principles to help handle this -- codes if you will. But even those get a bit marred by complexity at times. As you'll hear in this episode of Anamnesis with the theme of "A Moral Code: Ethical Dilemmas in Medicine," one of our biggest codes is "do no harm." But what is harm? Who decides what harm is, what happens if we disagree?
Dombi scholarship established
10/23/24 at 03:30 AMDombi scholarship established HomeCare, Tampa, FL; 10/21/24The National Alliance for Care at Home and its legacy organization have established a scholarship fund in honor of retiring National Association for Homecare and Hospice (NAHC) President Bill Dombi, leaders announced Monday at the organization’s transitional conference in Tampa, Florida. ... The William A. Dombi Scholarship Fund at the University of Connecticut, Dombi’s alma mater, topped its initial fundraising goal of $50,000 and was on the way to $100,00, said Marcylle Combs, a NAHC board member who organized the gift. NAHC and the National Hospice and Palliative Care Organization (NHPCO) merged this year to create the new Alliance, ... The scholarship announcement followed a moving video send-off to Dombi, who has been with NAHC since 1987, when he came aboard as lead counsel and helmed the landmark lawsuit that reformed the Medicare home health services benefit. (Read his retirement interview with HomeCare here.)
YoloCares: State awards nearly $3 million to YoloCares
10/22/24 at 02:00 AMYoloCares: State awards nearly $3 million to YoloCares The Enterprise; by Craig Dresang; 10/19/24 In a move to expand and deepen the regional safety net for people facing a serious or life-limiting illness, Davis-based YoloCares recently applied for, and secured, a nearly $3 million commitment from the State of California to add an Enhanced Care Management component to its portfolio of offerings. By design, ECM intends to address the social determinants of health which are the nonmedical factors that influence health outcomes. ... [As] Medi-Cal looks towards a major transformation in the structure of benefits, ECM is the Golden State’s initiative to address a lack of palliative and supportive care services. ... According to Lisa Adams, YoloCares’ director of patient access and palliative care, “Our clinical team is adept at responding to the complex and unique needs of our patients and their families, often going above and beyond the scope of typical palliative care to help our patients find comfort and dignity during health challenges and transitions. This funding and recognition from the state simply acknowledges and supports the work we have been doing all along.”
America’s longest-serving sheriff enters hospice at age 92
10/21/24 at 03:00 AMAmerica’s longest-serving sheriff enters hospice at age 92 Georgia Sun; by Thom Chandler; 10/17/24 Cullen Talton, Houston County Sheriff for nearly 52 years, has entered hospice care, marking the end of an era in Georgia law enforcement. Talton, 92, is the longest-serving sheriff in the United States, and his health decline was announced at the Georgia Sheriff’s Association’s annual luncheon.
5 reasons why green burial services are a growing trend
10/18/24 at 03:00 AM5 reasons why green burial services are a growing trend The LaGrange Daily News; by Syndication Cloud; 10/17/24 Times are quickly changing throughout the country, and many of our common rituals are beginning to shift. The conventional funeral involving an expensive casket, embalming services, flowers and other costly expenses are no longer as popular as they once were. Instead, individuals and families are turning toward eco-friendly burial services, which are known as green burials. The green burial services Springfield Ohio specialists at Jackson, Lytle & Lewis ... have supported countless families with this growing trend. Below are five reasons why green burials are continuing to grow in popularity throughout the United States.
Gallery brings creativity to hospice care
10/08/24 at 03:00 AMGallery brings creativity to hospice care BBC News, United Kingdom; Joshua Askew; 10/6/24 A Kent gallery has partnered with a local hospice to bring creative activities and the enjoyment of art to hospice patients. The Turner Contemporary, in Margate, is holding the "Look Club" where those living with life-limiting illnesses can explore ideas and questions around exhibitions with its team. Brian Hodgson, 77, from Broadstairs, who was referred to the hospice by his neurologist, described it as "a special and emotional experience to be there with an artist, listening to them talk about their work". Pilgrims Hospices also hosts "Living Well" sessions, offering patients and their families social, creative, and educational activities. By working together, Turner Contemporary said the pair were showing the "transformative power of art in healthcare settings." It said giving patients opportunities for creative expression, social interaction and personal growth could help break the stigma around hospices being solely places for end-of-life care.
Heartless activist who took selfie with woman’s dying father in hospice shows no emotion upon learning of her fate following sick harassment campaign
10/07/24 at 03:00 AMHeartless activist who took selfie with woman’s dying father in hospice shows no emotion upon learning of her fate following sick harassment campaign What'sNew2Day; written by "Jack," with another author listed "Bethan Sexton for Dailymail.com"; 10/5/24 An activist who snuck into a hospice and took a selfie with a woman’s dying father because he opposed her support for LGBTQ rights showed no emotion as he was sentenced for his sickening campaign of harassment. Bubba Pollock, 35, was sentenced to two months in prison after pleading guilty to criminally harassing Britt Leroux, 38. Pollock, from London, Ontario, openly protested the drag queen stories and was seen on video promising to pay people up to $500 to sabotage events. He had a fierce debate with Leroux, which culminated in him driving 120 miles to the Windsor hospice where Leroux’s father, Andre Leroux, was receiving palliative care and taking the photograph in an attempt to mock his victim.
I asked my dad to write my wedding speech after he was given 6 months to live. I'm holding on to it for my special day.
10/01/24 at 03:00 AMI asked my dad to write my wedding speech after he was given 6 months to live. I'm holding on to it for my special day. AOL.com - Insider; by Lara Rodwell; 9/29/24 ... I remember the moment my dad told me he had six months to live like it was yesterday. ... "Lar, we need to have a chat," he said, hovering beside the edge of the bed. "I've received some news. It's not good." ... Wrapped in the comforting arms of my dad, I blurted, "Dad, you're not going to walk me down the aisle one day." ... During one sleepless night, it hit me. I wanted to create a keepsake where my dad and I could write letters, share memories and process our feelings, together. I found a tatty old notebook and wrote my first letter to him. ... The very first thing I asked him at the end of the letter, ink smudged with tears, was if he could write his wedding speech for me. ... It was a hot summer's morning, the day my dad died in the care of our local hospice. He'd been there for three weeks — in a lot of pain, stabilized by a lot of morphine — surrounded by his family. .... Later that day, ... amongst pages of financial practicalities and funeral wishes, there was a folder of white envelopes addressed to each of us - his wife and four children. On the front of mine read "Lar...". On the back: "Your wedding speech." To this day, the envelope remains sealed, tucked away at the bottom of my "dad box" — along with the notebook we shared, photo albums of memories, and a collection of swimming medals he wanted me to show his grandkids one day. ...
I watched "His Three Daughters" on Netflix, and have to talk about how relatable the family conflict is
09/27/24 at 03:20 AMI watched "His Three Daughters" on Netflix, and have to talk about how relatable the family conflict is Y!entertainment.com; by Corey Chichizola; 9/25/24 The streaming wars are showing no signs of slowing down, with the various services offering a variety of new and exciting content. One new film that might end up being one of the best Netflix movies out there is Azazel Jacobs' His Three Daughters, which is streaming now for those with a Netflix subscription. I recently streamed the flick, and have to talk about the family dynamics, especially as we slowly get closer to The Holidays. His Three Daughters focuses on (you guessed it) three sisters, adult women who are forced to cohabitate as their father is in hospice care. Director Azazel Jacobs put tributes to hospice nurses in the film, but other than that its largely about the three women's relationships with each other. And I loved how realistic it felt, especially in the way that family occasions tend to bring out honesty among relatives... for better or worse. Editor's note: This movie is getting alot of media buzz. I watched it and found the family's dynamics through their father's final days of actively dying to be spot-on. However--especially since "hospice" is core to the story--I was concerned about some basic communications and practices from the the hospice nurse. Examples include discussions about calling 911, what to do when the death occurs, no sense of a larger hospice team or agency support (just these 2 nurses), an ICU-like monitor, and (yikes!) smoking inside a small apartment with the father's oxygen machine nearby. (Oh no!) I put these forth as you hear others talk about this "hospice" movie. Still, the family conflicts--specific to their father's dying--are indeed "relatable," authentic, and worth the watch.
Improv for Caregivers receives a grant from the New Hampshire State Council on the Arts
09/25/24 at 03:00 AMImprov for Caregivers receives a grant from the New Hampshire State Council on the Arts EINPressWire; by A. A. Cristi; 9/23/24 The New London Barn Playhouse received an arts in health grant from the New Hampshire State Council on the Arts to continue and expand their Improv for Caregivers program through a larger umbrella program titled “Improv for a Cause.” “Improv for a Cause” will encompass two communication programs that use a similar process to reach different communities. The first, Improv for Caregivers, in partnership with Lake Sunapee Region VNA & Hospice, is an ongoing communication workshop series for those who care for loved ones with dementia and Alzheimer's. ... Each improv workshop session combines insight from healthcare professionals with improvisational theatre techniques, with a goal of developing new communication skills, strategies to cope with stress, flexibility in relationships, and an understanding of loved ones' changing perspectives. With guidance from the VNA and caregivers in the community, the team of actors prepare short scenarios that portray situations caregivers commonly face, such as sundowning, taking away car keys, collaborating with care staff, and hallucinations. ...
The patient care experience on full display
09/17/24 at 03:00 AMThe patient care experience on full display Modern Healthcare; by Mary Ellen Podmolik; 9/13/24 Art exhibits can promote a visceral reaction. The one that just opened along a hallway of windows on Thomas Jefferson University’s health sciences campus certainly does just that. The installation includes five hospital beds, life-sized mannequins inside large pill bottles, personal possessions and deeply personal quotes from five unnamed people who’ve gone through life-threatening trauma — a miscarriage, a pulmonary embolism, a wait for a kidney transplant, a case of undiagnosed paralysis and cancer. The Philadelphia artist behind the exhibit, Pepón Osorio, is the cancer patient. “Convalescence” is a complex and compelling exhibit of patient pain, reliance on drugs and inequitable care — part of the patient experience that can get lost in the daily tussle between providers and payers. “It is a critique of the healthcare system,” Megan Voeller, director of health humanities at the university, told me.
Simon Boas’ ‘inspirational’ book A Beginner’s Guide to Dying is published posthumously
09/16/24 at 03:00 AMSimon Boas’ ‘inspirational’ book A Beginner’s Guide to Dying is published posthumously Jersey Evening Post; by Rod McLoughlin; 9/13/24 Friends and family of the late Simon Boas gathered ... to celebrate the posthumous publication of his book, A Beginner’s Guide to Dying. The former Jersey Overseas Aid chief executive – who died from throat cancer on 15 July at the age of 47 – spent his last months developing into a book ideas first explored in articles for the Jersey Evening Post. Described by the Daily Mail as “an inspirational paean to the joy of life”, Mr Boas’ words reached a huge audience after they were reprinted in the national press and broadcast on the BBC’s Today programme. A proportion of the proceeds are being donated to the African Palliative Care Association and the International Children’s Palliative Care Network. Mr Boas’ inspiring writings in the face of his terminal diagnosis saw him awarded the Bailiff’s Silver Medal in May. Shortly before his death, he also received a personal letter from the King and Queen ahead of their visit to Jersey.
Central Coast lavender farm helping cancer and hospice patients in Monterey County
09/12/24 at 03:00 AMCentral Coast lavender farm helping cancer and hospice patients in Monterey County KSBW-8 News, Monterey County, CA; by Zoe Hunt; 9/9/24 Lavender Creek Co. has turned its family farm into a source of comfort for cancer and hospice patients in Monterey County. Ryan and Myriah Hopkins are the husband-and-wife duo behind the lavender farm on Carmel Valley Road. They’re using their home-grown lavender to donate products like hand towels and eye pillows designed to soothe and relax, a much-needed comfort for hospital patients. ... "We are donating our lavender that [the Monterey Quilters Guild sews]into eye pillows and then donate it to our hospital or nonprofits," Hopkins said. "Then those go to patients undergoing cancer treatment and hospice care."
Two decades after 9/11, Tarrant County interfaith group brings women together
09/12/24 at 03:00 AMTwo decades after 9/11, Tarrant County interfaith group brings women together Fort Worth Report, Fort Worth, TX; by Marissa Greene; 9/10/24 Janice Harris Lord remembers Sept. 11, 2001, crystal clear. ... In late 2001, it struck Harris Lord that there was something she could do: pull women of different faiths together. By January 2002, Harris Lord formed Daughters of Abraham, a discussion group made up of local Muslim, Jewish and Christian women. The group serves as a venue for women to learn about and build friendships with women of different religions. In its 22-year history, the group has grown from 18 women to various regional groups in Fort Worth, Arlington, northeast Tarrant County and Dallas. ... In the group’s two-decade history, the most poignant thing Harris Lord learned was the tradition that Jewish and Muslim families undergo when preparing a deceased loved one for burial. Muslim and Jewish families participate in a tradition called ghusl in Arabic or tahara in Hebrew, which involves washing and purifying a body before burial. It is considered one of the greatest good deeds someone can do for another in the faiths. When Harris Lord’s husband tragically died ..., she knew she wanted to honor him in that way. “(The hospice nurse) gave me some soap and water, and we shaved him, and I washed his hair and got it combed right, like he wanted it,” Harris Lord said. “It was beautiful. I think it helped me more with my grieving than anything, because I knew I had done the very last thing I could do for him.”