Literature Review

Cleaning reframes end‑of‑life care for mental health The Philadelphia Tribune, Philadelphia, PA; by Lynn Akesson; 3/28/26... At its core, death cleaning is a decluttering practice: going through one’s belongings with the intention of reducing what survives us. But its appeal lies less in organization than in its promise of emotional relief. By transforming an abstract fear — leaving chaos behind — into a meaningful act of care, death cleaning reframes preparation for death as a process that can support psychological well-being in life. Editor's Note: For a related caregiving video specific to bereavement, visit "Re-Membering: Scrap 'Em, Store 'Em, or Stitch 'Em Together, by Composing Life Out of Loss (disclosure, a newsletter sponsor)

What caring for elderly parents really feels like and what people don’t talk about Sassy Sister Stuff; by Victoria Cornell; 3/29/26 A simple Reddit prompt, “What’s something people don’t realize about taking care of elderly parents?”, turned into a raw, candid conversation in r/AskReddit.  ... Readers shared specific, sometimes heartbreaking stories and blunt advice, and the result is a clear picture of how caregiving is far messier than the Hallmark version we imagine.

New program and book examine best practices around end-of-life care for people living with Alzheimer’s Disease and related dementias (ADRD) Hospice Foundation of America, Washington, DC; by Lisa Veglahn;3/25/26 Hospice Foundation of America (HFA) will present its 33rd annual Living with Grief® educational program, Best Practices in Hospice Care for Advanced Dementia, addressing optimal care for the fastest growing segment of the hospice population. The program will be held live via Zoom on April 14, 2026, from noon—2 pm ET. According to the National Institutes of Health, researchers estimate that 42% of Americans over the age of 55 will at some point develop a form of dementia, all of which are terminal illnesses. ... In addition to the upcoming program, HFA has published a new volume of scholarly and personal work, Alzheimer’s Disease and Dementia: A Guide for Hospice Clinicians, edited by Kenneth J. Doka and Amy S. Tucci. The book offers valuable insights and practical approaches to delivering compassionate, person-centered end-of-life care to individuals with dementia and their loved ones. Editor's Note: Hospice Foundation of America has long defined standards for hospice education, and once again leads at a pivotal moment as dementia impacts Baby Boomers' end-of-life care. From their early satellite broadcasts that convened clinicians nationwide to today’s expansive reach, HFA has consistently translated complexity into practical, practice-changing insight. This work challenges us not only to learn, but to lead—bringing greater clarity, skill, and compassion to those living with dementia and those who walk beside them.

50 years ago, Karen Quinlan’s coma sparked the movement for patients’ rights near the end of life The Conversation; by Kalpana Jain; 3/23/26 March 31, 2026, marks 50 years since a landmark decision that shapes American patients’ rights every day: the New Jersey Supreme Court ruling in the case of Karen Ann Quinlan, who had suffered an irreversible coma. Quinlan’s case established for the first time that decisions near the end of life should be made by patients and families, not by doctors and hospitals alone. As a bioethicist, I have taught and written extensively about the profound impact the Quinlan case has had on law, bioethics and the pursuit of death with dignity. A decade after the Quinlan case, New Jersey created a Bioethics Commission to study advancing health care technology in light of the decision’s principles. The commission’s proposed legislation establishing advance directives was enacted on July 11, 1991. I was privileged to lead this project, as staff to the commission. Today, all 50 states have advance directive laws that allow competent adults to plan ahead and put their wishes for end-of-life care in writing.

How "The Pitt" can prepare you for the end of lifeKatie Couric Media; by Maggie Parker; 3/20/26 If you're sensitive to seeing death on screen, you shouldn't watch The Pitt. Set in a major city's emergency room, on the hit medical procedural, death is inevitable, and frequent. ... The way end-of-life issues are addressed on the show was carefully thought out and intentionally diverse. ... Unfortunately, it's rare for the media to portray death and dying authentically, according to Dr. Underleider's analysis of more than 141,000 scripted TV episodes from 2010 to 2020. ... This season, The Pitt takes its quest to realistically depict death to another level, with the introduction of a terminal cancer patient, Roxie, who knows what's coming and doesn't want to go home to face it. We spoke to Dr. Ungerleider about her reaction to Roxie's final moments, her experience working with the creators, what they get right about end of life, and why it matters. ...Editor's Note: Pair this with our previous posts, "HBO’s ‘The Pitt’ inspires viewers to consider organ donation, end-of-life planning" and "How ‘The Pitt' gets death right."

“We make our own families”: Do child-free people die alone? Hospice worker shares her experience Daily Dot; by Rebecca Leib; 3/18/26 According to a longtime hospice worker, being child-free doesn't affect end-of-life care, but having strong community ties does. The decision to have children is a deeply personal one, fraught with societal pressures and fears. One common fear is that a childless person might die alone. Recently, however, child-free advocate @wearechildfree shared a video dispelling that fear. Whether someone has kids or doesn't, she says, meaningful end-of-life care is not about children specifically, but the result of cultivating a close and loving community.

Mom of Frosty-loving daughter on hospice shouts out Wendy’s staff for ‘lovely gesture’ NBC Today Show; by Heather Marin, RD; 3/13/26 ... [Mary Adams] wanted to give a shoutout to a Wendy’s drive-thru employee in Palm Desert, California, who made her feel seen on a weekly Frosty run that’s deeply bittersweet. ... Purdie’s sister, Gretchen, was diagnosed with glioblastoma in 2023 [... and chose hospice care in January 2025]. Her appetite is limited these days. “Every week,” Purdie explains. “Someone from our family, usually my mom, goes to Wendy’s and gets six chocolate Frostys.” ... When Adams arrived at her local Wendy’s to pick up the weekly supply recently, a staff member recognized her. “Hey, you’re late!” said the team member, handing over the drink tray, “No spoons, right?” “Many days, there are very few reasons to smile while being a caregiver for her terminally ill daughter, but that interaction was a bright spot,” says Purdie. The whole family was touched that someone noticed the routine that is for them both life-sustaining and painful.

Harbors Home Health and Hospice expands community education The Daily World; by Jerry Knaak; 3/6/26 Harbors Home Health and Hospice was selected as the recipient of more than $19,000 in donations at the March 2025 100+ Harbor Women Who Care giving event. The funds were awarded after Harbors was nominated alongside two other local nonprofits and chosen by the attendees for the organization’s commitment to caring for patients and families throughout the community. Rather than using the funds internally, Harbors leadership saw the award as an opportunity to give back through community education focused on aging and end-of-life planning.

Pikes Peak Hospice donation drive smashes goal; 150 new blankets collected for veteran patients The Gazette, Colorado Springs, CO; by O'Dell Isaac; 3/2/26 Pikes Peak Hospice and Palliative Care reached out the local community with an ambitious request in early January ... [asking] for donations of up to 100 new, handmade lap blankets for its veteran patients by March 2. ... The community has answered the call – and then some. More than 150 red, white and blue blankets have been donated, with more donations still arriving, ... "We've been overwhelmed by this incredible response," said Sonya Bergeron, veteran liaison with Pikes Peak Hospice.

UVM Home Health & Hospice volunteers among the longest serving in the nation Vermont Business Magazine | The University of Vermont Health Network - Home Health & Hospice; by Tim; 3/3/26 Among the longest‑serving hospice volunteers in the nation, Charlotte Kenney, Jan Watt and Lil Venner have each devoted more than 45 years to UVM Health – Home Health & Hospice because, they say, helping patients and their families make the most of the time they have left of this earth is a privilege, rooted in grace and connection. The notion that hospice work is defined by sorrow, is rejected by all three dedicated volunteers. "What I'm doing is enabling this person to live fully until the very last second," says Kenney. ... Venner adds, "You see the world differently when you're looking through the eyes of somebody who may be seeing this particular thing for the last time." Editor's Note: We celebrate these devoted hospice volunteers at UVM Health Network – Home Health & Hospice. Together, Charlotte Kenney, Jan Watt, and Lil Venner have given more than 185 years of service—an extraordinary testament to presence, compassion, and steadfast commitment. Who among your volunteers carries a stories of faithful service? What collective years of care live within your own program? Consider gathering and sharing that data—not simply as numbers, but as narratives of impact and catalysts for thanks.

The burden of the eldest daughter MedPage Today's KevinMD.com; podcast by Jessie Mahone, MD; 10/15/25 Were you the one who always held it together? The responsible one? The one who made sure everyone else was OK, sometimes at the cost of your own well-being? For most eldest daughters, this role is inevitable. We don’t choose it. We are handed it, early and often, because we are so “capable.” We accept this role and excel at it. That’s what most eldest daughters do with whatever is handed to us. Recently, my podcast cohost, another female physician, and I realized we had so many shared “eldest daughter” experiences. 

Relearning the world through grief-informed case formulation: A critique of prolonged grief disorder Journal of Humanistic Psychology; by Eleonora Ramsby Herrera, PhD; 1/31/26 Drawing on existential and humanistic frameworks, this review article critically examines the diagnosis of prolonged grief disorder and questions the usefulness of reducing grieving to a fixed set of symptoms and timelines. ... Rather than viewing grief as a disorder to be treated, the article advocates for understanding it as a natural and potentially transformative human response and argues for integrating grief into the bereaved person’s life story as a way to relearn the world.