Literature Review

What is death positivity? Healthline; by Sarah Choi, medically reviewed by Joslyn Jelinek, LCSW, ACSW, RDDP; 3/28/25 Death positivity involves acknowledging death as simply the final phase of life. It emphasizes open discussions around death and education on the options, rights, and choices surrounding it. ... The Death Positivity Movement was coined in 2011 by funeral director Caitlin Doughty, but the sentiment existed long before — the movement’s origins date back to the 1970s, drawing on the hospice movement. ... Elements of the Death Positivity Movement:

Stetson University professor joins millions of Americans as she embraces caregiver role for her aging parents Spectrum News 13, Orlando/Deland, FL; by Nicole Griffin and Devin Martin; 3/31/25 According to the U.S. Bureau of Labor Statistics, more than 10 million Americans act as unpaid caregivers for an elderly parent on a regular basis. Millions in that group not only have a full- or part-time job, they are also part of the so-called “sandwich generation” — people who find themselves supporting their children and parents at the same time. ... Stetson University professor Wendy Anderson is part of that group. ... She has moved in with her parents to help care for her elderly father and mother, who is in at-home hospice care. [Continue reading ...]

Dana Trabulsy bill aims to help families get death certificates faster Florida Politics; by Gabrielle Russon; 3/27/25  'This will solve a problem and be able to help these families move on sooner with the things that they need to do to start healing.'Families whose loved ones die in hospice are often stuck waiting for death certificates because of a backlog. One lawmaker wants to speed up the process to help them get the documents they need. Fort Pierce Republican Rep. Dana Trabulsy is pushing a bill that would allow advanced practice registered nurses providing hospice care to sign death certificates with a physician’s protocol. HB 647 passed its first committee stop Thursday with a 17-0 vote in front of the Health Professions and Programs Subcommittee.

New musical asks, 'How do we deal with the end?' (with a singalong)Edge Media Network; by Kilian Melloy; 3/25/25 Worcester, Massachusetts natives and brothers Daniel Lazour and Patrick Lazour started making theater when they were still kids, ...  "It was a really beautiful coming together of the whole [theater] community to do these shows," Daniel adds. That communal spirit lives on in the brothers' latest work, "Night Side Songs," a production of the American Repertory Theater that's scheduled to play ... from March 27 – April 6 [and] April 8 - 20. Bringing audiences together for a full-length play that makes singing an integral part of the experience – the songs are written to be easy for the audience to sing and to participate in performing, much like hymns at a church service, the brothers say – "Night Side Songs" makes a cathartic shared experience from the story of Yasmine (Brooke Ishibashi), a woman facing cancer and chemotherapy but finding love, meaning, and her own voice as part of the journey. [Continue reading ...] 

Hospice of the Panhandle gets van through grant The Journal, Martinsburg, WV; 3/19/25 As a result of a generous state Local Economic Development Assistance (LEDA) grant secured by state Sens. Jason Barrett and Patricia Rucker and former state Sen. Craig Blair, Hospice of the Panhandle was able to purchase this 2025 Toyota Sienna custom van, designed for non-emergency transportation. Since coming into service on March 1, the van has transported 15 patients to and from area hospitals to Hospice’s Inpatient Facility and from the IPF to patients’ homes. “We are so excited to provide this much-needed service,” said CEO Nikki Bigiarelli. “It assures that we can get patients into hospice care, to our facilty and to their homes safely and quickly.”  

‘Dying people are incredible teachers’: Hospice nurse leans on personal loss experience to speak about end of life, write children’s books Dayton Daily News, Dayton, OH; by Beth Anspach; 3/20/25 Kim Vesey has experienced more than her share of loss. Her husband, Les, passed away in 2006 of colon cancer. “He died at home with Hospice care,” Vesey said. “Having worked in this area and experiencing it myself, this took it all to a much deeper level and changed my understanding of the process of grief.” ... She was hired for her first Hospice job in 1985. “It’s taught me a lot about life and living and what is important,” she said. “Dying people are incredible teachers.” ... After losing her husband, Vesey continued her work in Hospice care. Then in 2017, her daughter Sarah, who had struggled with severe asthma her entire life, passed away after going into cardiac arrest. She was just 29 years old and left behind a 4-year-old son, Warren. She was also pregnant with her second child. “My experience of losing my daughter shined a light on the struggle for children who are grieving,” Vesey said.“ ... Today, Vesey has published four books with two additional scheduled to be published this year, including a book about losing a beloved pet. ...

The Stanford Letter Project helps you discuss your end-of-life wishesKALW 91.7 FM - Your Call, Bay Area, CA; by Rose Aguilar and Nina Kissinger; 3/18/25 On this edition of Your Call, we discuss the importance of conversations, letters, and advance directives in communicating your end-of-life care wishes to loved ones and doctors. Although 92 percent of US adults say it's important to discuss their end-of-life care wishes, only 32 percent have had this conversation, and less than one-third have advanced-care directives in place. ... The Stanford Letter Project was designed to give you the tools you need to start the process. Dr. VJ Periyakoil, the founder and director of the project, shares her insights into making end-of-life care plans and resources to help guide you through the process. ... Resources [with links to the content]:

The 1 truly difficult part about being a caregiver that often gets overlooked HuffPost; by Kimberley Richards; 3/13/25 Emma Heming Willis, wife of actor Bruce Willis, recently talked about the needs of caregivers on social media. Experts share what to know about the vital role. ... Among the different ways society may overlook the various caregiving experiences, there’s one aspect of it that isn’t often talked about: Many times it’s an “invisible” job. ... Hemings Willis’ post sparked conversations online about caregivers and the many struggles that come with it. And experts say perhaps one of the most isolating is the issue of “invisibility. ... She said that caregiving is often seen as a “family duty,” which prevents it from “being recognized as a broader issue requiring systemic attention.” “This view is often compounded by gendered expectations, where women are traditionally expected to take on caregiving roles, leading to feelings of guilt and pressure when they seek assistance,” she said. “The lack of formal policies ... only deepens the invisibility of this vital role, making it even harder for caregivers to balance their responsibilities with their own well-being.”

My Stories program preserves cherished memories of patients in hospice The Alpena News, Alpena, MI; by Reagan Voetberg; 3/8/25 The Hospice of Michigan in Alpena preserves the stories of patients, not in a book or photo album, but on a flashdrive. It’s called the My Stories program. Patients in hospice are given the opportunity to video record their stories and memories for their loved ones to hear once they’ve passed. Patients do not have to pay a dime to record their life stories. Alpena’s Hospice of Michigan Volunteer Program Coordinator Kristie Lukes talked about how meaningful the My Stories project is to patients and their families. Lukes coordinates volunteers to help patients with their recordings. Lukes explained further what My Stories is. “It’s a recording of the patient’s life and the stories that they want to share with family and patients,” she said. “So it becomes kind of a legacy project.” 

The staging of 'The Story of My Life' at Asbury Memorial filled with serendipitous moments Savannah Morning News, Savannah, GA; by Amy Paige Condon; 3/6/25 ... [Ray] Ellis, a retired music and drama teacher who works now as a caregiver, and fellow church member Dottie Kluttz, a retired hospice nurse, were hanging decorations in Asbury Memorial’s Social Hall. Ellis shared how his dream of producing “The Story of My Life” was back on his mind … A former hospice nurse, Kluttz founded Savannah Hospice’s Story Keeping program in 2001 as a way for people near the end of their lives to share the story of their lives. …  [Click on the title’s link to read the serendipitous, synergistic encounters that unfolded, resulting in shows March 28, 29, 30.] [Upon underwriting for production costs,] Ellis proposed that ticket sales for the musical could serve as a fundraiser for Savannah Hospice’s Story Keeping program and the Michael J. Fox Foundation for Parkinson’s Research—a nonprofit near and dear to Ellis, who was diagnosed about three years ago with the progressive brain disease that causes tremors, stiffness and balance problems. … Stage and film actor Mark Rand, who was diagnosed with Parkinson’s around the same time as Ellis, agreed to portray Thomas to Ellis’s Alvin—even after Rand thought he would never perform again. …

Understanding a patient’s AI medical journey The Hastings Center; by Ian Stevens, Erin William, Jean-Christophe Bélisle-Pion, and Vardit Ravitsky; 3/5/25As artificial intelligence becomes increasingly integrated into U.S. health care, patients should know the ways in which AI is being used in their care, concludes a new paper, “Bring a ‘Patient’s Medical AI Journey’ to the Hill.” Transparency is crucial for interactions between health care providers and individual patients, as well as for systemic level uses of AI, including:

Film: Lives well livedSecond Wave Southwest Michigan and Lives Well Lived; film by Sky Bergman; 3/6/25A Life Well Lived, a series of community meetings and learning opportunities that concludes March 15, and the documentary "Lives Well Lived," by guest speaker Sky Bergman, ... On the film's website, filmmaker Sky Berman describes, "In our society, the elderly are often overlooked. Lives Well Lived celebrates the incredible wit, wisdom, and life experiences of older adults living full and meaningful lives in their later years. Their stories are about perseverance, the human spirit, and staying positive during the great personal and historic challenges. I hope these stories inspire people of every age to achieve the longevity of both health and spirit, and to realize that growing older can be a journey to be celebrated." ... Beginning with its premiere at the Santa Barbara International Film Festival, Lives Well Lived has screened in more than 200 cities. The film has won eight awards, and the theatrical run garnered enthusiastic reviews and a 100% Fresh rating on Rotten Tomatoes. Organizations like Aging 2.0, AARP’s Movies for Grownups, Encore.org, and Leading Age have screened Lives Well Lived. Now the film is available on PBS! Editor's note: Click here for Second Wave Southwest Michigan use of this film for community outreach. Click here for the film's website, Lives Well Lived.

Parting Stone celebrates serving 10,000 families with solidified remains service Business Insider, Santa Fe, NM; Press Release; 3/5/25Parting Stone, an innovative death care company transforming the way families memorialize loved ones, is proud to announce that it has served 10,000 families with its solidified remains service. … s more families choose cremation for a loved one or pet, they seek meaningful ways to navigate grief, Parting Stone has emerged as a trailblazer in reshaping the narrative around death and memorialization. By offering a new form of remains that resembles a collection of 40–80 smooth stones, the company is helping people find comfort and connection in the grieving process. Solidified remains are a complete alternative to conventional “ashes.” … The National Funeral Directors Association predicts that by 2030, nearly 80% of Americans will choose cremation over traditional burial. Editor’s note: Click on the title’s link to see a photo.