Literature Review

All posts tagged with “General News | Changing the Culture of Dying.”



What do UK hospice websites communicate about the meaning of palliative care?

07/01/26 at 03:00 AM

What do UK hospice websites communicate about the meaning of palliative care? BMJ Supportive & Palliative Care; by Lucy Williams, Charlotte Browne, Paul Perkins, and Vanessa Taylor; 6/30/26Objectives: Hospice websites are an important source of information for the public. This study examined whether information communicated about palliative care aligned with WHO and the International Association for Hospice and Palliative Care (IAHPC) definitions of palliative care. ... Conclusions: Key information was often missing, and opportunities to educate the public and address misconceptions are being lost. Hospice websites need reviewing and content updating to help improve public understanding of palliative care. Editor's Note: What does your website communicate? What information does it omit, and why? In a time of heightened scrutiny and rampant fraud, examine your website for strengths, gaps, and opportunities to educate and support the public with integrity, authenticity, and empowered choice.

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At Hospice Austin’s summer camp, kids find joy together after experiencing loss

07/01/26 at 03:00 AM

At Hospice Austin’s summer camp, kids find joy together after experiencing loss KUT 90.5, Austin, TX; by Olivia Aldridge; 6/29/26 On a Friday in mid-June, middle school-aged kids lined up for their shot at a summer camp rite of passage: the infamous high ropes course at John Knox Ranch in Fischer, Texas. The ranch hosts Camp Brave Heart, Hospice Austin’s annual camp for kids and teens who have experienced loss. 13-year-old Alisa bravely stepped up to the challenge first. Soon enough, she was strapped into a harness, inching along ropes strung 30 feet in the air. “You are rocking this!” the counselor belaying her from the ground yelled as Alisa neared the end of the course. “Take a second — you want to look at the view?”

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Improving trauma-informed end-of-life support for indigenous populations

07/01/26 at 02:00 AM

Improving trauma-informed end-of-life support for indigenous populations Hospice News; by Holly Vossel; 6/29/26 The end of life can come with significant challenges for underserved and under-resourced patient populations, including indigenous tribal communities. Hospices seeking to improve quality and disparities need a trauma-informed care delivery approach, as well as greater cultural staffing diversity and education. Culturally inclusive recruitment and retention policies can help hospices to bridge wide gaps of unmet needs among terminally ill patients and their families, according to Dr. Sophina Manheimer Calderon, CMO, Keweenaw Bay Indian Community (KBIC) Health System in Baraga, Michigan. Calderon is from the Navajo Nation in Arizona and previously worked within the tribal community’s health system to collaborate with local hospice and home health providers. Increasing diverse staff representation allows hospices to have a deeper understanding of the unique challenges a community faces ...

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My parents moved in with us before my dad got sick. It made all the difference when he passed.

06/30/26 at 03:00 AM

My parents moved in with us before my dad got sick. It made all the difference when he passed. Business Insider; by Justin Murphy; 6/27/26

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MSU nursing program blends coursework and community care at Camp SMILE

06/29/26 at 03:00 AM

MSU nursing program blends coursework and community care at Camp SMILE Morehead State Public Radio, Morehead, KY; by Morehead State University; 6/26/26 For many students, electives are a way to earn credits, but for Morehead State University nursing students, one course is also a chance to serve their community and gain life-changing perspective. Thanks to a partnership between Morehead State’s Department of Nursing and UK St. Claire Regional Hospice & Palliative Care in Morehead, MSU nursing students can gain unique experience working with children at Camp SMILE while working toward their nursing degree. Camp SMILE (Sharing Memories In a Loving Environment) is a bereavement camp for children [ages 7-17] who have lost a loved one.

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Flourishing within vulnerability: on human fragility and the conditions for a habitable environment

06/25/26 at 03:00 AM

Flourishing within vulnerability: on human fragility and the conditions for a habitable environment Theoretical Medicine and Bioethics; by Irene Quiliconi; 6/24/26 In recent philosophical discourse, "flourishing" has emerged as a concept of growing importance—often linked to the field of well-being studies and explored by various and different disciplines. The article approaches flourishing not as an abstract ideal, but rather as a condition that must be understood as rooted in the lived reality of human vulnerability. More specifically, I argue that any genuine account of human flourishing must regard vulnerability— human inherent fragility and reciprocal dependence—not as an impediment, but as the very foundation from which meaningful flourishing can arise. 

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Ahwatukee vet helps seniors stay in their homes

06/25/26 at 03:00 AM

Ahwatukee vet helps seniors stay in their homes Ahwatukee Foothills News, Tempe, AZ; by AFN Staff; 6/23/26  For Alexander Mock, helping seniors remain safely in their homes isn’t just a business model. It’s a mission shaped by military service, years spent working alongside hospice nurses and families, and a belief that caring for people often means caring for the homes they live in. ... [As a hospice volunteer for veterans, he noticed a pattern.] As people’s health declined, the condition of their homes often declined as well. Many families struggled with maintenance issues, accessibility concerns and repairs that made it increasingly difficult for older adults to continue living independently. Mock began to see an opportunity to combine his experience helping people with practical home services.

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South Shore Stitchers’ compassion touches hospice patients’ lives

06/25/26 at 03:00 AM

South Shore Stitchers’ compassion touches hospice patients’ lives Ocean City Sentinel; Tuckahoe, NJ; 6/24/26  The South Shore Stitchers Quilt Guild, based at Tuckahoe United Methodist Church, is a dedicated service‑focused group of talented volunteers who share a passion for quilting and community outreach. Through countless hours of creative and thoughtful work, the guild creates comfort quilts, fidget blankets, walker bags, adult bibs, and other handmade items designed to bring reassurance, dignity, and warmth to those in need. Their handcrafted creations support health care organizations, first responders, and community groups — helping to calm, support, and comfort hospice patients, children, and individuals living with dementia. They have partnered with NJHealth Hospice and Palliative Care to provide comfort for patients.

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Grief experiences among LGBTQ+ populations: a scoping review

06/24/26 at 03:00 AM

Grief experiences among LGBTQ+ populations: a scoping review BMC Palliative Care; by Tamara Rodríguez Pérez, Cristo Manuel Marrero González, Alfonso Miguel García Hernández; 6/23/26 Objective: To explore research published between 2021 and 2026 on grief and bereavement-related experiences among LGBTQ+ adults in healthcare and palliative care settings, identifying the main topics addressed and knowledge gaps relevant to clinical practice. Results: ... Four main themes were identified: minority stress, complexities of disclosure, disenfranchised grief, and gaps in professional training. Critical gaps included underrepresentation of transgender people, a scarcity of quantitative data, an absence of intersectional perspectives, and concentration in Western contexts.

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Father's Day flashback: Son's pitch to ailing dad to take in a game becomes gift for both

06/23/26 at 03:00 AM

Father's Day flashback: Son's pitch to ailing dad to take in a game becomes gift for both The Dallas Morning News; by Evan Grant; 6/21/26 I took my father to a baseball game Friday. It was his last. He is 87, dying from congestive heart failure and has been in the care of a hospice nurse for two months. We know what lies ahead shortly. And yet, this is not a sad story. Not in the least. Some 40 years ago, just down the block in what is now a parking lot, my dad introduced me to Major League Baseball. ... He opened a door to a world that has become my passion and my life. I wanted to simply try and repay him by taking him to one game as a way of saying thanks. It was going to be my Father's Day gift to him. Instead, it is about a gift he gave me.

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Seniors stitch quilts for hospice patients, turning personal grief into community giving

06/22/26 at 03:00 AM

Seniors stitch quilts for hospice patients, turning personal grief into community giving WTXL-27 ABC, Tallahassee, FL; by Tatyana Purifoy; 6/19/26 A group of seniors at the Gadsden County Senior Center is turning thread, fabric, and friendship into comfort for others — forming a quilting club that creates handmade quilts donated to local hospice patients. ... For Rose Jackson, the project is personal. She was eager to partner with hospice because of the care and support her family received when her mother passed away. ... Member Ora Green says the project has given the group more than just something to do. Green is 96 years old and began her quilting journey at age 10. She says the club has given members an opportunity to use their talents to help others.

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Goals of care discussions in medical training: Integrating palliative care for holistic, patient-centered care

06/20/26 at 03:15 AM

Goals of care discussions in medical training: Integrating palliative care for holistic, patient-centered careHealthcare; by Celine Rochon, Farzana Hoque; 5/26Goals of care discussions are essential communication skills in medical training that bridge patient values with clinical decision-making. Integrating palliative care principles into these conversations enables holistic, patient-centered care, yet medical trainees often lack structured preparation for these critical interactions. Integrating palliative care principles into medical training for goals of care discussions is essential for developing patient-centered clinicians. Combining structured communication frameworks, interprofessional education, targeted skills training, and technological support creates a comprehensive educational approach that prepares trainees to elicit patient goals, create individualized care plans, and deliver holistic care that honors patient values.

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Helping end-of-life patients helps us live fully

06/19/26 at 03:00 AM

Helping end-of-life patients helps us live fully BBC News, Bristol, England; by Jonathan Holmes, John Darvall, Sarah Turnnidge; 6/18/26"The reminder that we will all die is very difficult, but also really real, and it's the only truth we all have." Those are the words of 44-year-old Hazel Bulger from Bristol, who has spent the past year visiting her elderly neighbor Eric, 86. Living - in his own words - "in the shadow of cancer", recovering from a recent serious accident and managing alone after the death of his wife, Eric was matched with Bulger by St. Peter's Hospice as a "hospice neighbor." The chiropractor and yoga teacher was inspired to volunteer after losing both her parents suddenly in her twenties, said: "I think opening yourself up to end of life can actually allow you to live fully."

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The family caregiver experience in palliative care pathways: a multidimensional framework

06/18/26 at 03:00 AM

The family caregiver experience in palliative care pathways: a multidimensional framework BMC Health Services Research; by Marzia Cettina Severino, Costanza Galli and Sabina De Rosis; 6/16/26 Family caregivers play an essential role across the life course of people, especially in delicate moments as the end-of-life, playing a central role in supporting and caring for terminal patients. Exploring the experience of family caregivers along this pathway is crucial to ensure a respectful, person-centered and high-quality experience with healthcare services, not only for patients but also for their caregivers. This study aimed to develop and validate collaboratively a multidimensional framework to explore the global experience of family caregivers across the palliative care pathways, through a multi-step participatory process involving professionals and caregivers.

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Designing the dream house of an 87-year-old tech visionary

06/17/26 at 03:00 AM

Designing the dream house of an 87-year-old tech visionary DNYUZ; 6/16/26 Brand’s life has been going for 87 years, but lately the going has been tough. The man known for creating the Whole Earth Catalog—the 1960s countercultural guide to self-sufficiency that Steve Jobs was fond of—has an incurable disease and is down to 130 pounds, an alarming weight for a nearly 6-footer. Brand’s mind is sharp as ever; you can’t talk to the man for five minutes without learning something. ... Brand is a world-class pragmatist and a philosopher of structures; he once wrote a book called How Buildings Learn about how homes and commercial properties evolve over time. ... We do a walk-through of the studio, all 715 square feet of it. Off of the living space, under an arch, is a motorized bed. There are no rails, and it looks nothing like hospital equipment. Brand grabs a remote and playfully shows me how it rises and kneels. The kitchen counters are lower than usual, to accommodate Brand if he ever needs a wheelchair. The bathroom is the space that’s most optimized for accessibility. ...

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Blue Ridge Care has ribbon cutting for its Hope Campus

06/16/26 at 03:00 AM

Celebrating the opening of the Hope Campus with community ribbon cutting Blue Ridge Care, Winchester, VA; by Blue Ridge Care Marketing; 6/12/26 A New Home for Care, Connection, and Support: Blue Ridge Care [formerly known as Blue Ridge Hospice] officially celebrated the opening of its Hope Campus on Thursday, June 11, with a ribbon-cutting ceremony held in partnership with the Top of Virginia Regional Chamber. ... One Campus, Many Ways to Care: The Hope Campus brings together several Blue Ridge Care programs in one place, including our Program of All-Inclusive Care for the Elderly (PACE) at Blue Ridge Independence at Home; our Community Grief Support Services at the Center for Hope & Healing; Volunteer Services; and our new Supportive Care Program.

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High schooler shares final milestone with Dad after hospice nurses help him organize bedside graduation ceremony

06/15/26 at 03:30 AM

High schooler shares final milestone with Dad after hospice nurses help him organize bedside graduation ceremony People; by Abigail Adams; 6/12/26 A dad got to watch his son graduate from high school just days before he died in hospice care. Brad Case was put into hospice care after being diagnosed with esophageal cancer, according to WPTA. So, his son Braden Case, a senior at Hamilton Junior Senior High School in Hamilton, Ind., did what he could to make sure his dad could see him graduate. Braden worked with nurses to put together the improvised graduation ceremony at Brad's bedside. A photo taken from the special moment, shared by WPTA, showed Braden in his blue cap and gown while standing by his father's side. Braden told WPTA that Brad had always been there for his big moments in life, and he wanted to ensure his dad witnessed this one.

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Hospice patient joins care team for day on the golf course

06/15/26 at 03:00 AM

Hospice patient joins care team for day on the golf course KJCT-8 / KKTV News ABC, Grand Junction, CO / La Junta, CO; by Bryce Patterson; 6/12/26In “a beautiful reminder that joy, laughter, and meaningful experiences don’t have an expiration date,” a hospice patient recently spent a day at the Rocky Ford Golf Course with her caregivers. ... [The Arkansas Valley Hospice team said] “she may very well have been one of the oldest golfers to enjoy a round” at that course. ... In a release, the hospice said that kind of care is not just about dying, but also “honoring wishes, celebrating the person behind the diagnosis, and making every moment matter.”

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National Father's Day Grief Helpline available through VITAS® Healthcare

06/12/26 at 03:00 AM

National Father's Day Grief Helpline available through VITAS® Healthcare PR Newswire, Miramar, FL; by VITAS Healthcare; 6/9/26 Father's Day can intensify grief for millions of Americans, turning a day of celebration into one of quiet loss. Last year, more than 20,000 VITAS Healthcare hospice patients were fathers, representing tens of thousands of families who may feel that absence more deeply this month. To support those navigating loss, VITAS will host a free, confidential Father's Day Grief Helpline on Sunday, June 21, offering nationwide support from trained hospice bereavement specialists.

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Chapters Health System awarded $150,000 grant from the Golisano Foundation to expand inclusive pediatric hospice care in Southwest Florida

06/12/26 at 03:00 AM

Chapters Health System awarded $150,000 grant from the Golisano Foundation to expand inclusive pediatric hospice care in Southwest Florida PR Newswire, Temple Terrace, FL; by Chapters Health System; 6/9/26 Chapters Health System, the nation's leading chronic illness innovator and largest nonprofit hospice provider, has received a $150,000 grant from the B. Thomas Golisano Foundation through the Chapters Health Foundation ... The grant will support the launch of "Advancing Inclusive Pediatric Hospice Care," an initiative designed to expand access to developmentally appropriate, family-centered end-of-life care, particularly for children with intellectual and developmental disabilities through the integration of a Certified Child Life Specialist and Hospital-Hospice Liaison at Hope Healthcare, a Chapters Health affiliate in Fort Myers.

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Stitching love

06/11/26 at 03:00 AM

Stitching love The Ironton Tribune, Ironton, OH; by Mark Shaffer Patriotic-themed quilts made by the Ohio Hospice Quilters are on display at the Lawrence County Courthouse. Some of the quilts are for sale to buy more quilting supplies and the others will be donated to veterans. Ohio Hospice Quilters has made hundreds of quilts to comfort. For years, the members of the Ohio Hospice Quilters have put their skills to use to bring comfort. ... Each quilt is catered to the recipient as much as possible, they are designed for men, women, veterans or to a person’s interest or hobby.

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Providing inclusive and affirmative palliative care for the LGBTQ+ community: why inclusive care for LGBTQ+ patients is essential

06/10/26 at 03:00 AM

Providing inclusive and affirmative palliative care for the LGBTQ+ community: why inclusive care for LGBTQ+ patients is essential CAPC - Center to Advance Palliative Care; by Kimberly D. Acquaviva, PhD, MSW, CSE, FNAP, Anup Bharani, MD, Brynn Bowman, MPA, Brittany Chambers, MPH, CHES, Diane Farquhar, LCSW, ACSW (1957 – 2023), Noelle Marie Javier, MD, Rabbi Max Zev Reynolds, BCC, MA, Billy Rosa, PhD, MBE, APRN, Rayna Ross, CHES; retrieved from the internet 6/9/26 Despite the historical efforts to advance civil rights for the lesbian, gay, bisexual, transgender, queer and/or questioning (LGTBQ+) community – there continues to be ongoing discrimination in society, including in health care. Providing inclusive care for seriously ill LGBTQ+ patients is essential for ensuring equitable, respectful, and comprehensive health care. ... The Bottom Line: For patients that have experienced discrimination from the health system, trust-building is a key priority and the foundation on which health care is delivered.

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What will people remember about you after you die? But legacy can manifest in different ways and even be an unconscious act

06/10/26 at 03:00 AM

What will people remember about you after you die? But legacy can manifest in different ways and even be an unconscious act Daily Sun; by BBC Future; 5/31/26 When Beth Hunter's father was diagnosed with Alzheimer's disease, she asked him whether she could record them having a conversation, so she could listen back to it in years to come. He refused. He wasn't the type to have deep heart-to-hearts about their relationship, Hunter says – he didn't confront his diagnosis or talk about death. Instead, he prioritized writing his war stories, and did so by hand, before hiring someone else to type them. This is what he felt was most valuable to pass on after his death.

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The impact of assisted dying legislation on nursing practice in palliative care: a scoping review

06/09/26 at 03:00 AM

 The impact of assisted dying legislation on nursing practice in palliative care: a scoping review Journal of Advanced Nursing; by Marlene Werner, Christiane Kreyer, Sabine Pleschberger; 6/5/26 Aim: To review the literature on the state of research on the impacts of assisted dying on nursing practice within specialised palliative care. Results: Fifteen studies published between 2019 and 2024, all from Canada or the United States, met the inclusion criteria. Three themes were identified: (1) positioning and meaning, describing how nurses are required to position themselves and to renegotiate their values; (2) impact on core competencies, capturing changes in key nursing responsibilities; and (3) challenges in interpersonal relationships, referring to increased team conflicts and shifts in relationships with patients and their families. 

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HopeHealth receives $200K grant to expand community engagement efforts

06/09/26 at 02:00 AM

HopeHealth receives $200K grant to expand community engagement efforts Providence Business News, Providence, RI; by PBN Staff; 6/7/26 HopeHealth, the second-oldest hospice organization in the country, says it has received a $200,000 grant from Papitto Opportunity Connection to support the launch of a new community engagement program aimed at connecting underserved people with grief support, palliative care services and end-of-life care through hospice. The aims of the new program include building awareness of the benefits of palliative care, hospice, grief support and family caregiver support.

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