Literature Review

“It Wasn’t Just a Lyric — It Was Him” Their Life Song; personal story by Amber Gould, original music about her father by Johnny Warren; 7/15/26Grief doesn’t follow a timeline. Amber Gould knows this well. “There are little everyday moments that remind me of him,” she says. “Whether it’s a familiar place, a scent, or a memory that suddenly comes back, he’s still a part of my daily life. I couldn’t think of a better way to honor those memories and feel connected to him than through music.” That's where Johnny Warren and Their Life Song come in. After Amber responded to Johnny's "remembering" questions about her dad, Johnny--owner of Their Life Song--wrote a deeply personal song about him. Upon turning her memories into song, what Amber found wasn’t closure — it was connection. Editor's Note: Click here for Johnny's tender song about Amber's dad, "The River You Showed Me"

Most Americans prefer to die at home, but the US healthcare system often prevents it ArcaMax; by Karen Lutfey Spencer; 7/14/26 Ask people what they want at the end of their lives, and overwhelmingly the answers will revolve around comfort, dignity and time at home with loved ones. Yet the U.S. healthcare system often thwarts these wishes. Most Americans say they want to die at home, but only one-third do. What could be an intentional last chapter may instead become a roller coaster of hospitalizations and decisions made with incomplete information. News headlines reflect the challenges of facing the end of life in crisis mode. ... Unfortunately, these crisis scenarios are happening to millions of families each year.

Hospice of Midland expands adult care programs and adds children's grief support Midland Reporter-Telegram; by Kessly Salinas; 7/13/26 Hospice of Midland announced it will expand its services this summer by growing two adult programs and introducing a program for children. “In response to community needs, we are enlarging two adult programs and introducing one for children,” said Deborah Goodman, CEO of Hospice of Midland. “The Pathways Palliative Care program, which supports patients with advanced illnesses, will be expanded,” Goodman said. ... The new program will be the Children’s Grief Center’s Holding Hope program. “Rays of Hope Children’s Grief Center has been here in Midland, serving the Permian Basin for 22 years,” Goodman said. “We’ve noticed, especially since COVID, a pretty substantial increase in deaths by suicide in younger individuals, especially the teen and young adult ages.” The Holding Hope program was designed for children and families affected by death by suicide.

The Healing Page: how Akron Children's combines clinical care with narrative medicine poetry WOSU Public Media | NPR/PBS, Akron, OH ; by Jeff St. Clair; 7/13/26 The written word has healing power. That’s the idea behind narrative medicine, an emerging branch of healthcare that adds creative writing to the clinical toolkit. Akron Children’s Hospital is a leader in narrative medicine, and all this week, Ideastream Public Media is highlighting the program's writers in our series "The Healing Page." Dr. Sarah Friebert is director of Akron Children's palliative care center ... said when sick kids write about what they’re going through, “We tap into an inner spring of wellness and spirituality and wholeness ..." Friebert likened a critical diagnosis to a bomb going off in a family. Her program considers the blast radius of a diagnosis by extending services to impacted family members who are encouraged to write about their experiences and feelings.

The hidden cost of cancer's end: how financial strain shapes final months of care Fred Hutch Cancer Center, University of Washingon, Seattle, WA; by D. Moosavi; 6/25/26 ... Previous Fred Hutch research has shown that people with cancer are more than twice as likely to file for bankruptcy, and nearly twice as likely to experience what researchers call an “adverse financial event,” compared with people who don’t have cancer. But most of that earlier work focused on financial hardship as an outcome caused by cancer. This study flips the question: once someone is already dealing with financial strain, what happens to the care they receive as their illness progresses? 

Civility requires the willingness to engage - a dispute with a neighbor revealed how much motivation matter The Conversation; by Deborah Mower; 7/2/26 ... I’m an ethicist and moral psychologist who researches moral conviction and civility, which I treat as a respectful approach toward conflict resolution. I’ve spent my career studying misunderstandings and disagreements. I teach students ways to better navigate differing interpretations, complex conversations, moral dilemmas and bitter disputes. Civility research matters for ethics education across every discipline, especially fields such as law or medicine where contentious political and moral disagreements are likely to arise. Consider, for instance, the tense conversations between healthcare professionals who disagree about whether the best course of treatment for a patient is to turn to hospice services.

At Hospice Austin’s summer camp, kids find joy together after experiencing loss KUT 90.5, Austin, TX; by Olivia Aldridge; 6/29/26 On a Friday in mid-June, middle school-aged kids lined up for their shot at a summer camp rite of passage: the infamous high ropes course at John Knox Ranch in Fischer, Texas. The ranch hosts Camp Brave Heart, Hospice Austin’s annual camp for kids and teens who have experienced loss. 13-year-old Alisa bravely stepped up to the challenge first. Soon enough, she was strapped into a harness, inching along ropes strung 30 feet in the air. “You are rocking this!” the counselor belaying her from the ground yelled as Alisa neared the end of the course. “Take a second — you want to look at the view?”

Improving trauma-informed end-of-life support for indigenous populations Hospice News; by Holly Vossel; 6/29/26 The end of life can come with significant challenges for underserved and under-resourced patient populations, including indigenous tribal communities. Hospices seeking to improve quality and disparities need a trauma-informed care delivery approach, as well as greater cultural staffing diversity and education. Culturally inclusive recruitment and retention policies can help hospices to bridge wide gaps of unmet needs among terminally ill patients and their families, according to Dr. Sophina Manheimer Calderon, CMO, Keweenaw Bay Indian Community (KBIC) Health System in Baraga, Michigan. Calderon is from the Navajo Nation in Arizona and previously worked within the tribal community’s health system to collaborate with local hospice and home health providers. Increasing diverse staff representation allows hospices to have a deeper understanding of the unique challenges a community faces ...

MSU nursing program blends coursework and community care at Camp SMILE Morehead State Public Radio, Morehead, KY; by Morehead State University; 6/26/26 For many students, electives are a way to earn credits, but for Morehead State University nursing students, one course is also a chance to serve their community and gain life-changing perspective. Thanks to a partnership between Morehead State’s Department of Nursing and UK St. Claire Regional Hospice & Palliative Care in Morehead, MSU nursing students can gain unique experience working with children at Camp SMILE while working toward their nursing degree. Camp SMILE (Sharing Memories In a Loving Environment) is a bereavement camp for children [ages 7-17] who have lost a loved one.

South Shore Stitchers’ compassion touches hospice patients’ lives Ocean City Sentinel; Tuckahoe, NJ; 6/24/26  The South Shore Stitchers Quilt Guild, based at Tuckahoe United Methodist Church, is a dedicated service‑focused group of talented volunteers who share a passion for quilting and community outreach. Through countless hours of creative and thoughtful work, the guild creates comfort quilts, fidget blankets, walker bags, adult bibs, and other handmade items designed to bring reassurance, dignity, and warmth to those in need. Their handcrafted creations support health care organizations, first responders, and community groups — helping to calm, support, and comfort hospice patients, children, and individuals living with dementia. They have partnered with NJHealth Hospice and Palliative Care to provide comfort for patients.

Grief experiences among LGBTQ+ populations: a scoping review BMC Palliative Care; by Tamara Rodríguez Pérez, Cristo Manuel Marrero González, Alfonso Miguel García Hernández; 6/23/26 Objective: To explore research published between 2021 and 2026 on grief and bereavement-related experiences among LGBTQ+ adults in healthcare and palliative care settings, identifying the main topics addressed and knowledge gaps relevant to clinical practice. Results: ... Four main themes were identified: minority stress, complexities of disclosure, disenfranchised grief, and gaps in professional training. Critical gaps included underrepresentation of transgender people, a scarcity of quantitative data, an absence of intersectional perspectives, and concentration in Western contexts.

Seniors stitch quilts for hospice patients, turning personal grief into community giving WTXL-27 ABC, Tallahassee, FL; by Tatyana Purifoy; 6/19/26 A group of seniors at the Gadsden County Senior Center is turning thread, fabric, and friendship into comfort for others — forming a quilting club that creates handmade quilts donated to local hospice patients. ... For Rose Jackson, the project is personal. She was eager to partner with hospice because of the care and support her family received when her mother passed away. ... Member Ora Green says the project has given the group more than just something to do. Green is 96 years old and began her quilting journey at age 10. She says the club has given members an opportunity to use their talents to help others.

Helping end-of-life patients helps us live fully BBC News, Bristol, England; by Jonathan Holmes, John Darvall, Sarah Turnnidge; 6/18/26"The reminder that we will all die is very difficult, but also really real, and it's the only truth we all have." Those are the words of 44-year-old Hazel Bulger from Bristol, who has spent the past year visiting her elderly neighbor Eric, 86. Living - in his own words - "in the shadow of cancer", recovering from a recent serious accident and managing alone after the death of his wife, Eric was matched with Bulger by St. Peter's Hospice as a "hospice neighbor." The chiropractor and yoga teacher was inspired to volunteer after losing both her parents suddenly in her twenties, said: "I think opening yourself up to end of life can actually allow you to live fully."