Literature Review

Flossmoor foundation funds last wishes for hospice patients, boost for nursing students Chicago Tribune, Chicago, IL; by Janice Neumann; 12/24/25 A foundation that was created to help hospice patients and their loved ones handle medical costs is also providing comfort when families need it most. Often, that comes in the form of resources to make the most of their remaining time. ... Formed in 2021, the Oasis Foundation raises money for education, well being, community events, funerals and transportation, officials said. It also funds a program called Hearts Desires, which endeavors to provide for patients’ last wishes requests. 

Girl, 6, spends pocket money on gifts for hospice BBC News; by Charlotte Benton; 12/23/25 A six-year-old girl has used her pocket money to buy Christmas presents for patients in a hospice. Eleri purchased "a car boot full of goodies", including chocolates, puzzle books, magazines and slippers, for people at Myton Hospice in Warwick, which cared for her grandmother. The six-year-old asked staff what gifts would help the most and said she wanted the patients to "feel looked after" and "not worry about not having things that they need." Sharon Kelly, ward manager at the hospice, said Eleri's kindness had "truly touched our whole team." She added: "Every item she thoughtfully chose will bring comfort, dignity and moments of joy to our patients and their families."

Harvey Max Chochinov, MD PhD - selected publicationsHospice & Palliative Care Today compilation; Cordt Kassner; 9/17/25Publisher's note: This week I attended a brilliant webinar by Dr. Chochinov, "Dignity, personhood and intensive caring: New insights into patient suffering", part of the McGill University "Lessons in living from the dying" lecture series. To highlight a few of his books and 200+ articles:

What matters about what matters mostJAMA Network Open; by Mary E. Tinetti, Brenda S. Nettles; 10/25The authors note that “Identifying what matters is essential for providing person-centered care, guiding clinical visits, tailoring care plans, and providing a starting point to foster further patient engagement.” These are lofty expectations of a single, simple question ["what matters most?"]. While the what matters question alone cannot guide care planning or tailor interventions, it can serve as a starting point for ongoing conversations about patient health goals and care preferences. These priorities, in turn, can guide patient-centered decision-making and care. The question also provides an opportunity to get to know the patients we care for as individuals. That, in itself, is an invaluable gift reminiscent of a period when clinicians had more time with patients and cared for them over years.

Contemporary patterns of end-of-life care among Medicare beneficiaries with advanced cancer JAMA Network - JAMA Health Forum; by Youngmin Kwon, PhD; Xin Hu, PhD, MPSH; Kewei Sylvia Shi, MPH; Jingxuan Zhao, MPH, PhD; Changchuan Jiang, MD, MPH; Qinjin Fan, MS, PhD; Xuesong Han, PhD; Zhiyuan Zheng, PhD; Joan L. Warren, PhD; K. Robin Yabroff, PhD, MBA; 2/21/25Conclusions: In a contemporary cohort of older Medicare decedents originally diagnosed with advanced breast, prostate, pancreatic, or lung cancer, we found that many patients continue to receive potentially aggressive interventions at EOL at the expense of supportive care services. To make meaningful improvements in the quality of EOL care, a multifaceted approach that addresses patient, physician, and system-level factors associated with persistent patterns of potentially aggressive care will be required. Editor's note: Though published just one week ago--February 21--this journal article is already being used extensively, as demonstrated in our posts on 2/24 and 2/25.

Death and redemption in an American prisonKFF Health News / NPR, by Markian Hawryluk; 2/19/24Publisher's note: This is a "must read" article about Steven Garner, including circumstances regarding how he was sentenced to life without parole at the Louisiana State Penitentiary in Angola, his 26-year service in their hospice program, his release two years ago, and his hospice work since.Notable mentions: Warden Burl Cain; Jamey Boudreaux, Louisiana ~ Mississippi Hospice & Palliative Care Organization; Cordt Kassner, Hospice Analytics; Kim Huffington, Sangre de Cristo Community Care.

Hospice was meant to offer dignity in death - but it fails the most marginalized. We need hospice programs that go to the streets, into shelters, behind barsSTAT; by Christopher M. Smith; 8/26/25I’ve spent more than a decade in hospice care, sitting at the bedsides of people facing the final days of their lives. I’ve held hands in hospital rooms, in tents, in prison cells, and in homes that barely qualify as such. And over time, I’ve come to see that dying in America is not just a medical event - it’s a mirror. It reflects everything we’ve failed to do for the living. Hospice was created to bring dignity to the dying - to manage pain, provide emotional and spiritual support, and ease the final passage for people with terminal illness. But the systems surrounding hospice care are riddled with inequity. The very people most in need of compassion - the unhoused, the incarcerated, people of color, LGBTQ+ individuals, and people with disabilities - are systematically excluded, underserved, or erased. Access to a good death is too often reserved for the privileged, while everyone else is left to navigate a system that wasn’t built for them - or worse, actively works against them... The truth is, hospice care cannot achieve its mission unless it actively addresses the inequities built into the structures around it. We need hospice programs that go to the streets, into shelters, behind bars. We need training rooted in cultural humility, in antiracism, in trauma-informed care. We need to reimagine what it means to offer dignity to someone whose life has been defined by abandonment. That work won’t come from quarterly board meetings or compliance audits. It will come from listening - really listening - to those most affected. It will come from rethinking how we define “home,” “caregiver,” and “worthy.” It will come from a shift in focus: from profits to people, from efficiency to empathy, from “standard of care” to standard of justice... Because dying is universal. But justice, even at the end of life, is still not.Publisher's note: STAT also references Dr. Ira Byock's article "The hospice industry needs major reforms. It should start with apologies, 8/22/23".

People who have come to know the joy of God do not deny the darkness, but they choose not to live in it. They claim that the light that shines in the darkness can be trusted more than the darkness itself and that a little bit of light can dispel a lot of darkness. They point each other to flashes of light here and there, and remind each other that they reveal the hidden but real presence of God. ~Henri Nouwen, “The Return of the Prodigal Son”, as discussed by Philip Yancey

The quiet note: Music, the language of compassion at life's end Psychology Today; by Sara Leila Sherman and Morton Sherman; 7/14/25 Music plays a vital role in the quieter, more tender, more difficult moments of life, especially near the end. We’ve seen how a single note, played or remembered, can become a bridge between worlds, between a person and their memories, a caregiver and a patient, a life lived and a life letting go. In those final moments of life, where silence often speaks louder than words, music and mindful action offer something medicine cannot: presence. 

A dying wish: Man with terminal cancer travels to volunteer in all 50 states ABC-7 News, Bay Area, CA; by 4/6/25 When Doug Ruch was told he had just 12 to 18 months to live, he didn't choose to stay home. Instead, he hit the road - on a mission to help as many people as possible while he still can. "I thought to myself, I have two choices. I can sit at home and wait to die, or I can go out and live," he told ABC7 News. [Continue reading ...] Editor's note: For more, visit Doug's website, www.dyingtoserve.com.

Terminally ill Stanford professor teaches class about dying from cancerCBS News, Bay Area, CA; by Elizabeth Cook; 3/13/25 A Stanford University professor's new curriculum explores the multiple aspects and phases of a person dying of cancer, and it comes from a person with first-hand knowledge. Dr. Bryant Lin has been a professor for almost two decades. He's used to being the teacher, not the subject of his classes. But that all changed in 2024 when he was diagnosed with stage 4 lung cancer. ... The diagnosis was a dose of cruel irony. Lin co-founded the Center for Asian Health Research and Education. One of the priorities for the foundation is researching non-small cell adenocarcinoma, also known as "never-smoker lung cancer," the same cancer diagnosis that Lin received. ... The class is called "From diagnosis to dialogue: A doctor's real-time battle with cancer." Within minutes of being posted, the class and the waitlist were full. ... The 10-week course covers the entire spectrum of cancer as seen through the eyes of someone who is living it. ... Stanford University recorded every session of the class so that they could live on for future physicians. If you would like to watch them, they can be found on YouTube. 

The dying man who gave me flowers changed how I see care MedPageToday's KevinMD.com; by Augusta Uwah, MD; 9/2/25 Today for the first time, I got flowers from a grateful patient. And I reflect on how rough the week has been, all the things that seemed impossible and insurmountable, and everything that has brought me to this point. The patient is going on hospice, he’s going to die, yet he felt that I made a significant impact that he wanted to show his gratitude. And that almost brought me to tears. ...