Literature Review

Medical Aid in Dying legislation and the limits of prognostic science American Council on Science and Health; by Chuck Dinerstein, MD, MBA; 1/2/26... End-of-life issues are complex because empirical questions (what happens, works, or harms) that can be approached by science are deeply entangled with value questions (what should count as a good death, autonomy, dignity, moral limits). The recent decision by Governor Hochul of New York to advance and promise to sign a Medical Aid in Dying (MAID) bill provides us with the opportunity to consider that entanglement.

"Taps" Bugle Call: USMC Drum & Bugle Corps [YouTube]YouTube filmed at the National Mall's Vietnam Memorial, Washington DC; compilation by Joy Berger, Editor in Chief; retrieved from the internet 5/22/25We invite you to begin this Memorial Day with this reflective playing of "Taps." Its simple, 24 notes evoke poignant memories and emotions for persons of all generations. Ongoing, we share with you these resources below for the veterans and their families whom you serve.

Flu cases continue to rise across the countryABC 6 News, Rochester, MN; by KAALTV; 2/10/25Flu cases are continuing to rise across the country as doctor visits for flu-like symptoms are now reaching their highest point in 15 years. The CDC estimates at least 24 million illnesses this flu season alone, with 13,000 turning deadly. Right now, about 31% of flu tests are coming back positive, nearly double the peak from last season. Doctors say your best line of defense is vaccination. Editor's note: We see this surge across news media sources, and compiled this state-specific list for you. 

One year after Hurricane Helene: Lessons in resilience, recovery, and renewal Hospice & Palliative Care Today; Joy Berger and Cordt Kassner with Vern Grindstaff, Millicent Burke-Sinclair, and Chris Comeaux; 9/26/25 At this time last year, Hospice & Palliative Care Today brought you a series of articles reporting on the devastating impact of Hurricane Helene across the Southeast, focusing on hospices in the North Carolina mountains. We remain deeply grateful for the many ways you—our readers and colleagues—rallied in support of those hospice organizations and their communities during their time of urgent need. This Saturday, September 27, 2025, marks the one-year anniversary of that epic disaster. To reflect on what has been learned and how recovery has unfolded, Vern Grindstaff (CEO of Compassionate Care WNC, Burnsville, NC), Millicent Burke-Sinclair (President and CEO of Four Seasons, Flat Rock, NC), and Chris Comeaux (President and CEO of Teleios Collaborative Network, Flat Rock, NC) gathered in conversation with Cordt Kassner (publisher) and Joy Berger (editor-in-chief). The insights that follow honor the hospice employees who persevered to provide urgent patient care. We celebrate their spirit of compassionate community and courageous problem-solving from the onset one year ago through ongoing recovery.

Follow-up: Helene and hospice care in the western North Carolina mountains Hospice & Palliative Care Today; summary from a meeting between Vern Grindstaff (CEO, Compassionate Care Western North Carolina), Chris Comeaux and Tina Gentry (Teleios Collaborative Network), Cordt Kassner and Joy Berger (this newsletter); 1/28/25 Hospice recovery efforts from Hurricane Helene in North Carolina's mountains have been massive, with extensive long-term needs ahead. Vern Grindstaff, CEO of Compassionate Care Western North Carolina described the "new normal" they are experiencing.  Photos of this hospice and its service area vividly portrayed this hospice before, soon after Helene, and in its current recovery. Key topics included unthinkable patient care challenges with creative problem-solving, financial implications amounting to a $350,000 deficit for repairs, and the trauma experienced by staff—both professionally and personally. Discussions highlighted the importance of long-term recovery strategies, including the involvement of larger trusts for sustained funding, while also recognizing community support efforts by organizations like the Cajun Navy and Samaritan's Purse. Additionally, Chris Comeaux is presenting to hospice organizations about Emergency Disaster Management, equipping leaders to learn from this tragedy. Editor's note: Click here for a map of Compassionate Care Western North Carolina's service area (CCWNC). Click here to donate to their ongoing recovery. We thank our readers for your previous support to this and other hospices affected by emergency disasters. Additional resources:

After her son’s painful death, a Cheshire mother highlights Connecticut’s pediatric hospice gap New Haven Register, Norwalk, CT; by Cris Villalonga-Vivoni; 10/26/25 Carolyn Torello believes that no parent should outlive their children, yet that became her reality. ...  As his condition worsened, the family faced his impending death without the support of pediatric palliative or hospice care. No provider, she said, seemed to know how to help or where to begin. He died at 15 years old in 2021. ... In 2020, an estimated 7,800 children in Connecticut were living with complex medical conditions that limited their life expectancy and could have benefited from palliative or hospice care, according to data from the National Survey of Children's Health. ... Torello thinks that if Michael had access to hospice care, he could have died with greater dignity, and their family could have focused on simply being together. ... Efforts to create a more formalized pediatric palliative care system have been underway since 2024, led by a state-commissioned working group that will make recommendations to the legislature on potential reforms.Editor's Note: Editor's Note: This article puts forth significant information (with links) for all states, for all hospices. Having served on the firmly rooted Pediatrics Team of Hospice & Palliative Care of Louisville (begun in 1980) for four years (1997-2001), I take for granted how some type of pediatric hospice care needs to be available in every region. For related articles we have recently posted:

Risk of dementia diagnosis after injurious falls in older adultsJAMA Network Open; Alexander J. Ordoobadi, MD; Hiba Dhanani, MD, ScM; Samir R. Tulebaev, MD; Ali Salim, MD; Zara Cooper, MD, MSc; Molly P. Jarman, PhD, MPH; 9/24In this cohort study, new ADRD [Alzheimer disease and related dementias] diagnoses were more common after falls compared with other mechanisms of injury, with 10.6% of older adults being diagnosed with ADRD in the first year after a fall. To improve the early identification of ADRD, this study’s findings suggest support for the implementation of cognitive screening in older adults who experience an injurious fall that results in an ED visit or hospital admission. 

Medical Aid in Dying Annual ReportsA compliation by Hospice & Palliative Care Today; 4/14/25Just released:

The hospice conversations that defined 2025 - Best of TCNtalks Teleios Collaborative Network (TCN); by Chris Comeaux; 12/24/25 With nearly 45,000 total downloads across TCNtalks and Anatomy of Leadership, this milestone reflects a shared commitment to thoughtful leadership, courageous conversations, and care as it should be. We’ve curated standout moments from episodes that challenged assumptions, clarified complexity, and pointed toward a better future for serious-illness care. ... This highlight episode isn’t just a recap—it’s a reflection of where hospice and serious-illness care has been, where it is, and where it must go next. These conversations underscore the urgency of leadership rooted in clarity, compassion, and courage. Whether you’re revisiting a favorite or discovering an episode you missed, we hope this collection sparks insight, conversation, and renewed purpose as we head into 2026.

Patients with hematologic cancers value blood transfusions most in hospice services Healio; by Josh Friedman; 12/29/25 Key takeaways:

Students deliver custom holiday cards to hospital patients Butler Eagle, Butler, PA; by Sol McCormick; 12/23/25 The next generation of medical professionals might not be ready to deliver health care just yet, but they found a way to deliver a different type of care just before the holidays. About 20 or so members of Butler Senior High School’s Medical Careers Club gathered Tuesday, Dec. 23, at Butler Memorial Hospital to distribute around 1,500 holiday cards to patients. Each card was handmade by students of all eight of Butler Area School District’s elementary schools. ... “A lot of patients were so grateful. One of them, last year when we went up to Clarion, she was in hospice and only had a week left. They said that was the first time they saw her smile for days,” Reese said.

Tiny tree reappears along Lititz Pike to brighten the holiday season Lancaster Online, Lancaster, PA; by Claudia Esbenshade; 12/23/25 ... Anderson, a social Worker with Hospice & Community Care, took the initiative that year to give "Charlie," which is what Anderson called her tree, some love and adorned it with a little blue blanket and one red ornament. She named the tree in honor of the beloved tree from "A Charlie Brown Christmas." ... "Charlie had become more than a weed in a crack. He was a symbol. A pause. A quiet reminder that resilience exists even when conditions are ugly, and hope can show up where you least expect it," she wrote in her post. "My work centers around people who are often really fragile and facing limited life expectancy," Anderson said in an email. "So sometimes the smallest, most overlooked things end up meaning the most, especially to people who are tired, grieving, or just trying to get through the day. That little tree’s resilience has always been really special to me."

Alzheimer's: When is it time to consider hospice care? The Advocate, Baton Rouge, LA; by Dana Territo; 12/29/25 ... Since the span of Alzheimer's disease can run from seven to 20 years, it is often difficult to know when the person warrants hospice care. Generally, an individual with Alzheimer's is ready for a hospice referral when they become severely impaired in function, (no longer can walk or feed themselves); when the person has become incontinent; when they experience frequent choking episodes or have difficulty in breathing, are unable to speak or communicate meaningfully (limited to about a half dozen or fewer intelligible words), or have significant weight loss. ...Editor's Note: This local advocacy article provides important information for all hospices, with references to their state organization--Louisiana-Missisippi Hospice & Palliative Care Organization--for ongoing resources.