Literature Review
Joan Teno’s SOS Hospice Substack
04/08/26 at 03:00 AMJoan Teno’s SOS Hospice SubstackDr. Joan Teno is a health services researcher and practicing hospice physician. She started SOS Hospice as a space to share insights, data, and reflections about hospice care in the U.S. She seeks to connect research, policy, and real world experience to help make hospice care more transparent, understandable, and person centered.Guest Editor Note by Dr. Ira Byock: Joan Teno has been a prolific health delivery and policy researcher. She creatively mines public health and health services data to reveal patterns and trends of hospice use – and identifies opportunities to expand access and improve quality of care. Now she is bringing her skills and insights to this new Substack. To the data wonks among us, SOS Hospice is a compelling read. I subscribed immediately!Publisher's Note: I subscribed immediately, too!
CHS boosts performance-based exec pay
04/08/26 at 03:00 AMCHS boosts performance-based exec pay Becker's Hospital Review; by Alan Condon; 4/6/26 Franklin, Tenn.-based Community Health Systems is doubling down on performance-based compensation for its top executives, tying the majority of pay to financial and operational results, according to a proxy report filed April 2 with the Securities and Exchange Commission.
Agrace expands to serve southeastern Wisconsin
04/08/26 at 03:00 AMAgrace expands to serve southeastern Wisconsin Fidelity, Milwaukee, WI; by PR Newswire; 4/2/26 Agrace, the largest Wisconsin-based nonprofit hospice, has expanded to serve the entire southern half of Wisconsin with the addition of Ozaukee, Washington, Racine and Kenosha counties to its Milwaukee service region. ... Southeastern Wisconsin Agrace patients are served through its regional office in Wauwatosa by a care team that includes a local hospice physician, nurses, CNAs, volunteers and a spiritual & grief counselor.
Croí Health raises $17.5M for patient care access, including through major philanthropic gifts
04/08/26 at 02:15 AMCroí Health raises $17.5M for patient care access, including through major philanthropic gifts MassNonprofit News; Press Release; 4/7/26 At the start of year three of their $20 million Voices Campaign, the Croí Health Charitable Fund has secured $17.5 million for patient care access. Of this, they raised more than $11 million from an established donor base and more than 3,200 new, first-time donors. For the remaining amount, the Charitable Fund secured $6.5 million from leading philanthropists. About: Croí Health, formerly NVNA and Hospice, serves 27 communities, with a daily census of 1,200 and more than 200,000 patients annually.
When shared decision-making becomes medical paternalism: Conversations about end-of-life care can turn into conflicts over authority
04/07/26 at 03:00 AMWhen shared decision-making becomes medical paternalism: Conversations about end-of-life care can turn into conflicts over authority MedPage Today; by DeAnna M. Pollock, MD; 4/1/26 "Why haven't they scheduled your dad for his feeding tube placement? They just want another family conference." I sighed and told my mother we may have to fight. The physicians caring for my father seemed ready to overrule her decision, even though she held his medical power of attorney. When I spoke with an intern, I explained that our family had not changed its mind about the course of treatment. We simply wanted to know when the feeding tube would be placed. Her response stunned me. "We refuse to place it," she said. "And we have the right to refuse anything." Calmly, I explained that, as a physician myself, ...
It is not fair to ask of others ...
04/07/26 at 03:00 AMIt is not fair to ask of others what you are not willing to do yourself. ~ Eleanor Roosevelt
CMS ups hospice oversight: 5 things to know
04/07/26 at 03:00 AMCMS ups hospice oversight: 5 things to know Becker's Hospital Review; by Mariah Taylor; 4/3/26 CMS is implementing new oversight measures for hospice programs, which include an updated scoring system, state-specific oversight and changes to election statement addenda. The new scoring system is part of an effort to “strengthen oversight, improve transparency for patient families and ensure Medicare hospice benefits are not abused,” according to an April 2 agency news release. Here’s what to know:
Students provide a lifeline for dementia caregiver
04/07/26 at 03:00 AMStudents provide a lifeline for dementia caregiver Lovin' Life; by Lin Sue Flood; 4/5/26 When ASU junior Emily-Jane Crawford finishes her classes and homework, she travels to Glendale to visit a very special friend. Bud Addison is 81 years old, and despite his dementia, Emily-Jane’s visits are the highlight of his week. ... This connection is the heart of RISE (Respite in Student Engagement), a unique partnership between Arizona State University and Hospice of the Valley. The program matches students interested in health care careers with families caring for loved ones with dementia.
Healthcare across borders: How the U.S. health system compares to others around the world
04/07/26 at 03:00 AMHealthcare across borders: How the U.S. health system compares to others around the world Chicago Health; by Kathleen Aharoni; 4/3/26 More than half of the world’s countries guarantee a right to healthcare in their constitutions. The United States does not. No federal or state law explicitly safeguards citizens’ health or well-being as a guaranteed right. Countries worldwide take varying approaches. ... In a ranking of 10 health systems worldwide, the U.S. ranked last — and has ranked last in each of the Commonwealth Fund’s “Mirror, Mirror” reports since 2014. The nonprofit foundation has supported independent research on healthcare policy since 1918.
Blending storytelling with education: Southampton author’s book sheds light on hospice and palliative care
04/07/26 at 03:00 AMBlending storytelling with education: Southampton author’s book sheds light on hospice and palliative care Daily Hampshire Gazette; by Sam Ferland; 3/3/26 When a loved one is dying, there is no specific script to freeze the flooding of emotions and decisions a family faces. But hospice nurse Maureen Groden believes bridges can be built through the power of storytelling to help guide families over the universal challenges faced as a loved one nears the end of life. “It’s about telling stories and listening to them too,” said Groden, who has more than 30 years of experience nursing in the Valley.
Development and psychometric properties of PEACE-Q: A questionnaire on attitudes towards physician-assisted dying, euthanasia, advance directives and care at the end-of-life
04/07/26 at 03:00 AMDevelopment and psychometric properties of PEACE-Q: A questionnaire on attitudes towards physician-assisted dying, euthanasia, advance directives and care at the end-of-life
VNA Care names Salvatore Perla, DrPH, as President and Chief Executive Officer
04/07/26 at 03:00 AMVNA Care names Salvatore Perla, DrPH, as President and Chief Executive Officer VNA Care, Worcester, MA; Press Release; 3/30/26 VNA Care, one of the Commonwealth’s largest independent nonprofit home health, hospice, palliative care, and private care providers, today announced the appointment of Salvatore (Sal) Perla, DrPH, as President and Chief Executive Officer. Perla will begin this role on April 6. ... Perla is a longtime resident of Leominster, Mass., who brings more than 25 years of experience leading multi-site healthcare organizations through growth, service line expansion, and integration of post-acute and home health services across the care continuum.
More people are choosing the option to die under Oregon’s Death with Dignity Act
04/07/26 at 03:00 AMMore people are choosing the option to die under Oregon’s Death with Dignity Act The Oregonian/OregonLive; by Kristine de Leon; 4/3/26 More people are turning to Oregon’s Death with Dignity Act – and more than ever are getting prescriptions for life-ending drugs, according to a new state data released Thursday [4/2]. For nearly three decades, the law has allowed Oregonians who meet certain conditions to receive prescription medications to help them end their lives, rather than waiting for a disease to run its course. ... An annual report compiled by the Oregon Health Authority shows more patients are seeking the option. Last year, doctors wrote 637 prescriptions under the Death with Dignity Act -- the highest number on record, according to state data. That’s a modest 5% increase from 2024, but part of a longer trend that has pushed participation steadily upward.
How to navigate a multigenerational team in health care
04/07/26 at 02:00 AMHow to navigate a multigenerational team in health careHomeCare; by Kimberly Skehan & Jennifer Kennedy; 4/2/26 For the first time in history, five generations are working side by side in today’s organizations. Each cohort brings distinct experiences, values, communication styles and expectations. In health care, these differences influence not only workplace culture but also how care is delivered, received and supported. Understanding generational differences is no longer a soft skill. It is a strategic competency tied directly to quality, compliance, workforce sustainability and patient experience. The 5 Generations:
Proposed Rule: FY 2027 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements. CMS-1851-P Display
04/07/26 at 02:00 AMProposed Rule: FY 2027 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements. CMS-1851-P DisplayRegulations.gov - An official website of the United States Government | CMS; 4/6/26 This proposed rule would update the hospice wage index, payment rates, and aggregate cap for Fiscal Year 2027; include an analysis of Medicare non-hospice spending, and proposes requirements that hospices provide the hospice election statement addendum to all Medicare beneficiaries. Additionally, this rule proposes conforming regulation text changes to discharge from hospice care regulations; regulation text changes to the face-to-face encounter regulations; and includes RFI on community palliative care services; hospice specific wage index construction; and the overlap between hospice and medical aid in dying. Finally, this rule proposes changes to the Hospice Quality Reporting Program. In commenting, please refer to file code. CMS-1851-P.
Empath Health completes Trustbridge integration, creating Florida's largest non-profit hospice network and expanding home-based care vision
04/07/26 at 02:00 AMEmpath Health completes Trustbridge integration, creating Florida's largest non-profit hospice network and expanding home-based care vision Empath Health, Lakewood Ranch, FL; Press Release; 4/6/26 Empath Health today announced the completion of Trustbridge's integration into its statewide network, finalizing a two-year affiliation that makes Empath Florida's largest non-profit hospice network and positions the organization to serve one in five hospice patients in Florida. ... Both will carry forward under the name Empath Trustbridge Hospice. ... Empath Trustbridge Hospice joins Empath Health's One Hospice Model alongside Empath Suncoast Hospice in the Tampa Bay region, Empath Tidewell Hospice on the Southwest Florida coast, and Empath Hospice of Marion County in Ocala, four legacy non-profit organizations with 40 to 50 years of community roots ...
Private equity, AI, and the future of end-of-life care | part two
04/06/26 at 03:30 AMPrivate equity, AI, and the future of end-of-life care | part one Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Cordt Kassner; 4/1/26 In this thought-provoking episode, Chris Comeaux and Cordt Kassner unpack some of the most pressing forces shaping the future of end-of-life care—private equity, rising healthcare costs, and the accelerating influence of artificial intelligence. Grounded in real-world stories and industry data, the conversation explores a growing tension between the promise of Hospice as a gold-standard care model and the operational, financial, and expectation gaps that providers and families are increasingly experiencing.
Rediscovering joy: Why creativity matters in grief support
04/06/26 at 03:15 AMRediscovering joy: Why creativity matters in grief support Hospice of the Chesapeake, Pasadena, MD; by Elyzabeth Marcussen; 4/1/26 Imagine meeting up with like-minded people for an afternoon of mocktails, cocktails and snacks. That would be considered a happy hour, right? Then imagine that the common thread for this group is that they are all people who are grieving the loss of a loved one. Would you still call that a happy hour? Chesapeake Life Center Manager Alena Dailey said yes. Well, sort of. “We’re calling it ‘Hope After Hours.’” A large part of healing after loss is learning how to fit into your community again. You’re not the same person you were when your loved one was in your life. Sometimes, people feel guilty about having fun again or unsure how to reconnect. At Chesapeake Life Center, that understanding is shaping creative grief support programs designed to give people a judgment-free space to let loose and have fun. The hope is that they can begin to rediscover joy and carry it into everyday life.
Moral distress and occupational burnout in US physicians
04/06/26 at 03:15 AMMoral distress and occupational burnout in US physicians JAMA Network; by Michael A. Tutty, PhD, MHA, Colin P. West, MD, PhD, Liselotte N. Dyrbye, MD, MHPE, Hanhan Wang, MPS, Lindsey E. Carlasare, MBA, Christine A. Sinsky, MD, Mickey Trockel, MD, PhD, Tait D. Shanafelt, MD; 3/24/26 Question: What is the level of moral distress and the association between burnout, intent to leave (ITL), and intent to reduce work hours (ITR) among physicians and US workers? Conclusion and Relevance: In this survey study, moral distress was common among physicians and experienced at higher rates than the general US working population. Understanding the differences between moral distress and burnout may allow organizations to more effectively implement interventions to address both concerns among clinicians.
‘Startling’: Palliative care services often not provided for severe brain metastases
04/06/26 at 03:00 AM‘Startling’: Palliative care services often not provided for severe brain metastases Healio; by Josh Friedman; 3/3/26 Half of patients with the most severe brain metastases may not be receiving palliative care consultations. Those who do have a significantly higher likelihood of filling out advance directive documentation and getting hospice care, and they have similar OS as those who did not receive consultations. ... “We have to rephrase the word fighting,” [Rohit Singh, MD, medical oncologist and assistant profess at University of Vermont] said. “I tell my patients, you’re not giving up fighting [getting palliative care]. You’re fighting for what’s better for you. You’re fighting for your quality of life. That’s you making it better. You’re not giving up anything. You are making sure whatever time we have aligns with your goals.”Editor's Note: Powerful communication from Dr. Singh. Reframing “fighting” can serve as a catalyst for alignment—across patients, families, and care teams. Palliative care isn’t surrender; it’s a deliberate choice to prioritize what matters most.
The strength of the team is each individual member. The strength of each member is ...
04/06/26 at 03:00 AMThe strength of the team is each individual member. The strength of each member is the team. ~ Phil Jackson, former American basketball player and coach NCAA Men's Championship is tonight, 8:30 pm EDT
8 arrested in health care fraud takedown, including owners of hospices that billed taxpayers millions of dollars to serve the ‘dying’
04/06/26 at 03:00 AM8 arrested in health care fraud takedown, including owners of hospices that billed taxpayers millions of dollars to serve the ‘dying’United States Attorney's Office - Central District of California, Los Angeles, CA; Press Release; 4/2/26More Than $50 Million in Intended Health Care Fraud Losses Charged In coordination with the Vice President’s Task Force to Eliminate Fraud, eight defendants, including three nurses, a chiropractor, and a purported psychologist, have been arrested on federal charges that they schemed to defraud the nation’s health care system out of more than $50 million – including by running sham hospice care facilities that bilked Medicare by using people without terminal illnesses as beneficiaries, the Justice Department announced today.Editor's Note: As coverage escalates—often with sensational framing—we are anchoring in the official U.S. Attorney’s press release. The allegations are serious and demand accountability, but do not reflect the broader hospice field. This is a moment for leaders to reinforce clear, disciplined narratives that distinguish fraud from the mission-driven care centered on dignity and what matters most.
Agrace expands to serve southeastern Wisconsin
04/06/26 at 03:00 AMAgrace expands to serve southeastern Wisconsin PR Newswire, Milwaukee, WI; by Agrace; 4/2/26 Agrace, the largest Wisconsin-based nonprofit hospice, has expanded to serve the entire southern half of Wisconsin with the addition of Ozaukee, Washington, Racine and Kenosha counties to its Milwaukee service region. ... Southeastern Wisconsin Agrace patients are served through its regional office in Wauwatosa by a care team that includes a local hospice physician, nurses, CNAs, volunteers and a spiritual & grief counselor.
