Literature Review



[UK] Students face the realities of hospice care in powerful visit

06/01/25 at 03:55 AM

[UK] Students face the realities of hospice care in powerful visitDevonLive; by Lewis Clarke; 5/27/25 A visit to Exeter Hospice gave South Devon UTC students a moving insight into care careers—and the deep compassion behind them. Students from South Devon UTC in Newton Abbot have been given a rare glimpse into the realities of end-of-life care during a visit to Exeter Hospice, in what educators described as an eye-opening and inspiring experience. The visit formed part of the students’ health and social care curriculum and broader enrichment programme. Involving pupils from Years 10 to 13, the day provided an in-depth look at the range of careers within the hospice setting—from nursing and palliative care to occupational therapy, physiotherapy, counselling, and volunteer coordination.

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Veteran’s Last Patrol joins NVBDC’s MVO Task Force to support veterans in hospice care

06/01/25 at 03:50 AM

Veteran’s Last Patrol joins NVBDC’s MVO Task Force to support veterans in hospice care Eurozone.Newswire, Detroit, MI; by EIN Presswire.com; 5/27/25 The National Veteran Business Development Council (NVBDC) proudly welcomes Veterans Last Patrol as the newest member of its Military and Veteran Organization (MVO) Task Force. This collaboration expands the Task Force’s ability to reach and support Veterans during one of the most critical moments in their lives—end-of-life care. Founded by retired military officer Claude Schmid, Veterans’ Last Patrol is a national nonprofit dedicated to providing companionship and support to Veterans in hospice care. With a mission to “befriend, honor, and support,” the organization works to ensure that no Veteran faces the end of life alone, offering meaningful connection and comfort during their final days, or their “Last Patrol.”

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Proposed California budget calls for prior authorization for hospice in Medicaid

06/01/25 at 03:45 AM

Proposed California budget calls for prior authorization for hospice in Medicaid Hospice News; by Jim Parker; 5/22/25 The proposed California budget would require prior authorizations for hospice care within the state’s Medicaid program. Currently, Medicaid managed care plans who provide coverage through the state’s Medicaid system, Medi-Cal, may not perform prior authorizations for hospice. California’s Department of Health Care Services (DHCS) indicated in a 2025-2026 budget revision that this could save $25 million over the next two years and more than $50 million in the long term. If enacted, this would make California the first state in the nation to implement such a rule, according to the California Hospice & Palliative Care Association (CHAPCA). The association contends that the anticipated $25 million in cost savings is “speculative and fails to account for the downstream costs and systemic burdens this proposal would create,” according to a position paper shared with Hospice News. ... CHAPCA recommended to the state government three alternative approaches: ...

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I quit my healthcare job to take care of my grandmother. It’s a mix of happy and sad moments, but ultimately has been life-changing for us.

06/01/25 at 03:40 AM

I quit my healthcare job to take care of my grandmother. It’s a mix of happy and sad moments, but ultimately has been life-changing for us. DNYUZ; "as-told-to essay based on a coversation with Kristina McDonald"; 5/26/25My grandmother is 80, and my grandfather is 83. I quit my full-time job to care for my grandmother as I noticed that her undiagnosed dementia was worsening. ... 

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Gulfside Hospice Thrift Shoppes

06/01/25 at 03:35 AM

Gulfside Hospice Thrift Shoppes ABC News WFTS, Tampa Bay, FL; by Gulfside Healthcare; 5/27/25 Gulfside Hospice Thrift Shoppes serves a greater purpose than providing affordable gently used goods: all net proceeds fund charity care for hospice patients. Gulfside Hospice Thrift Shoppes has a new and improved online shop for easy access and including shipping. To learn more about Gulfside Hospice, visit Gulfside.org. To shop Gulfside Hospice Thrift Shoppes online visit gulfsidethrift.myshopify.com/ or stop by one of four convenient locations in New Port Richey, Hudson, Dade City or Zephyrhills. Follow Gulfside on social media for updates and sales.Editor's note: This online access opens up a world of engagement with those who cannot visit the shop in person, especially long distance donors and family members/friends acquainted with Gulfside Hospice. 

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[United Kingdom] Hospice cuts staff and beds to secure its future

06/01/25 at 03:30 AM

[United Kingdom] Hospice cuts staff and beds to secure its future BBC News, Yorkshire, UK; by Alex Moss; 5/23/25A hospice in Huddersfield has announced it has made 19 staff redundant and reduced the number of inpatient beds in order to save its future. The Kirkwood provides end-of-life care to about 2,000 patients each year but its chief executive Michael Crowther said it had faced a "perfect storm" of rising operational costs over the past few years. ... He said: "This has been the single hardest decision we have ever had to make." Another nine staff members have agreed to cut their hours and several others have decided to retire to help reduce the annual costs by £1.7m, the hospice added. ..."As you can imagine, this has been one of the most difficult periods in The Kirkwood's history. ..."Editor's note: Read more--directly from The Kirkwood--at "Securing Our Future Together: A New Way Forward." 

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What it’s like to be … a hospice nurse

06/01/25 at 03:25 AM

What it’s like to be … a hospice nurse Behavioral Scientist; by Dan Heath; 5/22/25 Comforting patients as they prepare to transition, navigating end-of-life regrets and frayed relationships, and providing support and advice for fearful families with Heather Meyerend, a retired hospice nurse. How does she know when the end is imminent? And what has the work taught her about the different ways we deal with death? In each episode of What It’s Like to Be…, bestselling author Dan Heath speaks with someone about what it’s like to walk in their (work) shoes.

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Trend Report: Artificial Intelligence In Health Care

06/01/25 at 03:20 AM

Trend Report: Artificial Intelligence In Health CareHealth Affairs; 5/25/25For our first Insider trend report, we explore the ways that artificial intelligence could impact the health care landscape. The report highlights:

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Music as medicine: Jenny Chen, Tyler Jorgensen, & Theresa Allison

06/01/25 at 03:15 AM

Music as medicine: Jenny Chen, Tyler Jorgensen, & Theresa AllisonGeriPal podcast; by Eric Widera, Alex Smith; 5/22/25As you know, dear listeners, I love music. We start each podcast with a song in part to shift the frame, taking people out of their academic selves and into a more informal conversation. Well, today’s guests love music at least as much if not more than me, and they each make a strong case for music as medicine. Jenny Chen is a palliative care fellow at Yale who regularly sings for her seriously ill patients... Tyler Jorgensen not only plays music for his patients, starting out with just pulling up a tune on his iPhone, he and others at UT Austin and Dell med now wheel a record player into patients rooms and play vinyl, taking patients back to the sounds and routines – think taking the record out of the sleeve, placing the needle in the groove – of younger days... And Theresa Allison is a geriatrician and ethnomusicologist who studies the role of music for people with dementia.

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Hospice volunteer donates 10,000 gift cards to cancer patients

06/01/25 at 03:10 AM

Hospice volunteer donates 10,000 gift cards to cancer patients AZ Family - CBS-5, Phoenix, AZ; by Tianna Morimoto; 5/20/25 One Valley man has made a difference in times of need for those who may be losing hope by donating thousands of gift cards, and that’s Something Good. Jeff Lewis volunteers with Hospice of the Valley and was recently recognized for donating 10,000 grocery gift cards to help cancer patients in need. Jeff is a cancer survivor and has made it his mission to help those going through treatments with no family or support. He created a nonprofit called the Froth and Bubble Foundation. Every month, the foundation provides gift cards to more than 100 people in the Valley who are struggling financially. Often, these patients have to decide between paying for food, medicine or doctor bills, and these gift cards can help them with their bills or other necessities to survive. ... “These gift cards help families bridge the gap when they need food and are juggling bills and feeling stressed,” said Hospice of the Valley Executive Director Debbie Shumway. “He is a servant leader who quietly gives back and makes a huge difference, one person at a time.” Thank you, Jeff, for all you do to help others!

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"Taps" Bugle Call: USMC Drum & Bugle Corps [YouTube]

06/01/25 at 03:05 AM

"Taps" Bugle Call: USMC Drum & Bugle Corps [YouTube]YouTube filmed at the National Mall's Vietnam Memorial, Washington DC; compilation by Joy Berger, Editor in Chief; retrieved from the internet 5/22/25We invite you to begin this Memorial Day with this reflective playing of "Taps." Its simple, 24 notes evoke poignant memories and emotions for persons of all generations. Ongoing, we share with you these resources below for the veterans and their families whom you serve.

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Sunday newsletters

06/01/25 at 03:00 AM

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

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Today's Encouragement

06/01/25 at 03:00 AM

I... wanna soak up the sun! ~Sheryl Crow

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National Alliance for Care at Home publishes CONNECT to Care Report

06/01/25 at 03:00 AM

National Alliance for Care at Home publishes CONNECT to Care Report National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 5/27/25 The National Alliance for Care at Home (the Alliance) published the results of new research conducted by Transcend Strategy Group exploring perceptions of hospice care among underserved communities. This research compiles findings from a series of surveys of 2,000 people and explores perceptions of hospice care among Black, Hispanic, Asian American, LGBTQ+, and rural communities. Using the CONNECT acronym – Communication, Outcomes, Network, Nurture, Engagement, Collaboration, and Transparency – the report aims to help providers support equitable, inclusive, and comprehensive access to care and is part of the Alliance’s ongoing commitment to increasing access to hospice and home care through knowledge sharing, data collection, and collaborative discussion.  Along with key research findings, CONNECT to Care offers recommendations for hospice providers to help increase understanding of hospice care and help overcome barriers to access.  

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Today's Encouragement

05/31/25 at 03:55 AM

We will fail when we fail to try. ~Rosa Parks

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Provision of end-of-life care in austere environments

05/31/25 at 03:40 AM

Provision of end-of-life care in austere environmentsWilderness & Environmental Medicine; by Jason W. David, Hui Z. Feng, Danny Lammers, Russell Day; 6/25End-of-life care presents unique challenges in austere or resource-limited environments where traditional medical resources are scarce or absent. This review explores the complexities of providing end-of-life care under such constraints, including recognition of the dying patient and techniques to alleviate suffering and allow death with dignity in under-resourced or expeditionary environments. Moreover, it presents these techniques in an accessible manner for providers without formal hospice training to use. Based on a literature review of hospice and palliative medicine, insights from the body of literature in wilderness and austere medicine, and the authors’ experiences in practicing in austere environments, this paper discusses practical approaches to symptom management, ethical considerations in end-of-life decision making, and accessible interventions with limited resources.Publisher's note: An interesting article for all healthcare professionals to consider...

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A critical examination of ‘family’ caregiving at the end of life in contexts of homelessness: Key concepts and future considerations

05/31/25 at 03:35 AM

A critical examination of ‘family’ caregiving at the end of life in contexts of homelessness: Key concepts and future considerationsPalliative Care and Social Practice; Ashley Mollison, Kelli I. Stajduhar, Marilou Gagnon, Ryan McNeil; 5/25In a world that is becoming more inequitable, understanding and reducing health disparities is a key priority for palliative care. This essay has demonstrated that bio-legal assumptions and privileging may be yet one more inequity in palliative care to address and overcome. This essay has focused in on populations facing homelessness and housing vulnerability, but changing families and growing inequality suggests the potential broad applicability of this work for our collective future. Palliative care is one of the areas of the Western healthcare system that explicitly attends to the person with serious illness and their family and caregivers understanding deeply how the suffering and joys of one group impacts the other. If there is a place in the current health system that can truly make space for caregiving – in all the ways it happens – it is, and should be, palliative care.

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Granting permission: Toward embracing grief

05/31/25 at 03:30 AM

Granting permission: Toward embracing griefJournal of Social Work in End-of-Life and Palliative Care; by Rennie Bimman; 3/25Grief, unavoidable and often excruciating, is rarely sufficiently acknowledged or supported in Western society. It is not granted permission to exist without barriers. By considering and evaluating grief experiences through the lens of their access to permission, clinicians can collectively imagine and promote inclusivity in grief. Permission is presented as a conceptual framework and clinical tool, with broader micro- and macro-level applications for both professional and layperson engagement, offering a foundation for further implementation and research.

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Does family functioning matter? Understanding the relationship between family interactions and depressive symptoms for caregivers of cancer patients

05/31/25 at 03:25 AM

Does family functioning matter? Understanding the relationship between family interactions and depressive symptoms for caregivers of cancer patientsAmerican Journal of Hospice and Palliative Care; by Keisha White Makinde, Kyle A Pitzer, Jacquelyn J Benson, Maysara Mitchell, Debra Parker Oliver, George Demiris, Karla T Washington; 6/25Caregivers of cancer patients are at increased risk of depression and other health challenges. There is limited understanding of the role of the caregiver's own family members in promoting or discouraging mental wellbeing. Family caregivers with more positive family interactions are likely to have fewer depressive symptoms, suggesting family functioning may play a key role in bolstering family caregiver mental health and wellbeing.

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Timing and outcomes of palliative care integration into care of adolescents and young adults with advanced cancer

05/31/25 at 03:20 AM

Timing and outcomes of palliative care integration into care of adolescents and young adults with advanced cancerOncology Practice; Jeremiah Bonnet, BA; Colin Cernik, MS; Hajime Uno, PhD; Lanfang Xu, MS; Cecile A. Laurent, MS; Lauren Fisher, MS; Nancy Cannizzaro, BA; Julie Munneke, BA; Robert M. Cooper, MD; Joshua R. Lakin, MD; Corey M. Schwartz, MD; Mallory Casperson, BA; Andrea Altschuler, PhD; Lawrence H. Kushi, ScD; Chun R. Chao, PhD; Lori Wiener, PhD; Jennifer W. Mack, MD, MPH; 5/25Adolescent and young adult (AYA) patients with cancer frequently receive intensive measures at the end of life; many also express care goals that align with a palliative approach. [In this study] nearly three quarters (73%) [of  AYA patients] were referred to palliative care before death. Thirty-six percent of palliative care referrals took place before the last 90 days of life; 30% were in the last month of life. Palliative care referrals and their timing were associated with care received at the end of life, with earlier referrals associated with fewer intensive measures near death, including chemotherapy in the last 14 days of life ... as well as intensive care unit admissions, emergency room visits, and hospitalizations in the last month of life ... Patients who were referred to palliative care were more likely to have symptoms assessed in the last 90 days of life, including pain, dyspnea, nausea, diarrhea, constipation, depression, and anxiety ... 

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An intervention to increase advance care planning among older adults with advanced cancer-A randomized clinical trial

05/31/25 at 03:15 AM

An intervention to increase advance care planning among older adults with advanced cancer-A randomized clinical trialJAMA Network Open; Angelo E. Volandes, MD, MPH; Yuchiao Chang, PhD; Joshua R. Lakin, MD; Michael K. Paasche-Orlow, MD; Charlotta Lindvall, MD, PhD; Seth N. Zupanc, BA; Diana Martins-Welch, MD; Maria T. Carney, MD; Edith A. Burns, MD; Jennifer Itty, MPH; Kaitlin Emmert-Tangredi, MSW; Narda J. Martin, MSN-ED, RN; Shreya Sanghani, MS; Jon Tilburt, MD; Kathryn I. Pollak, PhD; Aretha Delight Davis, MD, JD; Cynthia Garde, MBA; Michael J. Barry, MD; Areej El-Jawahri, MD; Lisa Quintiliani, PhD; Kate Sciacca, NP; Julie Goldman, MPH; James A. Tulsky, MD; 5/25Despite accumulating evidence of the benefits of these discussions, documentation of advance care planning (ACP) activity in the electronic health record (EHR) remains low and inconsistent for most health care systems, increasing the risk that patients will not receive care that matches their goals. In this pragmatic stepped-wedge randomized clinical trial among older patients with advanced cancer, an intervention combining patient video decision aids and clinician communication skills training increased the proportion of patients with ACP documentation. This randomized clinical trial exploring a combined intervention of patient empowerment and clinician communication skills training found a significant and clinically meaningful increase in ACP documentation rates with a scalable intervention that can be rapidly implemented across large health care systems. This approach offers an innovative paradigm with a clinically meaningful increase in ACP documentation, a widely used quality metric that reflects high-quality patient-centered care delivery.

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Palliative care program characteristics and end-of-life outcomes for patients with metastatic cancer

05/31/25 at 03:10 AM

Palliative care program characteristics and end-of-life outcomes for patients with metastatic cancerJournal of Pain and Symptom Management; by May Hua, Ling Guo, Shuang Wang, R Sean Morrison; 6/25Although U.S. palliative care programs have substantial differences in their implementation, whether this heterogeneity impacts patient outcomes is unknown. Palliative care program characteristics largely were not associated with differences in end-of-life quality metrics for patients with metastatic cancer.

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The dementia care workforce: Essential to care but large research gaps exist

05/31/25 at 03:05 AM

The dementia care workforce: Essential to care but large research gaps existAlzheimer's and Dementia; Jasmine L Travers Altizer, Jennifer M Reckrey, Bianca K Frogner, David C Grabowski, Joanne Spetz; 5/25People living with dementia and their care partners benefit from services and supports from a wide variety of healthcare and social service professionals. This article provides an overview of the dementia care workforce and highlights gaps and opportunities for data collection and research to advance the workforce and its contributions to high-quality care. There are notable gaps in our ability to track career pathways, assess the impact of training, identify best practices for recruitment and retention, and understand attributes of the workforce that may affect the quality of both workers' lives and the care they provide to people living with dementia. The dementia care workforce works in multiple settings and includes many occupations. Evaluation research is needed to improve direct care worker recruitment, retention, and knowledge.

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Saturday newsletters

05/31/25 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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[Sweden / Australia / UK] Harms of morphine for chronic breathlessness in relation to dose, duration and titration phase

05/31/25 at 03:00 AM

[Sweden / Australia / UK] Harms of morphine for chronic breathlessness in relation to dose, duration and titration phaseJournal of Pain and Symptom Management; by Magnus Ekström, Fatima Alameri, Sungwon Chang, Diana Ferreira, Miriam J Johnson, David C Currow; 6/25In people with COPD and severe chronic breathlessness, the risk of adverse events was highest during the first week of treatment in a dose-related fashion but did not differ by titration phase or by dose of once-daily SR morphine between 8 and 32 mg/day.

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