Literature Review

Hospice: Relatable language, cultural humility key to grow rural utilizationHome Health Line; by MaryKent Wolff; 6/18/25 Agencies in rural communities that make information about their care more accessible to community members who may be isolated or lack trust in health care services could see both increased hospice utilization and patient engagement. [Subscription required for full access.]

How AI tools help home health providers dramatically lessen OASIS time burdenHome Health Care News; by Joyce Famakinwa; 6/18/25 As home health leaders continue to identify areas where artificial intelligence (AI) can be most beneficial to their businesses, some are beginning to utilize these tools to reduce the time burden of the Outcome and Assessment Information Set (OASIS). Payment and outcomes are directly impacted by OASIS data collection, making accurate OASIS data collection crucial for home health providers. Yet for many clinicians, OASIS data collection can be a major pain point due to its complexity and time demands. Providers who have turned to AI-powered tools report “dramatic” efficiency gains. Still, experts note that some “fine tuning” remains to be done before the technology reaches its full potential. 

Barbara Pearce honored at CT Hospice Gala for extraordinary leadership through challenging times The LaGrange Daily News, Branford, CT; by PR Newswire; 6/18/25 Barbara L. Pearce was honored for her "extraordinary leadership" during a pivotal period in The Connecticut Hospice's history at the organization's annual Bloom Gala. Held on the scenic waterfront grounds of The Connecticut Hospice in Branford, this year's gala celebrated Pearce's exceptional guardianship through a challenging time in the non-profit's 51-year history and welcomed Sylvia Allais as the new president and CEO. In 2019, Pearce accepted a temporary leadership role at Connecticut Hospice, the nation's first provider of palliative and end-of-life care for patients and their families. What was intended as a six-month interim role became a six-year commitment, with Pearce becoming the organization's president and CEO. During her tenure, Pearce secured the financial stability of Connecticut Hospice, enabling its vital mission of providing compassionate support—both at home and at the 52-bed inpatient facility—to continue for generations to come.

[UK] Palliative sedation at the end of life: Practical and ethical considerationsClinical Medicine; Dr Caroline Barry MBBS FRCP LLM FHEA PG Cert; Dr Robert Brodrick MB ChB (Hons) MA MRCP FHEA; Dr Gurpreet Gupta MBBS BSc PG Cert; Dr Imranali Panjwani LLB, PGDip, PG Cert, PhD; 6/25Highlights: The aim of palliative sedation is to relieve refractory suffering with the use of medications to reduce consciousness. Where palliative sedation is being used to treat agitation at the end of life, it is important to exclude and/or address reversible causes prior to starting medication. The drug, dose and route of administration of palliative sedation may vary according to the indication for treatment. Appropriate and proportionate use of palliative sedation does not hasten death. Suffering may have different meanings for people depending on their backgrounds and life experiences.

Short notice, long love: A hospice wedding full of heart Citrus County Chronicle, Inverness, FL; by Mike Arnold; 6/16/25 Brendan Malone and Vanessa Rodriguez made a snap decision that would change their lives – and touch the hearts of everyone around them. The couple were driving up from Estero in the early afternoon of June 5 to visit Malone’s father, Michael “Big Mike” Malone, who had recently moved into Citrus Health and Rehab in Inverness and was also receiving care from Vitas Hospice. [Already engaged,] ... they made the decision to get married the next morning, at Citrus Health and Rehab. There were no tuxedo fittings, no cake tastings, no invitations sent. There was no time. There were flowers, guests, toasts, bubbles – and love. And “Big Mike” had a front row seat. Brendan Malone didn’t want to get married without the man who had been his biggest supporter by his side. ... What followed was a whirlwind of compassion, planning, and action from the staff at the nursing facility and the local hospice team. Within hours, they coordinated decorations, arranged courtyard seating, and made sure Michael could be present in his wheelchair for the ceremony.

Winning with whiskers: A new approach to salesTeleios Collaborative Network (TCN); podcast by Chris Comeaux with Dawn Landry; 6/18/25In this engaging conversation, Chris Comeaux and Dawn F. Landry explore the intricacies of leadership, emphasizing the importance of curiosity, self-awareness, and empathy.  Dawn shares her journey in business development and her unique approach to understanding personality traits through her book, Winning with Whiskers [A Business Fable About Overcoming Obstacles by Knowing Yourself & Others]. Their discussion highlights the significance of building strong relationships and navigating friction in professional settings, ultimately advocating for a more authentic and empathetic leadership style.  Dawn discusses the importance of self-awareness, understanding personal strengths, and the dynamics of building effective relationships in both personal and professional settings.

The Family CNA Model: Supporting families and improving care for children with medical complexity Mondaq; by Stephanie Anthony, Alixandra Gould, Blair Cantfil, and Jessica Lyons; 6/16/25 Children with medical complexity represent less than 1% of all children in the U.S., but have significant, specialized, and long-term health care needs, accounting for one-third of pediatrics costs in the U.S. ... The Family CNA model trains and reimburses family members—including parents, guardians, siblings, aunts, uncles, and grandparents—to provide certain types of home care for children with medical complexity that would otherwise be provided by a registered nurse (RN), a licensed practical nurse (LPN), or a non-family CNA. This care includes low acuity in-home nursing tasks, such as medication administration, gastronomy tube (G-tube) care, or catheter care. Family CNAs are licensed or certified health care professionals that work in concert with other providers on a child's care team, including RNs and LPNs who provide supervision and perform high-acuity tasks, to support their child's medical needs and activities of daily living at home. The unique benefits of the Family CNA model include: ... [Click on the title's link.]

Dr. Anne Merriman obituary: doctor known as ‘mother of palliative care in Africa’ The Times, London, England; 6/18/25 Dr. Anne Merriman revolutionised palliative and end-of-life care in Africa after developing a cheap form of oral morphine with a Singapore hospital pharmacist. ... Universally known as “Dr. Anne”, she said: “It’s easier than baking a cake.” She developed the pain-controlling recipe after seeing terminally ill patients discharged from hospital because “nothing more could be done for them”. Many died at home in severe and prolonged pain. “A wild, undisciplined schoolgirl” who became a nun and a doctor, Merriman founded the pioneering Hospice Africa Uganda (HAU) in 1993 at the age of 57. Palliative care was largely unknown in Africa when she started her work in Uganda. HAU has treated more than 35,000 patients and trained more than 10,000 healthcare professionals from 37 African countries in the so-called Merriman model. ... Anne Merriman, doctor, was born on May 13, 1935. She died from respiratory failure on May 18, 2025, aged 90.

Map shows assisted dying laws across US Newsweek; by Jasmine Laws; 6/13/25 New York has recently joined a number of other U.S. states that have made assisted dying legal. The state's Senate approved a bill on Monday allowing constituents with terminal diagnoses to end their lives on their own terms, and the legislation is now headed to Governor Kathy Hochul for her to sign into law. There are currently 10 states, as well as the District of Columbia, that have passed laws making medical assistance in dying (MAID) legal, according to Death With Dignity, and a number of others are considering similar legislation this year. Why It Matters: Assisted dying laws are extremely divisive ... across the globe. [Click on the title's link for the map and more information.]

Scaling early palliative care in value-based community oncology: A technology-enabled approach American Journal of Managed Care (AJMC); by Biqi Zhang, Samyukta Mullangi, Alphan Kirayoglu, Stephen G. Divers, Julia L. Frydman; 6/18/25 Key Takeaways: 

68% of hospices lack star ratingsHospice News; by Jim Parker; 6/18/25 The proportion of hospices that do not have a star rating from the U.S. Centers for Medicare & Medicaid Services (CMS) is growing. CMS introduced the hospice star rating system in 2022 to help patients make informed decisions about which provider to choose. They appear on CMS’ Care Compare website. The scores are based on Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey results. Between August 2022 and that same month in 2024, the number of hospices without a star rating rose from 3,912 to 5,086, an average of 68%, according to a new study published in Health Affairs.

MedPAC Report: Medicare Advantage enrollees receive 11% fewer home health visits Home Health Care News; by Morgan Gonzales; 6/13/25 The Medicare Payment Advisory Commission’s (MedPAC) June report to Congress examined home health care use among Medicare Advantage (MA) and traditional Medicare patients and found that MA enrollees receive 11% fewer home health visits compared to Medicare fee-for-service. ... 

'Just support her': Brittany Maynard's husband says medical aid in dying helped him grieve USA Today; by Madeline Mitchell; 6/15/25 Some patients find comfort in medical aid in dying, which allows individuals with six months or less to live the option to obtain a medicine that can help them die peacefully at a time of their choosing. It's not considered euthanasia – which is when someone administers a lethal drug – because the patient takes the medicine themselves. Medical aid in dying is legal in 11 states and in Washington, DC. “A lot of patients really express this desire to shield family members from the agony of watching them die, and potentially having them witness a really traumatic or a really burdensome death," said Anita Hannig, an anthropologist and author of the book "The Day I Die: The Untold Story of Assisted Dying in America." Some caregivers say medical aid in dying helped in their grieving process, too. One thing (Compassion & Choices’ Jessica) Empeño, (Americans United for Life’s Catie) Kelley and Hannig agree on: When a patient asks to die, it's crucial to ask questions about their pain levels, comfort and mental health. Not every patient can or wants to move to one of the 12 jurisdictions that allow medical aid in dying. Moving can be expensive, and some patients don't have the physical ability or time to move. The best thing caregivers can do, Empeño said, is to advocate for their loved one and plan for their death. Ask questions about what the patient wants when they are dying, like if they want visitors in those final moments and who should make final decisions if the patient can't themselves. Guest Editor’s Note, Mark Cohen: Medical Aid in Dying is not going away. This article makes the point that the things that hospices do best—empathetic listening, asking thoughtful questions to guide patients in their healthcare decision-making—can benefit patients and families on both sides of this policy question. For a related article, see this column by Dan Diaz supporting removal of the sunset provision in California’s End of Life Options Act: “Husband of Brittany Maynard: Let’s make medical aid in dying permanent”; Sacramento Bee, 6/3/2025.