Literature Review

The Alliance applauds Gerald’s Law passing through Congress National Alliance for Care at Home (the Alliance; formerly NAHC and NHPCO); Press Release; 11/19/24 The National Alliance for Care at Home (the Alliance) celebrates the historic passage of H.R. 8371, the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act in the U.S. House of Representatives last night with a bipartisan vote of 389-9. This landmark legislation includes Section 301, Gerald’s Law, which addresses a critical gap in benefits impacting seriously-ill veterans and their families receiving hospice care. The story of Gerald “Jerry” Elliott, a U.S. Army veteran, underscores the importance of this legislative achievement. Diagnosed with cancer, Jerry was admitted to his local Veterans Affairs (VA) hospital in 2019 before transitioning to VA hospice care at home to be surrounded by his family. After his passing, his family discovered they were ineligible for full burial and funeral financial support because Jerry died outside of a VA facility.

Lamar Area Hospice’s grief programs are made possible from BBB donations The Prowers Journal, Lamar, CO; by Barbara Crimond; 11/20/24 The words “good” and “grief” don’t commonly go together.  At the Lamar Area Hospice, however, they not only go together but, when combined, embrace the idea of a place to go which allows children and adults to normalize their grief, receive support from others experiencing similar emotional struggles and education in healthy ways to move through their grief.  They learn that they can tell their stories in a safe, loving and nurturing environment.  I recently met with Deb Pelley (Executive Director of Lamar Area Hospice). Roni Vallejos (Children’s Good Grief Coordinator) and Kelsie Cedeno (Adult Bereavement Coordinator) to learn more about these programs.  I could immediately sense the compassion and love for their jobs that all three women have. Before telling me about the programs though, they told me that it was only because of the generous donations from the BBB each year that the programs can even exist. They wanted to express how extremely grateful they are to BBB for enabling them to continue Jillian Sweet Tinnes’s legacy. ...

Facing terminal cancer, former flight attendant granted final wish to fly one last time CBS News 13, Sacramento, CA; by Ashley Sharp; 11/19/24 A special last wish was granted for a Calaveras County hospice patient facing a daunting diagnosis. Janet McAnnally, 79, was diagnosed with stage 4 lung cancer which spread to her spine. She knows she doesn't have long, but that did not stop the former flight attendant from taking to the skies one last time. ... McAnnally is now in the care of Hospice of Amador and Calaveras, ... Turning the page back to 1971, McAnnally was a flight attendant for seven years for Trans World Airlines, based in Chicago. ... The hospice center, under its Last Wish Program, reached out to local United Airlines pilot Rob Davids to help fulfill McAnnally's wish for one final flight high above Calaveras County. "I just felt lucky to be part of it and give her that chance," Davids said. "I just appreciate every flight like it's the last." At 79, for the first time, McAnnally even got to pilot the plane herself during their hour-long flight. ...

Simmons Nursing and Dix Scholar Alum offers palliative care to Navajo nation Simmons University, Boston, MA; 11/20/24 Susan Perron ’18 came to Simmons as an adult student, pursuing her second bachelor’s degree. “I wanted a job that used both practical and critical thinking skills,” says Perron. “I wanted to do something helpful to humanity.”  ...  “I was a COVID-19 nurse throughout the pandemic, and it burned me out,” she recalls. “If you’re a good nurse, you take time to self-reflect. ... Perron took the opportunity and moved to the Hopi Reservation in Northeastern Arizona. Providing ambulatory care to people on the reservation meant that Perron could work in a clinic and take a break from twelve-hour shifts. That said, the year on the Hopi Reservation presented her with challenges. “I had to drive two hours to Flagstaff to get groceries. We would lose power often, and the water was often shut off for maintenance." ... Perron emphasizes that understanding the Navajo belief system is integral to this kind of work. In addition to Dr. Mohs, Perron works closely with her colleague and mentor, Ida Bradley (Navajo) a nurse who specializes in medical terminology in the Navajo language and has extensive experience with end of life care within the Navajo culture. 

VITAS Healthcare honors retired hospice veteran, announces new executive leadership Globe Newswire, Miami, FL; by VITAS Healthcare; 11/20/24 VITAS Healthcare, the nation’s leading provider of end-of-life care and a best-in-class healthcare employer, proudly announces four major executive leadership changes:

Local hospice organization announces dementia care program for patients and caregivers Southern Maryland News Net; 11/19/24 Hospice of the Chesapeake has launched a new and innovative dementia care program for dementia patients and their caregivers. The program, in collaboration with The National Partnership for Healthcare and Hospice Innovation (NPHI), The Center to Advance Palliative Care (CAPC) and Aliviado Health, includes free access to the “Dementia Care Patient & Caregiver Resource Guide,” which provides the best-in-class resource for dementia care. The goal is to improve the quality of life for dementia patients, reduce hospitalizations and ease burdens for families and caregivers.Editor's note: The National Partnership for Healthcare and Hospice Innovation (NPHI) is a sponsor for our newsletter.

Bringing stories to life, and death: Why animated movies are more than entertainment for kids The Stony Brook Press; 11/19/24 ... Whether it is the parents of the protagonist dying in the first few minutes in Frozen or the epic finale where the villain succumbs to a fatal fate like in The Hunchback of Notre Dame or The Princess and the Frog, it is somewhat of an oxymoron to call animated movies “childish,” as they often deal with serious topics. These movies are not outliers; there are videos dedicated to Disney’s “body count,” which counts how many characters have died in Disney movies. While these films may be magical or fantastical in plot, the moral truths of death and life covered in them often stir conversations about mortality. “Despite the fact that we would love to have people or animals or our loved ones forever, death is inevitable,” explained Bonnie Nickels, co-writer of the study End-of-Life in Disney and Pixar Films: An opportunity for Engaging in Difficult Conversation. “We can use these films as opportunities to introduce our young viewers and our young children to this idea.” To Nickels, these movies can create a dialogue between parents and children about dying and even model coping methods. “The fact that it’s a common feature in these films, kind of reiterates this idea that it’s common in life.” Editor's note: What movies will your intergenerational family watch through the holidays? This article's referenced study--"End-of-Life in Disney and Pixar Films"--describes, "A content analysis of 57 movies resulted in a total of 71 character deaths. For different generations, what reactions do you remember having experienced yourself, or from others? Bambi's mother. The Lion King's Mufasa. Frozen's parents of the two sisters. Coco's family members. Click here for a related article, "15 Saddest Disney Death, Ranked." 

Hospices leaders: ‘Vigilant’ compliance pivotal in MAC auditing climate Hospice News; by Holly Vossel; 11/18/24 e auditing environment has heated up in the hospice industry, with inconsistencies reportedly proliferating among the various types of regulatory enforcement activity — particularly those performed by Medicare Administrative Contractors (MACs). The issue has some hospice providers delving deeper into a range of compliance strategies. Differences exist in the scope of data being reviewed by MAC auditors, as well as the audit appeals approval and denial processes, said Ashley Arnold, senior vice president of quality at St. Croix Hospice. The Minnesota-headquartered hospice provides care across 85 locations in 10 Midwestern states and has an average daily census of roughly 5,200 patients.  

Hospice of Northwest Ohio will operate ProMedica's palliative care services CBS WTOL 11, Toledo, OH; by Karmann Ludwig; 11/18/24 Hospice of Northwest Ohio will operate ProMedica's palliative care services at the start of next year, according to a press release from Hospice released Monday. The company said ProMedica's patients who remain in palliative care will be transferred to Sincera Supportive Care and Symptom Relief, one of Hospice of Northwest Ohio's services. Sincera will also take over responsibility for ProMedica's palliative care outpatient clinics, Hospice of Northwest Ohio said. 

People with Parkinson’s Disease (PD) face disproportionate rates of harm in hospital setting  Parkinson's Foundation, New York and Miami; Press Release; 11/18/24 The Parkinson’s Foundation published a new article in the December issue of The Joint Commission Journal on Quality and Patient Safety titled “Protecting Parkinson’s Patients: Hospital Care Standards to Avoid Preventable Harm.” The article identifies sustainable solutions to improve care in the hospital for people with Parkinson’s disease (PD) and details how these solutions may be generalized to develop a practical, disease-agnostic care model for all hospital and health systems that wish to avoid preventable harm. ... People with PD are at increased risk of hospitalization, with more than 300,000 people with PD hospitalized each year. While hospitalized, people with PD face increased risk of preventable harm, including longer hospital stays and deterioration of PD symptoms. Adverse outcomes range from temporary, such as higher rates of delirium, to permanent damage, including higher mortality.

What you do makes difference and you have to decide what kind of difference you want to make. ~ Jane Goodall

Chaos and devastation: How the mountain fire erupted Ventura County Star, Ventura, CA; by Cheri Carlson and Tom Kisken; 11/17/24 ... The mountain fire that ignited 3 miles away was sweeping across Somis in a sprint accelerated by 80 mph Santa Ana winds that rattled the small ranches on their Ridgecrest Lane cul-de-sac. The fire soon leaped to the hills above Camarillo where it fed on more homes. It destroyed some 243 structures and threatened thousands more. In its first hours, the assault triggered roadside rescues, firefighters racing to get ahead of the flames and people scrambling to escape. ... It was lunch time at Bernadette’s, the residential care and hospice home at the bottom of Marissa Lane in Camarillo Heights. Four elderly residents, all in beds, had just started eating chicken nuggets and noodles. Sheriff’s deputies pounded on the door. Though smoke already filled the sky, a darker patch was coming. The home two lots away from the care center would soon burn to the ground. “It was like the apocalypse,” said Bernadette Abiera, the home's administrator. Deputies lifted the residents out of their beds and into wheelchairs. They rolled them down a hill to waiting squad cars. ...  The deputies ran back in to find two caregivers tending to a resident who was still eating his lunch. He wouldn’t stop. “I had to take the food out of his hands and carry him to the wheelchair,” said Deputy Justin Lopez. ... [Click on the title's link to continue reading.]