Literature Review

[United Kingdom] Daughter of hospice patients backs bed campaign BBC News; by Will Jefford; 11/18/25 The daughter of a couple who spent their final moments together side by side in a hospice has backed a campaign to save two end-of-life care beds from funding cuts. Julie Whittaker's parents, Chris and Lynne Johnson, were cared for in the same room at Ashgate Hospice, in Chesterfield, Derbyshire, before dying just days apart in February 2024. Ashgate Hospice announced plans to reduce the number of inpatient beds as part of wider plans to save more than £2.6m in October Editor's Note: Read more, "Married 'soulmates' spent final days side by side," which we posted on 7/17/24.

Consciousness and meaning at life’s end: How the study of dying deepens our understanding of everyday presencePsychology Today; by Alexander Batthyany, PhD; 11/15/25Sergei Rachmaninoff lies dying in his Beverly Hills home. Family and friends surround him, the room suffused with that particular stillness that often accompanies life's final hours. Then something unexpected occurs. The composer opens his eyes and asks those present: "Can you hear this beautiful melody? The enormously beautiful music?" The response from those at his bedside is immediate: "No, there's no music here." ... I share this story with all those who wish to participate in our work as mandatory reading, simply because I want to prevent us from making the same error—saying "No, there's no music" instead of asking "What do you hear?" ...

Grateful patient finds strength and support through UConn Health’s ALS Program UConn Today; by Jennifer Walker; 11/17/25 ... ALS, also known as Lou Gehrig’s disease, is a progressive neurodegenerative disorder that affects the nerve cells in the brain and spinal cord responsible for muscle movement. ... Originally conceptualized by Dr. Amanda Hernandez, division chief of Neuromuscular Medicine, the UConn Health ALS and MD Program provides a “one-stop shop” for patients with progressive neuromuscular diseases that often require coordination across multiple specialties. ... “Our social worker meets every patient,” said Viguera Altolaguirre. “We address caregiver stress, financial barriers, and emotional coping. Palliative care helps patients navigate difficult decisions about feeding tubes, ventilation, and future planning—always at their own pace and comfort level.” 

Providing specialised palliative care to families with ethnic minority background: Perspectives, experiences, and approaches Omega (Westport); by Josefine Maria Bruun, Mikkel Rytter, Jahan Shabnam, Morten Sodemann, Mogens Grønvold, Merete Paludan, Mathilde Adsersen, Jesper Grau Eriksen, Mette Asbjoern Neergaard; 11/17/25 online ahead of print ... While some participants employed informal strategies of cross-cultural palliative care, these were rarely grounded in formal training or guidelines. We therefore recommend the integration of ongoing cultural humility training into the education of palliative care professionals to better support equitable and responsive care in diverse clinical settings.

States’ promising practices to improve care of serious illness National Academy for State Health Policy (NASHP); by Stacie Sinclair (Center to Advance Palliative Care) and Wendy Fox-Grage; 11/17/25 Every state has taken meaningful action in some capacity to improve care for residents facing serious illness, affirms a recent publication from the Center to Advance Palliative Care (CAPC). The report documents how states are using a wide array of policy levers — such as legislation, Medicaid innovation, public education, and workforce development — to improve access to and quality of palliative care. 

Preventing falls and hospitalizations: Bayada launches the first AI-enhanced home care model Cision / PR Newswire, Philadelphia, PA; Press Release; 11/13/25 Bayada Home Health Care ... unveiled its Enhanced Quality of Care Model (EQoC), the only approach of its kind to improve safety and health outcomes for aging adults wherever they call home. ... BAYADA's EQoC innovation combines daily nurse oversight with predictive technology to catch risk factors before they escalate and provide timely, appropriate preventative care that helps seniors stay safe and well at home with fewer adverse events.Editor's Notes: Pair this with the article we recently posted, "Why are more older people dying after falls?"

UofL oncology social work expert leads national effort to transform cancer patient support The Lane Report, Louisville, KY; by Holly Hinson; 11/17/25 ... Tara Schapmire, an associate professor in the University of Louisville (UofL) Department of Medicine, Division of Palliative Medicine, and an associate professor at the UofL Kent School of Social Work and Family Science, has worked decades to help individuals and families impacted by cancer. Schapmire was recently awarded a five-year, $1.6 million grant from NCI to lead a national training initiative aimed at transforming psychosocial and palliative care in oncology. The grant will support an intensive training and mentorship program, and 50 social workers from across the U.S. will be competitively selected each year to receive fully funded palliative oncology training and structured mentorship.

Santa Barbara turns holiday tables into life-saving conversations CBS-12, ABC-3, Fox-11, Santa Barbara, CA; by Patrician Martellotti I. Keyt; 11/17/25 ... Santa Barbara Neighborhood Clinics and Hospice of Santa Barbara are teaming up to prompt residents to start advance care planning — the process of deciding and documenting what kind of medical care they want if they become unable to speak for themselves. The campaign offers free bilingual appointments with witnessing and notary services, helping residents complete their healthcare directives with ease and confidence. Organizers say the holidays provide a natural setting for these conversations because families are already coming together.

Balancing caregiving and personal well-being: The role of palliative care WISHTV.com-8, Indianapolis, IN; by Alfonso Ruvalcaba Trujillo; 11/17/25 Nearly 60 million Americans are providing unpaid care for loved ones facing serious illness, often without the necessary support, according to recent reports. ... Dr. Michael Gabriel, National Medical Director for Carelon Palliative Care, explains that palliative care offers an extra layer of support alongside regular medical treatment, focusing on improving quality of life by addressing physical, emotional, and spiritual needs.

Four California residents sentenced to prison in connection with $16m Hospice fraud and money laundering scheme Office of Public Affairs - U.S. Department of Justice; Press Release; 11/18/25 Four California residents were sentenced to prison for their roles in defrauding Medicare of nearly $16 million through sham hospice companies and laundering the fraudulent proceeds.

[United Kingdom] 'I lie awake wondering how we fund our hospice' BBC News, Manchester, England; by Paul Burnell; 11/18/25 The boss of a large hospice has told how its financial problems are giving her sleepless nights. Rachel McMillan, chief executive of Moya Cole Hospice in Manchester, said it needed £20,000 daily to run it. "It keeps me awake at night - every day it is always a challenge." "The funding model is archaic, it's not fit for purpose," Ms. McMillan said. "We have to raise £20,000 every single day of the year just to keep the doors open."Editor's Note: I trust that you--our readers--can relate. And yet, our US Medicare payments provide much more financial support than UK counterparts. Still, Moya Cole Hospice--in the midst of tough financial decisions--continues to focus on quality care, as demonstrated in their ongoing top quality scores of "Outstanding" for the pattient and family care they provide.

Honoring compassion: A beautiful afternoon with Hospice Austin ActiveRain, Austin, TX; by Dorie Dillard; 11/16/25 Each year, I look forward to the Beauty of Life Luncheon hosted by Hospice Austin, a tradition that has become both meaningful and deeply personal for me. Held at the JW Marriott in downtown Austin, this year’s event was nothing short of extraordinary. More than 1,000 attendees filled the grand ballroom, creating a powerful sense of community and shared purpose. Even more inspiring, the luncheon raised an incredible $1,000,000 to support Hospice Austin’s mission of providing compassionate end-of-life care.