Literature Review



'One Big Beautiful Bill Act': Key final Medicaid changes explained

07/14/25 at 03:00 AM

'One Big Beautiful Bill Act': Key final Medicaid changes explained Morgan Lewis; by Jeanna Palmer Gunville and Tesch Leigh West; 7/9/25 The One Big Beautiful Bill Act was signed into law on July 4 and includes significant changes to the Medicaid program, particularly with regard to state and federal financing for the program. This LawFlash provides a high-level summary of certain key provisions that will impact various Medicaid stakeholders, including states, providers, and enrollees. ...

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The grave outlook for hospice family caregivers

07/14/25 at 03:00 AM

The grave outlook for hospice family caregivers Hospice News; by Holly Vossel; 7/10/25 The state of family caregiving in the United States has reached a critical tipping point amid rising demand for end-of-life care and insufficient resources. Many family caregivers are ill-equipped to navigate the complexities of supporting a loved one with a terminal illness, according to Dr. Arul Thangavel, CEO of the advance care planning company WiserCare. Thangavel is also an attending physician at the University of California, San Francisco (UCSF). Among the issues is that conversations about the end of life and goals of care are often brought up far too late in a disease trajectory, Thangavel said. This trend leaves families grappling with uncertainty, moral distress, guilt and compounded grief in the decision-making process, he stated. 

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100 great community hospitals | 2025

07/14/25 at 03:00 AM

100 great community hospitals | 2025 Becker's Hospital Review; by Anna Falvey; 7/11/25 Becker’s is pleased to release the 2025 edition of its “Great community hospitals” list. Community hospitals play a vital role in the fabric of the U.S. healthcare system, delivering accessible, affordable care to patients beyond major metropolitan areas. Whether serving rural regions or suburban neighborhoods, these hospitals are essential to keeping communities healthy and connected to quality care. The community hospitals recognized on this list are dedicated to clinical excellence, academic advancement and personalized, whole-person care delivery. Their mission is to elevate health outcomes within the communities they serve. 

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Health equity starts at home: Renewing the heart of nursing

07/14/25 at 03:00 AM

Health equity starts at home: Renewing the heart of nursing  Minority Nurse; by Michelle Cortez Adams; 7/10/25 ... I started my nursing career in the ICU, told (as many of us are) that hospital experience was a must. And while the work was meaningful, it wasn’t fulfilling. My patients were often unconscious. My goal was to stabilize and transfer them. I never got to know their stories, their families, or whether they ever found healing beyond discharge. That changed when I moved into home hospice and then home health care. This shift taught me that home nursing is not only a career path—it’s a calling. I saw the impact of my work every day. I helped clients reach personal goals, not just clinical benchmarks. I was welcomed into their lives by name. I wasn’t just preserving life—I was restoring it. Home health care reminded me why I became a nurse in the first place: to form real connections, to bring comfort and dignity, and to care for the whole person—body, mind, and spirit.

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VA announces expanded burial benefits for those under VA-provided hospice care

07/14/25 at 03:00 AM

VA announces expanded burial benefits for those under VA-provided hospice care Tri-State Alert; by Staff Report; 7/11/25 The Department of Veterans Affairs announced today it has temporarily expanded burial benefits for certain Veterans, per the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act. The new law specifies eligible Veterans are those who are discharged from VA-provided medical or nursing care to receive VA-provided hospice care at their home and who pass away between July 1, 2025, and Oct. 1, 2026. Previously, Veterans who died at home under VA hospice care after discharge from VA-provided medical or nursing care were not always eligible for a full VA burial allowance. The Dole Act addresses that gap.

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Connecticut Hospice back on sound financial footing; many credit local business owner Barbara Pearce for turnaround

07/14/25 at 03:00 AM

Connecticut Hospice back on sound financial footing; many credit local business owner Barbara Pearce for turnaround CTPost, Branford, CT; by Mark Zaretsky; 7/12/25 Connecticut Hospice, the nation's first hospice facility, appears to finally be out of the financial woods now — but that wasn't the case a few years ago. And many people outside its inner circle may not know just how precarious its situation was and how a well-known business owner played a key role in the turnaround. Barbara Pearce, CEO of Pearce Real Estate, put her life and her role in the real estate company her late father founded on hold for six years to take over at Hospice and make hard decisions to steer it back to health. Hospice has new leadership now. New President and CEO Sylvia Allais is working to move Connecticut Hospice forward. 

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New bill would extend Hospital-At-Home Waiver through 2030

07/14/25 at 03:00 AM

New bill would extend Hospital-At-Home Waiver through 2030 Home Health Care News; by Morgan Gonzales; 7/10/25 On Thursday, a bipartisan group of lawmakers introduced legislation to extend the hospital-at-home waiver, which has been a source of significant uncertainty for the home health industry. The Hospital Inpatient Services Modernization Act, if passed, would allow hospitals to extend successful hospital-at-home programs for an additional five years. It would also orchestrate a study focusing on the efficacy, quality and patient satisfaction associated with home-based care. 

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Hill Country vigil draws hundreds after deadly Texas floods

07/14/25 at 03:00 AM

Hill Country vigil draws hundreds after deadly Texas floods MYSA, San Antonio, TX; by Nicholas Hernandez; 7/11/25 ... On Thursday, July 10, hundreds gathered downtown for a Candlelight Vigil of Hope to honor those affected [by the "catastophic flood"] and shine a light on the importance of grief and mental health support in the wake of disaster. Organized by River City Advocacy in partnership with Hope Hospice and other local nonprofits, the event brought together counselors, community leaders and families. Handheld candles were distributed at the plaza, where people stood shoulder-to-shoulder in silence, prayer and remembrance.Editor's Note: Thank you Hope Hospice for your leadership in providing this meaningful way to gather and grieve. Calling all hospice leaders to simply "check in" on employees who have family and friends in affected areas when such crises occur. Other recent examples include Hurricanes Helene & Milton, the Los Angeles wildfires, Kentucky floods, and these Texas / New Mexico floods. Your kind words can make a lasting difference.

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Grieving the living: How Hospice of St. Lawrence Valley helps caregivers cope

07/14/25 at 02:00 AM

Grieving the living: How Hospice of St. Lawrence Valley helps caregivers cope North Country Now, St. Lawrence County, NY; by Kate Favaro, Hospice of St. Lawrence Valley; 7/10/25 With caregiving comes grief, there’s no way around it. You will grieve two important things that you’ve lost: who the person you’re caring for used to be, and the things that will never be. Take the time to explore the grief you’re experiencing so you can provide the best care possible. If you’re not taking care of yourself, you won’t be able to take care of anyone else. Hospice of St. Lawrence Valley offers the following on the grief of caregiving:

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Palliative care knowledge, attitudes, and self-competence of nurses working in hospital settings

07/13/25 at 03:55 AM

Palliative care knowledge, attitudes, and self-competence of nurses working in hospital settingsJournal of Palliative Care; by Mona Ibrahim Hebeshy, Darcy Copeland; 6/25With the growing need to integrate palliative care into healthcare systems, nurses in hospital settings often provide care for patients with life-limiting conditions, many of whom lack formal education in palliative care. [Conclusions:] Nurses generally feel competent; however, they often lack confidence in addressing patients’ social and spiritual needs. They experienced unease when discussing death and exhibited paternalistic attitudes. Significant differences were found in educational background, nursing experience, personal caregiving experience, and practice setting. Positive correlations exist between attitudes, knowledge, and self-competence, indicating that greater knowledge and competence were associated with better attitudes toward end-of-life care.

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HR1: The One Big Beautiful Bill Act - Provisions relevant to Medicaid HCBS providers

07/13/25 at 03:50 AM

HR1: The One Big Beautiful Bill Act - Provisions relevant to Medicaid HCBS providersNational Alliance for Care at Home; 7/7/25The Alliance has created a detailed summary for providers that deliver Medicaid-funded home and community-based services (HCBS) about provisions in the House Resolution 1, the One Big Beautiful Bill Act, also known as the “Reconciliation” bill. View the Alliance's recent statement following House passage of the bill. President Trump signed the legislation on July 4, 2025, and therefore the provisions below will now become law.Publisher's note: Membership required to access full analysis. Also, direct hospice impact appears minimal; indirect hospice impact (e.g., hospice impact as a result of Medicaid nursing home impact) unclear.

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20 states sue after the Trump administration releases private Medicaid data to deportation officials

07/13/25 at 03:45 AM

20 states sue after the Trump administration releases private Medicaid data to deportation officials Associated Press (AP), Washington, DC; by Amanda Seitz and Kimberly Kindy; 7/1/25The Trump administration violated federal privacy laws when it turned over Medicaid data on millions of enrollees to deportation officials last month, California Attorney General Rob Bonta alleged on Tuesday, saying he and 19 other states’ attorneys general have sued over the move. Health secretary Robert F. Kennedy Jr.’s advisers ordered the release of a dataset that includes the private health information of people living in California, Illinois, Washington state, and Washington, D.C., to the Department of Homeland Security, The Associated Press first reported last month. All of those states allow non-U.S. citizens to enroll in Medicaid programs that pay for their expenses using only state taxpayer dollars.

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Health care attorneys: Hospice investigations coming from all sides

07/13/25 at 03:40 AM

Health care attorneys: Hospice investigations coming from all sides Hospice News; by Jim Parker; 7/8/25 Hospices are subject to a rising number of investigations and audits from Medicare contractors, the U.S. Department of Health and Human Services Office of the Inspector General and, in some cases, the U.S. Justice Department, among others. Hospices need to understand the various types of investigations they may encounter and how to respond to them. Key factors are completely and accurately documenting the medical necessity of the care they receive. Hospice News sat down with Guillermo Beades and Todd Brower, partners with the law firm Frier Levitt to discuss the ins-and-outs of hospice investigations and how providers should respond.

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Palliative care in the ICU: From oxymoron to standard of care

07/13/25 at 03:35 AM

Palliative care in the ICU: From oxymoron to standard of careIntensive Care Medicine; by Nancy Kentish-Barnes, Judith E. Nelson; 6/25Palliative care can be integrated into intensive care through ICU clinicians and palliative care specialists, and these approaches are complementary and synergistic. One study found that proactive specialist involvement in ICU rounds for high-risk patients led to more and earlier family meetings and shorter hospital stays. However, collaboration challenges, such as continuity of communication, highlight the need for close team cooperation. The integrative model trains intensivists and ICU nurses to embed palliative care into routine practice, ideally starting in medical and nursing education. Research has shown that improved communication and support from intensivists and ICU nurses are associated with better bereavement outcomes for families, including reduced post-traumatic stress, anxiety, depression, and prolonged grief.

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Medicare Advantage plan disenrollment: Beneficiaries cite access, cost, and quality among reasons for leaving

07/13/25 at 03:30 AM

Medicare Advantage plan disenrollment: Beneficiaries cite access, cost, and quality among reasons for leavingHealth Affairs; by Geoffrey J. Hoffman, Lianlian Lei, Ishrat Alam, Myra Kim, Lillian Min, Zhaohui Fan, Deborah Levine; 6/25Medicare Advantage (MA) is growing in popularity, but it is seeing substantial plan disenrollments among high-risk Medicare beneficiaries. Understanding and addressing factors associated with disenrollment are crucial for improving MA access and quality but are complicated by data issues, including the inability to adequately assess beneficiaries’ perceptions of access and quality in MA... Difficulty accessing needed medical care was more strongly associated with MA-to–traditional Medicare exits than MA-to-MA plan switching. Dissatisfaction with access, cost, and quality was much more common for enrollees in poor health. These findings renew concerns about access to high-quality care for high-risk and other MA enrollees.

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Texas floods: "Ways you can help" and "Community crisis and grief resources for hospices"

07/13/25 at 03:25 AM

Texas floods: "Ways you can help" and "Community crisis and grief resources for hospices"Lists and links compiled at Composing Life Out of Loss - Community Grief; by Joy Berger; updated 7/8/25 

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Flooding in Texas: Updates and resources

07/13/25 at 03:20 AM

Flooding in Texas: Updates and resourcesCompilation by Hospice & Palliative Care Today; by Joy Berger; 7/6/25

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Medicaid provisions threaten home and community-based services for millions of vulnerable Americans

07/13/25 at 03:15 AM

Medicaid provisions threaten home and community-based services for millions of vulnerable Americans National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 7/3/25The National Alliance for Care at Home (the Alliance) issued the following statement today in response to the House’s passage of the “One Big Beautiful Bill Act,” also known as the Reconciliation bill, which now heads to President Trump’s desk for his signature. “The Alliance is deeply troubled by the Medicaid provisions within the One Big Beautiful Bill Act, which has passed both chambers of Congress and now awaits President Trump’s signature,” said Alliance CEO Dr. Steve Landers. “These provisions—including work requirements, reduced provider taxes, and new cost-sharing mandates—prioritize short-sighted budget savings over the health and wellbeing of our most vulnerable citizens who rely on home and community-based services (HCBS).” The home care community advocated throughout the legislative process for Congress to mitigate these harmful Medicaid provisions.

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Alliance Statement on House passage of Reconciliation Bill: Medicaid provisions threaten home and community-based services for millions of vulnerable Americans

07/13/25 at 03:10 AM

Alliance Statement on House passage of Reconciliation Bill: Medicaid provisions threaten home and community-based services for millions of vulnerable Americans National Alliance for Care at Home, Alexandira, VA and Washington DC; Press Release; 7/3/25 The National Alliance for Care at Home (the Alliance) issued the following statement today in response to the House’s passage of the “One Big Beautiful Bill Act,” also known as the Reconciliation bill, which now heads to President Trump’s desk for his signature. “The Alliance is deeply troubled by the Medicaid provisions within the One Big Beautiful Bill Act, which has passed both chambers of Congress and now awaits President Trump’s signature,” said Alliance CEO Dr. Steve Landers. “These provisions—including work requirements, reduced provider taxes, and new cost-sharing mandates—prioritize short-sighted budget savings over the health and wellbeing of our most vulnerable citizens who rely on home and community-based services (HCBS).”

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Pallitus Health Partners receives CHAP Accreditation for Adult Palliative Care and Pediatric Care Certification for Kourageous Kids

07/13/25 at 03:05 AM

Pallitus Health Partners receives CHAP Accreditation for Adult Palliative Care and Pediatric Care Certification for Kourageous Kids Pallitus Health Partners, Louisville, KY; Press Release; 7/8/25 Community Health Accreditation Partner, Inc. (CHAP) has awarded Care Guide Partners, Inc. (dba Pallitus Health Partners) CHAP Accreditation under the CHAP Palliative Care Standards of Excellence. The nonprofit also received certification for its Kourageous Kids (KKids) palliative care program. CHAP Accreditation demonstrates that Pallitus Health Partners meets the industry’s highest nationally recognized standards. The rigorous evaluation by CHAP focuses on structure and function, quality of services and products, human and financial resources, and long-term viability. Simply stated, adherence to CHAP’s standards leads to better quality care. ... Pallitus Health Partners, an affiliate of Hosparus Health, offers comprehensive palliative care for serious illnesses in Kentucky and Indiana. Editor's Note: Congratulations to Pallitus Health Partners and Hosparus Health! This accreditation marks yet another milestone of excellence for this organization—originally founded as Hospice of Louisville—which established one of the nation’s first pediatric hospice teams in 1980. I had the privilege of serving on the Pediatric Team of Hospice & Palliative Care of Louisville from 1997 to 2001. Profound experiences with these children, their parents, siblings, grandparents, our dedicated team members, and community partners are embedded in me, forever. They continue to shape my perspective and purpose in my role as editor in chief of this newsletter. 

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Sunday newsletters

07/13/25 at 03:00 AM

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

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Today's Encouragement - Jellyfish

07/13/25 at 03:00 AM

I bet jellyfish are sad that there are no peanut butter fish.

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Children and their families: Grief and flood disaster news about camps

07/13/25 at 03:00 AM

Children and their families: Grief and flood disaster news about campsCompilation by Hospice & Palliative Care Today; by Joy Berger; 7/6/25Summer can be both a healing and vulnerable time for grieving children, especially those attending bereavement camps. The devastating flooding in Texas, resulting in the deaths and "still missing" searches for children, teens and adults has undoubtedly shaken us all. Imagine the possible fears of children who are headed off to "grief camp" this week or in the near future. This type of tragedy can retraumatize children already processing loss, and create new layers of important, sensitive support from parents and counselors. We share with you these resources:

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Today's Encouragement

07/12/25 at 03:55 AM

Keep your face always toward the sunshine and shadows will fall behind you. ~Walt Whitman 

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Palliative care education in pediatric cardiology fellowships: A survey of program directors

07/12/25 at 03:40 AM

Palliative care education in pediatric cardiology fellowships: A survey of program directorsPediatric Cardiology; Lesje DeRose, Sarah Godfrey, Shabnam Peyvandi, Nicole M. Cresalia, Jill M. Steiner, Emily Morell; 6/25 Our survey demonstrated a wide range of PC [palliative care] educational practices among categorical pediatric cardiology fellowship programs. While most programs provided some form of PC education to their fellows, the amount and modality varied widely between programs, from very minimal PC exposure to required core PC rotations. Almost half of the participating PDs [program directors] reported dissatisfaction with the current amount of PC education in their fellowship programs. Programs such as VitalTalk (www.vitaltalk.org) and other (both in-person or virtual) modules have been utilized in other training environments with improvement in trainee comfort in PC topics, including CardioTalk for adult cardiology trainees. Didactic-based curricula in PC topics, such as mental health and ethics, have also been shown to help providers gain confidence in PC domains.

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