Literature Review
Today's Encouragement - True wealth
11/09/25 at 03:00 AMA man's true wealth is the good he does in the world. ~Khalil Gibran
Hospice Research Information 11/1/25
11/09/25 at 03:00 AMHospice Research Information 11/1/25
Sunday newsletters
11/09/25 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
We are what we repeatedly do. Excellence, therefore, is not an act but a habit. ~Aristotle
11/08/25 at 03:55 AMWe are what we repeatedly do. Excellence, therefore, is not an act but a habit. ~Aristotle
What matters about what matters most
11/08/25 at 03:45 AMWhat matters about what matters mostJAMA Network Open; by Mary E. Tinetti, Brenda S. Nettles; 10/25The authors note that “Identifying what matters is essential for providing person-centered care, guiding clinical visits, tailoring care plans, and providing a starting point to foster further patient engagement.” These are lofty expectations of a single, simple question ["what matters most?"]. While the what matters question alone cannot guide care planning or tailor interventions, it can serve as a starting point for ongoing conversations about patient health goals and care preferences. These priorities, in turn, can guide patient-centered decision-making and care. The question also provides an opportunity to get to know the patients we care for as individuals. That, in itself, is an invaluable gift reminiscent of a period when clinicians had more time with patients and cared for them over years.
Evaluating the frequency, quality, and timing of advance care planning among patients with metastatic breast cancer
11/08/25 at 03:40 AMEvaluating the frequency, quality, and timing of advance care planning among patients with metastatic breast cancerJCO Oncology Practice; by Charlotte Linton Early, KyungSu Kim, Xianming Tan, Emily Miller Ray; 10/25We identified a cohort of 1,112 patients with MBC [metastatic breast cancer] with a median age of 62 years and time since MBC diagnosis of 1.4 years. ACP [advance care planning] was generally low ... and only 11% of patients ... had an ACP note. Within ACP notes, documentation of key elements of serious illness communication was low: 23% for prognosis, 41% for metastatic diagnosis, 18% for non-curative treatment goals, 51% for patient values, 50% for treatment options, and 69% for treatment decisions. Notes by inpatient clinicians had higher quality (44%) when compared to outpatient oncologists (14%), outpatient palliative care providers (3%), and primary care providers (5%...). The low frequency, poor quality, and late delivery of advance care planning and documentation among patients with metastatic breast cancer represent a gap in cancer care quality.
Effectiveness of a telephonic Aging Brain Care Model for Medicaid Home and Community Services for dementia patients and their caregivers
11/08/25 at 03:35 AMEffectiveness of a telephonic Aging Brain Care Model for Medicaid Home and Community Services for dementia patients and their caregiversJournal of the American Geriatrics Society; by Malaz A Boustani, Steven R Counsell, Anthony Perkins, Abdelfattah Alhader, Kathryn I Frank, Diana P Summanwar, Karen L Fortuna; 10/25The primary purpose of the present study was the implementation and evaluation of the ABC Community program, a community-based and telephonically administered version of the Aging Brain Care model delivered by Area Agencies on Aging (AAAs) staff. This study employed a ... design with ... the main outcome measure being the total score of the Health Aging Brain Care (HABC) Monitor at 3- and 6-month follow-up. The HABC Monitor has demonstrated excellent reliability and validity in monitoring and measuring the burden of dementia symptoms and the quality of life and stress of the informal caregivers. Approximately 46% of informal caregivers who had at least mild burden at baseline had no such burden at 6 months, and 92% of those who had no stress at baseline remained burden-free at 6 months. Conclusion: The ABC community program might be a scalable collaborative dementia care model targeting socially vulnerable people living with dementia.
ID# 1904730 Peripheral nerve stimulation, a minimally invasive option for end of life pain management
11/08/25 at 03:30 AMID# 1904730 Peripheral nerve stimulation, a minimally invasive option for end of life pain managementNeuromodulation: Technology at the Neural Interface; by Jeffrey Cao; 10/25Peripheral nerve stimulation (PNS) works by delivering targeted electrical pulses to peripheral nerves, which transmit sensory and motor signals between the central nervous system and the body. Integrating peripheral nerve stimulation (PNS) into hospice care for cancer patients marks a significant advancement in pain management, focusing on personalized and comprehensive approaches to enhance the quality of life. The reported cases highlight the effectiveness of PNS in targeting specific nerves for pain relief, complementing pharmacological therapies and improving overall patient outcomes. As research continues, PNS holds promise as a key intervention in palliative care ...
State-level variability in location of death of patients with end-stage liver disease
11/08/25 at 03:25 AMState-level variability in location of death of patients with end-stage liver diseaseDigestive Diseases & Sciences; by Julia Meguro, Michael Huber, David Goldberg; 10/25 Although deaths from end-stage liver disease (ESLD) and hepatocellular carcinoma (HCC) in the United States increasingly occur at home or in hospice, inpatient medical facility deaths remain high. Despite the decrease in in-hospital deaths for all causes, non-White decedents are more likely than White decedents to die in a hospital setting. This study aimed to determine state-level variability in the location of death among patients with ESLD and HCC and to assess racial/ethnic differences in these patterns, focusing on Black, White, and Hispanic/Latino patients. Findings from this study identify states where policies and programs that reduce inpatient deaths for ESLD patients may be most needed. Targeted interventions to improve access to high-quality EOL care for all patients address the national variability of hospice use, especially for those who are Black or African American and in states with high numbers of inpatient deaths and low rates of hospice use, should also be identified and implemented.
Integrated clinical-social care and boundaries of health care
11/08/25 at 03:20 AMIntegrated clinical-social care and boundaries of health careJAMA Health Forum; by Vincent Guilamo-Ramos, Marco Thimm-Kaiser, Adam Benzekri, Kody H. Kinsley; 10/25After a decade of growing momentum, the future role of health care in addressing patients’ health-related social needs (HRSNs) through integrated clinical-social care is uncertain. There is agreement that increasing health care expenditures are a significant burden on the national budget, but there is disagreement over remedies to reduce costs while improving outcomes. We argue that a constructive debate over the role of integrated clinical-social care within health care reforms requires a shared vision for its implementation. We advance this debate by delineating the boundaries of what the health care system, social welfare system, and bridging infrastructure between them can deliver in an integrated clinical-social care paradigm.
Developing medical cannabis competencies-A consensus statement
11/08/25 at 03:15 AMDeveloping medical cannabis competencies-A consensus statementJAMA Network Open; by Yuval Zolotov, Leslie Mendoza Temple, Richard Isralowitz, David A. Gorelick, Rebecca Abraham, Donald I. Abrams, Kyle Barich, Kevin F. Boehnke, Stephen Dahmer, Joseph Friedman, Patricia Frye, Aviad Haramati, Jade Isaac, Mary Lynn Mathre, Marion E. McNabb, Melinda Ring, Ethan B. Russo, Deepika E. Slawek, Brigham R. Temple, Genester S. Wilson-King, Julia H. Arnsten, Mikhail Kogan; 10/25An initial list of 9 competencies was refined and consolidated into 6 core competencies [for the use of medical cannabis]: (1) understand the basics of the endocannabinoid system; (2) describe the main components of the cannabis plant and their biological effects; (3) review the legal and regulatory landscape of cannabis in the US; (4) describe the evidence base for health conditions that are commonly managed with cannabis; (5) understand the potential risks of medical cannabis use; and (6) understand basic clinical management with medical cannabis. Each competency is supported by 2 to 7 subcompetencies, resulting in 26 subcompetencies reflecting granular topics, such as patient safety, vulnerable populations, structural inequities, and interdisciplinary care. These consensus-derived competencies provide a structured, evidence-informed foundation to guide the integration of medical cannabis into undergraduate medical education.
Establishing a health system policy for proportionate palliative sedation
11/08/25 at 03:10 AMEstablishing a health system policy for proportionate palliative sedationJournal of Pain & Palliative Care Pharmacotherapy; by Alec Rutherford, Trinh Bui, Jaya Gupta, Alex Choi, Leah Tenenbaum, Benjamin Tolchin, Laura Morrison, Karen Jubanyik, Richard Gelb, Allison Pinney, L. Scott Sussman, Rohit B. Sangal, Elizabeth Prsic; 10/25Proportionate palliative sedation (PPS) is an important therapeutic option for patients at the end of life who experience intractable suffering despite use of all conventional interventions. In this article, we present two cases from Yale New Haven Hospital, and explore the associated practical and ethical challenges, in the absence of clear institutional guidelines. We then describe the policy development process that followed these cases and discuss how defined PPS guidelines not only ensure patient comfort and autonomy but also mitigate decisional fatigue and moral distress among clinicians. As further guidance, we offer an ethical analysis and our own institution’s PPS policy. We encourage other institutions that are similarly committed to patient-centered care and the moral support of clinicians and caregivers to develop PPS guidelines.
When hospice referrals are placed to improve acute care hospital mortality metrics
11/08/25 at 03:05 AMWhen hospice referrals are placed to improve acute care hospital mortality metricsJournal of Pain & Symptom Management; by Gina M Piscitello, Emily Martin, Gregg A Robbins-Welty, Ryan Baldeo, Joseph Shega, Michael T Huber; 10/25Risk-adjusted inpatient mortality is one way in which the quality of US acute care hospitals is assessed. While the specification of inpatient mortality measurements can vary, patients transitioned to general inpatient hospice (GIP) status are often excluded. GIP is one of four levels of hospice care intended for short-term inpatient management of uncontrolled symptoms that cannot be effectively managed in another setting. This care may be provided in acute care hospitals through partnerships with hospice agencies. As such, a patient may potentially be discharged from the hospital and enrolled in GIP in the same hospital location, even the same bed, and excluded from the hospital’s inpatient mortality measures.
[Germany] Benefits and challenges of recording biographical audiobooks by incurably ill parents to their children: A semi-structured interview study
11/08/25 at 03:05 AM[Germany] Benefits and challenges of recording biographical audiobooks by incurably ill parents to their children: A semi-structured interview studyPalliative Care & Social Practice; by Anja Greinacher, Sophia Enders, Lars Buschhorn, Beate Ditzen, Bernd Alt-Epping; 10/25The aim of this study is to identify positive and negative effects of a personal family audiobook recording on incurably ill patients with underage children, suggestions for improving the implementation, and feasibility in parallel with somatic treatment. Especially at an advanced stage of the disease and at a young age, the confrontation with one’s own illness is often not successful without taking one’s personal life story into account.There was evidence that the audiobook strengthened coping strategies; the concept of generativity seems particularly important. Nevertheless, the process was described as exhausting and challenging.
Improving access to inpatient hospice: Implementation and impact of a dedicated comfort care service in a tertiary care hospital
11/08/25 at 03:00 AMImproving access to inpatient hospice: Implementation and impact of a dedicated comfort care service in a tertiary care hospitalJournal of Palliative Medicine; by Neha Kayastha, Eric Pollak, Yvonne Acker, David Fisher, Noppon Setji, David Casarett; 10/25Many hospitalized patients on comfort care (CC) have a high symptom burden and qualify for General Inpatient Hospice (GIP) care. At our institution, many hospitalized patients who qualified for GIP were unable to discharge to stand-alone hospice facilities due to clinical instability or lack of beds. In July 2022, we created the General Medicine 24 (GM24) Comfort Care and Hospice Team to improve access to high-quality hospice services for hospitalized CC patients. In the three years since the creation of GM24, GIP admissions have increased annually, now 107% higher compared to the year before GM24 was created. Discharges to stand-alone inpatient hospice facilities have increased by 65% in the three years since GM24 was created compared to the year before GM24 was created.
Saturday newsletters
11/08/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
[Italy] Can cannabinoids alleviate behavioral symptoms in older adults with dementia? A systematic review
11/08/25 at 03:00 AM[Italy] Can cannabinoids alleviate behavioral symptoms in older adults with dementia? A systematic reviewJournal of Psychopharmacology; by Adele Ravelli, Chiara Ceolin, Mario Virgilio, Margherita Vergadoro, Maria Devita, Marina De Rui, Paolo Simioni, Giuseppe Sergi, Alessandra Coin; 10/25Behavioral and psychological symptoms of dementia (BPSD) affect patients’ and caregivers’ well-being. Cannabinoids may offer a promising therapeutic option for managing BPSD. Ten studies ... showed cannabinoids helped reduce agitation and nocturnal disturbances. In conclusion, cannabinoids show promise in managing BPSD in dementia, with good tolerability and safety.
If you look like your passport picture, ...
11/07/25 at 03:00 AMIf you look like your passport picture, you probably need the trip. ~ Unknown
Nurse swapped hospice patient’s medicine with household cleaner in MA, feds say
11/07/25 at 03:00 AMNurse swapped hospice patient’s medicine with household cleaner in MA, feds say The Herald; by Julia Marnin; 11/4/25 A registered nurse caring for a non-verbal hospice patient in Massachusetts was caught replacing the patient’s liquid pain medication with household cleaner, according to federal prosecutors. Now, a federal indictment charges the nurse, Lori Robertson, of Salem, New Hampshire, with one count of tampering with a consumer product. Federal authorities arrested Robertson, who worked at a long-term care and rehabilitation center in Amesbury, Massachusetts, on Oct. 31, according to court records. She pleaded not guilty at an arraignment that day.
4 leadership habits that make people instantly respect and trust you: Veteran PR executive Robert Dilenschneider shares why respect is a leader’s most underrated power—and how to earn it every day.
11/07/25 at 03:00 AM4 leadership habits that make people instantly respect and trust you: Veteran PR executive Robert Dilenschneider shares why respect is a leader’s most underrated power—and how to earn it every day. Inc.; by Marcel Schwantes; 10/30/25 Early in your career, you probably believed leadership was about control. You spoke first in meetings, made quick decisions, and expected others to follow without hesitation. You projected confidence, thinking that would earn respect. But if you looked closer, something didn’t feel right. Your team did what you asked—but only what you asked. People stayed quiet when they disagreed. Meetings felt efficient but uninspired. You were getting compliance, not commitment. Throughout his career as a leader Robert Dilenschneider, author of Respect: How to Change the World One Interaction at a Time, has learned numerous lessons. But one has stood out above the rest: fear might deliver results, but respect sustains them.
Bereavement support for oncology nurses caring for patients and families
11/07/25 at 03:00 AMBereavement support for oncology nurses caring for patients and families Journal of Hospice & Palliative Nursing; Tami Borneman, RN, MSN, CNS, FPCN, Paige Hayward, and Haley Buller, MSHSC; 10/28/25 Six themes emerged from the open-ended question that asked participants to share case studies describing a patient or family member that they had cared for who was experiencing grief and nurse interventions: (1) treatment failure/out of options, (2) unexpected death or recent loss, (3) impending death, (4) multiple or overlapping losses, (5) coping, and (6) anticipatory grief.
‘Best and worst of times’ as skilled nursing providers face more uncertainty
11/07/25 at 03:00 AM‘Best and worst of times’ as skilled nursing providers face more uncertainty McKnights Long-Term Care News, Boston, MA; by Kimberly Marselas; 11/3/25 In a year in which uncertainty and inaction have been common themes, LeadingAge executives acknowledged ... that aging services providers are increasingly split into haves and have-nots. “We have all been navigating a great deal of uncertainty, and yet many organizations have had their best years, ... President and CEO Katie Smith Sloan told a standing room-only crowd. “Others are hanging by a thread, dependent on Medicaid, struggling on staffing, particularly in rural communities with old physical plants, and boards that are stuck on preserving the status quo. It is truly the best and worst of times.”
Attorney General Bonta secures felony sentencing of Inland Empire Hospice operators for Medicare and Medi-Cal fraud
11/07/25 at 03:00 AMAttorney General Bonta secures felony sentencing of Inland Empire Hospice operators for Medicare and Medi-Cal fraud Rob Bonta - Office of the Attorney General, California Government; Press Release; 11/5/25 California Attorney General Rob Bonta today announced the sentencing of Inland Empire Hospice operators, Ralph and Rochell Canales, for submitting false claims to the Medicare and Medi-Cal programs. Ralph was sentenced by the San Bernardino County Court to seven years and four months in state prison and was jointly ordered to pay $1,455,233, alongside his wife Rochell Canales. Rochelle was sentenced to one year in jail, and ordered to abstain from working with Medicare and Medi-Cal beneficiaries ...
National Alliance CEO Steve Landers on hospices’ top policy priorities
11/07/25 at 03:00 AMNational Alliance CEO Steve Landers on hospices’ top policy priorities Hospice News; by Jim Parker; 11/6/25Medicare advantage and telehealth are key hospice policy priorities for the National Alliance for Care at Home. On the home health front, the organization is also embroiled in efforts to stave off proposed payment and Medicaid cuts. The Alliance came into being last year with the merger between the National Hospice and Palliative Care Organization and the National Association for Home Care & Hospice. Hospice News spoke with Alliance CEO Dr. Steven Landers about how the two legacy organizations are integrating, the hospice public policy landscape and how providers can get involved at a grass roots level.
Palliative care & hospice poll reveals major gaps
11/07/25 at 03:00 AMPalliative care & hospice poll reveals major gaps Michigan Medicine - University of Michigan; by Michigan Medicine; 11/6/25 Many older adults don’t know much about care options for people with serious illness, but express interest once they’re explained to them. ... In all, 33% of older Michiganders were aware of palliative care, ... leaving 67% saying they knew little or nothing about it. But after being given the definition of palliative care, 79% of Michiganders were interested in receiving palliative care if they had a serious illness ... Michiganders were as likely as those in the rest of the U.S. to know about (68%) and be interested in (82%) hospice care. However, there was a sizable gap in hospice interest between Black Michiganders (70%) and white Michiganders (84%).
