Literature Review



It was one of those March days when the sun shines hot and the wind blows cold: when it is summer in the light, and winter in the shade. ~ Charles Dickens, Great Expectations

03/31/26 at 03:00 AM

It was one of those March days when the sun shines hot and the wind blows cold: when it is summer in the light, and winter in the shade. ~ Charles Dickens, Great ExpectationsGoodbye to 2026 March days when weather felt like April Fools' jokes.

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Mercer professors awarded grant to explore how to better support dying patients

03/31/26 at 03:00 AM

Mercer professors awarded grant to explore how to better support dying patients The Den; by Katerine Lybarger; 3/26/26 Mercer University professors Caroline Anglim, Ph.D., and Paul Lewis, Ph.D., M.Div., have received a $60,000 Faith and Health Campus Grant from Interfaith America to expand both academic and public understanding of how faith, spirituality and health intersect. The initiative will aim to advance the concept of religion as a social determinant of dying well in the American health care system and include several components including curricular development, community partnerships and research.

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The demoralization of America's doctors

03/31/26 at 03:00 AM

The demoralization of America's doctors Straight Arrow News; by Jess Craig; 3/30/26 Key takeaways:

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What caring for elderly parents really feels like and what people don’t talk about

03/31/26 at 03:00 AM

What caring for elderly parents really feels like and what people don’t talk about Sassy Sister Stuff; by Victoria Cornell; 3/29/26 A simple Reddit prompt, “What’s something people don’t realize about taking care of elderly parents?”, turned into a raw, candid conversation in r/AskReddit.  ... Readers shared specific, sometimes heartbreaking stories and blunt advice, and the result is a clear picture of how caregiving is far messier than the Hallmark version we imagine.

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Lost in transmission: Changes in organ donor status can fall through cracks in the system

03/31/26 at 03:00 AM

Lost in transmission: Changes in organ donor status can fall through cracks in the system KFF Health News,  Akron News Reporter; by Céline Gounder; 3/29/26 When Raven Kinser walked into a Virginia Department of Motor Vehicles office two summers ago, she completed a driver's license application that included the option to register as an organ donor. The form provides a checkbox to opt in, but not one to opt out. Kinser left the donor registration box unchecked, reflecting her decision to reverse an earlier donor registration. Six months later, after she was declared dead at Riverside Regional Medical Center in Newport News, Virginia, her parents say, they learned that her decision did not prevent organ procurement. Raven's case reveals a little-known gap in the U.S. donation system: There is no clear, nationally binding way to opt out or to ensure a later "no" overrides an earlier "yes" in a different state.

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New program and book examine best practices around end-of-life care for people living with Alzheimer’s Disease and related dementias (ADRD)

03/31/26 at 02:00 AM

New program and book examine best practices around end-of-life care for people living with Alzheimer’s Disease and related dementias (ADRD) Hospice Foundation of America, Washington, DC; by Lisa Veglahn;3/25/26 Hospice Foundation of America (HFA) will present its 33rd annual Living with Grief® educational program, Best Practices in Hospice Care for Advanced Dementia, addressing optimal care for the fastest growing segment of the hospice population. The program will be held live via Zoom on April 14, 2026, from noon—2 pm ET. According to the National Institutes of Health, researchers estimate that 42% of Americans over the age of 55 will at some point develop a form of dementia, all of which are terminal illnesses. ... In addition to the upcoming program, HFA has published a new volume of scholarly and personal work, Alzheimer’s Disease and Dementia: A Guide for Hospice Clinicians, edited by Kenneth J. Doka and Amy S. Tucci. The book offers valuable insights and practical approaches to delivering compassionate, person-centered end-of-life care to individuals with dementia and their loved ones. Editor's Note: Hospice Foundation of America has long defined standards for hospice education, and once again leads at a pivotal moment as dementia impacts Baby Boomers' end-of-life care. From their early satellite broadcasts that convened clinicians nationwide to today’s expansive reach, HFA has consistently translated complexity into practical, practice-changing insight. This work challenges us not only to learn, but to lead—bringing greater clarity, skill, and compassion to those living with dementia and those who walk beside them.

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Mike Schramm: 'The Pitt' and the doctrine of double effect

03/31/26 at 02:00 AM

Mike Schramm: 'The Pitt' and the doctrine of double effect 1819 News, Birmingham, AL; by Mike Schramm; 3/27/26 ... In season two [of The Pitt], episode eight, Drs. “Robby” and McKay begin a conversation about a patient with terminal cancer in agonizing pain who is nearing death. “Where are we with the morphine?” Robby asks, suggesting they raise the dosage. After being told (surely for the viewers) “she could stop breathing,” he gestures and asks, “Are you familiar with the doctrine of double effect?” ... “We treat pain,” Robby explains. “And if, in doing so, there’s a negative side effect, we accept it.” “Even if the negative side effect is death?” McKay asks. While this might seem intuitive to some, its history and reasonability cannot be taken for granted. This doctrine of double-effect basically affirms that a good or neutral action may be morally undertaken in good conscience, even if one knows that a secondary bad result will occur from that action.

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Job Board 3/31/26

03/31/26 at 12:00 AM

* CEO, Hildegard House, nonprofit, Louisville, KY

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‘No silver bullet’: The iterative staffing strategies home-based care providers need

03/30/26 at 03:00 AM

‘No silver bullet’: The iterative staffing strategies home-based care providers need Home Health Care News; by Morgan Gonzales; 3/26/26 The home-based care staffing landscape is undergoing a shift, as worker demographics, desires and motivations evolve. ... [There] there is no single technique that serves as a panacea, and providers must continually iterate their strategies, according to Kerin Zuger, the chief operating officer at Caretech. “There is no silver bullet,” Zuger said on a recent Home Health Care News webinar. “What do we need to do with our recruiting and onboarding strategy so that we can hire more caregivers and get them to stay? The answer is, everything. The answer is, try it all and then try it again. 

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Getting it out there: Reflections on the process and impact of public engagement activities in a study on end-of-life care planning with people with intellectual disabilities

03/30/26 at 03:00 AM

Getting it out there: Reflections on the process and impact of public engagement activities in a study on end-of-life care planning with people with intellectual disabilities Health Expectations; by Andrea Bruun, Amanda Cresswell, David Jeffrey, Leon Jordan, Richard Keagan-Bull, Jo Giles, Sarah Swindells, Meg Wilding, Nicola Payne, Gemma Allen, Rhidian Hughes, Elizabeth Tilley, Sarah L. Gibson, Rebecca Anderson-Kittow, Irene Tuffrey-Wijne; 3/26/26 ... Conclusions: Public engagement is a complex, uncertain and non-linear undertaking, requiring continual reflection and refinement in response to changing circumstances within and beyond the research. ... Our engagement recommendations are: (1) Involve people with lived experience; (2) Plan and allocate time; (3) Include social media and/or marketing roles in research; (4) Tailor to the audience and platform; (5) Make it engaging and fun; (6) Learn how to make videos; (7) Keep presenting your work; and (8) Make time for stakeholder consultations.

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Hospice of Wichita Falls celebrates donors and volunteers

03/30/26 at 03:00 AM

Hospice of Wichita Falls celebrates donors and volunteers KFDX/KJTL, Wichita Falls, TX; Press Release; 3/27/26 An evening of gratitude took stage as Hospice of Wichita Falls celebrated the people who make its mission possible. The organization hosted its annual Maverick Appreciation Dinner at the MPEC on Thursday, March 26, bringing together donors, volunteers, staff, media and community partners for a night focused on recognition and connection. 

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New L+M hospice unit seeks to provide peace, comfort for patients and families

03/30/26 at 03:00 AM

New L+M hospice unit seeks to provide peace, comfort for patients and families The Day, New London, CT; by John Penney; 3/27/26 Down a long sixth-floor corridor that passes through Lawrence + Memorial Hospital’s oncology unit are three rooms that for its patients are the last they’ll ever enter. Those recently refurbished patient rooms, along with a renovated family room, comprise the hospital’s new dedicated hospice space where those at the end of their lives — along with their loved ones — are made comfortable by a team of nurses and other caregivers. ... The creation of the new unit began in the fall and included transforming an office into a family room located just steps from the patient spaces.

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Part of the ‘nephrology toolbox’: ASN releases conservative kidney management guidance

03/30/26 at 03:00 AM

Part of the ‘nephrology toolbox’: ASN releases conservative kidney management guidance Healio; by Lucas Laboy, Susan P. Y. Wong, MD, MS, Jane O. Schell, MD, MHS; 3/27/26 The American Society of Nephrology issued new kidney health guidance on conservative management as a practical treatment option for patients with kidney failure. Key Takeaways:

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Palladium acquires DME Express from WayPoint

03/30/26 at 03:00 AM

Palladium acquires DME Express from WayPoint Private Equity Professional; by John McNulty; 3/26/26 Palladium Equity Partners has agreed to acquire a majority equity interest in DME Express, a provider of durable medical equipment, from WayPoint Capital Partners. ... Palladium’s investment in DME is its second in the hospice industry and the second platform investment for its sixth fund, which has not yet announced a final close and is reportedly targeting $1.5 billion in capital. 

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If you really look closely, most overnight successes ...

03/30/26 at 03:00 AM

If you really look closely, most overnight successes took a long time. ~ Steve JobsHere's to this week's tasks for wrapping up 2026's Quarter 1 and moving into Quarter 2.

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HHS and CMS announce Healthcare Advisory Committee members to improve patient care and modernize the U.S. healthcare system

03/30/26 at 03:00 AM

HHS and CMS announce Healthcare Advisory Committee members to improve patient care and modernize the U.S. healthcare system CMS Newsroom; Press Release; 3/26/26 The U.S. Department of Health and Human Services (HHS) and the Centers for Medicare & Medicaid Services (CMS) announced the members of the Healthcare Advisory Committee, a new federal advisory body comprised of leaders from across the healthcare system to provide expert advice on improving, strengthening and modernizing U.S. healthcare. The Committee will advise HHS Secretary Robert F. Kennedy Jr. and CMS Administrator Dr. Mehmet Oz on ways to improve how care is financed and delivered across Medicare, Medicaid, the Children’s Health Insurance Program, and the Health Insurance Marketplace. [Access the list]

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The clinical dilemma of withholding futile treatment

03/30/26 at 03:00 AM

The clinical dilemma of withholding futile treatment Medscape; by Brenda Sandburg; 3/27/26 During hospital rounds, Kenneth Covinsky, MD, MPH, a professor of medicine and clinician researcher in the Division of Geriatrics at the University of California San Francisco, sometimes meets families at a wrenching crossroads: a loved one with advanced dementia is no longer eating, slowly losing weight because they no longer are hungry. They ask the question almost every time — can’t something be done? ...

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New hospice leaders emerge

03/30/26 at 02:30 AM

New hospice leaders emerge Hospice News; by Holly Vossel; 3/27/26 A host of new hospice executives have recently taken the helm at organizations across the country.

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Documented California hospice fraud prompts broad ranging inquiry from national oversight and accountability organization

03/30/26 at 02:00 AM

Documented California hospice fraud prompts broad ranging inquiry from national oversight and accountability organization Empower Oversight - Whistleblowers & Research, Washington, DC; 3/26/26 Empower Oversight today pressed for comprehensive records from the California Department of Public Health (CDPH) related to hospice fraud and oversight failures across California — with a particular focus on Los Angeles County. The records request targets widespread regulatory failures in the county. The letter request spans five broad categories asking for:

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Job Board 3/30/26

03/30/26 at 12:00 AM

* CEO, Hildegard House, nonprofit, Louisville, KY

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Gone from my sight: Barbara Karnes on what happens in the final days of life | part two

03/30/26 at 12:00 AM

Gone from my sight: Barbara Karnes on what happens in the final days of life | part one Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Barbara Karnes; 3/25/26 Drawing from over four decades of bedside experience, Barbara shares how Hospice Care began as a movement outside the traditional medical model, rooted not in treating disease, but in caring for people and their families during life’s most vulnerable moments.  Her insights challenge modern healthcare to return to a more human-centered approach—one that prioritizes presence, education, and compassion.

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CMS clarifies hospice revocations, face-to-face encounters

03/29/26 at 03:55 AM

CMS clarifies hospice revocations, face-to-face encounters McKnights Home Care; by Suzy Frisch; 3/24/26 If a hospice patient is discharged from care or has their benefits revoked, they do not have to complete a waiting period to arrange for new care, according to the Centers for Medicare & Medicaid Services, which provided such clarifications earlier this month. If a hospice patient is discharged from care or has their benefits revoked, they do not have to complete a waiting period to arrange for new care, according to the Centers for Medicare & Medicaid Services, which provided such clarifications earlier this month. 

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Haven Hospice simulations help caregivers understand dementia

03/29/26 at 03:50 AM

Haven Hospice simulations help caregivers understand dementia Levy Citizen, Chiefland, FL; by Antoniette Meyer; 3/19/26 A program offered by Haven Hospice is helping caregivers, medical professionals and community members better understand what daily life can be like for someone living with dementia. ... Through Haven’s Dementia Care Program, participants can take part in hands-on simulations designed to replicate some of the sensory and cognitive challenges people with dementia experience. During the exercises, attendees may wear specialized goggles or gloves, listen to music or attempt tasks that simulate symptoms such as vision loss, hearing impairment, reduced motor function and changes in perception. ... Attendees who participate in the simulations often report that the experience is eye-opening, helping them develop greater empathy and learn ways to communicate more effectively with people living with dementia.Editor's Note: Experiential education like this offers something lectures alone cannot—an embodied understanding of what it may feel like to live with dementia. These kinds of empathy-building simulations are not only powerful, but also adaptable for many settings. Consider how similar approaches could support your interdisciplinary team, volunteers, and non-clinical staff—especially those who both contribute to patient care in meaningful ways and navigate dementia in their own families.

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AMGA calls for total-cost-of-care model for end-of-life care

03/29/26 at 03:45 AM

AMGA calls for total-cost-of-care model for end-of-life care Healthcare Innovation; by David Raths; 3/20/26 Among the recommendations of a value-based care task force of the American Medical Group Association (AMGA) is that CMS should establish a total-cost-of-care model for end-of-life care. AMGA  is a trade association representing multispecialty medical groups and integrated systems of care. More than 175,000 physicians practice in its member organizations. Editor's Note: Download the AMGA's 44-page Task Force Recommendations. It details these six foundational pillars they identified:

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The good deaths of people who never marry: Lifelong single people are most likely to die pain-free and at peace.

03/29/26 at 03:40 AM

The good deaths of people who never marry: Lifelong single people are most likely to die pain-free and at peace. Psychology Today; by Bella DePaulo, PhD; 3/8/26 People who are single and want to stay that way are often taunted with scare stories about what will happen to them toward the end of their life—they will grow old alone, they will die alone, and all the rest. Same for people who have no children. But is the quality of the end of their lives really worse for those who never marry (or never have kids) than it is for those who are married, remarried, divorced, or widowed (or who have grown children)? We now have an answer, and it is not at all what those dire warnings predicted.Editor's Note: This Psychology Today article provides a new lens in the research we shared on 3/20/26, “We make our own families”: Do child-free people die alone? Hospice worker shares her experience. Important: “child-free” does not necessarily mean a person never married, and “never married” does not necessarily mean a person is child-free. Together, they raise a deeper question: is a “good death” defined by traditional family—or by the presence of meaning, connection, and peace, however we choose to build it?

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