Literature Review

The grave outlook for hospice family caregivers Hospice News; by Holly Vossel; 7/10/25 The state of family caregiving in the United States has reached a critical tipping point amid rising demand for end-of-life care and insufficient resources. Many family caregivers are ill-equipped to navigate the complexities of supporting a loved one with a terminal illness, according to Dr. Arul Thangavel, CEO of the advance care planning company WiserCare. Thangavel is also an attending physician at the University of California, San Francisco (UCSF). Among the issues is that conversations about the end of life and goals of care are often brought up far too late in a disease trajectory, Thangavel said. This trend leaves families grappling with uncertainty, moral distress, guilt and compounded grief in the decision-making process, he stated. 

Health equity starts at home: Renewing the heart of nursing  Minority Nurse; by Michelle Cortez Adams; 7/10/25 ... I started my nursing career in the ICU, told (as many of us are) that hospital experience was a must. And while the work was meaningful, it wasn’t fulfilling. My patients were often unconscious. My goal was to stabilize and transfer them. I never got to know their stories, their families, or whether they ever found healing beyond discharge. That changed when I moved into home hospice and then home health care. This shift taught me that home nursing is not only a career path—it’s a calling. I saw the impact of my work every day. I helped clients reach personal goals, not just clinical benchmarks. I was welcomed into their lives by name. I wasn’t just preserving life—I was restoring it. Home health care reminded me why I became a nurse in the first place: to form real connections, to bring comfort and dignity, and to care for the whole person—body, mind, and spirit.

Connecticut Hospice back on sound financial footing; many credit local business owner Barbara Pearce for turnaround CTPost, Branford, CT; by Mark Zaretsky; 7/12/25 Connecticut Hospice, the nation's first hospice facility, appears to finally be out of the financial woods now — but that wasn't the case a few years ago. And many people outside its inner circle may not know just how precarious its situation was and how a well-known business owner played a key role in the turnaround. Barbara Pearce, CEO of Pearce Real Estate, put her life and her role in the real estate company her late father founded on hold for six years to take over at Hospice and make hard decisions to steer it back to health. Hospice has new leadership now. New President and CEO Sylvia Allais is working to move Connecticut Hospice forward. 

Hill Country vigil draws hundreds after deadly Texas floods MYSA, San Antonio, TX; by Nicholas Hernandez; 7/11/25 ... On Thursday, July 10, hundreds gathered downtown for a Candlelight Vigil of Hope to honor those affected [by the "catastophic flood"] and shine a light on the importance of grief and mental health support in the wake of disaster. Organized by River City Advocacy in partnership with Hope Hospice and other local nonprofits, the event brought together counselors, community leaders and families. Handheld candles were distributed at the plaza, where people stood shoulder-to-shoulder in silence, prayer and remembrance.Editor's Note: Thank you Hope Hospice for your leadership in providing this meaningful way to gather and grieve. Calling all hospice leaders to simply "check in" on employees who have family and friends in affected areas when such crises occur. Other recent examples include Hurricanes Helene & Milton, the Los Angeles wildfires, Kentucky floods, and these Texas / New Mexico floods. Your kind words can make a lasting difference.

Palliative care knowledge, attitudes, and self-competence of nurses working in hospital settingsJournal of Palliative Care; by Mona Ibrahim Hebeshy, Darcy Copeland; 6/25With the growing need to integrate palliative care into healthcare systems, nurses in hospital settings often provide care for patients with life-limiting conditions, many of whom lack formal education in palliative care. [Conclusions:] Nurses generally feel competent; however, they often lack confidence in addressing patients’ social and spiritual needs. They experienced unease when discussing death and exhibited paternalistic attitudes. Significant differences were found in educational background, nursing experience, personal caregiving experience, and practice setting. Positive correlations exist between attitudes, knowledge, and self-competence, indicating that greater knowledge and competence were associated with better attitudes toward end-of-life care.

20 states sue after the Trump administration releases private Medicaid data to deportation officials Associated Press (AP), Washington, DC; by Amanda Seitz and Kimberly Kindy; 7/1/25The Trump administration violated federal privacy laws when it turned over Medicaid data on millions of enrollees to deportation officials last month, California Attorney General Rob Bonta alleged on Tuesday, saying he and 19 other states’ attorneys general have sued over the move. Health secretary Robert F. Kennedy Jr.’s advisers ordered the release of a dataset that includes the private health information of people living in California, Illinois, Washington state, and Washington, D.C., to the Department of Homeland Security, The Associated Press first reported last month. All of those states allow non-U.S. citizens to enroll in Medicaid programs that pay for their expenses using only state taxpayer dollars.

Palliative care in the ICU: From oxymoron to standard of careIntensive Care Medicine; by Nancy Kentish-Barnes, Judith E. Nelson; 6/25Palliative care can be integrated into intensive care through ICU clinicians and palliative care specialists, and these approaches are complementary and synergistic. One study found that proactive specialist involvement in ICU rounds for high-risk patients led to more and earlier family meetings and shorter hospital stays. However, collaboration challenges, such as continuity of communication, highlight the need for close team cooperation. The integrative model trains intensivists and ICU nurses to embed palliative care into routine practice, ideally starting in medical and nursing education. Research has shown that improved communication and support from intensivists and ICU nurses are associated with better bereavement outcomes for families, including reduced post-traumatic stress, anxiety, depression, and prolonged grief.

Texas floods: "Ways you can help" and "Community crisis and grief resources for hospices"Lists and links compiled at Composing Life Out of Loss - Community Grief; by Joy Berger; updated 7/8/25 

Medicaid provisions threaten home and community-based services for millions of vulnerable Americans National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 7/3/25The National Alliance for Care at Home (the Alliance) issued the following statement today in response to the House’s passage of the “One Big Beautiful Bill Act,” also known as the Reconciliation bill, which now heads to President Trump’s desk for his signature. “The Alliance is deeply troubled by the Medicaid provisions within the One Big Beautiful Bill Act, which has passed both chambers of Congress and now awaits President Trump’s signature,” said Alliance CEO Dr. Steve Landers. “These provisions—including work requirements, reduced provider taxes, and new cost-sharing mandates—prioritize short-sighted budget savings over the health and wellbeing of our most vulnerable citizens who rely on home and community-based services (HCBS).” The home care community advocated throughout the legislative process for Congress to mitigate these harmful Medicaid provisions.

Pallitus Health Partners receives CHAP Accreditation for Adult Palliative Care and Pediatric Care Certification for Kourageous Kids Pallitus Health Partners, Louisville, KY; Press Release; 7/8/25 Community Health Accreditation Partner, Inc. (CHAP) has awarded Care Guide Partners, Inc. (dba Pallitus Health Partners) CHAP Accreditation under the CHAP Palliative Care Standards of Excellence. The nonprofit also received certification for its Kourageous Kids (KKids) palliative care program. CHAP Accreditation demonstrates that Pallitus Health Partners meets the industry’s highest nationally recognized standards. The rigorous evaluation by CHAP focuses on structure and function, quality of services and products, human and financial resources, and long-term viability. Simply stated, adherence to CHAP’s standards leads to better quality care. ... Pallitus Health Partners, an affiliate of Hosparus Health, offers comprehensive palliative care for serious illnesses in Kentucky and Indiana. Editor's Note: Congratulations to Pallitus Health Partners and Hosparus Health! This accreditation marks yet another milestone of excellence for this organization—originally founded as Hospice of Louisville—which established one of the nation’s first pediatric hospice teams in 1980. I had the privilege of serving on the Pediatric Team of Hospice & Palliative Care of Louisville from 1997 to 2001. Profound experiences with these children, their parents, siblings, grandparents, our dedicated team members, and community partners are embedded in me, forever. They continue to shape my perspective and purpose in my role as editor in chief of this newsletter. 

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Keep your face always toward the sunshine and shadows will fall behind you. ~Walt Whitman