Literature Review
Sunday newsletters
11/16/25 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
Today's Encouragement
11/15/25 at 03:55 AMChallenges are what make life interesting and overcoming them is what makes life meaningful. ~Joshua J. Marine
Home-delivered nutrition services for older adults under the Older Americans Act
11/15/25 at 03:45 AMHome-delivered nutrition services for older adults under the Older Americans ActJAMA Network Open; Em Balkan, Emily A. Gadbois, Emma L. Tucher, Kimberly P. Bernard, Kali S. Thomas; 9/25... the federal government supports the provision of food to older adults through the Older Americans Act (OAA) Nutrition Program. These funds are used by state and local aging agencies to administer OAA nutrition services primarily through contracts with nonprofit community-based organizations ... [including organizations like] Meals on Wheels (MOW) ... This qualitative study of 54 participants found that home-delivered meals meet the Older Americans Act’s stated goals to (1) reduce hunger, food insecurity, and malnutrition; (2) promote socialization; and (3) promote the health and well-being of older adults. In addition, participants said home-delivered meals improved the health, well-being, and finances of their caregivers. The findings also support funding the Older Americans Act Nutrition Program.
Navigating choice: Eating, drinking and decision-making at end of life for individuals with cognitive impairment
11/15/25 at 03:40 AMNavigating choice: Eating, drinking and decision-making at end of life for individuals with cognitive impairmentJournal of Clinical Practice in Speech-Language Pathology; by Laura Chahdaa, Druvni Pererab, Darcy Longc, Laura Knauerb, Sanora Yonand; 10/25Current clinical guidelines offer limited direction for speech-language pathologists (SLPs) supporting eating and drinking decisions in palliative care (PC), particularly for individuals with dysphagia and co-occurring cognitive impairment. This population presents unique clinical, ethical and interpersonal challenges that often fall outside existing frameworks such as ‘Eating and Drinking with Acknowledged Risk’. This scoping review explores the key considerations for SLPs involved in end-of-life decisionmaking in these complex cases. A qualitative scoping review was conducted and analysed thematically [and] ... six overarching themes were identified: person-centred care; emotional and relational dynamics; ethical decision-making complexity; medical risk; barriers to effective clinical practice; and legal considerations. Findings reveal inconsistencies in practice and limited guidance for SLPs navigating care for individuals with cognitive impairment at the end of life.
Trends of palliative care utilization for nontraumatic intracerebral hemorrhage: Analysis of the national inpatient sample
11/15/25 at 03:35 AMTrends of palliative care utilization for nontraumatic intracerebral hemorrhage: Analysis of the national inpatient sampleJournal of Clinical Neuroscience; by Andrea Loggini, Victor J Del Brutto, Faddi G Saleh Velez, Jonatan Hornik, Denise Battaglini, Shawn S Wallery, Amber Schwertman, Alejandro Hornik, Christos Lazaridis, Adnan I Qureshi; 10/25We investigated the trends and hospital outcome measures associated with the utilization of consultative palliative care (PC) services among patients with nontraumatic intracerebral hemorrhage (ICH). Of 452,250 ICH cases during the study period, 69,360 (15.3 %) received PC. ... ICH patients receiving PC were older, ...more frequently women, ... White, ... and more likely to be in the highest income quartile ... Conclusions: The use of PC in ICH patients has increased over the past two decades. PC is associated with more efficient healthcare resource utilization and higher odds of discharge to hospice/in-hospital mortality. Disparities in PC utilization persist among underprivileged groups and racial minorities.
Addressing palliative care gaps for rare congenital disease in adults: CM-AVM2 as an example
11/15/25 at 03:30 AMAddressing palliative care gaps for rare congenital disease in adults: CM-AVM2 as an exampleJournal of Pain & Symptom Management; by Matthew W Kenaston, Ryan Baldeo, Tyler K Murphy; 10/25Capillary malformation-arteriovenous malformation type 2 (CM-AVM2) is a rare vascular disorder marked by complex, progressive symptoms and limited treatment options. As more individuals with rare diseases reach adulthood, palliative care plays an essential role in supporting quality of life when disease-directed therapies begin to fail. We present a young adult male with EPHB4-positive CM-AVM2, transferred to our tertiary care center for progressive malnutrition, refractory diarrhea, and worsening abdominal pain despite extensive subspecialty care. Through medication optimization, dynamic communication, and consistent interdisciplinary collaboration, the [palliative care] team helped stabilize aspects of his comfort and gradually facilitated GOC [goals of care] discussions. We further discuss how palliative care in this setting differs from standard frameworks, requiring proactive use of disease-specific resources and protracted, anticipatory care planning to optimize quality of life.
Understanding challenges and barriers to quality end-of-life care for patients with hematologic malignancies: A GIMEMA survey
11/15/25 at 03:25 AMUnderstanding challenges and barriers to quality end-of-life care for patients with hematologic malignancies: A GIMEMA surveyAnnals of Hematology; by Leonardo Potenza, Fabio Efficace, Eleonora Borelli, Paola Fazi, Thomas Baldi, Francesca Tartaglia, Francesco Sparano, Claudio Cartoni, Pasquale Niscola, Claudia Mucciarini, Oreofe Odejide, Eduardo Bruera, Camilla Zimmermann, Marco Vignetti, Mario Luppi, Elena Bandieri; 10/25Patients with hematologic malignancies often receive aggressive end-of-life (EOL) care, which may be partly related to hematologists' discomfort with discontinuing aggressive treatments at EOL. We assessed a cohort of Italian hematological oncologists through a GIMEMA online survey to explore their attitudes toward standard measures of quality EOL care, their opinions on barriers to providing this care, and potential interventions. In conclusion, Italian hematologists find most standard EOL quality measures acceptable, they identify barriers to quality care, and are open to interventions, including early integration of palliative care, to improve patients' EOL care. However, they lack familiarity with GOC [goals of care] and ACP [advance care planning] discussions, highlighting the need for communication skills training.
Leveraging electronic health record tools and social work to improve advance care planning documentation in older adults with cancer
11/15/25 at 03:20 AMLeveraging electronic health record tools and social work to improve advance care planning documentation in older adults with cancerJCO Oncology Practice; by Lauren Reed-Guy, Julianne Ani, Keshav Raghavendran, Charlotte Zuber, Molly Collins, Meghan Kennedy, Noah Goldman, Carolyn Cahill, David Dougherty, Peter Gabriel, Aditi Singh, Leland Boisseau, Ramy Sedhom; 10/25 We conducted a quality improvement pilot in a community oncology practice targeting patients age 65 years and older with a documented geriatric assessment. An electronic health record (EHR) dashboard was used to flag patients without ACP [advance care planning] documents on file. We implemented a default offer of an ACP-focused social work visit during already-scheduled oncology visits. Over 9 months, the proportion of patients with any ACP documents on file increased from 32% to 65%. AD completion increased from 21% to 53%, POLST completion increased from 15% to 31%, and patients with an ACP note on file increased from 17% to 23%. Assistant Editor's note: This study highlights the incredible value of social work interventions in a variety of care settings.
End-of-life care and health promotion in Black and African American religious communities: A systematic review
11/15/25 at 03:15 AMEnd-of-life care and health promotion in Black and African American religious communities: A systematic reviewThe Journal of Aging & Social Change; by Chesney Ward; 10/25Blacks and African Americans have the highest mortality rates of any racial or ethnic group, yet they are less likely to complete advanced directives in the United States. This systematic review found that faith-based health promotion for end-of-life planning is an effective strategy for engaging Black Americans in discussing end of-life care despite Black and African Americans’ preference for treatment. By implementing faith-based health promotion in churches, Black Americans are more likely to engage in end-of-life care discussions and complete advanced directives, enhancing their quality of life as they age.
Prevalence and factors associated with receiving a prescription for antithrombotic therapy on hospice admission
11/15/25 at 03:10 AMPrevalence and factors associated with receiving a prescription for antithrombotic therapy on hospice admissionJournal of the American Geriatrics Society; by Emily K Short, Phuong Y Duong, Jennifer Tjia, Matthew Alcusky, Mary Lynn McPherson, Jon P Furuno; 10/25This was a cross-sectional study using electronic health record data from adult (age ≥ 18 years) decedents of a large, for-profit hospice chain who died between January 1, 2017, and December 31, 2019. Overall, 11,360 patients (20.8%) had at least one antithrombotic prescription on hospice admission. The most frequently prescribed antithrombotic classes were antiplatelets (15.7%) and direct oral anticoagulants (3.7%). Patients with PPS scores of 20%-30% ... were significantly more likely to receive an antithrombotic prescription compared to patients with a PPS score < 20%. Additionally, patients receiving care in an assisted living facility ... , nursing home ... , or at home ... were more likely to receive an antithrombotic prescription compared to patients receiving care in an inpatient hospice setting.
Home-based psilocybin-assisted therapy for a patient with advanced cancer: A case report
11/15/25 at 03:05 AMHome-based psilocybin-assisted therapy for a patient with advanced cancer: A case reportPalliative & Supportive Care; by Houman Farzin, Benjamin Koren, Héléna Ferrier, Justin J Sanders, Nicolas Garel; 10/25 Psychospiritual distress affects many patients with cancer, contributing to diminished quality of life, decreased survival and a desire for hastened death. The current standard of care, which primarily consists of antidepressants and psychotherapy, has demonstrated only modest benefits. Psilocybin-assisted therapy (PAT) has shown evidence of rapid, durable, and significant effects on measures of both depression and anxiety in this patient population. A 51-year-old man diagnosed with metastatic lung cancer, referred to palliative care (PC) with a prognosis of less than 6 months, experienced depression and anxiety in the context of demoralization and existential distress. PAT was well tolerated, with significant decreases in both anxiety and depression [and] the patient subjectively reported a sustained reduction in suffering and improved well-being at 2 months post-intervention.
[Australia] Defining the symptoms of personality and behaviour changes in brain tumour patients and their impact on caregivers
11/15/25 at 03:05 AM[Australia] Defining the symptoms of personality and behaviour changes in brain tumour patients and their impact on caregiversSupportive Care in Cancer; by Emma McDougall, Haryana M Dhillon, Karin Piil, Lauren J Breen, Anna K Nowak, Sara Nordentoft, Sine Kjærgaard, Georgia K B Halkett; 10/25This study highlights the nuances and complexity in conceptualising personality changes in patients with a brain tumour and the grief, isolation, and safety concerns experienced by carers. Brain tumour-related aggression was identified as a significant concern by both healthcare professionals and carers, lacking clinical guidelines internationally for managing violence and aggression in this population. Future research is required to test interventions and support for safeguarding and risk management for patients and their family members.
Using natural language processing to assess goals-of-care conversations for patients with cancer
11/15/25 at 03:00 AMUsing natural language processing to assess goals-of-care conversations for patients with cancerJCO Clinical Cancer Informatics; by Melissa K Greene, Gloria Broadwater, Donna Niedzwiecki, Thomas W LeBlanc, Jessica E Ma, David J Casarett, Brittany A Davidson; 10/25This is a retrospective review of patients at a single US center who died with cancer between 2018 and 2022, and had documented GOC [goals of care] notes in the last 12 months of life. Eight GOC components were identified: current understanding of illness, information preferences, prognostic disclosure, goals, fears, acceptable function, trade-offs, and family involvement. The most common GOC component addressed was family involvement (75.0%) and the least common was fears (21.1%). Only 5.4% had all eight components documented. More comprehensive GOC notes were associated with lower rates of aggressive EOL care; 73.2% received aggressive care when 0/8 components were documented, compared with 56.8% and 50.3% with six or seven components discussed, respectively.
[France] End-of-life sedation and spousal grief: Exploring bereavement narratives with and without continuous deep sedation
11/15/25 at 03:00 AM[France] End-of-life sedation and spousal grief: Exploring bereavement narratives with and without continuous deep sedationPalliative Care & Social Practice; by Livia Sani, Yasmine Chemrouk, Marthe Ducos, Pascal Gauthier, Marie-Frédérique Bacqué; 10/25This study explored how bereavement experiences differ based on the use of CDSUD [Continuous Deep Sedation Until Death]. Spouses whose partners received CDSUD often reported emotional disruption and unresolved grief, while those without CDSUD described greater relational continuity and a more gradual farewell. Across both groups, the quality of communication, emotional preparedness, and involvement in end-of-life decisions shaped the grieving process. These findings emphasize the emotional complexity of CDSUD, particularly when implemented suddenly or without sufficient explanation. Palliative care teams should prioritize transparent, timely discussions about sedation options and provide tailored emotional support throughout the dying process.
Saturday newsletters
11/15/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
Hospice Research Information 11/13/25
11/15/25 at 02:00 AMHospice Research Information 11/13/25
Federal government re-opens
11/14/25 at 03:00 AMFederal government re-opens CHAP; Press Release; 11/13/25 On November 12, the U.S. House passed the Senate Amendment to H.R. 5371, ending the 43-day government shutdown. The continuing resolution (CR) provides funding for most agencies through January 30, 2026, at current levels, and grants full-year 2026 funding to select departments, including Agriculture, FDA, Legislative Branch, military construction, and Veterans Affairs. It also contains measures relevant to the home care community.
Carolina Caring Foundation “Gift Back” grant provides cardio-pulmonary supplies at no cost to patients
11/14/25 at 03:00 AMCarolina Caring Foundation “Gift Back” grant provides cardio-pulmonary supplies at no cost to patients Carolina Caring, Newton, NC; Press Release; 11/10/25 In a powerful demonstration of its mission to support compassionate, whole-person care, Carolina Caring Foundation has awarded a $1,000 Gift Back grant to fund cardio-pulmonary equipment for patients served through Carolina Caring’s Palliative Care program. ... While hospice patients often receive these medical supplies at no cost, palliative patients do not qualify for those same benefits—causing barriers to care. The Gift Back grant closes that gap. Carolina Caring Foundation used the $1000 to fund numerous medical devices: 19 scales, 12 electronic blood pressure cuffs, and 10 pulse oximeters, all provided at no cost to the Palliative Care program or its patients.
Hospice to deliver meals for homebound patients' Thanksgiving: Program volunteers will deliver over 700 Thanksgiving Day dinners on Nov. 27.
11/14/25 at 03:00 AMHospice to deliver meals for homebound patients' Thanksgiving: Program volunteers will deliver over 700 Thanksgiving Day dinners on Nov. 27. Pike County Courier, Scranton, PA; 11/12/25 Hospice of the Sacred Heart will again spread the spirit of gratitude and compassion this holiday season through its annual Thanksgiving Program, taking place on Thanksgiving morning, Thursday, Nov. 27. This is the program’s 20th year. Each year, staff and volunteers come together to prepare, package, and deliver traditional Thanksgiving meals to Hospice of the Sacred Heart patients receiving care at home, along with their families. Over 700 meals are expected to be delivered. ... Diane Baldi, CEO, Hospice of the Sacred Heart said, “This program allows us to bring comfort, care, and a sense of togetherness to our patients and their families on one of the most meaningful days of the year.”
Executive Personnel Changes - 11/14/25
11/14/25 at 03:00 AMExecutive Personnel Changes - 11/14/25
Transfusion access central to hospice decision-making among patients with blood cancers
11/14/25 at 03:00 AMTransfusion access central to hospice decision-making among patients with blood cancers The ASCO Post; by Julia Cipriano, MS, CMPP; 11/13/25Based on the results of a multicenter cross-sectional survey study published in JAMA Network Open by Raman et al, patients with blood cancer who were potentially hospice-eligible placed the greatest importance on transfusion access compared with routine hospice services. “The high value placed on transfusion access suggests that this factor is central to hospice decision-making and highlights the need for novel hospice delivery models that incorporate palliative transfusion access for patients with advanced blood cancers,” the investigators commented. Editor's Note: Revisit our previous post, "Access to hospice and certain services under the hospice benefit for beneficiaries with end-stage renal disease or cancer."
Estimating the number of services & patients receiving specialized palliative care globally in 2025
11/14/25 at 03:00 AMEstimating the number of services & patients receiving specialized palliative care globally in 2025 Journal of Pain and Symptom Management; by Stephen R. Connor PhD, Eduardo Garralda MA, Vilma A. Tripodoro MD, PhD, Carlos Centeno MD, PhD; November 2025 Issue In 2025, the estimated number of specialized palliative care service delivery teams worldwide reached approximately 33,700 - representing a 35.6% increase from the 25,000 identified in 2017. Service delivery expanded across all WHO regions. The estimated number of patients served rose from almost 7 million in 2017 to approximately 10.4 million in 2025. This figure represents roughly 14% of the total global need for palliative care. ...Despite notable growth in service availability, significant disparities persist, particularly in low- and middle-income countries.
Opportunities to improve end-of-life care in assisted living: Results from a national survey of administrators
11/14/25 at 03:00 AMOpportunities to improve end-of-life care in assisted living: Results from a national survey of administrators The Journal of the Post-Acute and Long-Term Care Medical Association; by Emmanuelle Belanger, PhD, Nicole Rosendaal, MSc, Michelle L. Rogers, PhD, Tamara A. Sequeira, RN, MSN, Kali S. Thomas, PhDe ∙ Joan M. Teno, MD, MS, Susan L. Hayes, MPAf, Xiao (Joyce) Wang, PhD, Pedro L. Gozalo, PhDa, David M. Dosa, MD, MPHh, Melissa A. Clark, PhD; 11/9/25 Among 4796 eligible assisted living communities invited, 2084 administrators completed the survey from all 48 targeted states, a response rate of 43.4%. ... This national study of administrators highlights important opportunities to improve end-of-life care both as part of assisted living care processes for dying residents and through collaboration with hospice. These novel survey measures will help determine how end-of-life care processes vary along state regulations and shape residents' outcomes.
Atlantic Area Chamber Ambassadors visit with Hospice of the Midwest
11/14/25 at 03:00 AMAtlantic Area Chamber Ambassadors visit with Hospice of the Midwest AARP - Atlantic News Telegraph; Jenn Nichols; 11/13/25 The Atlantic Area Chamber of Commerce Ambassadors met with staff from Hospice of the Midwest [based in Guthrie Center, Iowa] on Thursday, Nov. 6, to learn more about the compassionate services they provide, and the important role volunteers play in supporting patients and families. Editor's Note: What ongoing relationships do you continue to foster with leaders of your service areas? Hospice of the Midwest in Guthrie Center, Iowa provides this great example.
AI increasingly responsible for job cuts: Report
11/14/25 at 03:00 AMAI increasingly responsible for job cuts: Report Becker's Health IT; by Giles Bruce; 11/7/25 AI has been the sixth most-cited reason for U.S. job cuts so far in 2025, but the No. 2 cause of layoffs in October, Challenger, Gray & Christmas found. The technology has been responsible for 48,414 staff reductions this year, including 31,039 in October alone, according to the executive outplacement firm’s Nov. 6 report. ... The 153,074 layoffs in October mark the highest total since October 2003, when widespread cellphone adoption altered the telecommunications sector.
