Literature Review
The Alliance and the Research Institute for Home Care release 2025 Hospice Chartbook
03/01/26 at 03:00 AMThe Alliance and the Research Institute for Home Care release 2025 Hospice Chartbook National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 2/19/26 The National Alliance for Care at Home (the Alliance) and The Research Institute for Home Care (the Institute) are excited to announce the release of the 2025 Hospice Chartbook. Highlighting the vital role that hospice plays in caring for an aging demographic, the Chartbook provides a look at the patients being served in hospice, who they are demographically and clinically, and more. Now in its second year, the 2025 Hospice Chartbook, co-sponsored by the Alliance, provides an overview of national patient and workforce data with an emphasis on state-specific information and trends, including key data on hospice patients and providers, Medicare spending on hospice, and more.
To be seventy years young...
03/01/26 at 03:00 AMTo be seventy years young is sometimes far more cheerful and hopeful than to be forty years old. ~Oliver Wendell Holmes
Sunday newsletters
03/01/26 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
"The best, most difficult thing I've ever done": The complex experiences of palliative and hospice familial caregivers
02/28/26 at 03:45 AM"The best, most difficult thing I've ever done": The complex experiences of palliative and hospice familial caregiversAmerican Journal of Hospice & Palliative Care; by Hannah Rachiele, Kathryn Levy, Gina Schuster, Sheila Conboy, Pei C Grant, Christopher W Kerr; 2/26Caring for chronically or terminally ill individuals comes with unique challenges and circumstances that are specific to each situation and individual involved. The purpose of the current study was to better elucidate the scope of challenges and benefits attributed to caring for a loved one with a serious, life-limiting illness. Four main themes emerged: (1) Burdens on the Caregiver, (2) Navigating Caregiving, (3) The Positives, and (4) Evolution of Relationships. Findings suggest that family caregivers of individuals with terminal or life-limiting illness experience complex, and often contradictory feelings, which may differ from perceptions by those not providing similar care to a loved one. The data suggest that clinicians working with the caregiving population should explore the duality of caregiving beyond just the anticipated negative impacts.
Trends and disparities in left ventricular failure mortality in The United States: A 1999-2020 analysis
02/28/26 at 03:35 AMTrends and disparities in left ventricular failure mortality in The United States: A 1999-2020 analysisJournal of Cardiac Failure; by Abdalhakim Shubietah, Hasan Munshi, Emmanuel Olumuyide, Muath Baniowda, Abdallah Hussein, Mohammad Alqadi, Qutaiba Qafisheh, Majd Oweidat, Omar Hamadi, Mohammad O Abdelhafez; 1/26 Left ventricular failure (LVF) is a significant cause of cardiovascular mortality in the United States. Despite advances in heart failure management, mortality rates have shown a notable increase over time, particularly in recent years. This study examines trends and disparities in LVF-related mortality using data from the CDC WONDER database from 1999 to 2020. LVF-related mortality has increased significantly over the past two decades, particularly after 2010, highlighting a growing public health concern. Disparities persist across sex, race, age groups, urbanization, and geographic regions. The high burden of deaths outside medical facilities suggests a need for enhanced outpatient and palliative care strategies.
BMI at diagnosis and pre-diagnosis weight loss as predictors of stage and survival in hepatocellular carcinoma
02/28/26 at 03:30 AMDeterminants of tele-palliative care utilization among heart failure patients
02/28/26 at 03:20 AMPalliative care utilization and timing for patients undergoing solid organ transplantation in a large multicenter cohort
02/28/26 at 03:15 AMPalliative care utilization and timing for patients undergoing solid organ transplantation in a large multicenter cohortTransplantation; by Matthew W Kenaston, Ryan Baldeo, Tyler K Murphy; 1/26Palliative care ... referrals in transplant programs are infrequent, often reactive, and the benefits remain unclear. We retrospectively studied 12,676 heart, liver, lung, and kidney transplants across 3 Mayo Clinic sites (2018-2024). PC encounters were classified as pretransplant (≤1 y before admission), peritransplant (during hospitalization), or posttransplant (≤1 y after discharge). Only 8.3% engaged PC, with patterns varying by organ and timing. Timing of inpatient consultation showed a strong positive correlation with hospital length of stay, and pretransplant PC coincided with higher rates of goals-of-care discussions and fewer hospital interventions. Adapting screening criteria to focus on high-risk recipients, PC was associated with fewer short-term readmissions for heart and lung recipients.
The roboagents are coming!: The promise and challenge of artificial intelligence advance directives
02/28/26 at 03:10 AMThe roboagents are coming!: The promise and challenge of artificial intelligence advance directivesThe Hastings Center Report; by Jacob M Appel; Jan-Feb 2026Advance directives have historically relied upon human agents. But what happens when a patient appoints an artificial intelligence system as an agent? This essay introduces the idea of roboagents-chatbots authorized to make medical decisions when individuals lose capacity. After describing potential models, including a personal AI companion and a chatbot that has not been trained on a patient's values and preferences, the essay explores the ethical tensions these roboagents generate regarding autonomy, bias, consent, family trust, and physician well-being. This essay then calls for legal clarity and ethical guidance regarding the status of roboagents in light of their potential as alternative health care agents.
A qualitative study with patients, care-partners, clinicians, and bioethicists to identify ethical considerations of artificial intelligence tools in palliative care
02/28/26 at 03:05 AMA qualitative study with patients, care-partners, clinicians, and bioethicists to identify ethical considerations of artificial intelligence tools in palliative carePalliative Medicine; by John Y. Rhee, Paul Miller, Zachary Tentor, Amanda Reich, Alexi A. Wright, Charlotta Lindvall; 1/26The use of artificial intelligence (AI) in medicine has surged. Given the sensitive nature of palliative care, it is crucial to apply AI tools in a patient-centered and ethical manner. From the interviews we extracted five main themes: (1) Primacy of the doctor-patient relationship over AI performance; (2) Humans have intuition and nuance that AI lacks; (3) Agreement about the importance of oversight of AI tools; (4) New AI technologies should include a process for patient education; and (5) AI increases efficiency, scalability, and a more unified approach to serious illness. When building and implementing AI-based tools, we recommend: establishing oversight committees; reflecting on the unique contributions of humans to care; proactively educating patients and contextualizing the tools; and ensuring data use is restricted to clinical care.
[Spain] End-of-life preparedness and emotional suffering in patients and caregivers: Findings from an international cohort study spanning the period before and after death
02/28/26 at 03:05 AM[Spain] End-of-life preparedness and emotional suffering in patients and caregivers: Findings from an international cohort study spanning the period before and after deathPalliative Medicine; by Clément Meier, Verónica Inés Veloso, Bélen Carballo, Eva Víbora Martín, Pilar Barnestein-Fonseca, Dröfn Birgisdóttir, Valgerður Sigurðardóttir, Ida Korfage, Agnes van der Heide, Vilma A Tripodoro; 1/26Preparing for the end of life is believed to help mitigate emotional suffering for both patients and their caregivers. This study uses data from the international iLIVE project to examine how perceived end-of-life preparedness is associated with emotional suffering among patients and their caregivers before and after death. Feeling fully prepared for the end of life was significantly associated with lower levels of emotional suffering for both patients and caregivers. Among patients, preparedness was linked to reduced emotional suffering at baseline and follow-up. For caregivers, these associations were even more pronounced at baseline, follow-up, and after the patient's death.
"We are caring for the whole person": A qualitative study of social work's role in palliative cancer care
02/28/26 at 03:00 AMRelearning the world through grief-informed case formulation: A critique of prolonged grief disorder
02/28/26 at 03:00 AMRelearning the world through grief-informed case formulation: A critique of prolonged grief disorder Journal of Humanistic Psychology; by Eleonora Ramsby Herrera, PhD; 1/31/26 Drawing on existential and humanistic frameworks, this review article critically examines the diagnosis of prolonged grief disorder and questions the usefulness of reducing grieving to a fixed set of symptoms and timelines. ... Rather than viewing grief as a disorder to be treated, the article advocates for understanding it as a natural and potentially transformative human response and argues for integrating grief into the bereaved person’s life story as a way to relearn the world.
The thing about Black history is that the truth is so much more complex than anything you could make up. ~ Henry Louis Gates
02/28/26 at 03:00 AMThe thing about Black history is that the truth is so much more complex than anything you could make up. ~ Henry Louis Gates
[Colombia] Early palliative care integration in end-stage liver disease: A narrative review of clinical strategies for symptom control and quality of life
02/28/26 at 03:00 AM[Colombia] Early palliative care integration in end-stage liver disease: A narrative review of clinical strategies for symptom control and quality of lifeJournal of Pain & Palliative Care Pharmacotherapy; by Daniela Sarria-Gómez, Cristhian Camilo Martínez Torres, Diana Estrada-Bermúdez, Liliana Saavedra; 1/26End-stage liver disease (ESLD) is associated with a high symptom burden, poor prognosis, and limited access to curative disease. Despite growing evidence supporting the role of palliative care (PC), its integration into the routine management of ESLD remains limited and inconsistent. Key barriers to PC implementation include misconceptions about its use being limited to terminal phases, lack of referral criteria, and insufficient coordination between specialties. Evidence shows that early PC involvement improves symptom control (pain, dyspnea, pruritus, encephalopathy), decreases avoidable hospitalizations, and facilitates shared decision-making.
Saturday newsletters
02/28/26 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
Cornhole for hospice raises over $76K
02/27/26 at 03:15 AMCornhole for hospice raises over $76K Chatham Daily News; by Daily News Staff; 2/25/26 The third-annual Cornhole for Hospice fundraiser in Chatham-Kent raised $76,574 this past weekend. Presented by title sponsor Glenn Seeds Ltd., Saturday’s event brought players of all skill levels together at the John D. Bradley Convention Centre for a day of friendly competition.
James Van Der Beek, Eric Dane, and when celebrity deaths trigger health anxiety
02/27/26 at 03:00 AMJames Van Der Beek, Eric Dane, and when celebrity deaths trigger health anxiety USA Today; by Rachel Hale; 2/23/26 Many TV fans are reeling from the shock of two celebrity deaths back to back. Within days, fans said goodbye to "Dawson's Creek" star James Van Der Beek and Eric Dane, of "Grey's Anatomy.” What's more, both stars died before ever seeing the age of 55 and after battling devastating illnesses. ... Celebrity deaths can feel personal, even if you never met the person. And while grief is different for everyone, experts say collective grief can intensify when a public figure is mourned widely. When a death is tied to a serious illness, there’s also often another layer: heightened health anxiety. Watching a beloved public figure decline slowly can magnify existing worries about one’s own health.
Never be limited by other people’s ...
02/27/26 at 03:00 AMNever be limited by other people’s limited imaginations. ~ Dr. Mae Jemison, American engineer, physician, and former NASA astronaut; the first African-American woman to travel into space, Space Shuttle Endeavour in 1992
What my sister Ellen taught me about dignity and the importance of being seen: A powerful reflection on person-centered care, bias, and the true meaning of human dignity in medicine
02/27/26 at 03:00 AMWhat my sister Ellen taught me about dignity and the importance of being seen: A powerful reflection on person-centered care, bias, and the true meaning of human dignity in medicine Good Men Project; by Harvey Max Chochinov; 2/23/26 Several years before her death at the age of 55 years due to complications of cerebral palsy, my sister Ellen was again in hospital, this time in intensive care and on the brink of respiratory collapse. ... I’ve spent my entire career as a psychiatrist working in palliative care. This has included leading a large program of research, examining most aspects of end-of-life experience for patients nearing death. Recently I have recast the Golden Rule for healthcare professionals, reminding them they must aspire to a higher standard. I have coined this The Platinum Rule: do unto others as they would want done unto themselves. This means that healthcare professionals can’t presume to know what is in the patient’s best interest based on what they themselves would want in those circumstances; in other words, they need to take the time to consider the patient’s goals, hopes and wishes.
The end of an era: LHC Group’s journey as a public company concludes
02/27/26 at 03:00 AMThe end of an era: LHC Group’s journey as a public company concludes NewsCase.com | Financial Intelligence; by Angelina; 2/21/26 A significant chapter in the healthcare market has closed. LHC Group, a specialist in home health and hospice care, is no longer traded as an independent public entity. Its acquisition by Optum, a subsidiary of UnitedHealth Group, was finalized three years ago, marking the complete integration of the company into the larger corporate structure. This move prompts a broader look at the implications for the home care industry’s future.
Forbes: 2026 America's best large employers and America's best midsize employers
02/27/26 at 03:00 AMForbes: 2026 America's best large employers and America's best midsize employers Forbes; by Rachel Rabkin Peachman; 2/10/26 ... The annual rankings were based primarily on survey responses from more than 217,000 employees working at companies within the U.S. that employ more than 1,000 people. ... As with all Forbes lists, companies pay no fee to participate or be selected. ... [Healthcare organizations listed in the top 50 organizations include the following, with rankings among all industries: ...]
[United Kingdom] When a children’s hospice closes – national questions and lessons from Richard House by Peter Ellis
02/27/26 at 03:00 AM[United Kingdom] When a children’s hospice closes – national questions and lessons from Richard House by Peter Ellis ehospice; by Peter Ellis; 2/25/26 The closure of Richard House Children’s Hospice in December 2025 represents more than the loss of a single organisation. It signals a moment of reckoning for the children’s hospice movement in the United Kingdom. Richard House served families in East London for 25 years. East London has a hugely diverse population with some 104 languages and dialects spoken. It has a substantially higher number of children with life limited or threatened lives than any other part of the country. So, Richard House was uniquely placed in the right part of the country. Failing as it has means there are serious questions to be asked.
5 ways your social connections can boost your longevity
02/27/26 at 03:00 AM5 ways your social connections can boost your longevity yahoo!health; by Erica Sloan; 2/19/26 5 ways a strong social network can add years to your life
