Literature Review

From panic to purpose: Tulane student’s bell project brings hope to cancer patients nationwide CBS WWL-4, New Orleans, LA; by Meg Farris; 9/8/25 A little girl whose mother was diagnosed with a very serious illness could have never dreamed that several years later, she'd be helping patients across the country and beyond. ... Belle Spar vividly remembers, ... “I had a panic attack, hysterically crying. I thought I was going to lose my mom. I was 12. I was terrified ...” Belle Spar, 21. [The ritual of ringing the bell at the end of cancer treatment became a symbol of hope.] That 12-year-old ... is now a senior at Tulane University. During those nine years as an adolescent, she and her sister, Alexa, accomplished something remarkable. They have raised money to donate 130 bells, so far, to radiation and transplant centers around the U.S., and even in South America.

Brain scan measures aging rateNIH News in Health; 9/8/25Biologically speaking, some people age faster than others. Your aging rate can affect your health and disease risks. If you knew this rate, you might be able to work with your doctor to slow the aging process. A [Duke University] research team developed a way to measure aging based on a single brain scan. The team drew on their earlier studies, where they devised a way to measure biological aging using blood tests [and] combined scores with MRI scan data... [Results] accurately predicted how quickly a person’s ability to think and remember weakened with age. It also could predict a person’s risk of future disease and death.Publisher's note: I wonder if this tool might someday be incorporated into hospice eligibility criteria...?

Raising the standard of Arizona’s dementia care Lovin' Life; by Lin Sue Flood; 9/7/25 Arizona is setting a bold new standard to better support families impacted by dementia. A groundbreaking state mandate requires all memory care facilities to provide up to 12 hours of specialized dementia training to their staff, plus four hours of continuing education each year. This extensive training combines online video modules with hands-on, in-person skills sessions. Hospice of the Valley’s experienced Dementia Team is leading the way as one of the agencies the Arizona Department of Health Services has approved to deliver this comprehensive training. The nonprofit organization is unique in offering it as a free community service.

A culture shift supports disease-specific programs American Nurse; by Elisabeth Rodgers, Kathy Watts, Krissy Feinauer, Lauri Speirs, Jessica Aguilar, and Tessa Watson; 9/8/25 An infrastructure built around a single department leads to success. Takeaways:

A leader’s job isn’t to have all the answers—it’s to create a space where the team can speak honestly and think clearly. ~ Anonymous

Training and practice gaps in nursing home palliative care: A cross-sectional study Journal of the American Geriatrics Society (AGS); by Manali Saraiya, Molly A. Nowels, Rose L. Carlson, Jerad H. Moxley, Catherine A. Riffin, Evan Plys, M. Carrington Reid, Isabella Hastings, Taimur Mirza, Ronald D. Adelman, Daniel Shalev; 9/7/25 We conducted a cross-sectional survey of clinical employees (N = 398) at seven NHs within a single integrated health system in New York State to (1) gauge attitudes toward and knowledge about palliative care, (2) estimate the extent of engagement with advance care planning, and (3) elicit perceptions of the most valuable components of palliative care for NH residents. ... Despite support for palliative care, gaps in knowledge and clinical engagement persist and vary by discipline. Discipline-tailored training and program design may improve palliative care delivery in NHs and help ensure more consistent, value-aligned care for residents with serious illness.

Fond du Lac 9-year-olds used country club lemonade stand to raise over $1K for hospice care FDL Report, Fond du Lac, WI; by Shelly Haberman; 8/30/25 On a sunny weekend in Fond du Lac, during the bustling member-guest golf tournament at South Hills Golf & Country Club, two young girls turned a simple backyard lemonade stand into a powerful tribute of love and generosity. Olivia Schaeve and Lola Polacek, both Fond du Lac residents, hosted the stand in honor of Olivia’s grandmother, Susanne Stilwell, who passed away in December 2024. ... “My mom was incredibly close to Olivia,” Rachel Schaeve, Olivia’s mother, shares. “As part of our grief journey, we’ve tried to keep her memory alive. The lemonade stand felt like a fun and meaningful way to do that.” The girls, both age 9, embraced the challenge with enthusiasm. “They considered themselves quite the mixologists,” Rachel laughs. “They loved adding extra flavors and chatting with the golfers. As the donations started piling up, they set a goal to raise $1,000 — and they did it!”

CMS: Annual Change in Medicaid Hospice Payment Rates—ACTIONCMS, Department of Health and Human Services; email from Rory Howe, director; 9/5/25The Centers for Medicare and Medicaid Services (CMS) has released the Medicaid hospice rates for FY 2026. They are slightly different than the Medicare rates and should be used when billing for Medicaid hospice patients. This memorandum contains the Medicaid hospice payment rates for federal fiscal year (FY) 2026. The rates reflect changes made under the final Medicare hospice rule published on August 1, 2025 (CMS-1835-F). Please inform your staff and all state agencies in your jurisdiction of these new payment rates, which are effective October 1, 2025. We expect state agencies to share the Medicaid hospice payment rates for FY 2026 with the hospice providers in their state.

Husband and wife have emotional reunion after a year apart while dealing with dementia People; by Sam Gillette; 9/4/25 "We are humbled to help turn final wishes into treasured memories," a hospice official says of Everett Linton and his wife. ... An 88-year-old former truck driver from Cincinnati was able to hitch a ride to see his wife for the first time in almost a year, leading to an emotional reunion. “I'm ridin', I'm going to see my wife,” Everett Linton told a reporter from ABC affiliate WCPO from the passenger seat of a semi-truck. The nostalgic ride and reunion on Aug. 22 were organized by his care facility, Luminary Hospice Cincinnati, and the facility where his wife, Patricia, is staying, Majestic Care of Fairfield Assisted Living in Fairfield, Ohio.

When I go, I'm going green KFF Health News; by Paula Span; 9/8/25 More Americans are choosing burials in which everything is biodegradable. ... “Do you see a lot of interest in green burials?” I asked the friendly town cemetery commissioner who was showing me around. “I don’t think we’ve had a traditional burial in two years,” he said. “It’s all green.”

The dying man who gave me flowers changed how I see care MedPageToday's KevinMD.com; by Augusta Uwah, MD; 9/2/25 Today for the first time, I got flowers from a grateful patient. And I reflect on how rough the week has been, all the things that seemed impossible and insurmountable, and everything that has brought me to this point. The patient is going on hospice, he’s going to die, yet he felt that I made a significant impact that he wanted to show his gratitude. And that almost brought me to tears. ... 

Irish man uses ChatGPT for sore throat advice, later diagnosed with stage 4 cancer TimesNow; by Ashima Sharda Mahindra; 9/1/25 A 37-year-old Irish man from Kerry sought advice on ChatGPT on chronic sore throat and swallowing difficulties – and was ultimately diagnosed with stage 4 esophageal adenocarcinoma, a rare and aggressive throat cancer. Warren Tierney said ChatGPT had reassured him that cancer was “highly unlikely,” which led him to a delay in seeking professional medical care. Months later, Warren was diagnosed with cancer, which has a five-year survival rate between five and ten per cent globally.