Literature Review

HOSPICE - INSPIRATIONAL: 92-year-old Victoria woman under hospice care throws first pitch at Generals game  Victoria Advocate; by Advocate Staff; 6/22/24 A 92-year-old Victoria woman and hospice patient was thrilled to throw the first pitch at a recent Generals game. Virginia Hirsch threw the pitch at the June 15 game at Riverside Stadium after she was nominated by Hospice of South Texas, where she is a patient. Virginia was so excited to be nominated,” the woman’s daughter Teresa Diefenbach said. “...  She said that this was one of the greatest nights she has had in a long time.” She is currently under outpatient hospice care due to having a brain tumor and lymphoma. ...  Hirsch and her late husband Daniel Hirsch used to attend games to cheer on their grandson Denver Diefenbach, who was a pitcher for the Generals in 2011. “It was such a special and full-circle moment to see my grandmother, who’s always been one of my biggest supporters, throw out the first pitch for the Victoria Generals,” Diefenbach, the pitcher, said. “This is the same team I played for ..., and it means the world to me. The memories of having my grandparents in the stands cheering me on are something I’ll always cherish. Now, to witness my grandmother taking the mound at the field where I spent my high school and some college years is incredibly inspiring. Her strength and spirit continue to be a guiding light for our family.”

'I've already had my miracle': 26-year-old Savannah mom enters hospice care with only weeks to live ABC WJCL 22 News, Savannah, GA; by Savannah Younger; 12/4/24, posted in our newsletter on As the holiday season begins, Sara Long, a 26-year-old Savannah woman, is entering hospice care after a prolonged battle with kidney failure. Now the wife and mother is preparing to say her final goodbyes to family and friends. "I wanted to make sure that everything's kind of ready to go for when family visits and all that kind of stuff," Long said. "So, I just want to make things as easy as possible for everybody." Long has been told she has two to three weeks left to live and is now preparing her family for her passing. ... Their daughter, Riley, 4, is too young to understand what is happening, but Long is creating a hope chest so Riley can always remember her. "There are probably dozens, if not hundreds, of letters at this point, to open at different various points in her life. So, like her first day of school all through, or a graduate degree, potentially," Long said. "I feel like I've already had my miracle," Sara said. "I feel like Riley is my miracle. ..."Editor's note: Sara Long died sooner than expected, just 8 days later on December 12, 2024. Click here for the moving message from her husband, describing her death, paired with the video from December 4th. Click here for an additional "exclusive" interview from People magazine with Sara, describing her decision to enter hospice care.

When they don’t recognize you anymore: Dementia study looks at loved ones’ responses Penn Live - Nation & World News; by Paula Span, KFF Health News; 5/4/25 It happened more than a decade ago, but the moment remains with her. Sara Stewart was talking at the dining room table with her mother, Barbara Cole, 86 at the time, in Bar Harbor, Maine. Stewart, then 59, a lawyer, was making one of her extended visits from out of state. ... “She said to me: ‘Now, where is it we know each other from? Was it from school?’” her daughter and firstborn recalled. “I felt like I’d been kicked.” Stewart remembers thinking, “In the natural course of things, you were supposed to die before me. But you were never supposed to forget who I am.” Later, alone, she wept.

‘I want to pat dogs until I die’: End-of-life planning should be more than just Living Wills Healthy Debate; by Kathy Kastner; 5/4/25 France Légaré, Canada Research Chair in Shared Decision-Making and Knowledge Mobilization, wants to have stimulating conversations and be able to move around with her dog until she dies. Daneil Martin, the Chair of the Department of Family and Community Medicine at Women’s College Hospital, wants to “smell chocolate until I die.” The two doctors are among the 200+ who took the time to fill in the blank on a whiteboard, “I WANT TO__ UNTIL I DIE,” an initiative I undertook after tuning in to a hospice and palliative care medicine Twitter chat in the good old days of Twitter. As a layperson who became an entrepreneur in the health space, I was intrigued by the lament of health-care professionals on the chat: If only people talked about end-of-life wishes more, much grief could be avoided. 

Hospice nurses: specialized care, focused on comfortIndex Journal, Greenwood, SC; by St. Claire Donaghy; 5/7/25 For hospice nurses Kayla Beaty and Elizabeth "Regina" Ross, their goal is to provide patients comfort rather than cures, in the face of life-limiting illness with irreversible decline. Beaty is a home care nurse. Ross is a hospice house nurse. The two are employed by Hospice and Palliative Care of the Piedmont, based in Greenwood. ... "In this line of work, you seek to provide comfort, find out a patient and families' true needs and build a rapport," Ross said. Ross' dad died when she was 12. "That's what started me wanting to be a nurse," Ross said. "My mother also took care of my grandmother in her home while I was growing up. What brought me to hospice was a sister passing, here at this Hospice House. She was only 40 years old. My mother died a year later and my oldest sister passed last month. It's not just a job to me. It's a work of heart." ... "Comfort looks different to everybody," Beaty said. "It's about quality of life. It's not all doom and gloom either. We have fun with our patients and laugh and joke. It's often little things we take for granted."Editor's note: Reminder, National Nurses Week is May 6-12. It's crunch time. If not already, can you still reach out to your local media to feature a story about your nurses? 

States sue HHS over layoffs, restructuring: 5 updates Becker's Hospital Review; by Madeline Ashley and Mackenzie Bean; 5/5/25 Nineteen states and the District of Columbia filed a lawsuit against the federal government May 5 aiming to block the Trump administration’s large-scale restructuring of HHS. In the lawsuit, New York Attorney General Letitia James and 19 other AGs argue the restructuring is an “unconstitutional and illegal dismantling of the department.” They contend the government has violated hundreds of laws and bypassed congressional authority by enacting the plan, which has erased decades of public health progress and left HHS unable to execute many vital functions.

Addressing workforce challenges: Hospice in the news, April 2025 Teleios Collaborative Network (TCN); podcast by Chris Comeaux with Cordt Kassner; 5/7/25 What defines quality in end-of-life care?  How are Hospice organizations navigating workforce challenges?  And why has medical aid in dying become such a critical conversation?  These questions take center stage in this data-driven exploration of April's most impactful Hospice and Palliative Care news stories. In this episode of TCNtalks, Chris Comeaux and Cordt Kassner discuss the top news stories from April, focusing on Hospice and Palliative Care.  They explore personal aspirations, data insights, the impact of spiritual care, emerging categories in news reporting, and key themes such as reimbursement and workforce challenges.  The conversation also touches on mission moments, regulatory changes, technology innovations, and the evolving nature of leadership in healthcare, particularly in the context of AI and human skills. ... Cordt closes the show with a Master's Class reviewing the National Hospice Locator, a valuable tool for finding high-quality Hospice Care anywhere in the country.

Pine Tree Hospice hosts 29th Annual Variety Show The Piscataquis Observer - The Voice of Rural Maine, Dover-Foxcroft, ME; by Staff; 5/5/25 On a rainy, dreary Saturday in April, the volunteers of Pine Tree Hospice presented the group’s 29th Variety Show and created a little sunshine at the Center Theatre for the 100 attendees. The corps of volunteers ran the show from greeting attendees to taking tickets to selling tickets for the quilt raffle to running the first annual pie faffle. The Annual Variety Show, a major source of funding for the group’s volunteer-based non-medical support services, raised nearly $8,000.

Blue Ridge Hospice rebrands as Blue Ridge Care The Northern Virginia Daily; by rian Brehm; 5/6/25 After more than 40 years of service, Blue Ridge Hospice is no more. Not to worry, though. The end-of-life care provider that was founded in 1981 to serve terminal patients in the Shenandoah Valley is still in business and stronger than ever, but it has become part of a new nonprofit umbrella organization called Blue Ridge Care. Jason Parsons, president and CEO of Blue Ridge Care, said the rebranding on May 1 was brought about as the organization developed its strategic plan to determine the best way to serve the growing number of residents in the Winchester area. 

To the brink and back: How near-death experiences can change how people work The Conversation; by Adauri.AI; 5/5/25 What happens when someone comes close to death and then returns to everyday life, including work? For some, the experience can be transformative. ... Although near-death experiences (NDEs) have been studied since the 1970s, we know relatively little about how they affect people after the event. Research suggests people who have near-death experiences may feel increased empathy, spiritual growth, a sense of purpose and even change how they approach their jobs. Our recent study explored how near-death experiences impact people’s return to work. We interviewed 14 working adults who had a near-death experience as a result of medical crises such as a heart attack or accidents such as a car crash. What we found challenges conventional ideas about success, motivation and workplace culture.

NPHI Honors Visionary Leaders and Organizations at 2025 Annual Summit: The National

The Carilion office driving 139 projects Becker's Hospital Review; by Kelly Gooch; 5/5/25 Roughly five years ago, Roanoke, Va.-based Carilion Clinic recognized the need for an organizational pivot to better align system strategic plans with major operational initiatives. That led to the creation of its Enterprise Project Management Office, which leaders say has already yielded results. At the outset, senior leaders sought to build an internal group that could consistently implement and support the organization’s strategic plan.  Carilion — an integrated health system with seven hospitals, home health services, imaging, pharmacies, urgent care centers, a ground and air transportation network and a more than 800-member multispecialty physician group — had previously housed pockets of project management within various departments, ... However, the health system’s goal was more standardization, as many project managers were splitting their time between project management and day-to-day operations.

Hospice and Palliative Care Buffalo hosted its 29th annual hospice memorial walk NBC 2 WGRZ, Buffalo, NY; by Sara Russo; 5/4/25 Hospice and Palliative Care Buffalo held its 29th annual hospice memorial walk at the Buffalo Outer Harbor on Sunday. The 5K walk began at Terminal B at the Outer Harbor and was the first year the event took place at that location. The route continued through Buffalo's Waterfront District and also included a shorter, one mile "Fun Walk." The Hospice Memorial Walk is one of the largest fundraisers for the center, raising over $5 million in the past 28 years. Walkers were able to participate in teams or individuals as well as virtually.