Literature Review
Exploring and understanding different perspectives on the experience of engaging with death doulas and those in activity-aligned roles toward the end of life: An integrative review
01/03/26 at 03:40 AMExploring and understanding different perspectives on the experience of engaging with death doulas and those in activity-aligned roles toward the end of life: An integrative reviewPalliative Care & Social Practice; by Samara Gordon Wexler, Catherine Walshe; 11/25The death doula movement is expanding due to dissatisfaction with the medicalization of death and dying. The limited evidence from literature, including experiential perspectives outside of reports from death doulas or those in aligned-activities roles, indicates that research should continue to explore the benefits of adding these roles to end-of-life care. Positive experiences of engaging a doula or with those performing aligned activities appear related to role flexibility, which seems to facilitate other favorable experiences. However, flexibility also seems to be a cause of role confusion and boundary issues, shedding light on the need to develop regulation that protects both death doulas or those performing similar activities and those they engage with.
Abstract 4364177: Underutilization of palliative care in peripheral artery disease: A state-of-the-art review across cardiovascular conditions
01/03/26 at 03:35 AMAbstract 4364177: Underutilization of palliative care in peripheral artery disease: A state-of-the-art review across cardiovascular conditionsCirculation; by Odaly Balasquide-Odeh, Roberto Lapetina-Arroyo, Christiany Tapia, Alvaro Pinto-Rodriguez, Santiago Callegari, Mufti Rahman, Gaelle Romain, Kim Smolderen, Carlos Mena-Hurtado, Aseem Vashist, 11/25Peripheral artery disease (PAD) is associated with high morbidity and mortality, yet palliative care (PC), a supportive, team-based approach integrated remains underutilized. This review contrasted PC components, patient-level and program outcomes, and patient-reported outcomes across heart failure (HF), coronary artery disease (CAD), and peripheral artery disease (PAD). HF programs provide a transferable template for PAD, based on an early, structured and multidisciplinary PC. This could lead to a PAD-specific care model that integrates best practices from HF and that helps address underuse in a vulnerable and overlooked population.
Neuropathology of Lewy body dementia: Lewy-related pathology, α-synuclein oligomers, and comorbid pathologies
01/03/26 at 03:30 AMNeuropathology of Lewy body dementia: Lewy-related pathology, α-synuclein oligomers, and comorbid pathologiesMolecular Neurodegeneration; by Hiroaki Sekiya, Tomoyasu Matsubara, Michael A. DeTure, Dennis W. Dickson; 11/25 In this review, we provide a comprehensive overview of the underlying pathologies for Lewy body dementia and their molecular mechanisms and clinical implications. Lewy body dementia is the second most common form of neurodegenerative dementia, following Alzheimer’s disease. This umbrella term encompasses dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD). The distinction between these two conditions lies in the timing of the onset of cognitive impairment relative to motor symptoms. In DLB, cognitive impairment precedes or coincides with motor symptoms within the first year, whereas in PDD, cognitive decline occurs more than a year after the onset of motor symptoms. Clinically, in addition to cognitive decline, patients with Lewy body dementia have parkinsonism, visual hallucinations, and fluctuations of cognitive status.
Translating the value of palliative transfusions for patients with blood cancers into high-quality end-of-life care
01/03/26 at 03:25 AMTranslating the value of palliative transfusions for patients with blood cancers into high-quality end-of-life careJAMA Network Open; by Pamela Egan, Dana Guyer; 11/25Studies have described how patients with blood cancers enroll in hospice care at lower rates than patients with solid tumor cancers, receive more futile chemotherapy, are more likely to seek emergency care at the EOL [end of life] , are more likely to be treated in intensive care units, and are more likely to die in hospital settings than their counterparts with solid tumors. The Medicare hospice benefit is structured in such a way that providing transfusions is cost prohibitive for hospice agencies. It is time to heed the call from the American Society of Hematology and palliative care and hospice agencies nationwide to revise the Medicare hospice benefit such that patients with blood cancers can receive hospice care as soon as their cancer-directed treatments are no longer valuable without sacrificing the quality-of-life–sustaining transfusions. This will be an important step toward ensuring high-quality EOL care for patients with hematologic malignant neoplasms.
Teaching primary palliative nursing care: A model of competency-based education
01/03/26 at 03:05 AMTeaching primary palliative nursing care: A model of competency-based educationJournal of Professional Nursing; by Hannah Murphy Buc, Melissa McClean, Janet Armstead Wulf; Jan-Feb 2026Holistic care models such as primary palliative care offer individuals a coordinated, interprofessional and compassionate approach in any healthcare setting regardless of condition. Currently, palliative and end-of-life nursing care content is either threaded throughout nursing curricula or not included at all. This article documents the development of a required primary palliative care course in a baccalaureate nursing program and shares recommendations on competency-based teaching and evaluation methods to encourage implementation in other academic nursing settings. Course evaluations indicate that the class was well received and valuable to students' learning experience.
She asked if she had dementia: Caregivers’ insights on lucidity in late stages of dementia and its impact
01/03/26 at 03:00 AMSaturday newsletters
01/03/26 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
Precision Radiation Oncology Rhode Island and HopeHealth Hospice & Palliative Care announce Collaborative partnership
01/02/26 at 03:15 AMPrecision Radiation Oncology Rhode Island and HopeHealth Hospice & Palliative Care announce Collaborative partnership Today in Business, Providence, RI; Press Release; 12/30/25 Precision Radiation Oncology Rhode Island (PRORI) ... along with HopeHealth, provider of palliative care and hospice services, are proud to announce a new collaborative partnership, aimed at improving quality of life and Precision outcomes for patients undergoing cancer care, beginning January 2026. This collaboration brings together two organizations with complementary missions: delivering state-of-the-art cancer treatment while ensuring compassionate, patient-centered support throughout every stage of the patient’s cancer journey. By working closely together, in a synergistic manner, PRORI and HopeHealth will provide a seamless continuum of cancer care that addresses not only the clinical aspects of cancer treatment, but also the physical, emotional, and psychosocial needs of patients, their families and caregivers.
Bioethics for aging societies
01/02/26 at 03:05 AMBioethics for aging societiesThe Hastings Center for Bioethics; 2025Bioethics for Aging Societies explores ethical and social challenges arising from population aging, a demographic shift toward longer lives and smaller families. Its goal is to help researchers, professionals, and members of the public think together about common challenges facing aging societies like the United States, with attention to foundational questions: What does it mean to live a good life in later life? And how should we live together in aging societies in ways that include and support fellow citizens who are aging or providing care?Publisher's Note: This series of articles was featured in The Hastings Center's year in review.
ACCESS (Advancing Chronic Care with Effective, Scalable Solutions) Model
01/02/26 at 03:00 AMACCESS (Advancing Chronic Care with Effective, Scalable Solutions) Model U.S. Centers for Medicare & Medicaid Services (CMS) The ACCESS (Advancing Chronic Care with Effective, Scalable Solutions) Model tests an outcome-aligned payment approach in Original Medicare to expand access to new technology-supported care options that help people improve their health and prevent and manage chronic disease. The voluntary model focuses on conditions affecting more than two-thirds of people with Medicare, including high blood pressure, diabetes, chronic musculoskeletal pain, and depression. It will run for 10 years beginning July 5, 2026.
MJHS Hospice brings presents to patients and their siblings
01/02/26 at 03:00 AMMJHS Hospice brings presents to patients and their siblings Spectrum News - NY-1, Manhattan, NY; by Emma Barnett; 12/30/25 Music, presents and sweet memories are defining this holiday season for the Menendez Pacheco family. Thanks to a special visit by MJHS Hospice, Jasmine Menendez’s twin daughters, Kamyl and Alliyah, got a plush blanket and glow-in-the-dark unicorn bedsheets for Christmas. Menendez says it “warms her heart.”
The influence of private equity in health care
01/02/26 at 03:00 AMThe influence of private equity in health careHealth Affairs; 10/22/25Private equity investors have poured more than $1 trillion into the health care industry during the past decade. This Health Affairs Insider report examines the key factors surrounding private equity ownership of hospitals and physician practices.Publisher's Note: This article was featured in Health Affairs' year in review. Access to this report may require subscription.
Cheers to remembering to write ...
01/02/26 at 03:00 AMCheers to remembering to write “2026” instead of “2025” by April.
Medical Aid in Dying legislation and the limits of prognostic science
01/02/26 at 03:00 AMMedical Aid in Dying legislation and the limits of prognostic science American Council on Science and Health; by Chuck Dinerstein, MD, MBA; 1/2/26... End-of-life issues are complex because empirical questions (what happens, works, or harms) that can be approached by science are deeply entangled with value questions (what should count as a good death, autonomy, dignity, moral limits). The recent decision by Governor Hochul of New York to advance and promise to sign a Medical Aid in Dying (MAID) bill provides us with the opportunity to consider that entanglement.
Pediatric respite homes provide a survival mechanism for struggling families [podcast]]
01/02/26 at 03:00 AMPediatric respite homes provide a survival mechanism for struggling families [podcast]Medpage Today's KevinMD.com; by KevinMD; 1/1/26Certified coach and professor Kathleen Muldoon and co-founder of Ryan House and Children’s Respite Homes of America Jonathan Cottor discuss the article “The need for pediatric respite care.” Kathleen shares the personal story of raising her son Gideon who lives with over 42 medical diagnoses and explain why the family had to move across the country to find safety. They highlight the critical difference between taking a break and surviving the relentless cycle of 24/7 medical vigilance required for medically complex children.
Netflix: Goodbye June
01/02/26 at 03:00 AMNetflix: Goodbye June Netflix; retrieved 12/31/25 A messy yet affectionate family gathers round their mother's hospital bed to grapple with grief, complicated love and the tenderness of a final goodbye. Starring: Helen Mirren, Kate Winslet, Toni ColletteEditor's Note: Do you love movies? Are you transitioning from holidays back to your end-of-life care work? Goodbye June might be that just-right film for you. For readers with access to Netflix, check it out.
From laggard to leader: Why health care in the United States is failing, and how to fix it
01/02/26 at 03:00 AMFrom laggard to leader: Why health care in the United States is failing, and how to fix itHealth Affairs; by Donald M. Berwick, Elaine Batchlor, Dave A. Chokshi, Patricia Gabow, Richard Gilfillan, Frederick Isasi, Arnold Milstein, Len M. Nichols; 1/22/25Health care in the United States is among the most technologically advanced in the world, but it is largely failing to meet the needs of the nation. The US can claim international excellence in important areas of care, such as cancer treatment, and it leads the world in biomedical innovation and building a well-prepared and dedicated clinical workforce. The Affordable Care Act was a major step forward in expanding access to health care in the US. However, Americans are faced with staggering health costs, inadequate access to care, pervasive health inequities, and lagging life expectancy compared with other developed nations. In this article, ... we present a partial road map for transforming the US health care system. We propose bold national goals: affordable and equitable care for all, an additional decade of healthy birthdays after retirement, elimination of racial and ethnic disparities in health, substantial reduction in health care expenditures, and, most important, improved health outcomes.Publisher's Note: This article was featured in Health Affairs' year in review.
Awards and Recognitions: December 2025
01/02/26 at 03:00 AMAwards and Recognitions: December 2025
Hospice reaffirms commitment to care amid new state law
01/02/26 at 03:00 AMHospice reaffirms commitment to care amid new state lawThe Post-Journal, Jamestown, NY; Press Release; 12/31/25 As New York state moves toward the implementation of Medical Aid in Dying legislation, Chautauqua Hospice & Palliative Care (CHPC) is reaffirming its unwavering commitment to supporting individuals and families facing terminal illness with dignity, respect, and compassion. In a recently issued press release, CHPC notes that “... While end-of-life options in New York State are evolving, our mission remains the same: to provide expert care, comfort, and emotional support to those confronting serious illness and loss.” Chautauqua Hospice & Palliative Care does not participate in the provision or administration of Medical Aid in Dying medications. ... As the Medical Aid in Dying law moves forward, CHPC recognizes the importance of clear, compassionate guidance. It has developed educational materials to help patients and families understand the new law and how it intersects with hospice care. For those who choose to explore Medical Aid in Dying, we will continue to offer support, information, and, where appropriate under law and policy, connections to outside providers.
Special Edition: Happy New Year - A Time for Respect, Reflection, and Renewal
01/01/26 at 03:00 AMJanuary 1, 2026Hospice & Palliative Care Today, by Joy Berger, Editor in Chief
"Taps" Bugle Call: USMC Drum & Bugle Corps [YouTube]
12/31/25 at 03:55 AM"Taps" Bugle Call: USMC Drum & Bugle Corps [YouTube]YouTube filmed at the National Mall's Vietnam Memorial, Washington DC; compilation by Joy Berger, Editor in Chief; retrieved from the internet 5/22/25We invite you to begin this Memorial Day with this reflective playing of "Taps." Its simple, 24 notes evoke poignant memories and emotions for persons of all generations. Ongoing, we share with you these resources below for the veterans and their families whom you serve.
Hospice AI
12/31/25 at 03:50 AMHospice AIA Hospice & Palliative Care Today compilation; 5/5/25We've seen several recent articles discussing the benefits of additional AI integration into hospice services.
