Literature Review

Is the life I’m living the life that wants to live in me? ~ Parker J. Palmer

[United Kingdom] Hospice cuts 19 jobs to save £1.7m amid ‘worst financial crisis’ in its history LSE - The London School of Economics and Political Science; by Emily Moss; 5/29/25 A Yorkshire-based hospice charity has cut 19 jobs in the hope of reducing its annual costs by £1.7m as it faces what it has previously described as “the worst financial crisis” in its almost 40-year history. The Kirkwood, which provides palliative and end-of-life care for people living in and around Kirklees, West Yorkshire, said that an additional nine employees had agreed to reduce their hours or adjust their roles to enable the hospice to save money. The hospice opened its redundancy consultation in February. The initial plans placed 33 roles at risk of redundancy. At the time, the Kirkwood said it was facing the “worst financial crisis” in its history, citing a “perfect storm” of an increasing demand for hospice services versus rises in the prices of essential equipment, energy and food.Editor's note: This represents just one of many ongoing reports of financial crises, extreme fund-raising, closures and staff layoffs throughout the UK's hospices. Themes and patterns pair with trends we're seeing throughout the US.

Ethics talk: Are private equity investments really different from other ownership structures in health care?AMA Journal of Ethics, Podcast May 2025; by Robert I. Field, PhD, JD, MPH; 5/30/25Dr. Robert I. Field joins Ethics Talk to discuss whether and to what extent private equity firms’ increasing presence in health care deserves our scrutiny and what policy makers, clinicians, and patients should know about responding to private equity ownership stakes in the organizations where they work and where they go for health services. 

Empathetic AI policy example: A framework for the human impact on AI Solutions Review; by Tim King; 5/30/25 ... Empathetic AI is our organizational pledge to place people at the center of our AI strategy. It means prioritizing the dignity of work, the stability of our workforce, and the fair treatment of all individuals impacted by automated systems. It means actively supporting those whose roles may be transformed or displaced and investing in their future through retraining, redeployment, and transparent communication. Our core principles are as follows:

Sioux Falls VA Healthcare System opens hospice cottage Dakota News Now, Sioux Falls, SD; by Dakota News Now staff; 5/30/25 The Sioux Falls VA Healthcare System has cut the ribbon and opened the newest facility on its campus, a hospice cottage. The 10,000-foot facility with 10 beds is meant to give veterans and their families a high level of care and a peaceful environment that allows them to spend time together. The VA says the cottage is the perfect setting for end-of-life care for veterans, treating them with dignity. ... "We are here for the veterans, and we complete that circle. The time they gave, and now we’re giving back to them at the end of their life,” said Sioux Falls VA Hospice Nurse Manager Cami VanWyhe.

HOPE Tool Anxiety: What are we forgetting in the rush to prepare?Teleios Collaborative Network (TCN); by Melissa Calkins and Ashley Espy; 5/30/25 Panic is in the air.  With the HOPE assessment tool set to replace HIS, hospice teams are racing to prepare—scrubbing workflows, updating systems, and trying to wrap their heads around new clinical documentation demands.  But amid the rush, it's easy to overlook critical gaps: non-clinical staff being left out of planning, unclear timelines, poor communication, or the complete absence of a project lead.  HOPE isn't just about compliance—it's about execution. If we don't step back and ask what's missing, we risk rolling out a system that nobody is truly ready for.Steps to Operationalize the HOPE Tool:

A glossary of Medicare termsMedicalNewsToday; by Mandy French, medically reviewed by Oluwatoyin Kuloyo, Pharm.D., BCPS; 6/2/25 When a person first signs up for Medicare, they may come across many terms and abbreviations. Learning the definitions of these terms can help make it easier to understand and navigate Medicare. Medicare information can be confusing. This A to Z glossary can help individuals understand some common terms, acronyms, and abbreviations. ... Editor's note: A must-have resource to use and distribute, with multiple links to more depth information at Medicare.gov and MedicalNewsToday.

OP-ED: How hospice care falls short for people living with dementia Being Patient - Alzheimer's News, Advice, Stories & Support; by Maria J. Silveira; 5/30/25Only 12 percent of Americans with dementia ever enroll in hospice. This may be due to how hospice is structured and paid for in the U.S., explains University of Michigan associate professor of internal medicine Maria J Silveira. ... In contrast to the former president [Jimmy Carter's extended hospice care], his wife, who had dementia, lived only nine days under hospice care. Palliative care physicians like myself who treat both conditions are not surprised at all by this disparity. ... Strikingly, only 12 percent of Americans with dementia ever enroll in hospice. Among those who do, one-third are near death. This is in stark contrast to the cancer population: Patients over 60 with cancer enroll in hospice 70 percent of the time.

French lawmakers approve assisted dying bill Le Monde with AP and AFP; 5/27/25France's Assemblée Nationale adopted a bill on Tuesday, May 27, to allow adults with incurable illnesses to take lethal medication, the initial step in a lengthy process that could grant patients medical assistance to end their lives in clearly defined circumstances. The bill received 305 votes in favor and 199 against, after all parties in parliament allowed their lawmakers a free vote on the issue. It will now be sent to the Sénat for further debate. A definitive vote on the bill could take months to be scheduled. In parallel, another bill on palliative care, meant to reinforce measures to relieve pain and preserve patients' dignity, was also adopted on Tuesday, unanimously. 

June is the time for being in the world in new ways, for throwing off the cold and dark spots of life. ~ Joan D. Chittister

Illinois House passes bill allowing terminally ill people to end their lives with physician’s help Chicago Tribune, Springfield, IL; by Jeremy Gorner and Addison Wright; 5/30/25 Legislation that would allow terminally ill people to end their lives with the help of a doctor was narrowly passed by the Illinois House and now heads to the Senate. It marks the first time a medical aid in dying bill has passed through one legislative chamber in Illinois since advocates unsuccessfully pushed for the practice to be legalized in the state last year. The bill passed late Thursday by a 63-42 vote, just three votes more than the minimum number required for bills to pass the House by a simple majority, with a handful of Democrats joining Republicans in voting against it.

‘The whole family is the patient’: Children’s hospice program in Raleigh receives $2.5 million gift CBS WNCN-17, Raleigh, NC; by Maggie Newland; 5/28/25 Memories of Eliza Craven fill every corner of her family’s home. “She loved art, she loved reading, she loved learning, she loved being outside,” mother Amanda Hayes Craven said. Said father Lee Craven, “She loved her brothers, loved them both fiercely.” In the spring of 2020, that smart, sweet rough-and-tumble 7-year-old got a diagnosis that left her entire family reeling: a brain tumor.  ... The family began receiving services through Transitions LifeCare’s Transitions Kids program in Raleigh.  ...  “The night that she died, it was a weekend night,” Hayes Craven continued. “It was a Friday night. It was after midnight. We expected one nurse and we got an army of people here to support us.” ... While the Craven family wouldn’t wish their pain on anyone, they are grateful that other families facing similar situations can find help through Transitions Kids, which recently received a 2.5 million dollar anonymous gift.

Why CMS’ GUIDE Model could move home care from side act to main stage Home Health Care News; by Joyce Famakinwa; 5/29/25 The Guiding an Improved Dementia Experience (GUIDE) Model might be one of the biggest steps in the right direction for recent Medicare policy. The eight-year voluntary nationwide program was launched last year by the Centers for Medicare & Medicaid Services (CMS), with the goal of supporting individuals living with dementia, as well as their unpaid caregivers. The program’s focus is more important than ever, with an estimated 6.7 million people living with dementia. This amount is expected to skyrocket to 14 million cases by 2060, according to data made available by CMS.