Literature Review
Perioperative integration of palliative care and urology for patients with serious urologic illness: A qualitative need finding inquiry
04/05/25 at 03:20 AMPerioperative integration of palliative care and urology for patients with serious urologic illness: A qualitative need finding inquiryJournal of Pain and Symptom Management; Bhagvat J Maheta, Nainwant K Singh, Jonathan Bergman, Cati G Brown-Johnson, Alekhya Gunturi, Nickolas Interrante, John T Leppert, Karl A Lorenz, Isabella G Raspi, Karleen F Giannitrapani; 3/25Many urologic serious illnesses are treated with surgical procedures, which may put patients at a further risk of diminished quality of life. [We] purposefully sampled urologists, palliative care physicians, and clinical team members at fourteen geographically distributed Veteran Health Administration sites. We identified one general overall theme, to "change culture" so that PC [palliative care] is not a "last resort" ... Utilizing telehealth and team member role expansion when discussing the initial diagnosis, with surgery as a potential treatment option, allows for multiple conversations ... Creating a process to ensure goal of care conversations occur, since "urologic procedures can have complications that significantly impact quality of life" ... [and] during the pre-operative visits, interdisciplinary input and evaluation of the patient prior to surgery allows the patient to "have a sort of joint meeting with us and the urologist."
A rapid review of psychedelic-assisted therapy in the context of palliative care
04/05/25 at 03:15 AMA rapid review of psychedelic-assisted therapy in the context of palliative careJournal of Hospice & Palliative Nursing; Miller, Megan PhD, RN; Meyers, Molly BSN, RN; Martin, Annona MSc; Napolitano, Stephanie MA, LMHC; Dorsen, Caroline PhD, FNP-BC; Penn, Andrew MS, PMHNP; Rosa, William E. PhD, MBE, APRN, FPCN; 4/25Psychedelic-assisted therapy (PAT) involves supported experiences with psychedelic medicines in carefully curated environments. Results support safety and initial efficacy of PAT for psycho-spiritual-existential outcomes among carefully screened and highly homogonous samples of patients with serious illness (predominantly cancer). Additional work is needed to (1) explore PAT's safety and efficacy within more diverse samples and contexts, (2) train palliative care providers on PAT, (3) determine systems of care delivery best suited for translation of PAT into practice, and (4) begin developing policy solutions to support safe and equitable access to PAT. Because many patients lack access to basic psychosocial-spiritual-existential care, careful consideration is needed around integration of PAT. The psychedelic substances which are the topic of this article are not currently FDA approved for use in the United States.
Impact of outpatient palliative care services on resource utilization and cost management in a capitated Medicare population
04/05/25 at 03:10 AMImpact of outpatient palliative care services on resource utilization and cost management in a capitated Medicare populationJournal of Palliative Medicine; Parag Bharadwaj, Gagandeep Gill, Nathan Dyjack, Lindsay Fahnestock, Lorie D'Amore, Shuinn Chang, Nancy Hanna, Tanya Dansky, Gwyn Merz, Annamarie Jones, David Kim, Manjit Randhawa; 3/25The integration of palliative care into the U.S. health care system has grown significantly, with outpatient palliative care services (OPCSs) playing an increasingly vital role in managing patients with serious illnesses. Results [of this study] demonstrate substantial growth in OPCS enrollment, with a 129% increase from 2019 to 2023. Per-member-per-month costs showed a sustained reduction, with a 23% decrease by 2023. In addition, there were consistent reductions in ED [emergency department] visits and IP [in-patient] admissions, indicating effective outpatient care management. Patients transitioning from OPCS to hospice exhibited longer hospice stays, further emphasizing the benefits of early palliative care interventions.
Top ten tips palliative care clinicians should know about dysphagia and adult swallowing interventions in serious illness
04/05/25 at 03:05 AMTop ten tips palliative care clinicians should know about dysphagia and adult swallowing interventions in serious illnessJournal of Palliative Medicine; Sanora Yonan, Taylor Wilde, Alexa Rogers, Kelly J Trumpatori, Kristie Calix, Christina Barnes, Terri Durkin, Eric Mecusker, Christopher A Jones, Caitlyn M Moore, Laura Chahda, Amanda Stead, Lisa A LaGorio, Paula Leslie; 3/25This article highlights the important role of speech-language pathologists (SLPs) in palliative care (PC), emphasizing their contribution to supporting people with eating, drinking, and swallowing difficulties during serious illnesses and at the end of life. The recommendations underscore the necessity of interdisciplinary collaboration among SLPs and other PC team members, the importance of patient and caregiver education, and the application of patient-centered, comfort-focused approaches to dysphagia intervention. Drawing on current research and expert insights, this article explores the use of SLP services in PC, as well as the challenges in supporting people with eating and drinking difficulties in advanced stages of illness, embedded with practical tips for clinicians.
[Germany] Do we have a knowledge gap with our patients?-On the problems of knowledge transfer and the implications at the end of life
04/05/25 at 03:05 AM[Germany] Do we have a knowledge gap with our patients?-On the problems of knowledge transfer and the implications at the end of lifeInternational Journal of Environmental Research and Public Health; Nils Heuser, Hendrik Heers, Martin Gschnell, Fabian Urhahn, Severin Schrade, Christian Volberg; 2/25Cancer patients are often unaware of their exact diagnosis, stage of disease, and prognosis. In the patients observed, it was found that many of them were unaware of their stage of disease, which can have a huge impact on their end-of-life decisions, such as the type of treatment they want. Many patients were also unaware of their own treatment. There is a risk that false hopes of cure may be attached to therapies and that, as a result, patients may be less likely to opt for palliative care with a focus on maintaining quality of life.
Today's Encouragement
04/05/25 at 03:00 AMOnce you replace negative thoughts with positive ones, you'll start having positive results. ~Willie Nelson
Saturday newsletters
04/05/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
[France] Supportive care needs of childhood, adolescent and young adult cancer survivors: A systematic mixed study review
04/05/25 at 03:00 AM[France] Supportive care needs of childhood, adolescent and young adult cancer survivors: A systematic mixed study reviewCancer Care Research Online; Baudry, Valentine MS; Bertrand, Amandine MD; Bottichio, Margaux MS; Escot, Noémie MS; Despax, Johanna PhD; Girodet, Magali PhD; Christophe, Véronique PhD; 4/25This literature review shows that CAYA [childhood, adolescent, and young adult] cancer survivors still have SCN [supportive care needs] long after the end of treatment, which is specific to the challenges they face at these developmental stages and may evolve over time. Survivors still report needs related to information, medical care, psychology, sexuality, fertility, and age-specific care. Social life, finance, work, and education needs were also present, but at a lower scale. Future research should clarify these links, to explore the evolution of needs over time, to distinguish specific CAYA subgroups, to examine time since diagnosis or completion of treatment, and to better specify the SCN of child survivors to present relevant results.
Primary palliative care in assisted living and residential care-A metasynthesis
04/05/25 at 03:00 AMPrimary palliative care in assisted living and residential care-A metasynthesisJournal of Hospice & Palliative Nursing; David, Daniel PhD, MS, BSN; Jimenez, Vanessa MPH, BS; Brody, Abraham A. PhD, RN, FAAN; 3/25Assisted living (AL) and residential care (RC) settings are experiencing substantial growth as older adults with lower care needs seek alternatives to nursing homes. Despite this trend, there is a lack of skilled nursing care to support palliative care (PC) in these environments. Studies highlighted challenges and opportunities for delivering primary PC in these environments, emphasizing the importance of addressing physical symptoms, psychological distress, social isolation, and spiritual needs among residents with serious illnesses. The metasynthesis underscores the critical role of primary PC in enhancing quality of life and care continuity for older adults residing in AL/RC settings. It also identifies gaps in current practices and emphasizes the need for tailored interventions and training to support care providers in delivering comprehensive PC to this population. By integrating qualitative research findings with the National Consensus Project guidelines, this metasynthesis provides a comprehensive overview of primary PC in AL/RC settings.
Trump administration to shut down CMS, HHS minority health offices amid restructuring
04/04/25 at 03:00 AMTrump administration to shut down CMS, HHS minority health offices amid restructuring Healthcare Dive; by Rebecca Pifer; 3/31/25 The CMS and HHS offices that coordinate efforts to eliminate health disparities are being shut down completely as part of the Trump administration’s overhaul of the federal healthcare department, according to sources with direct knowledge of the matter. Closing the offices will impact efforts to improve the health of underserved patients in the U.S. — and is probably illegal, according to experts. ... Shutting the offices, which were authorized by the Affordable Care Act more than a decade ago, may also be illegal, according to legal experts. [Continue reading ...]
Senate confirms Oz as head of agency that runs Medicare, Medicaid
04/04/25 at 03:00 AMDr. Oz nomination to lead CMS advances in Senate vote Modern Healthcare; by Michael McAuliff; 4/3/25 The Senate on Thursday advanced the confirmation of former television host Dr. Mehmet Oz to lead the nation's largest healthcare agencies by serving as administrator of the Centers for Medicare and Medicaid Services. Lawmakers voted 50 to 45 to advance the nomination to a final vote, which is expected Thursday afternoon. ... He will assume control of an agency in flux that impacts some 160 million Americans and with a budget of around $1.7 trillion. Health Secretary Robert F. Kennedy Jr. is attempting to cut some 20,000 employees across the the Health and Human Services Department while Congress is weighing budget proposals that are likely to require deep cuts in Medicaid. [Continue reading ...]
4 leadership lessons March Madness teaches us about winning workplaces
04/04/25 at 03:00 AM4 leadership lessons March Madness teaches us about winning workplaces Forbes; by Julian Hayes II; 3/30/25 Very few things, like sports, unify people across backgrounds, cultures, and ideologies. Sports are the ultimate connectors. One of the best examples of this is the NCAA Tournament. March Madness captivates us for three weeks with buzzer-beaters, heartbreaks, and Cinderella stories that defy expectations. But beyond the spectacle, March Madness also offers beneficial workplace and leadership lessons. ...
The HOPE Assessment Tool Series: Managing special circumstances
04/04/25 at 03:00 AMThe HOPE Assessment Tool Series: Managing special circumstancesCHAP press release; by Jennifer Kennedy; 3/25Welcome to the next installment in the HOPE Assessment Tool Blog Series. We are discussing special situations such as patient transfers and traveling patients which may affect HOPE assessment tool completion.
Duke University Health System CEO: 7 lessons learned from a complex transformation
04/04/25 at 03:00 AMDuke University Health System CEO: 7 lessons learned from a complex transformation Becker's Hospital Review; by Craig T. Albanese, MD, CEO of Duke University Health System; 4/3/25 Change management is both the art and science of preparing, supporting and equipping individuals, teams and an organization to adopt and adapt to new beginnings. ... Unifying our organization over the past 21 months, as with most mergers, has been challenging and we are far from finished. ... Lessons Learned:
Today's Encouragement: Life’s challenges are not supposed to paralyze you, ...
04/04/25 at 03:00 AMLife’s challenges are not supposed to paralyze you, they’re supposed to help you discover who you are. ~ Bernice Johnson Reagon
HHS restructures duals, PACE offices amid department overhaul
04/04/25 at 03:00 AMHHS restructures duals, PACE offices amid department overhaul Modern Healthcare; by Bridget Early; 4/3/25 The Health and Human Services Department is reorganizing a handful of key programs for dually eligible enrollees and older adults, including laying off numerous staffers. HHS is shuffling how it manages care coordination for people dually eligible for Medicare and Medicaid under the Medicare-Medicaid Coordination Office and the Program of All-Inclusive Care for the Elderly. PACE, which had been poised for growth, offers home and center-based care mostly to dual-eligible Medicare and Medicaid enrollees who qualify for skilled nursing but can still live in their communities. A spokesperson for HHS said the department has “planned productivity enhancements for the PACE management department.” HHS did not elaborate on what management changes for the PACE program might look like.
U.S. Supreme Court rejects medical marijuana firm's bid to avoid racketeering suit
04/04/25 at 03:00 AMUS Supreme Court rejects medical marijuana firm's bid to avoid racketeering suit Reuters, Washington, DC; by John Kruzel; 4/2/25 The U.S. Supreme Court ruled on Wednesday against Medical Marijuana Inc (MJNA.PK), opens new tab in its bid to fend off a lawsuit by a commercial truck driver who was fired for failing a drug test after taking cannabidiol, or CBD, that he said was falsely sold as lacking the psychoactive ingredient present in marijuana. The justices, in a 5-4 decision authored by conservative Justice Amy Coney Barrett, upheld a lower court's ruling that had allowed plaintiff Douglas Horn to bring a civil lawsuit against the San Diego-based company under the Racketeer Influenced and Corrupt Organizations Act. [Continue reading ...]
Executive Personnel Changes - 4/4/25
04/04/25 at 03:00 AMExecutive Personnel Changes - 4/4/25
Trump administration orders NIH to eliminate $2.6 billion in federal contracts
04/04/25 at 03:00 AMTrump administration orders NIH to eliminate $2.6 billion in federal contracts STAT; by Megan Moteni; 4/3/25 April 8 is the deadline for a 35% cut in services that could affect specimen storage, genetic counseling, administration. Leaders at the National Institutes of Health have been meeting this week to figure out how to cut $2.6 billion in contracts from the biomedical research agency’s budget, ... Early last week, the Trump administration’s federal government-shrinking task force, known as the U.S. DOGE Service, directed the NIH to reduce contract spending across each of its 27 institutes and centers by roughly 35%. The NIH was told to comply by April 8, ... [Continue reading ... access may be limited by subscription]
Franciscan Health men’s group meets to grieve together
04/04/25 at 03:00 AMFranciscan Health men’s group meets to grieve together Daily Journal, Indianapolis, IN; by Ryan Trares; 3/31/25 The depths of the loss felt so great. When Phil Darmelio’s wife, Joanne, died in March 2023, he knew he needed help in his grief. The couple had been together for 60 years, and Darmelio was not certain who to talk to about his feelings. The suggestion of attending a bereavement group specifically for men seemed like a good place to start. The support has been overwhelmingly positive. ... The men’s bereavement group, hosted by Franciscan Health, has offered men grieving a death in their lives a place to heal with others in similar situation. Meeting weekly at the Franciscan Hospice House on the southside, the group offers a specially tailored program intended to meet the emotional needs of men. [Continue reading ...]
Navigating the intersection of heart failure and palliative care: A holistic approach to improving quality of life
04/04/25 at 03:00 AMNavigating the intersection of heart failure and palliative care: A holistic approach to improving quality of life Cureus; by Awanwosa V. Agho, Fatimot Disu, Efeturi M. Okorigba, Okelue E. Okobi, Safiyya Muhammad, Toheeb Bakare, Chioma Ezuma-Ebong, Nneka Muoghalu; 3/30/25 ... Historically, palliative care has often been perceived as a last-resort option, introduced only when curative treatments have failed, creating a false dichotomy between life-prolonging therapies and symptom management. However, modern palliative care frameworks emphasize its integration throughout the disease trajectory, particularly for chronic, progressive illnesses like heart failure. ... Palliative care should ideally be initiated at diagnosis of advanced heart failure or with early signs of significant symptom burden to ensure timely, patient-centered support, as recommended by ACC, AHA, and HFSA guidelines
Fired health workers were told to contact an employee. She’s dead.
04/04/25 at 03:00 AMFired health workers were told to contact an employee. She’s dead. The Washington Post; by Lauren Weber; 4/3/25 Some government health employees who were laid off Tuesday were told to contact Anita Pinder with discrimination complaints. But Pinder, who was the director at the Office of Equal Opportunity and Civil Rights at the Centers for Medicare and Medicaid Services, died last year. [Continue reading ...]Editor's note: Perhaps, is this its own example of fraud (incorrect contact for such an important initiative) and abuse (of the fired employees' rights, and of Anita Pinder's memory, family, and colleagues)?
Fraud alert: HHS-OIG telephone numbers used in scam
04/04/25 at 02:00 AMFraud alert: HHS-OIG telephone numbers used in scam The U.S. Department of Health and Human Services (HHS) Office of Inspector General (OIG); 4/3/25 The U.S. Department of Health and Human Services (HHS) Office of Inspector General (OIG) confirmed that official HHS-OIG telephone numbers are being used as part of a spoofing scam targeting individuals throughout the country. These scammers represent themselves as HHS-OIG employees and can alter the appearance of the caller ID to make it seem as if the call is coming from HHS OIG phone numbers found on its public website. The perpetrator may use various tactics to obtain or verify the victim's personal information, which can then be used to steal money from an individual's bank account or for other fraudulent activity. We encourage the public to remain vigilant, protect their personal information, and guard against providing personal information during calls that purport to be from HHS-OIG telephone numbers. We also remind the public that it is still safe to call into the HHS-OIG Hotline to report fraud. We particularly encourage those who believe they may have been a victim of the telephone spoofing scam to report that information to us through the HHS-OIG Hotline 1-800-HHS-TIPS (1-800-447-8477) or online.
Shingles vaccine tied to lower dementia risk, study finds
04/04/25 at 02:00 AMShingles vaccine tied to lower dementia risk, study finds McKnights Long-Term Care News; by Kristen Fischer; 4/2/25 Older adults who were vaccinated against shingles were 20% less likely to develop dementia over the next seven years compared with people who didn’t receive the shot, a study shows. The report was published Wednesday in Nature. [Continue reading ...] Editor's note: Related articles ...
1 Red Flag that reveals bad leadership fast: One clear sign can tell you a lot about whether someone is leading well or failing miserably.
04/03/25 at 03:15 AM1 red flag that reveals bad leadership fast: One clear sign can tell you a lot about whether someone is leading well or failing miserably. Inc., by Marcel Schwantes; 3/28/25 Bad leadership isn’t always obnoxious, toxic, or obvious. Sometimes it shows up in small, everyday moments—how someone talks to their team, how they handle mistakes, or how they treat people when no one’s watching. You don’t need a long list to spot it, either. A few clear signs can tell you a lot about whether someone is leading well … or just holding the title. ... Here is one quick way to recognize bad leadership before it does real damage: a lack of patience ... [Continue reading ...]