Literature Review



A narrative review—Characterizing palliative care curriculum aimed at high school adolescents and young adults

05/17/25 at 03:40 AM

A narrative review—Characterizing palliative care curriculum aimed at high school adolescents and young adultsIllness, Crisis and Loss; Austin B. Elder; 4/25The aim of this narrative review is to explore the characteristics of palliative care curriculum developed for high school adolescent and young adults (AYAs). Characteristics including a variety of designs, methods, and strategies were all identified to have positive participation, feedback, and experiences from high school AYA being provided palliative care curriculum. Conclusions: The literature indicates that the use of subject matter experts within palliative care curriculum for high school students is a core characteristic in meeting the World Health Organizations recommendation to embed palliative care curriculum into public awareness strategies.

Read More

Integration of palliative care into heart failure care: Consensus-based recommendations from the Heart Failure Society of America

05/17/25 at 03:35 AM

Integration of palliative care into heart failure care: Consensus-based recommendations from the Heart Failure Society of AmericaJournal of Cardiac Failure; by Sarah Chuzi, Martha Abshire Saylor, Larry A Allen, Akshay S Desai, Shelli Feder, Nathan E Goldstein, Hunter Groninger, James N Kirkpatrick, James A Tulsky, Jill M Steiner, Natasha Lever, Eldrin Lewis, Joseph G Rogers, Haider J Warraich; 3/25Heart failure (HF) is characterized by significant symptoms, compromised quality of life, frequent hospital admissions, and high mortality rates; palliative care (PC) is, therefore, highly relevant for patients with HF and their clinicians. Multiple guidelines and consensus statements recommend the provision of PC alongside HF management. However, few resources exist to guide the integration of PC into HF care, for both primary PC (provided by HF clinicians in the course of HF care) and specialty PC (provided by PC specialists). Through this consensus statement, the Heart Failure Society of America aims to provide a contemporary, practical guide for clinicians and institutions about how PC should be operationalized in the context of comprehensive HF care.

Read More

Palliative and end-of-life care in stroke: A scientific statement from the American Heart Association

05/17/25 at 03:30 AM

Palliative and end-of-life care in stroke: A scientific statement from the American Heart AssociationStroke; by Claire J Creutzfeldt, Julia Bu, Amber Comer, Susan Enguidanos, Barbara Lutz, Maisha T Robinson, Darin B Zahuranec, Robert G Holloway, American Heart Association Stroke Council, Council on Cardiovascular and Stroke Nursing, Council on Clinical Cardiology; 2/25Stroke has multidimensional effects on patients and their families because of threats to personhood, prognostic uncertainty, and the need to adapt to functional changes after stroke. Palliative care has evolved as both a specialty and a skillset with a goal to improve communication about goals of care and quality of life for patients and their families that emphasizes a holistic, all-person approach. After stroke, palliative care needs (eg, to address pain and physical, emotional, psychosocial, and spiritual distress) are insufficiently addressed by current models of care. Integrating palliative care principles is fundamental in all stages of stroke and should include strategies to improve communication about prognosis and goals of care, address psychosocial needs such as coping with loss, navigating complex health care systems, and preparing for death when necessary.

Read More

Palliative and end-of-life care interventions with minoritized populations in the US with serious illness: A scoping review

05/17/25 at 03:25 AM

Palliative and end-of-life care interventions with minoritized populations in the US with serious illness: A scoping reviewAmerican Journal of Hospice and Palliative Medicine; by Brandon M. Varilek, Katherine Doyon, Shelie Vacek, Mary J. Isaacson; 1/25Using an equity-informed research approach is vital to improve palliative and end-of-life care interventions for minoritized communities with serious illness. There is also a need for more robust publishing guidelines related to community-based participatory research methods to ensure publication consistency among research teams that employ this complex research method.

Read More

What functions do palliative care bereavement services deliver? A scoping review

05/17/25 at 03:20 AM

What functions do palliative care bereavement services deliver? A scoping reviewPalliative Care and Social Practice; by Kathleen E Jurgens, David C Currow, Jennifer Tieman; 3/25Following someone's death, bereaved people may struggle with their grief. When a patient receives palliative care, bereavement support for the patient's family is an expected function of specialist palliative care services. To date, detailed descriptions of the purpose, function and provision of support from bereavement services are limited. This study examined how specialist palliative bereavement services self-defined their functions and described any support and interventions they offer.

Read More

Improving outcomes for ICU family members: The role of spiritual care

05/17/25 at 03:15 AM

Improving outcomes for ICU family members: The role of spiritual careJournal of Palliative Medicine; by Alexia M Torke, Shelley Varner-Perez, Emily S Burke, Amber R Comer, Susan Conrad, LaVera Crawley, Deborah Ejem, Jennifer Gabbard, Patricia E Kelly, Buddy Marterre, Ariel Modrykamien, Patrick O Monahan, Sarah Nouri, Csaba Szilagyi, Douglas White, George Fitchett; 4/25Having a family member hospitalized in the intensive care unit (ICU) can be a stressful experience for family members, encompassing both psychological and spiritual distress. While research has delved into the impact of spiritual care for ICU family members, further investigation is still needed to determine the most effective approaches for delivering such care. This narrative review will describe a conceptual model aimed at guiding future research in this endeavor. The model proposes that chaplains provide emotional, spiritual, and information support to ICU family members. This affects both their ICU experience, decision making, and outcomes for the patient and family.

Read More

Psychedelics, spirituality, and existential distress in patients at the end of life

05/17/25 at 03:10 AM

Psychedelics, spirituality, and existential distress in patients at the end of lifeCleveland Clinic Journal of Medicine; by Nicole Cornish, Tara Coles, M Jennifer Cheng, Claudia Ruiz Sotomayor, Aaron Wolfgang, Christopher Spevak; 4/25Psychedelic-assisted therapy clinical trials conducted over the past decade have prompted increased interest in the use of psychedelics to treat nonphysical suffering, which can include significant spiritual and existential distress at the end of life. The authors explore the role of psychedelics in helping to address patients' spiritual and existential suffering from a medical, ethical, and legal perspective, with the aim of stimulating discussion and research on this timely and clinically promising topic.

Read More

Does sedation affect patients’ spiritual experience at the end of life? An intersection between medicine and spirituality

05/17/25 at 03:05 AM

Does sedation affect patients’ spiritual experience at the end of life? An intersection between medicine and spiritualityJournal of Pain and Symptom Management; by Anne L. Dalle Ave, Daniel P. Sulmasy; 1/25Spirituality, consciousness, sedation, end-of-life, end-of-life care, spiritual experiences Key Message This article explores the role of sedation with respect to the patient’s spiritual experiences at the end of life. As healers, healthcare professionals offer compassionate care to body and soul. While drugs with sedative effects may be an answer to some bodily and psychological suffering, other forms of care, such as spiritual care or counseling, may better address other forms of suffering, particularly the fear of death.

Read More

[Philippines] Virtual mourning: How Filipinos utilize Facebook to express grief and seek support – A hermeneutic phenomenological study

05/17/25 at 03:05 AM

[Philippines] Virtual mourning: How Filipinos utilize Facebook to express grief and seek support – A hermeneutic phenomenological studyMarc Kenneth F. Cabañero, Ma. Teresa Tricia Guison-Bautista; 4/25This study explores how grieving Filipinos use Facebook to cope with loss and seek support, integrating traditional mourning practices with digital expressions of grief. Using a hermeneutic phenomenological approach, in-depth interviews were conducted with ten bereaved Filipinos to examine their online grieving experiences. Thematic analysis identified three key themes: the blending of traditional mourning rituals with Facebook for emotional support, the validation and relief provided by online interactions, and the role of digital mourning in fostering healing. Findings suggest that social media enhances Filipino bereavement practices by strengthening community connections and preserving cultural traditions. The study emphasizes the need for culturally sensitive digital spaces and grief support services that integrate both online and offline mourning.

Read More

End-of-life care and health care spending for Medicare beneficiaries with dementia in accountable care organizations

05/17/25 at 03:00 AM

End-of-life care and health care spending for Medicare beneficiaries with dementia in accountable care organizationsJAMA Network; Jessica J. Zhang, David B. Reuben, Anne M. Walling, David S. Zingmond, Cheryl L. Damberg, Neil S. Wenger, Haiyong Xu, Ryo Ikesu, Gillian S. Kaneshiro, Alexandra Klomhaus, Hiroshi Gotanda, Yusuke Tsugawa; 5/9/25This study of 162,034 Medicare fee-for-service beneficiaries who died from 2017 through 2020 found no evidence of differences in end-of-life care processes, outcomes, or spending between beneficiaries in ACO vs non-ACO. These findings suggest that alternative payment models to ACOs may be needed to coordinate high-quality care with lower health care spending for Medicare beneficiaries with dementia at the end of life.

Read More

[Australia] Overtreatment of older people near end of life: A qualitative scoping review of modalities, drivers, and solutions

05/17/25 at 03:00 AM

[Australia] Overtreatment of older people near end of life: A qualitative scoping review of modalities, drivers, and solutionsOmega-Journal of Death and Dying; Samantha Fien, Emily Plunkett, Daniel Wadsworth, Magnolia Cardona; 4/24This study aimed to understand the drivers better to help minimise further risks of overtreatment for older people near the end of life (dysthanasia). Determinants included healthcare system factors, patient-centered care, family and caregiver, and clinician perspectives. This review confirms that despite almost two decades of recognition of the potential harms of overtreatment near the end of life, society, patients, and health systems have a role to play in reducing and addressing the determinants. We offer a range of solutions for clinicians, health service managers, and members of the public to consider.

Read More

Creating a workplace violence safety committee [free webinar 5/22/25]

05/16/25 at 03:00 AM

Creating a workplace violence safety committee [webinar 5/22/25]CHAP webinar; 5/15/25The focus of this webinar is on the critical role of a multidisciplinary Safety Committee in proactively addressing workplace violence within home-based care... Participants will gain practical strategies for implementing proactive safety measures, including risk identification, technology integration, and fostering a culture of safety and accountability to empower staff and mitigate the risks inherent in the unique challenges of providing care in patients' homes.

Read More

Dying at home becomes more common for patients with history of ischemic stroke

05/16/25 at 03:00 AM

Dying at home becomes more common for patients with history of ischemic stroke NeurologyToday; by Susan Fitzgerald; 5/15/25 In contrast to earlier studies showing a decline in stroke prevalence and mortality, a new study found that the rates are going up and more people, particularly Black Americans, are either dying at home or arriving to the hospital dead on arrival. Experts speculate that the trend may be driven by the lack of access to hospice services and care, in general.

Read More

Executive Personnel Changes - 5/16/25

05/16/25 at 03:00 AM

Executive Personnel Changes - 5/9/25

Read More

Social Media Watch 5/16/25

05/16/25 at 03:00 AM

Social Media Watch 5/16/25

Read More

Unintended, percolated work: Overlooked collaborative opportunities during end-of-life care

05/16/25 at 03:00 AM

Exploring overlooked collaborative opportunities during end-of-life care Medical Xpress; by Institute of Science Tokyo; 5/14/25 [This study's researchers describe:] "Bereaved family members broadly recollected the mixed regretful actions and decisions that should have been taken during the end-of-life care process. Coordination and cooperation challenges that existed between health care professionals and family caregivers emerged as factors that impeded these actions at the time." [They identified three types of] unintended, percolated work (UPW). ...

Read More

Finding her strength in silence: CSU Pueblo student graduates twice, carrying her mother’s dream

05/16/25 at 03:00 AM

Finding her strength in silence: CSU Pueblo student graduates twice, carring her mother's dream Colorado State University Pueblo, Pueblo, CO; by Soni Brinsko; 5/14/25 The porch was still new when the professors arrived that late November evening. Hand-laid tiles, each one carefully placed by a father during what should have been vacation time. He’d built it for his wife so she could sit outside, feel the Colorado breeze one more time. That night, the porch became something else entirely. It became a stage for a graduation ceremony that wasn’t supposed to happen until May. Alondra Solis Ayala is about to walk across the commencement stage at Colorado State University Pueblo this week. It will be her second graduation. The first one happened in her family’s living room, with her dying mother watching from a chair, too weak to stand but strong enough to declare “esa es mi hija”—that’s my daughter—as faculty members in full regalia handed over a diploma cover and stole in what became an impromptu, deeply personal ceremony.

Read More

Restructuring for risk: How home-based care providers build frameworks that boost profits

05/16/25 at 03:00 AM

Restructuring for risk: How home-based care providers build frameworks that boost profits Home Health Care News; by Joyce Famakinwa; 5/14/25 In the home-based care world, building a business that is equipped to take on risk-based reimbursement arrangements can be easier said than done. While no simple feat, taking on risk is an attractive option that allows home-based care providers to align incentives between their organizations, payer sources and patients. Providers that have found success with risk-based agreements have done so by addressing retention challenges, investing in data and more.

Read More

[United Kingdom] For, against, undecided: Three GPs give their views on assisted dying

05/16/25 at 03:00 AM

[United Kingdom] For, against, undecided: Three GPs give their views on assisted dying BBC News; by Catherine Burns and Vicki Loader; 5/13/25 If you ask these three doctors about being GPs, their answers are remarkably similar. "It can be the best job in the world," one tells me. It's "a privilege" another says. They all talk about how they love getting to know their patients and their families. But all three have different views on assisted dying. Right now, the law here is clear: medics cannot help patients to take their own lives. But that could change. The Terminally Ill Adults (End of Life) Bill is being debated in Parliament. And if it goes through, it will give some terminally ill patients in England and Wales the option of an assisted death. Here, three doctors - Abdul Farooq, Susi Caesar and Gurpreet Khaira, who all have a different view on assisted dying - tell us how they feel about the proposals.

Read More

Medicaid hospice payments for room-and-board to resume in California

05/16/25 at 03:00 AM

Medicaid hospice payments for room-and-board to resume in California Hospice News; by Jim Parker; 5/15/25 After years of nonpayment, the California Department of Health Care Services (DHCS) has instructed Medicaid managed care plans to pay hospices for nursing home room and board. The issue pertains to patients who are dually eligible for Medicare and Medicaid. When caring for patients in nursing homes, hospices typically pay for their room and board with the expectation that they will be reimbursed by Medicaid for those expenses. However, due to confusion among managed care plans that oversee Medicaid in most states, those hospices have not been receiving those payments.

Read More

Today's Encouragement: Kind words can be ...

05/16/25 at 03:00 AM

Kind words can be short and easy to speak, but their echoes are truly endless. ~ Mother Teresa

Read More

The future of dying with Dr. Ira Byock | Pop 1205

05/16/25 at 03:00 AM

The future of dying with Dr. Ira Byock | Pop 1205 Practice of the Practice; podcast by Joe Sanok with Dr. Ira Byock; 5/14/25 How can we embrace conversations about death and dying? What is the healing power of forgiveness and connection in end-of-life care? When we face morality, how can we transform fear into meaningful connections? In this podcast episode, Joe Sanok speaks about the future of dying with Dr. Ira Byock. .. In this podcast: 

Read More

UnitedHealth Group is under criminal investigation for possible Medicare fraud

05/16/25 at 02:00 AM

UnitedHealth Group is under criminal investigation for possible Medicare fraud The Wall Street Journal; by Christopher Weaver and Anna Wilde Mathews; 5/15/25 The Justice Department is investigating UnitedHealth Group for possible criminal Medicare fraud, people familiar with the matter said. The healthcare-fraud unit of the Justice Department’s criminal division is overseeing the investigation, the people said, and it has been an active probe since at least last summer. While the exact nature of the potential criminal allegations against UnitedHealth is unclear, the people said the federal investigation is focusing on the company’s Medicare Advantage business practices. UnitedHealth said in a statement it hadn’t been notified by the Justice Department of the criminal investigation. The statement said the company stands “by the integrity of our Medicare Advantage program.” A DOJ spokesman declined to comment.

Read More

Palliative and end-of-life care during critical cardiovascular illness: A scientific statement from the American Heart Association

05/16/25 at 02:00 AM

Palliative and end-of-life care during critical cardiovascular illness: A scientific statement from the American Heart Association American Heart Association; by Erin A. Bohula, MD, DPhil, Michael J. Landzberg, MD, Venu Menon, MD, FAHA, Carlos L. Alviar, MD, Gregory W. Barsness, MD, FAHA, Daniela R. Crousillat, MD, Nelia Jain, MD, MA, Robert Page II, PharmD, MSPH, FAHA, Rachel Wells, PhD, MSN, and Abdulla A. Damluji, MD, PhD, MBA, FAHA on behalf of the American Heart Association Acute Cardiac Care and General Cardiology Committee of the Council on Clinical Cardiology; and Council on Cardiovascular and Stroke Nursing; 5/15/25 Abstract: Cardiac intensive care units are witnessing a demographic shift, characterized by patients with increasingly complex or end-stage cardiovascular disease with a greater burden of concomitant comorbid noncardiovascular disease. Despite technical advances in care that may be offered, many critically ill cardiovascular patients will nevertheless experience significant morbidity and mortality during the acute decompensation, including physical and psychological suffering. Palliative care, with its specialized focus on alleviating suffering, aligns treatments with patient and caregiver values and improves overall care planning. Integrating palliative care into cardiovascular disease management extends the therapeutic approach beyond life-sustaining measures to encompass life-enhancing goals, addressing the physical, emotional, psychosocial, and spiritual needs of critically ill patients. This American Heart Association scientific statement aims to explore the definitions and conceptual framework of palliative care and to suggest strategies to integrate palliative care principles into the management of patients with critical cardiovascular illness.

Read More

A new era of healing: How home care is changing the healthcare landscape

05/16/25 at 02:00 AM

A new era of healing: How home care is changing the healthcare landscape Repertoire Magazine; 5/13/25 Older adults often prefer receiving care in familiar surroundings, which enhances their comfort and quality of life. Home health services enable patients to age in place, reducing the need for institutional care, such as nursing homes. ... For the May issue, Repertoire Magazine spoke to several experts – from distributors to providers – on the current realities of the home care market and what’s in store in the years to come. ...

Read More