Literature Review

New inmate comfort care program launched for terminally ill patients ABC WTXL 27, Tallahassee, FL; by Tier Wootson; 6/6/25 The Leon County Sheriff's Office and Big Bend Hospice are teaming up for a new Inmate Comfort Care Program for Terminally Ill Patients. In the press release, LCSO says that due to this new partnership, there will now be an inpatient hospice room within the Leon County Detention Facility. They say this has been developed over the last year with collaboration between LCSO leadership, healthcare leaders from YesCare, and representatives from Big Bend Hospice. ... The program is for inmates who have less than one week to live. While in hospice care, family members will be able to visit loved ones in a "peaceful and private environment."

A World War II hero is facing his final battle - with Medicare | PennLive letters PennLive Patriot News; by PenLive Letters to the Editor; 6/5/25 “Is this how one treats a 100-year-old World War II Army veteran?” I am such, having defended my country in the Philippines and then as one of the first GIs to step on Japan’s shores when it surrendered. Today, I am a widower, living alone under hospice care in the same small, comfortable home my wife and I cherished for so many years. My health condition has deteriorated dramatically, due to the ravages of ESRD, bladder cancer, anemia, high blood pressure, depression, and loss of balance. I am mostly bedridden, waiting for the inevitable. And yet, just now, I have received a Notice of Discharge from hospice because of an “extended prognosis,” literally meaning in lay terms that, “I’m living too long for hospice and Medicare purposes.” They argue that I’m now able enough medically to make it on my own without hospice care! ... I know I have only weeks, perhaps a month to live, but their rejoinder is simply, “Thank you for your service, but get out of our sight.”Editor's note: Click here for a similar related article and my editor's note, Dementia patient discharged from hospice over Medicare requirement. Here’s why it happened. (One of our "most read" Sunday posts.) These cases are too common. Basic communication, information, and coordinated care planning can mitigate much of the distress and pain. How does this dynamic play out with the patients and families you serve?

HHS faces $31B cuts in proposed FY ’26 budget: 6 notes Becker's Hospital Review; by Madeline Ashley; 6/2/25 President Donald Trump’s proposed fiscal 2026 budget slashes funding for the National Institutes of Health by $18 billion to $27.5 billion as part of a sweeping overhaul to realign federal healthcare spending.  The NIH received $46.4 billion in program level funding in 2024 and just over $46 billion in 2025, according to the budget proposal. [Continue reading for this article's lists of (1) consolidated institutes and centers; and (2) "six things to know."]

7 Brutal truths about leadership no one tells you at 29Forbes; by Nirmal Chhabria; 5/29/25At 29, I was handed my first leadership role. Six months later, I was drowning—my inbox was overflowing with problems, top performers were quitting and morale was plummeting. "What am I doing wrong?" I asked my mentor. "You're trying to be the hero instead of creating heroes," she replied. That conversation began my real leadership education—years of failures that revealed truths I wish I'd known from day one. Here are seven leadership insights that only experience taught me:

LeadingAge, Hospice Associations seek delay in HOPE implementation LeadingAge; Press Release; 5/28/25 LeadingAge, along with the National Alliance for Care at Home and the National Partnership for Healthcare and Hospice Innovation, on May 19 urged the Centers for Medicare and Medicaid Services (CMS) to delay implementation of the Hospice Outcomes and Patient Evaluation, or HOPE tool. In the letter to CMS Administrator Dr. Mehmet Oz the associations outline concerns with technology implementation in preparation for the HOPE tool. The letter specifically asks CMS to waive the HOPE timeliness submission requirement for two calendar quarters post implementation. The letter further requests that CMS delay the HOPE implementation date until at least six months after CMS education, training, and final validation specifications are available and the application for iQIES access has been opened for hospices. 

Remove barriers that restrict hospice care, Alliance offers in new report McKnights Home Care; by Adam Healy; 5/28/25 Hospice providers can boost quality and patient satisfaction with a focus on transparent, culturally sensitive communication with clients, according to a new report by the National Alliance for Care at Home. ... For the report, the Alliance surveyed 2,000 adults who either recently experienced the death of a loved one or have been involved in healthcare decisionmaking for a person with a serious illness. Respondents included individuals of a variety of ages, income levels, ethnicities and educational backgrounds. ... . For many seniors, one of the largest barriers to care is ineffective communication, the survey found. Language barriers are a significant hurdle for non-English speaking older adults, particularly those who are first generation immigrants, it noted. Many seniors are also less comfortable with technology-based communication than younger people, and prefer face-to-face conversation over text messages.

Jewish hospice volunteer goes beyond ‘Shabbat blessings’ with ‘Froth and Bubble’ Jewish News; by Shannon Levitt; 5/20/25 Jeff Lewis, 71, had about 100 boxes of books with him when he moved to the Valley from California more than a decade ago. Surprisingly, those books became his first link to Hospice of the Valley (HOV), an organization that would become very important to him through the years. ... Thus, when he decided to retire from his photography business but wanted to stay busy, his friend again nudged him toward HOV and its Shabbat Blessings volunteer program. ... As a Shabbat Blessings volunteer, Lewis, a member of Temple Solel in Paradise Valley, offers hospice patients a small Shabbat service, including lighting Shabbat candles, saying the Hamotzi and Kiddush blessings and offering small prayers. [Story of patient financially choosing between medicine and food.]  ... [Lewis} started buying $75 grocery gift cards to give away. [This developed into] The Froth and Bubble Foundation for Food Assistance. Editor's note: This inspirational Shabbat blessings story tells the rich background behind our 3rd top-read story from last week, Hospice volunteer donates 10,000 gift cards to cancer patients. Scroll to the end of this story for the meaning behind the name "Froth and Bubble." 

Don't aim at success. The more you aim at it and make it a target, the more you are going to miss it... success will follow you precisely because you had forgotten to think about it. ~Viktor Frankl, Man's Search for Meaning

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

If you have knowledge, let others light their candles in it. ~Margaret Fuller

A single academic site study of five years evaluating pharmacy students’ palliative care clinical reasoning using Script Concordance TestingAmerican Journal of Hospice ad Palliative Medicine; Florence Labrador, PharmD-c; Kyle P. Edmonds, MD, FAAHPM; Toluwalase A. Ajayi, MD, FAAP, FAAHPM; Rabia S. Atayee, PharmD, BCPS, APh, FAAHPM; 5/25This study aimed to evaluate the impact of a Pain and Palliative Care elective didactic course on enhancing clinical reasoning skills among Doctor of Pharmacy (PharmD) students using the Script Concordance Test (SCT). The elective course was offered six times, covering various palliative care topics such as opioid management, procedural pain, and end-of-life care. The study found a statistically significant improvement in SCT scores from pre- to post-course assessments ... This study demonstrates the effectiveness of a targeted palliative care elective in improving clinical reasoning skills among pharmacy students.

Palliative care for patients with end-stage renal disease-An examination of unmet needs and experiencing problemsJournal of Hospice & Palliative Nursing; Darawad, Muhammad W. PhD, RN; Reinke, Lynn F. PhD, ANP-BC, FPCN, FAAN; Khalil, Amani PhD, RN; Melhem, Ghaith Bani PhD, RN; Alnajar, Malek MSN, CNS, RN; June 2025Patients with end-stage renal disease face numerous physical, emotional, and financial burdens, necessitating palliative care (PC) interventions. This cross-sectional study ... revealed that 64.7% of participants experienced significant challenges, primarily financial difficulties (78.5%), autonomy concerns (68.8%), and a need for information (68.0%). More than half (51.9%) reported needing PC [palliative care], particularly for managing fatigue (78.3%), pain (79.8%), and depression (72.9%). Unmet needs were common (47.6%), with the most notable gaps in financial support (52.5%) and information provision (50%). These findings underscored the urgent need for tailored PC interventions for end-stage renal disease patients, particularly in addressing symptom management, psychosocial and spiritual support, financial support, and information deficits, to enhance their quality of life.

Describing the impact of physician end-of-life communication training on simulated stress using a novel stress marker American Journal of Hospice and Palliative Medicine; by Amy H. J. Wolfe, MD, MEd, Pamela S. Hinds, PhD, RN, FAAN, Adre J. du Plessis, MD, Heather Gordish-Dressman, PhD, and Lamia Soghier, MD, MEd-2; 3/25/25 Introduction: Empathetic end-of-life (EOL) communication is important for high quality pediatric patient and family outcomes. Trainees may have limited exposure and training in caring for patients at EOL which may impact communication-related stress. ...  Conclusions: Pediatric residents report limited opportunities to communicate with patients/families at EOL, which may impact stress responses when communicating life-altering news to families. Simulated communication encounters can be designed to evoke subjective and objective stress which can be measured using novel technology and may help address limited EOL opportunities.