Literature Review

Children's Respite Homes of America aims to address the severe lack of children's respite and palliative care homes in the U.S. Cision PRWeb, Scottsdale, AZ; by Children's Respite Homes of America; 3/11/25 Twenty years ago, there were no dedicated children's respite and palliative care homes in the United States. Today, there are only a handful. By contrast, the United Kingdom—a country one-fifth the size of the U.S.—has developed a network of 54 children's respite and palliative care homes. Based on population, the U.S. would need over 250 similar homes to provide equitable access. The disparity leaves countless families without essential respite care, and Children's Respite Homes of America aims to change that. ... Cottor, who co-founded Ryan House in Phoenix, Arizona, alongside his wife Holly and with strong community support, established Children's Respite Homes of America with an ambitious but necessary goal: to develop 50 children's respite and palliative care homes in 50 cities within the next five years. ...

Research brief: Medicare Advantage Special Needs Plans linked to use of inferior hospice carePenn LDI - Leonard Davis Institute of Health Economics; 3/11/25 Beneficiaries of Medicare Advantage special needs plans are significantly more likely to use lower-quality hospices than beneficiaries of other Medicare plans. These disparities may result from the geographic availability of high-quality hospices or the referrals that beneficiaries receive from their plans’ contracted hospitals and nursing homes. The results support incentivizing referrals to high-quality hospices and improving consumer information about hospice quality.

[Ukraine] 'Support to the end’: Religious sister brings palliative care to unborn babies in Ukraine The Catholic World; by Hannah Brockhaus; 3/10/25 Since 2020, a pandemic and then an active war have caused untold tragedy for Ukrainians, but these circumstances have also allowed the country to confront death and grief in a way it never did before, according to a religious sister who offers palliative care to unborn children and their families. In Ukraine, “one couldn’t and wouldn’t talk about death before the COVID pandemic,” Sister Giustina Olha Holubets, SSMI, told CNA earlier this month. The more open a society is about death and loss and grief, she said, the easier it is to know how to respond to a family going through the pain of losing a child in the womb or shortly after birth. A Byzantine Catholic and member of the Sister Servants of Mary Immaculate, Holubets has degrees in bioethics, psychology, biology, and genetics. In 2017, she founded the nonprofit organization “Perinatal Hospice – Imprint of Life” in Lyiv, Ukraine, which she currently leads. ...

CMS deletes Medicare Advantage vision statement, signaling another shift from health equity Fierce Healthcare - Regulatory; by Noah Tong; 3/10/25 The Centers for Medicare & Medicaid Services (CMS) wiped away the agency’s stated intentions for the future of Medicare Advantage (MA), underlining new uncertainty for the future of health-related social needs, CMS Innovation Center models and the federal health program. ... A frequently asked questions page gave further explanation, as did an executive summary of a report to be released in early 2025. The page included a section with the question, “What is CMS’ vision for the future of the MA program?” as of Feb. 22, archived versions of the web page shows. But that question and answer was quietly deleted, and the page was last modified Feb. 26. It previously described how the VBID model helped health plans address health-related social needs and stressed health equity as an important cornerstone of its mission. ... The CMS did not immediately respond to a request for comment.

PBS documentary, Going Your Way, premieres nationally March 31 Nine PBS, St. Louis, MO; by Sarah Brandt; 3/11/25 A new documentary produced in St. Louis by Nine PBS, Going Your Way, will get a national premiere on PBS stations across the country on Monday, March 31. It will air locally at 9 p.m. and 10 p.m. Central, following the network’s popular series Antiques Roadshow. The documentary debuted locally on Nine PBS in October 2024. Going Your Way focuses on the personal, medical and spiritual issues surrounding end-of-life care, the options available, and steps that can be taken to put those wishes to practical use. The documentary’s title highlights the active role many people are now taking to ensure their death goes according to their own plans and wishes. The film was produced with expert consultation from the Oasis Institute and features insights from health professionals in St. Louis, ... [and] personal stories of families dealing with these decisions and issues ...

Mass General Brigham begins 2nd round of layoffs Becker's Hospital CFO Report; by Alan Condon; 3/10/25 The second of two rounds of layoffs at Mass General Brigham began March 10, with about 1,500 employees reportedly affected by the overall workforce reductions, according to The Boston Globe. The layoffs, the largest in the Somerville, Mass.-based health system's history, were announced in early February. The workforce cuts stem from "the same unrelenting pressures affecting many healthcare systems across the country," as the system faces a projected budget gap of $250 million within two years, a spokesperson told Becker's. Mass General Brigham, the largest health system in the state, said the layoffs primarily affect nonclinical and nonpatient-facing roles to "enhance efficiency, reduce costs and maximize support for front-line clinicians." 

21 large health systems growing bigger Becker's Hospital Review; by Alan Condon; 3/7/25 Merger and acquisition activity is rebounding after a drop in deal volume during the pandemic, with many large health systems growing their hospital portfolios or planning to add more hospitals in the coming quarters. Twenty-one large health systems growing bigger: 

Nursing students gain valuable insights into global palliative care and cultural perspectives UConn Today, University of Connecticut; by Grace Fontanarosa; 3/11/25 School of Nursing assistant clinical professor Amisha Parekh de Campos, Ph.D., MPH, RN, CHPN, along with senior nursing students Gillian Fulton ’25 (NUR) and Abigail Schwartz ’25 (NUR) recently returned from the End-of-Life Experiential Global Learning (EGL) spring program in Belgium. ... In such an intensive program, there is much to process. Parekh de Campos and her students regularly debriefed to address questions and embrace openness to other cultural beliefs and perspectives. “Going in, we were very focused on the medical aspect of palliative care, and this program shifted our focus to the psychosocial aspects of end of life,” say Fulton and Schwartz. 

J-Sei Home closes after 30 years, leaving Bay Area Japanese seniors in need KQED, San Francisco, CA; by Cecilia Lei; 3/10/25 ... For decades, Bay Area Japanese American families have sought culturally sensitive senior care facilities like J-Sei Home for aging loved ones. Community members said that about a decade ago, there were approximately 10 Japanese senior care homes in the region. Today, that number has declined by about half. The most recent closure came in January, when the last residents of J-Sei Home moved out, and the facility permanently closed its doors after 30 years of operation. A majority of the displaced residents were Japanese Americans in their 90s and had cognitive impairment. ... They had tender caregivers who spoke Japanese. They ate familiar comfort foods like miso soup and pickled vegetables, and they participated in daily activities such as drum circles and singing Japanese songs. ...

Trends in Pediatric Palliative Care Research (TPPCR) 2025; Issue #2 Siden Research Team; Commentary by Kim Mooney-Doyle, MD; 3/6/25Kim Mooney-Doyle – University of Maryland School of Nursing, MD, USA: I am a nurse scientist dedicated to advancing family health in serious pediatric illness. I have studied parent-sibling relationships and the social ecological factors that impact it for the past decade. ... Siblings are special and, too often, invisible in the care of seriously ill children, adolescents, and young adults. Two articles in this month’s collection bring the needs and experiences of siblings into focus using a family lens. A key take-away from this important work is that while siblings want to communicate with their parents about their brother’s or sister’s illness, it can be hard to initiate such conversations. As clinicians and researchers, we can work with families to devise strategies that foster these conversations, such as providing prompts or a scripted conversation guide to help a parent engage the sibling.  

13 hospital transactions in 1 week Becker's Hospital Review; by Madeline Ashley; 3/4/25 The end of February into early March saw a wave of hospital transactions, signaling a shift in healthcare ownership and operations across the country. Below are the 13 hospital transactions that Becker's has reported on since Feb. 27:

Assessing pain, anxiety and other symptoms of nursing home residents unable to speak for themselves Regenstrief Institute, Indianapolis, IN; by Kathleen T. Unroe, MD, MHA; 3/10/25 Revamped tool reliably addresses physical and emotional distress, well-being and end-of-life symptoms. As many as half of nursing home residents are cognitively impaired and may be unable to communicate symptoms such as pain or anxiety to the staff and clinicians caring for them. Therefore, information needed for the evaluation of symptoms and subsequent treatment decisions typically does not reliably exist in nursing home electronic health records (EHRs). A new paper reports on the novel adaptation of a commonly used symptom assessment instrument to more comprehensively acquire this difficult-to-obtain data with the ultimate goal of enabling knowledge-based expansion of palliative care services in nursing homes to address residents’ symptoms. 

We are all storytellers. We all live in a network of stories. There isn't a stronger connection between people than storytelling. ~ Jimmy Neil Smith, Founder and President Emeritus of the International Storytelling Center