Literature Review

Florida Hospice and Palliative Care Association celebrates leaders of compassion at 2025 Annual Awards of ExcellenceFHPCA press release; 6/9/25At its 2025 Annual Forum held in Orlando, the Florida Hospice and Palliative Care Association (FHPCA) proudly recognized extraordinary individuals and teams who have set the standard for excellence in hospice and palliative care across the state. The Annual Awards of Excellence... highlight the leaders, caregivers, collaborators, and changemakers who embody the heart of the hospice mission. [Congratulations to these Honorees:]

Terminally ill woman, 35, cancels plans - best friend’s reaction backed Miami Herald, Miami, FL; by Lydia Patrick, Newsweek Life; 6/5/25 A woman has sparked an outpouring of support online after admitting she felt relieved when her terminally ill best friend canceled their remaining plans. The anonymous Reddit user, ... shared her emotional experience ... where her confession received over 8,000 upvotes and hundreds of comments. She explained that her best friend, Sarah, 35, had been diagnosed with an aggressive form of pancreatic cancer and her condition rapidly worsened. ... In an effort to make the most of her time, Sarah created an ambitious bucket list, which included a trip to the coast, a party, and a final hike to her favorite mountain. However, after halting treatment, she transitioned into hospice care and most of the planned activities were either canceled or significantly scaled back. ... [Serving as primary caregiver, she wrote,] "And I'm relieved. I'm utterly, profoundly ashamed to admit it, but I'm exhausted. Mentally, emotionally, financially. ..." ... Dr. Terri Daniel, a grief counselor and hospice chaplain at Forest Park Hospice, told Newsweek the Redditor's experience is not uncommon and far from selfish.

Hospice of Southern West Virginia to host Father’s day Grief Support Session on June 10 ABC WOAY-4, Beckley, WV; by Brandy Lawrence; 6/6/25 As Father’s Day approaches, many individuals face a renewed sense of loss and sorrow.  To provide comfort and support during this emotionally challenging time, Hospice of Southern West Virginia will hold a special grief support session focused on coping with the loss of a father or paternal figure.  The session is scheduled for Wednesday, June 10, from 5:30 p.m. To 7:00 p.m. At Bowers Hospice House.  The event is open to anyone in the community navigating the grief of losing their father or father figure.  Editor's note: Bravo to Hospice of Southern West Virginia, especially for opening this support to "anyone in the community ..." and for including "or father figure"! Are you hosting a Father's Day-related grief support event, or another type of Father's Day support? Let us know, preferably with a URL link to your description.  

Sister Grace spent her life helping the homeless. Now in hospice, she reflects on legacy and lessons WXXI News NPR, Rochester, NY; by Gino Fanelli; 6/6/25Sister Grace Miller smiles as she props herself up in her hospice bed and gently teases her strands of chestnut brown hair. “How does my hair look?” she asks. It’s the type of remark one would expect from Miller. Sister Grace is many things: a radical compassionate, a devout follower of the Catholic faith, a civil disruptor, and a wielder of a sharp, slightly sardonic wit. ... The 89-year-old champion for the homeless and destitute is dying, in hospice care at a congregation home on Carter Street. But her spirit is alive and well. “I would fight with them over whatever, whatever the people needed,” Miller said, referring to the county and city administrations she often tangled with over the years. “I would fight for the people. ... She said it was, ultimately, an undying, uncompromising commitment to the work she does as a fierce and fearless advocate for the poor.

National group, Oregon Death with Dignity leader says ‘modernization’ bill strips safeguards The Lund Report; by Nick Budnick; 6/5/25 Barbara Coombs Lee, co-author of Oregon’s first-in-the-nation Death with Dignity law, as well as the national assisted-dying group Compassion & Choices, oppose parts of a state Senate bill that they say would remove key safeguards from the law. ,,, [The] group is “very much opposed” to some changes the bill makes, such as eliminating the “fail-safe” of requiring a second doctor vouch for the patient’s state of mind. The group does not support the bill unless it restores needed safeguards, she said. ... The bill makes the most significant changes yet to the law. It would shorten the mandatory waiting period to seven days from the current 15. It also streamlines requirements for institutions to notify patients of their Death With Dignity policies by allowing them to post notices on their websites, and permits electronic transmission of lethal prescriptions. 

Nurse Elaine Gillard and her lifelong calling for caring New York Amsterdam News; by Leyrian Colón Santiago; 6/5/25 Treating patients with dignity and with an awareness of the disparities that Black people face in accessing health care were the two main reasons Elaine Gillard decided to become a nurse 14 years ago. ... According to a 2024 analysis, Black-American New Yorkers experienced the lowest health system performance in the state compared to white individuals. For Gillard, a 41-year-old native of Staten Island and a nurse at VNS Health Care, the disparities affecting the Black-American population were what inspired her to focus her nursing career on hospice care. ... Gillard believes that being a Black nurse and caring for patients from Black-American communities helps foster greater trust in the health care system.

Alive welcomes local healthcare leader as new CEO Alive Hospice; Press Release; 6/4/25 Alive, Middle Tennessee’s only nonprofit provider of hospice, palliative care and end-of-life services, today announced Amir Hamad as the organization’s new president and chief executive officer. He will begin his new role on June 30. A healthcare executive with more than 20 years of experience, Hamad comes to Alive from Ascension Saint Thomas Hospital West where he served as Vice President and Chief Nursing Officer overseeing over 1,800 employees and managing operations for one of the state’s top acute care hospitals. Hamad’s hiring comes as the beloved organization is gearing up to celebrate its 50th Anniversary in November. Alive was the first hospice established in America’s heartland and the third in the nation in 1975. 

Cleveland Clinic virtual care service expands throughout US Becker's Health IT; by Giles Bruce; 6/4/25 The Clinic by Cleveland Clinic, a virtual second opinion service, is expanding its licensure to thousands of additional providers across the nation. The Clinic partnered with credentialing company Baton Health to grow its provider licenses to more than 10,000, spanning the entire country. The Clinic, a joint venture between Cleveland Clinic and telehealth company Amwell, offers quick access to physicians and subspecialists for virtual second opinions. 

10 Signs death is near for dementia patients The Healthy; by Dr. Patricia Varacollo, DO; 6/2/25 For families and caregivers, recognizing the final stages of dementia can be difficult, but understanding the signs can help ensure comfort and dignity in a loved one's last days. Dr. Koncilja highlights these key indicators that may suggest the end of life is near:

Hope Hospice Center celebrates in Missoula ahead of July openingKPAX News; by Jill Valley; 6/3/25After an eight-year journey marked by community support, the Hope Hospice Center held a dedication and ribbon-cutting ceremony Tuesday ahead of its July opening. The state-of-the-art facility is only the second of its kind in Montana... The dream of the Hope Hospice Center began in 2017 as community leaders and healthcare professionals recognized the need for specialized end-of-life care in the region... The $15.4 million project was supported 100% by philanthropic giving.

MLN Fact Sheet: Creating an effective Hospice Plan of CareCenters for Medicare & Medicaid Services, Medicare Learning Network (MLN); 5/10/25 The hospice plan of care (POC) maps out needs and services given to a Medicare patient facing a terminal illness, as well as the patient’s family or caregiver. CMS data shows that some hospice POCs are incomplete or not followed correctly. This fact sheet educates on creating and coordinating successful hospice POCs. The primary goal of hospice care is to meet the holistic needs of an individual and their caregiver and family when curative care is no longer an option. To support this goal:

Ethics talk: Are private equity investments really different from other ownership structures in health care?AMA Journal of Ethics, Podcast May 2025; by Robert I. Field, PhD, JD, MPH; 5/30/25Dr. Robert I. Field joins Ethics Talk to discuss whether and to what extent private equity firms’ increasing presence in health care deserves our scrutiny and what policy makers, clinicians, and patients should know about responding to private equity ownership stakes in the organizations where they work and where they go for health services. 

Hospices facing a US caregiving ‘crisis’ Hospice News; by Holly Vossel; 6/2/25 Family caregivers in the United States are being challenged by a swelling aging population inneed of greater support and stronger policy infrastructures. Much room for improvement exists at both state and federal levels when it comes to recognizing the important roles that family caregivers play, according to Steven Lee, co-founder and CEO of ianacare, a Boston-based patient and caregiver resource company. More innovative care models and disease-specific reimbursement options have widened pathways for hospice providers to improve family caregiver support, Lee said in a recent Hospice News Elevate podcast. But these fall short of addressing the diverse scope of practical, emotional and financial needs, he stated. Editor's note: This article has an excellent map of US states with caregiver categories for "Well-Supported," "Safe for Now," "High Risk," and "Critical" (courtesy of Otsuka America Pharmaceutical). Additionally, our sponsor Hospice Analytics provides the National Hospice Locator, for caregivers/families to find hospices that serve in each US county, and sorted by their quality scores. And, our sponsor Composing Life equips hospice organizations with caregiver/family video libraries that span the continuum of serious illness, hospice, and grief care.