Literature Review

HR1: The One Big Beautiful Bill Act - Provisions relevant to Medicaid HCBS providersNational Alliance for Care at Home; 7/7/25The Alliance has created a detailed summary for providers that deliver Medicaid-funded home and community-based services (HCBS) about provisions in the House Resolution 1, the One Big Beautiful Bill Act, also known as the “Reconciliation” bill. View the Alliance's recent statement following House passage of the bill. President Trump signed the legislation on July 4, 2025, and therefore the provisions below will now become law.Publisher's note: Membership required to access full analysis. Also, direct hospice impact appears minimal; indirect hospice impact (e.g., hospice impact as a result of Medicaid nursing home impact) unclear.

Reopening of Hospice House stalls after Seasons Hospice exits Steele County Southernminn, Faribault, MN; by Annie Harman; 7/1/25 What has been a continuing journey of peaks and valleys has come upon yet another roadblock as volunteers with the Homestead Hospice House announce the reopening of the residential hospice facility will be put on hold. The news comes after Seasons Hospice, a nonprofit hospice care organization based out of Rochester, has made the decisions to discontinue their home care and hospice services in Steele County. Seasons had initially partnered with the board of the Homestead Hospice House in August 2024 to work toward reopening the facility, raising $850,000 — $350,000 to reopen the facility and cover startup funds for IT and staff, and an additional $500,000 to secure operating funds for the first year. 

We all have wisdom inside us, my friend, but it's a very quiet, gentle voice, so you might need to be very still to hear it. ~ James Norbury, The Journey

Introducing Little Lights Pediatric Hospice Bristol Hospice; Blog; 7/1/25 When a child faces a life-limiting diagnosis, every moment becomes precious—and that’s why Bristol Hospice is shining a new light on pediatric care. On July 1, 2025, we’re proud to launch Little Lights Pediatric Hospice—our first dedicated program designed specifically for young patients and their families, initially available in Hawaii. ... Little Lights Pediatric Hospice is a specialized program under Bristol Hospice dedicated to providing holistic, family-centered care for children with life-limiting conditions. 

5 ways to have a ‘good death’ — including one of the biggest mistakes people make New York Post; by Reda Wigle; 7/3/25 No one gets out of life alive — but one expert says we can take steps to make sure we leave the earthly plane riding the high of a “good death.” “While 80% of people want to die at home surrounded by loved ones, only 30% actually do,” End Well founder Dr. Shoshana Ungerleider told The Post. “This massive gap reflects our system’s inability to honor what patients actually value.” As our cultural relationship to mortality has changed, Ungerleider notes that we have become disconnected from the process of death and, in turn, fail to plan appropriately for it. But if you’re not sure where to start, she has a helpful checklist of everything you should be doing to avoid a “bad death.”

When less is more: Addressing polypharmacy in high-risk populations Pharmacy Times; by Andrew E. Esch, MD, MBA and Alain Hipensteele; 7/7/25 As digital health tools and artificial intelligence (AI)–powered clinical decision support systems become increasingly embedded in pharmacy workflows, pharmacists are gaining new opportunities to identify and address the risks of polypharmacy—particularly in high-risk populations such as older adults and those receiving palliative care. At the same time, evolving deprescribing guidelines and ongoing drug shortages have underscored the need for coordinated, patient-centered medication management strategies. In this interview with Pharmacy Times®, Andrew E. Esch, MD, MBA, director of the Palliative Care Program Development at the Center to Advance Palliative Care, discusses how pharmacists are using emerging technologies to streamline medication reviews, reduce therapeutic duplication, and engage caregivers in deprescribing conversations. 

20 states sue after the Trump administration releases private Medicaid data to deportation officials Associated Press (AP), Washington, DC; by Amanda Seitz and Kimberly Kindy; 7/1/25The Trump administration violated federal privacy laws when it turned over Medicaid data on millions of enrollees to deportation officials last month, California Attorney General Rob Bonta alleged on Tuesday, saying he and 19 other states’ attorneys general have sued over the move. Health secretary Robert F. Kennedy Jr.’s advisers ordered the release of a dataset that includes the private health information of people living in California, Illinois, Washington state, and Washington, D.C., to the Department of Homeland Security, The Associated Press first reported last month. All of those states allow non-U.S. citizens to enroll in Medicaid programs that pay for their expenses using only state taxpayer dollars.

Hospice Savannah launches The GUIDE Model for Dementia Care Savannah Business Journal; by Staff Report; 6/30/25 Hospice Savannah will launch their latest program, Guiding an Improved Dementia Experience (GUIDE), on July 1 through the Steward Center for Palliative Care in partnership with the Edel Caregiver Institute. The GUIDE model offers enhanced services for people living with dementia along with support for their caregivers. Its’ focus is to bring high-quality dementia care for all individuals, including those in underserved communities.GUIDE recognizes the complex challenges families face in caring for a loved one with dementia. This model provides a framework for delivering care with additional resources that were not available until now.  

Essentia Health is putting Duluth Hospice patients in jeopardy, healthcare workers speak out Minnesota Nurses Association; Press Release; 7/1/25 In a move hospice nurses are calling “cruel and unnecessary,” Essentia Health has informed staff that it will suspend patient care at Solvay Hospice House beginning July 8, the same day an open-ended unfair labor practice (ULP) strike is set to begin across Duluth hospitals. The Minnesota Nurses Association has proposed seven bargaining dates in the week before the strike, but Essentia Health has not accepted a single date for Solvay Hospice House or its hospitals and clinics. Solvay healthcare workers say these transfers are not being driven by a shortage of caregivers, but by Essentia’s refusal to engage in good faith bargaining with frontline healthcare workers at Solvay and across Duluth facilities. Caregivers at Solvay have been seeking a fair contract for nearly a year. 

Avera Medical Minute: Family shares their experience with hospice care Dakota News Now, Sioux Falls, SD; by Dakota News Now staff; 6/30/25 Hospice care is more than just medical support. At the Dougherty Hospice House, it can be considered a home away from home, where staff aim to offer patients and their families the assistance and comfort they need during this difficult time. In this Avera Medical Minute, one Sioux Falls family shares how, thanks to the hospice team, they were able to focus on spending time with their loved one. Craig Lloyd was known as a development leader in the Sioux Falls community, building homes and more throughout the city. “He had a big heart, so he just kept trying to improve things, his thought was always ‘God put me on this Earth to make it better,’” said Craig’s wife, Pat Lloyd. ... Craig was also in Florida at the time when he needed hospice care and Pat credits the work of Avera and the hospice team in making a smooth transition for Craig from there to home in Sioux Falls and then to Dougherty Hospice House.

Pennant announces home health acquisition in Southern California Classic 96.7 FM BWZ, Eagle, ID; 7/1/25; 7/1/25 The Pennant Group, Inc. (NASDAQ: PNTG), the parent company of the Pennant group of affiliated home health, hospice, home care and senior living companies, announces the acquisition of a premier home health agency, GrandCare Health Services. The newly acquired agency, to be known as GrandCare Home Health, provides services in Los Angeles, Orange, Riverside and San Diego counties in California, and broadens Pennant’s service area in the region. 

Center for Acute Hospice Care to close in August 29 News, Charlottesville, VA; by Jacob Phillips; 7/1/25 After nearly a decade of offering around-the-clock end-of-life care, Hospice of the Piedmont is closing their Center for Acute Hospice Care (CAHC) on Ivy Road in Charlottesville in August. “It gives us an opportunity to concentrate more on where patients want to be, which is home, and those services will still be provided,” Hospice of the Piedmont President and CEO Nancy Littlefield said. “[CAHC] is a 10-bed unit that we lease...and it’s for patients who might be having needs of a higher level of hospice care.” Littlefield says the main reason for closing the center is the lease is coming to an end and with uncertainty surrounding federal budget cuts of hospice care, continuing in this location is not sustainable. “Our hospice, as well as all hospices across the state, are having to be very cautious about what Medicaid and other reimbursement changes may occur under the current administration,” Littlefield said, “and I think the worst thing we can do for families and patients is to not be prepared.”

Petaluma and Santa Rosa hospice workers kick off 2-day strike against Providence Petaluma Argus-Courier, Petaluma, CA; 7/2/25 Nearly 100 hospice workers and supporters protested in Petaluma and Santa Rosa on Wednesday as part of a two-day strike against what they call bad-faith bargaining with Providence as the health care giant joins forces with a private equity-backed hospice company. The hospice workers, who are represented by the National Union of Healthcare Workers, said they’ve been locked in negotiations for their first contract for two years and are frustrated with Providence’s “stalling.” They accuse the health care provider of not wanting to settle their contract while it works on a joint venture with a for-profit company.